|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
respondent |
String |
20
|
Recommended |
Respondent |
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
|
|
|
|
ace_birth3 |
Integer |
|
Recommended |
Birth-3 Services? |
1;2;3
|
1=Current; 2=Past; 3=Never
|
birth3 |
|
ifsp |
Integer |
|
Recommended |
Individual Family Service Plan over time period? |
1;2;3
|
1=Current; 2=Past; 3=Never
|
|
|
iep |
Integer |
|
Recommended |
Individualized Education Program over time period? |
1;2;3
|
1=Current; 2=Past; 3=Never
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
othb3comment, othcomment |
|
acetime |
Integer |
|
Recommended |
Time Period |
1218; 1824; 2430; 3036; 3642; 4248; 4854; 5460; 9000
|
1218= 1 to 1.5 years; 1824= 1.5 to 2 years; 2430= 2 to 2.5 years; 3036= 2.5 to 3 years; 3642= 3 to 3.5 years; 4248= 3.5 to 4 years; 4854= 4 to 4.5 years; 5460= 4.5 to 5 years; 9000=Follow-up
|
|
|
eis_hrs |
Float |
|
Recommended |
Early Intervention Services over time period: Hours/Week over time period |
0::100
|
|
eis_hrs_1218, eis_hrs_1824, eis_hrs_2430, eis_hrs_3036, eis_hrs_3642, eis_hrs_4248, eis_hrs_4854, eis_hrs_5460 |
|
eis_setting |
Integer |
|
Recommended |
Early Intervention Services over time period: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
eis_setting_1218, eis_setting_1824, eis_setting_2430, eis_setting_3036 |
|
eis_provider |
Integer |
|
Recommended |
Early Intervention Services over time period Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
eis_provider_1218, eis_provider_1824, eis_provider_2430, eis_provider_3036, eis_provider_3642, eis_provider_4248, eis_provider_4854, eis_provider_5460 |
|
eis_helpful |
Integer |
|
Recommended |
Early Intervention Services over time period: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
eis_helpful_1218, eis_helpful_1824, eis_helpful_2430, eis_helpful_3036, eis_helpful_3642, eis_helpful_4248, eis_helpful_4854, eis_helpful_5460 |
|
rc_provider |
Integer |
|
Recommended |
Respite Care Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
rc_provider_1218, rc_provider_1824, rc_provider_2430, rc_provider_3036, rc_provider_3642, rc_provider_4248, rc_provider_4854, rc_provider_5460 |
|
rc_helpful |
Integer |
|
Recommended |
Respite Care: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
rc_helpful_1218, rc_helpful_1824, rc_helpful_2430, rc_helpful_3036, rc_helpful_3642, rc_helpful_4248, rc_helpful_4854, rc_helpful_5460 |
|
pat_hrs |
Float |
|
Recommended |
Parent Training over time period: Hours/Week over time period |
0::100
|
|
pat_hrs_1218, pat_hrs_1824, pat_hrs_2430, pat_hrs_3036, pat_hrs_3642, pat_hrs_4248, pat_hrs_4854, pat_hrs_5460 |
|
pat_setting |
Integer |
|
Recommended |
Parent Training over time period: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
pat_setting_1218, pat_setting_1824, pat_setting_2430, pat_setting_3036, pat_setting_3642, pat_setting_4248, pat_setting_4854, pat_setting_5460 |
|
pat_provider |
Integer |
|
Recommended |
Parent Training over time period Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
pat_provider_1218, pat_provider_1824, pat_provider_2430, pat_provider_3036, pat_provider_3642, pat_provider_4248, pat_provider_4854, pat_provider_5460 |
|
pat_helpful |
Integer |
|
Recommended |
Parent Training over time period: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
pat_helpful_1218, pat_helpful_1824, pat_helpful_2430, pat_helpful_3036, pat_helpful_3642, pat_helpful_4248, pat_helpful_4854, pat_helpful_5460 |
|
sg_hrs |
Float |
|
Recommended |
