Loading...

National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Enter the email address associated with your existing NDA Account and click Continue Linking Process.

If you do not have an existing NDA account, click Go Back.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Success! An email is on its way!

Please check your email to complete the linking process. The link you receive is only valid for 30 minutes.

Check your spam or junk folder if you do not receive the email in the next few minutes.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
Create or Link an Existing NDA Account

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

NIMH Data Archive (NDA) Sign In or Create An Account
Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;
Update Password

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Data Access Terms - Decline Terms

Are you sure you want to cancel? This will decline terms and you will not be authorized for access.

NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

ABCD Longitudinal Parent Medical History Questionnaire

0 Shared Subjects

Medical history and health services utilization (update)
Clinical Assessments
Med History
01/12/2019
abcd_lpmh01
05/13/2021
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
eventname String 60 Recommended The event name for which the data was collected
Query medhx_l_select_language___1 Integer Recommended ¿Español? (1, Sí) 0 ; 1 0 = No; 1 = Yes medhx_select_language_p_l, medhx_select_p_language
Query medhx_1a_l Integer Recommended During the past year, has your child been to see a doctor, nurse, nurse practitioner, dentist, or any other health professional like that, OTHER than for regular checkups? En el último año, ¿su niño(a) ha visto a un médico, enfermero(a), dentista o algún otro profesional similar de la salud, por algún motivo DISTINTO a sus chequeos periódicos? 1 ; 0 ; 6 1 = Yes SÍ; 0 = No No; 6 = Don't know No sé medhx_1a_dr_past_yr_p_l
Query medhx_2a_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Asthma Asma 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2a_asthma_p_l
Query medhx_2b_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Allergies Alergias 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2b_allergies_p_l
Query medhx_2c_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Brain Injury Lesión Cerebral 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2c_brain_injury_p_l
Query medhx_2d_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Bronchitis Bronquitus 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2d_bronchitis_p_l
Query medhx_2e_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Cancer/Leukemia Cáncer/Leucimia 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2e_leukemia_p_l
Query medhx_2f_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Cerebral Palsy Parálisis Cerebral 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2f_cerebral_palsy_p_l
Query medhx_2g_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Diabetes Diabetes 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2g_diabetes_p_l
Query medhx_2h_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Epilepsy or Seizures Epilepsia o convulsiones 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2h_epilepsy_p_l
Query medhx_2i_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Hearing Problem Problema Auditivo 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2i_hearing_p_l
Query medhx_2j_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Kidney Disease Enfermedad Renal 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2j_kidney_disease_p_l
Query medhx_2k_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Lead Poisoning Intoxicación por Plomo 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2k_lead_poison_p_l
Query medhx_2l_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Muscular Dystrophy Distrofia muscular 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2l_musculary_dys_p_l
Query medhx_2m_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Multiple Sclerosis Esclerosis múltiple 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2m_multiple_sclerosis_p_l
Query medhx_2n_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Problems with Vision (including the need for glasses) Problemas de la vista (incluyendo la necesidad de lentes/gafas) 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2n_vision_p_l
Query medhx_2o_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Problems with Heart Problemas del corazón 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2o_heart_p_l
Query medhx_2p_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Sickle Cell Anemia Anemia de células falciformes 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2p_sickle_cell_p_l
Query medhx_2q_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Very Bad Headaches Dolores de cabeza muy intensos 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2q_headache_p_l
Query medhx_2r_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? An Operation Cirugías 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_2r_operation_p_l
Query medhx_2_notes2_l Integer Recommended medhx_2r_l == '1' Since we last saw you, has she/he been to a doctor for any of these things? Any Other Illness Cualquier otra enfermedad 1 ; 0 1 = Yes SÍ; 0 = No No// Now I'd like to ask you about your child's use of health services since we last saw you on_____.
Query medhx_4a_l Integer Recommended Has your child been to an emergency room since we last saw you? 1 ; 0 ; 6 ; 7 1 = Yes Sí; 0 = No No; 6 = Don't know No Sé; 7 = Refuse to answer Niego contestar// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_4a_er_p_l, medhx_4a_er_past_yr_p_l
Query medhx_4b_l Integer Recommended medhx_4a_l == '1' How many times has your child been to the emergency room since we last saw you on [asnt_timestamp_c]? 1 ; 2 ; 3 ; 4 ; 5 1 = 1 time 1 vez; 2 = 2 times 2 veces; 3 = 3-4 times 3-4 veces; 4 = 5-9 times 5-9 veces; 5 = 10+ times 10+ veces// Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_4b_times_er_before_past_yr_p_l, medhx_4b_times_er_past_yr_p_l
Query medhx_6a_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Broken Bones Fracturas 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6a_broken_bones_p_l
Query medhx_6a_notes_l Float Recommended medhx_6a_l == '1' Broken Bones: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6a_broken_bones_times_p_l
Query medhx_6b_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Sprains Esguinces 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6b_sprains_p_l
Query medhx_6b_notes_l Float Recommended medhx_6b_l == '1' Sprains: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6b_sprains_times_p_l
Query medhx_6c_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Cuts or Scrapes Cortadas o rasguños 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6c_cuts_p_l
Query medhx_6c_times_l Float Recommended medhx_6c_l == '1' Cuts or Scrapes: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6c_cuts_times_p_l
Query medhx_6d_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Stitches Suturas 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6d_stitches_p_l
