|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
subjectid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
DSMDATE, chrsofas_interview_date, chrsofas_interview_date_fu, datacollecteddate |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
dsmvers |
String |
10
|
Recommended |
version/name of assessment |
|
|
|
Query
|
dsmsoc1 |
Integer |
|
Recommended |
a. Impaired nonverbals |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
behavior_impairment |
Query
|
dsmsoc2 |
Integer |
|
Recommended |
b. Lack of peer relations |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
develop_peer_relate |
Query
|
dsmsoc3 |
Integer |
|
Recommended |
c. Lack of shared enjoyment |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
lack_seek_enjoyment |
Query
|
dsmsoc4 |
Integer |
|
Recommended |
d. Lack of social/emot reciprocity |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
lack_social_reciprocity |
Query
|
dsmcom1 |
Integer |
|
Recommended |
a. Delay in lang, no compensation |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
develop_delay |
Query
|
dsmcom2 |
Integer |
|
Recommended |
b. Impaired conversation |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
speech_delay |
Query
|
dsmcom3 |
Integer |
|
Recommended |
c. Sterotyped, repetitive lang |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
repetitive_lang_idiosyncratic |
Query
|
dsmcom4 |
Integer |
|
Recommended |
d. Impaired pretend play |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
lack_spontaneous_play |
Query
|
dsmrep1 |
Integer |
|
Recommended |
a. Preccupation, restricted interest |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
preoccup_stereotype_pattern |
Query
|
dsmrep2 |
Integer |
|
Recommended |
b. Inflexible routines/rituals |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
inflexible_routines |
Query
|
dsmrep3 |
Integer |
|
Recommended |
c. Stereotyped motor movts |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
motor_manner_repetitive |
Query
|
dsmrep4 |
Integer |
|
Recommended |
d. Preoccupation w/ parts of objs |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
preoccup_part_object |
Query
|
dsmasd |
Integer |
|
Recommended |
Meets criteria for Autistic Disorder |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
autism |
Query
|
dsmpdd |
Integer |
|
Recommended |
Meets criteria for PDD NOS |
0::2;-1;-9
|
0 = No; 1 = Yes; 2=Partial; -1 = Not applicable; -9 = Missing value
|
dx_pdd_nos |
Query
|
dsmcon |
Integer |
|
Recommended |
Confidence rating |
1::3; -1;-9
|
1 = Not confident; 2 = Somewhat confident; 3 = Very confident; -1 = Not applicable; -9 = Missing value
|
|
Query
|
comments |
String |
4,000
|
Recommended |
Comments about assessment |
|
|
DSMCOMM |
Query
|
dsmsoctot |
Float |
|
Recommended |
DSM Social total score |
|
|
|
Query
|
dsmcomtot |
Float |
|
Recommended |
DSM Communication total score |
|
|
|
Query
|
dsmreptot |
Float |
|
Recommended |
DSM Repetitive total score |
|
|
|
Query
|
dsmtot |
Float |
|
Recommended |
DSM total score |
|
|
|
Query
|
dsm_si |
Integer |
|
Recommended |
Social Impairment |
0::2
|
0=No; all items marked No; 1= Partial; at least 1 item marked Partial; 2= Significant; at least 1 item marked Yes
|
|
Query
|
dsm_ci |
Integer |
|
Recommended |
Communication Impairment |
0::2
|
0=No; all items marked No; 1= Partial; at least 1 item marked Partial; 2= Significant; at least 1 item marked Yes
|
|
Query
|
dsm_bi |
Integer |
|
Recommended |
Behaviors Impairment |
0::2
|
0=No; all items marked No; 1= Partial; at least 1 item marked Partial; 2= Significant; at least 1 item marked Yes
|
|
Query
|
sofas_currscore |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) current score |
0::100
|
0-10=Persistent inability to maintain minimal personal hygiene, unable to function without harming self or others without considerable external support; 11-20=Occasionally fails to maintain minimal personal hygiene. Unable to function independently; 21-30=Inability to function in almost all areas; 31-40=Major impairment in several areas such as work, school, or housework if a housewife/househusband, family relationships; 41-50=Serious impairment with work, school, or housework if a housewife; 51-60=Moderate difficulty in social, work, or school functioning; 61-70=Some difficulty in social, occupational, or school functioning; 71-80=No more than slight impairment in social, work, or school functioning; 81-90=Good functioning in all areas, occupationally and socially effective; 91-100=Superior functioning in a wide range of activities