Support Group over time period: Hours/Week over time period |
0::100
|
|
sg_hrs_1218, sg_hrs_1824, sg_hrs_2430, sg_hrs_3036, sg_hrs_3642, sg_hrs_4248, sg_hrs_4854, sg_hrs_5460 |
|
sg_setting |
Integer |
|
Recommended |
Support Group over time period: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
sg_setting_1218, sg_setting_1824, sg_setting_2430, sg_setting_3036, sg_setting_3642, sg_setting_4248, sg_setting_4854, sg_setting_5460 |
|
sg_provider |
Integer |
|
Recommended |
Support Group over time period Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
sg_provider_1218, sg_provider_1824, sg_provider_2430, sg_provider_3036, sg_provider_3642, sg_provider_4248, sg_provider_4854, sg_provider_5460 |
|
sg_helpful |
Integer |
|
Recommended |
Support Group over time period: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
sg_helpful_1218, sg_helpful_1824, sg_helpful_2430, sg_helpful_3036, sg_helpful_3642, sg_helpful_4248, sg_helpful_4854, sg_helpful_5460 |
|
bt_hrs |
Float |
|
Recommended |
Behavior Therapy over time period: Hours/Week over time period |
0::100
|
|
bt_hrs_1218, bt_hrs_1824, bt_hrs_2430, bt_hrs_3036, bt_hrs_3642, bt_hrs_4248, bt_hrs_4854, bt_hrs_5460 |
|
bt_setting |
Integer |
|
Recommended |
Behavior Therapy over time period: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
bt_setting_1218, bt_setting_1824, bt_setting_2430, bt_setting_3036, bt_setting_3642, bt_setting_4248, bt_setting_4854, bt_setting_5460 |
|
bt_provider |
Integer |
|
Recommended |
Behavior Therapy over time period Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
bt_provider_1218, bt_provider_1824, bt_provider_2430, bt_provider_3036, bt_provider_3642, bt_provider_4248, bt_provider_4854, bt_provider_5460 |
|
bt_helpful |
Integer |
|
Recommended |
Behavior Therapy over time period: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
bt_helpful_1218, bt_helpful_1824, bt_helpful_2430, bt_helpful_3036, bt_helpful_3642, bt_helpful_4248, bt_helpful_4854, bt_helpful_5460 |
|
dt_hrs |
Float |
|
Recommended |
Developmental Therapy over time period: Hours/Week over time period |
0::100
|
|
dt_hrs_1218, dt_hrs_1824, dt_hrs_2430, dt_hrs_3036, dt_hrs_3642, dt_hrs_4248, dt_hrs_4854, dt_hrs_5460 |
|
dt_setting |
Integer |
|
Recommended |
Developmental Therapy over time period: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
dt_setting_1218, dt_setting_1824, dt_setting_2430, dt_setting_3036, dt_setting_3642, dt_setting_4248, dt_setting_4854, dt_setting_5460 |
|
dt_provider |
Integer |
|
Recommended |
Developmental Therapy over time period Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
dt_provider_1218, dt_provider_1824, dt_provider_2430, dt_provider_3036, dt_provider_3642, dt_provider_4248, dt_provider_4854, dt_provider_5460 |
|
dt_helpful |
Integer |
|
Recommended |
Developmental Therapy over time period: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
dt_helpful_1218, dt_helpful_1824, dt_helpful_2430, dt_helpful_3036, dt_helpful_3642, dt_helpful_4248, dt_helpful_4854, dt_helpful_5460 |
|
rp_hrs |
Float |
|
Recommended |
Recreational Programs: Hours/Week over time period |
0::100
|
|
rp_hrs_3642, rp_hrs_4248, rp_hrs_4854, rp_hrs_5460 |
|
rp_setting |
Integer |
|
Recommended |
Recreational Programs: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
rp_setting_3642, rp_setting_4248, rp_setting_4854, rp_setting_5460 |
|
rp_provider |
Integer |
|
Recommended |
Recreational Programs Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
rp_provider_3642, rp_provider_4248, rp_provider_4854, rp_provider_5460 |
|