Query medhx_6d_notes_l Float Recommended medhx_6d_l == '1' Stitches: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6d_stitches_times_p_l
Query medhx_6e_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Other Serious Wounds Otras heridas graves 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6e_other_wounds_p_l
Query medhx_6e_times_l Float Recommended medhx_6e_l == '1' Other Serious Wounds: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6e_other_wounds_times_p_l
Query medhx_6f_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Falls Caídas 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6f_falls_p_l
Query medhx_6f_notes_l Float Recommended medhx_6f_l == '1' Falls: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6f_falls_times_p_l
Query medhx_6g_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Burns Quemaduras 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6g_burns_p_l
Query medhx_6g_times_l Float Recommended medhx_6g_l == '1' Burns: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6g_burns_times_p_l
Query medhx_6h_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? High Fever Fiebre alta 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6h_high_fever_p_l
Query medhx_6h_times_l Float Recommended medhx_6h_l == '1' High Fever: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6h_high_fever_times_p_l
Query medhx_6i_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Head Injury Lesión en la cabeza 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6i_head_injury_p_l
Query medhx_6i_times_l Float Recommended medhx_6i_l == '1' Head Injury: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6i_head_injury_times_p_l
Query medhx_6j_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Knocked Unconscious Pérdida del conocimiento 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6j_unconsious_p_l
Query medhx_6j_times_l Float Recommended medhx_6j_l == '1' Knocked Unconscious: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6j_unconsious_times_p_l
Query medhx_6k_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Bruises Moretones 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6k_bruises_p_l
Query medhx_6k_times_l Float Recommended medhx_6k_l == '1' Bruises: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6k_bruises_times_p_l
Query medhx_6l_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Asthma Attack Ataque de asma 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6l_asthma_p_l
Query medhx_6l_notes_l Float Recommended medhx_6l_l == '1' Asthma Attack: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6l_asthma_times_p_l
Query medhx_6m_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Broken Teeth Dientes rotos 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6m_broken_teeth_p_l
Query medhx_6m_times_l Float Recommended medhx_6m_l == '1' Broken Teeth: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6m_broken_teeth_times_p_l
Query medhx_6n_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Animal Bite Mordedura de animal 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6n_animal_bite_p_l
Query medhx_6n_notes_l Float Recommended medhx_6n_l == '1' Animal Bite: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6n_animal_bite_times_p_l
Query medhx_6o_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Overdose Sobredosis 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6o_overdose_p_l
Query medhx_6o_notes_l Float Recommended medhx_6o_l == '1' Overdose: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6o_over_dose_times_p_l
Query medhx_6p_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Seizure Convulsión 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6p_seizure_p_l
Query medhx_6p_notes_l Float Recommended medhx_6p_l == '1' Seizure: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6p_siezure_times_p_l
Query medhx_6q_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Accidental Poisoning Envenenamiento accidental 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6q_poison_p_l
Query medhx_6q_notes_l Float Recommended medhx_6q_l == '1' Accidental Poisoning: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6q_poison_times_p_l
Query medhx_6r_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Gun Shot Wound Herida por arma de fuego 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6r_gun_shot_p_l
Query medhx_6r_notes_l Float Recommended medhx_6r_l == '1' Gun Shot Wound: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6r_gun_shot_times_p_l
Query medhx_6s_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Wound from knife or any other weapon Herida por cuchillo o cualquier otra arma 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6s_knife_wound_p_l
Query medhx_6s_times_l Float Recommended medhx_6s_l == '1' Knife or Other Weapon Wound: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6s_knife_wound_times_p_l
Query medhx_6t_l Integer Recommended Since we last saw you, has she/he been to a doctor for any of these things? Other Otro 1 ; 0 1 = Yes Sí; 0 = No No //Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6t_other_p_l
Query medhx_6t_times_l Integer Recommended medhx_6t_l == '1' Other: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_6t_other_times_p_l
Query medhx_8a_l Integer Recommended Since we last saw you on [asnt_timestamp_c], has your child been in the hospital overnight or longer? 1 ; 0 ; 6 1 = Yes Sí; 0 = No No; 6 = Don't know No sé//Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_8a_hospital_p_l
Query medhx_9a_l Integer Recommended Since we last saw you on [asnt_timestamp_c], has your child had general anesthesia or sedation for any surgery or procedure? 1 ; 0 ; 6 1 = Yes Sí; 0 = No No; 6 = Don't know No sé//Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_9a_anesthesia_p_l
Query medhx_9b_l Float Recommended medhx_9a_l == '1' General Anesthesia or Sedation: How many times? ¿Cuántas veces? 0 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_9b_anesthesia_times_p_l
Query medhx_9c_l Float Recommended medhx_9a_l == '1' At what age for the most recent time (years)? ¿A qué edad durante el tiempo más reciente? 7 :: 100 Now I'd like to ask you about your child's use of health services since we last saw you on_____. medhx_9c_anesthesia_age_p_l
Query medhx_11_l Integer Recommended Is your child able to see the difference between blue and green? 1 ; 0 1 = Yes Sí; 0 = No No medhx_11_blue_green_p_l
Query medhx_12_l Integer Recommended How about the difference between blue and yellow? ¿Qué tal la diferencia entre el azul y el amarillo? 1 ; 0 1 = Yes Sí; 0 = No No medhx_12_blue_yellow_p_l
medhx_2t_l Integer Recommended Rare Medical Condition not on this list 1;0 1=Yes; 0=No ([medhx_1a_l] = '1' or [medhx_1a_l] = '6') and ([event-name] = '4_year_follow_up_y_arm_1')
medhx_13_l Integer Recommended Has your child ever received the HPV (human papillomavirus) vaccine? (This is a vaccination sometimes given at ages 11-12.) 1;0;999;777 1=Yes ; 0=No ; 999=Not sure ; 777=Decline to answer medhx_11_hpv_p_l
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Additional Information
Training Privacy Policy Disclaimer Contact Us
External Resources
Accessibility FOIA OIG HHS Vulnerability Disclosure
NIH Logo HHS Logo USA Gov Logo
c725efb98f608e6bc0136950f08b0c3af2bde994