|
sofas_01, sofas_1, sofas_rating |
Query
|
sofas_highscore |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) Highest score in past year |
0::100
|
|
sofas_02, sofas_3 |
Query
|
sofas_lowscore |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) Lowest score in past year |
0::100
|
|
sofas_03, sofas_2 |
Query
|
dataquality |
Integer |
|
Recommended |
Data quality |
0::5
|
0=No data (cancelled); 1=Data entered but only once, has missing data; 2=Data entered but only once, no missing data; 3=Double entered; 4=Data frozen for cleaning; 5=Data clean/locked
|
|
Query
|
elig_inclusion_check |
Integer |
|
Recommended |
Checks for a pass/fail on Elig for Inclusion |
0::3
|
0=Failed (Ineligible); 1=Passed (Eligible); 2=In screening; 3=NA
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
visitlabel |
|
visit_name |
String |
20
|
Recommended |
session ID/screening ID |
|
|
visitnumber |
Query
|
subjecttype |
String |
20
|
Recommended |
Subject Type |
Control;Prodromal; Enhanced; Non-Enhanced
|
|
|
Query
|
sofas_4 |
Integer |
|
Recommended |
Global Role Functioning -Role Assessed |
1::10
|
1=School, 2=Work, 3=Homemaker, 4=Part-time School + Part-time Work
|
|
Query
|
sofas_5 |
Integer |
|
Recommended |
Global Role Functioning Score -Current |
1::10
|
1=Extreme role dysfunction, 2=Inability to function, 3=Marginal ability to function, 4=Major impairment in role functioning, 5=Serious impairment in role functioning, 6=Moderate impairment in role functioning, 7=Mild problems in role functioning, 8=Good role functioning, 9=Above average role functioning, 10=Superior role functioning
|
|
Query
|
sofas_6 |
Integer |
|
Recommended |
Global Role Functioning Score - Lowest Past Year |
1::10
|
1=Extreme role dysfunction, 2=Inability to function, 3=Marginal ability to function, 4=Major impairment in role functioning, 5=Serious impairment in role functioning, 6=Moderate impairment in role functioning, 7=Mild problems in role functioning, 8=Good role functioning, 9=Above average role functioning, 10=Superior role functioning
|
|
Query
|
sofas_7 |
Integer |
|
Recommended |
Global Role Functioning Score -Highest Past Year |
1::10
|
1=Extreme role dysfunction, 2=Inability to function, 3=Marginal ability to function, 4=Major impairment in role functioning, 5=Serious impairment in role functioning, 6=Moderate impairment in role functioning, 7=Mild problems in role functioning, 8=Good role functioning, 9=Above average role functioning, 10=Superior role functioning
|
|
Query
|
visit_num |
Integer |
|
Recommended |
Visit number |
1::3
|
1=Baseline, 2=12 Month, 3=24 Month
|
|
Query
|
sofas_8 |
Integer |
|
Recommended |
Social Role Functioning: Current |
1::10
|
1= Extreme social isolation; 2= Inability to function socially: Unable to function socially or to maintain any interpersonal relationships; 3= Marginal ability to function socially or maintain interpersonal relationships; 4= Major Impairment in social/interpersonal functioning; 5= Serious Impairment in social/interpersonal functioning; 6= Moderate Impairment in social/interpersonal functioning; 7= Mild problems: Some persistent mild difficulty in social functioning; 8= Good: Some transient mild impairment in social functioning; 9= Above average: Good Functioning in all social areas, and interpersonally effective; 10= Superior: Superior functioning in a wide range of social and interpersonal activities
|
|
Query
|
sofas_9 |
Integer |
|
Recommended |
Social Role Functioning: Lowest Past Year |
1::10
|
1= Extreme social isolation; 2= Inability to function socially: Unable to function socially or to maintain any interpersonal relationships; 3= Marginal ability to function socially or maintain interpersonal relationships; 4= Major Impairment in social/interpersonal functioning; 5= Serious Impairment in social/interpersonal functioning; 6= Moderate Impairment in social/interpersonal functioning; 7= Mild problems: Some persistent mild difficulty in social functioning; 8= Good: Some transient mild impairment in social functioning; 9= Above average: Good Functioning in all social areas, and interpersonally effective; 10= Superior: Superior functioning in a wide range of social and interpersonal activities