rp_helpful |
Integer |
|
Recommended |
Recreational Programs: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
rp_helpful_3642, rp_helpful_4248, rp_helpful_4854, rp_helpful_5460 |
|
ssg_hrs |
Float |
|
Recommended |
Social Skills Groups: Hours/Week over time period |
0::100
|
|
ssg_hrs_3642, ssg_hrs_4248, ssg_hrs_4854, ssg_hrs_5460 |
|
ssg_setting |
Integer |
|
Recommended |
Social Skills Groups: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
ssg_setting_3642, ssg_setting_4248, ssg_setting_4854, ssg_setting_5460 |
|
si_hrs |
Float |
|
Recommended |
Special Instruction: Hours/Week over time period |
0::100
|
|
si_hrs_1218, si_hrs_1824, si_hrs_2430, si_hrs_3036, si_hrs_3642, si_hrs_4248, si_hrs_4854, si_hrs_5460 |
|
si_setting |
Integer |
|
Recommended |
Special Instruction: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
si_setting_1218, si_setting_1824, si_setting_2430, si_setting_3036, si_setting_3642, si_setting_4248, si_setting_4854, si_setting_5460 |
|
si_provider |
Integer |
|
Recommended |
Special Instruction Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
si_provider_1218, si_provider_1824, si_provider_2430, si_provider_3036, si_provider_3642, si_provider_4248, si_provider_4854, si_provider_5460 |
|
si_helpful |
Integer |
|
Recommended |
Special Instruction: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
si_helpful_1218, si_helpful_1824, si_helpful_2430, si_helpful_3036, si_helpful_3642, si_helpful_4248, si_helpful_4854, si_helpful_5460 |
|
slt_hrs |
Float |
|
Recommended |
Speech and Language Therapy: Hours/Week over time period |
0::100
|
|
slt_hrs_1218, slt_hrs_1824, slt_hrs_2430, slt_hrs_3036, slt_hrs_3642, slt_hrs_4248, slt_hrs_4854, slt_hrs_5460 |
|
slt_setting |
Integer |
|
Recommended |
Speech and Language Therapy: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
slt_setting_1218, slt_setting_1824, slt_setting_2430, slt_setting_3036, slt_setting_3642, slt_setting_4248, slt_setting_4854, slt_setting_5460 |
|
ssg_provider |
Integer |
|
Recommended |
Social Skills Groups Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
ssg_provider_3642, ssg_provider_4248, ssg_provider_4854, ssg_provider_5460 |
|
ssg_helpful |
Integer |
|
Recommended |
Social Skills Groups: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
ssg_helpful_3642, ssg_helpful_4248, ssg_helpful_4854, ssg_helpful_5460 |
|
pc_hrs |
Float |
|
Recommended |
Psychotherapy/Counseling over time period: Hours/Week over time period |
0::100
|
|
pc_hrs_3642, pc_hrs_4248, pc_hrs_4854, pc_hrs_5460 |
|
pc_setting |
Integer |
|
Recommended |
Psychotherapy/Counseling over time period: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
pc_setting_3642, pc_setting_4248, pc_setting_4854, pc_setting_5460 |
|
pc_provider |
Integer |
|
Recommended |
Psychotherapy/Counseling over time period Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
pc_provider_3642, pc_provider_4248, pc_provider_4854, pc_provider_5460 |
|
slt_provider |
Integer |
|
Recommended |
Speech and Language Therapy Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
slt_provider_1218, slt_provider_1824, slt_provider_2430, slt_provider_3036, slt_provider_3642, slt_provider_4248, slt_provider_4854, slt_provider_5460 |
|
slt_helpful |
Integer |
|
Recommended |
Speech and Language Therapy: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
slt_helpful_1218, slt_helpful_1824, slt_helpful_2430, slt_helpful_3036, slt_helpful_3642, slt_helpful_4248, slt_helpful_4854, slt_helpful_5460 |
|
ot_hrs |
Float |
|
Recommended |
