|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
demo_study_id |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
visit_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, sex |
Query
|
aescode |
Integer |
|
Recommended |
Staff code number of person completing this form |
|
999= Missing Data
|
expert_diagnosis_rater |
Query
|
expert_diagnosis_tourette |
Integer |
|
Recommended |
Tourette Syndrome |
1 :: 4
|
1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
|
|
Query
|
expert_diagnosis_chronic_tics |
Integer |
|
Recommended |
Chronic Motor Tics |
1 :: 4
|
1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
|
|
Query
|
expert_diagnosis_transient |
Integer |
|
Recommended |
Transient Tic Disorder |
1 :: 4
|
1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
|
|
Query
|
expert_diagnosis_simple_motor |
Integer |
|
Recommended |
Simple Motor Tics |
1 :: 4
|
1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
|
|
Query
|
expert_diagnosis_simple_vocal |
Integer |
|
Recommended |
Simple Vocal Tics |
1 :: 4
|
1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
|
|
Query
|
expert_diagnosis_complex_motor |
Integer |
|
Recommended |
Complex Motor Tics |
1 :: 4
|
1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
|
|
Query
|
expert_diagnosis_complex_vocal |
Integer |
|
Recommended |
Complex Vocal Tics |
1 :: 4
|
1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
|
|
Query
|
expert_impairment_distress |
Integer |
|
Recommended |
Impairment or Marked Distress (ever) |
1 :: 4
|
1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
|
expert_diagnosis_impairment_distress |
Query
|
a1d31 |
Integer |
|
Recommended |
OCD |
1::3
|
Positive Diagnosis = 3; Intermediate Diagnosis = 2; Negative Diagnosis = 1
|
|
Query
|
expert_diagnosis_adhd |
Integer |
|
Recommended |
ADHD |
1::3
|
1 = present ; 2 = subthreshhold ; 3 = not present
|
|
|
epert_diagnosis_tsp |
String |
300
|
Recommended |
Tics observed on Tic Suppression Paradigm (TSP): |
|
|
|
|
expert_diagnosis_onset |
String |
100
|
Recommended |
Date of tic onset |
|
|
|
|
expert_diagnosis_onset_confid |
String |
300
|
Recommended |
Confidence in date of tic onset |
|
|
|
|
expert_diagnosis_onset_reas |
String |
300
|
Recommended |
Reason for choosing date of tic onset |
|
|
|
|
expert_diagnosis_onset_strat |
String |
300
|
Recommended |
Strategies used to pin down that date of tic onset (checklist: check calendar, ask teacher, medical records, watch home video, ask re memories of holidays, ask re memories of school term start or end, ask re memories of birthdays, other: ____________) |
|
|
|
|
expert_diagnosis_onset_notes |
String |
20
|
Recommended |
Are there notes on defining the date of tic onset on another page (e.g. medical hx, exam, K SADS)? If so, what page? |
|
|
|
|
expert_diagnosis_md_visit |
String |
100
|
Recommended |
Would the caregiver bring the child in to see a doctor at this time if it were not for this research study? If yes, describe: |
|
|
|
|
expert_diagnosis_awareness |
String |
100
|
Recommended |
Describe Tic Awareness:
Does the child know s/he has tics? |
|
|
|
|
expert_diagnosis_supress |
String |
300
|
Recommended |
Does the child make any effort to suppress any tic? If yes, describe: |
|
|
|
|
expert_diagnosis_comments |
String |
1,000
|
Recommended |
Comments about diagnostic procedure |
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
expert_diag_comments |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
expert_diagnosis_ocd |
Integer |
|
Recommended |
OCD |
1 :: 4
|
1 = present ; 2 = subthreshhold ; 3 = not present; 4 = blank
|
|