|
|
Query
|
sofas_10 |
Integer |
|
Recommended |
Social Role Functioning: Highest Past Year |
1::10
|
1= Extreme social isolation; 2= Inability to function socially: Unable to function socially or to maintain any interpersonal relationships; 3= Marginal ability to function socially or maintain interpersonal relationships; 4= Major Impairment in social/interpersonal functioning; 5= Serious Impairment in social/interpersonal functioning; 6= Moderate Impairment in social/interpersonal functioning; 7= Mild problems: Some persistent mild difficulty in social functioning; 8= Good: Some transient mild impairment in social functioning; 9= Above average: Good Functioning in all social areas, and interpersonally effective; 10= Superior: Superior functioning in a wide range of social and interpersonal activities
|
|
|
socfun |
Integer |
|
Recommended |
social functioning |
1::5
|
1= Slight; 2= Some; 3= Moderate; 4= Major; 5= Severe
|
|
|
ocfun |
Integer |
|
Recommended |
occupational functioning |
1::5
|
1= Slight; 2= Some; 3= Moderate; 4= Major; 5= Severe
|
|
|
sofas |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) score |
1::10
|
10 = Superior functioning in a wide range of activities; 9 = Good functioning in all areas, occupationally and socially effective; 8 = No more than a slight impairment in social, occupational or school functioning (e.g., infrequent interpersonal conflict, temporarily falling behind in schoolwork); 7 = Some difficulty in social, occupational, or school functioning but generally functioning well and has some meaningful, interpersonal relationships; 6 = Moderate difficulty in social, occupational, or school functioning (e.g., few friends, conflicts with peers or co-workers); 5 = Serious impairment in social, occupational, or school functioning (e.g., no friends, unable to keep a job); 4 = Major impairment in several areas such as work or school, family relations (e.g., depressed man avoids friends, neglects family and is unable to work; child frequently beats up younger children, is defiant at home and failing at school); 3 = Inability to function in almost all areas (e.g., stays in bed all day; no job, home, or friends); 2 = Occasionally fails to maintain minimal personal hygiene; unable to function independently; 1 = Persistent inability to maintain minimal personal hygiene. Unable to function without harming self or others or without considerable external support (e.g., nursing care and supervision); 0 = Inadequate information
|
|
|
ampscz_missing_spec |
Integer |
|
Recommended |
Please specify the reason for missing data on this form |
0::6
|
0 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit; 1 = Measure refusal (no reason provided); 2 = No show; 3 = Research assistant forgot; 4 = Uncontrollable circumstance; 5 = Participant dropped out; 6 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit
|
chrsofas_missing_spec, chrsofas_missing_spec_fu |
|
ampscz_entry_date |
Date |
|
Recommended |
Date of Data Entry |
|
MM/DD/YYYY
|
chrsofas_entry_date, chrsofas_entry_date_fu |
|
chrsofas_session_type |
Integer |
|
Recommended |
SOFAS session type |
0;1;-900;-300
|
0 = Screening; 1 = Followup; -900 = Missing; -300 = N/A
|
|
|
chrsofas_premorbid |
Integer |
|
Recommended |
Premorbid SOFAS (Social and Occupational Functioning Assessment Scale) Score |
|
|
|
|
chrsofas_premorbdate |
Date |
|
Recommended |
Date of First Change from Premorbid Status |
|
MM/DD/YYYY
|
|
|
chrsofas_currscore12mo |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) Score 12 Months ago |
|
|
chrsofas_currscore12mo_fu |
|
chrsofas_currscore |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) Current Score in the Past Month |
0::100; -900; -300
|
-900 = Missing; -300 = N/A
|
chrsofas_currscore_fu |
|
chrsofas_lowscore |
Integer |
|
Recommended |
SOFAS (Social and Occupational Functioning Assessment Scale) Lowest Score in Past Year |
0::100; -900; -300
|
-900 = Missing; -300 = N/A
|
|
|
ampscz_missing |
Integer |
|
Recommended |
Please click if this form is missing all of its data |
0;1
|
0 = Not clicked; 1 = Clicked
|
chrsofas_missing, chrsofas_missing_fu |