Occupational Therapy: Hours/Week over time period |
0::100
|
|
ot_hrs_1218, ot_hrs_1824, ot_hrs_2430, ot_hrs_3036, ot_hrs_3642, ot_hrs_4248, ot_hrs_4854, ot_hrs_5460 |
|
ace_ot_setting |
Integer |
|
Recommended |
Occupational Therapy: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
|
|
ot_provider |
Integer |
|
Recommended |
Occupational Therapy Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
ot_provider_1218, ot_provider_1824, ot_provider_2430, ot_provider_3036, ot_provider_3642, ot_provider_4248, ot_provider_4854, ot_provider_5460 |
|
pc_helpful |
Integer |
|
Recommended |
Psychotherapy/Counseling over time period: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
pc_helpful_3642, pc_helpful_4248, pc_helpful_4854, pc_helpful_5460 |
|
ot_helpful |
Integer |
|
Recommended |
Occupational Therapy: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
ot_helpful_1218, ot_helpful_1824, ot_helpful_2430, ot_helpful_3036, ot_helpful_3642, ot_helpful_4248, ot_helpful_4854, ot_helpful_5460 |
|
pht_hrs |
Float |
|
Recommended |
Physical Therapy: Hours/Week over time period |
0::100
|
|
pht_hrs_1218, pht_hrs_1824, pht_hrs_2430, pht_hrs_3036, pht_hrs_3642, pht_hrs_4248, pht_hrs_4854, pht_hrs_5460 |
|
pht_setting |
Integer |
|
Recommended |
Physical Therapy: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
pht_setting_1218, pht_setting_1824, pht_setting_2430, pht_setting_3036, pht_setting_3642, pht_setting_4248, pht_setting_4854, pht_setting_5460 |
|
pht_provider |
Integer |
|
Recommended |
Physical Therapy Provider over time period |
1::8
|
1= Birth-3/Part C; 2= Head Start; 3= Private pay; 4= Special School District; 5= Insurance; 6= Medicaid; 7= Waiver/state funded; 8= Other
|
pht_provider_1218, pht_provider_1824, pht_provider_2430, pht_provider_3036, pht_provider_3642, pht_provider_4248, pht_provider_4854, pht_provider_5460 |
|
pht_helpful |
Integer |
|
Recommended |
Physical Therapy: Helpful? over time period |
0;1
|
0=No; 1= Yes
|
pht_helpful_1218, pht_helpful_1824, pht_helpful_2430, pht_helpful_3036, pht_helpful_3642, pht_helpful_4248, pht_helpful_4854, pht_helpful_5460 |
|
rc_hrs |
Float |
|
Recommended |
Respite Care: Hours/Week over time period |
0::100
|
|
rc_hrs_1218, rc_hrs_1824, rc_hrs_2430, rc_hrs_3036, rc_hrs_3642, rc_hrs_4248, rc_hrs_4854, rc_hrs_5460 |
|
rc_setting |
Integer |
|
Recommended |
Respite Care: Setting over time period |
1::8
|
1= In home; 2= Public early childhood; 3= Private early childhood; 4= School; regular classroom; 5= School; special education classroom; 6= Clinic/hospital; 7= Center/agency; 8= Other
|
rc_setting_1218, rc_setting_1824, rc_setting_2430, rc_setting_3036, rc_setting_3642, rc_setting_4248, rc_setting_4854, rc_setting_5460 |
|
progress |
Integer |
|
Recommended |
During each period, please select whether your child's progress over time period: |
1;2;3
|
1=Improved; 2=Stayed the same; 3=Regressed/Worsened
|
progress_1218, progress_1824, progress_2430, progress_3036, progress_3642, progress_4248, progress_4854, progress_5460 |
|
age3service |
Integer |
|
Recommended |
Upon transition into the school system at age 3, please select whether your child's services: |
1;2;3
|
1=Increased; 2=Stayed the same; 3=Decreased
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
|
caps_hrs |
Float |
|
Recommended |
|
0::100
|
|
|
|
caps_setting |
Integer |
|
Recommended |
|
1::8
|
|
|
|
caps_provider |
Integer |
|
Recommended |
|
1::8
|
|
|
|
caps_helpful |
Integer |
|
Recommended |
|
0; 1
|
|
|
|
ot_setting |
String |
200
|
Recommended |
setting of OT |
|
|
|