|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
CandidateGUID, GUID |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
IBISID |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
Candidate_Age_in_Months, Candidate_Age_in_Months, aosi_ageassessment |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
Date_taken, aosi_dateexam |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
aosi_assessmenttype |
Integer |
|
Recommended |
Assessment Type |
|
0 = Examiner; 1 = In-room observer; 2 = Behind mirror; 3 = Videotape; 9 = Not answered
|
examiner_location |
Query
|
aosi_totalscore |
Integer |
|
Required |
Total Score (items 1-18) |
|
|
total_score_1_18_override |
Query
|
aosi_numbermarkers |
Integer |
|
Recommended |
Number of Markers (non-zero items, 1-18) |
|
|
number_of_markers_override |
Query
|
aosi_q1_press1 |
Integer |
|
Recommended |
Visual Tracking: Press #1 |
0;1;2;8
|
0 = Pass; 1 = Delayed/Interrupted; 2 = Partial or No tracking; 8 = N/A
|
|
Query
|
aosi_q1_press2 |
Integer |
|
Recommended |
Visual Tracking: Press #2 |
0;1;2;8
|
0 = Pass; 1 = Delayed/Interrupted; 2 = Partial or No tracking; 8 = N/A
|
|
Query
|
aosi_q1_press3 |
Integer |
|
Recommended |
Visual Tracking: Press #3 |
0;1;2;8
|
0 = Pass; 1 = Delayed/Interrupted; 2 = Partial or No tracking; 8 = N/A
|
|
Query
|
aosi_q1_visualinstructions |
Integer |
|
Recommended |
Visual Tracking Score |
|
0 = Smoothly tracks a silent object; 1 = Delayed or interrupted eye movements; 2 = Partial; 8 = Not applicable
|
q1_visual_tracking_score_override |
|
aosi_q1_visualnotes |
String |
1,000
|
Recommended |
Visual Tracking Score Notes |
|
|
q1_visual_tracking_notes |
Query
|
aosi_q2_disengagementpress1 |
Integer |
|
Recommended |
Disengagement of attention: Press #1, L: rattle R: squeaky |
0;1;2;8
|
0 = Pass (less than 1 sec); 1 = Delayed (1-2 sec); 2 = Stuck (greater than 2 sec); 8 = N/A
|
|
Query
|
aosi_q2_disengagementpress2 |
Integer |
|
Recommended |
Disengagement of attention: Press #2, R: squeaky L: bell |
0;1;2;8
|
0 = Pass (less than 1 sec); 1 = Delayed (1-2 sec); 2 = Stuck (greater than 2 sec); 8 = N/A
|
|
Query
|
aosi_q2_disengagementpress3 |
Integer |
|
Recommended |
Disengagement of attention: Press #3, L: bell R: rattle |
0;1;2;8
|
0 = Pass (less than 1 sec); 1 = Delayed (1-2 sec); 2 = Stuck (greater than 2 sec); 8 = N/A
|
|
Query
|
aosi_q2_disengagementscore |
Integer |
|
Recommended |
Disengagement of attention score |
0;1;2;8
|
0 = Immediately moves attention from first object to second; 1 = Demonstrates delayed movement of attention on at least 2 trials; 2 = Fails to move attention to a second object; 8 = Not applicable
|
AOSI_q2_DisengagementInstructions, q2_disengagement_of_attention_score_override |
|
aosi_q2_disengagementnotes |
String |
1,000
|
Recommended |
Disengagement of attention score Notes |
|
|
q2_disengagement_of_attention_notes |
Query
|
aosi_q3_orientsnamep1t1 |
Integer |
|
Recommended |
Orients to name, Press #1, Trial #1 |
0;1;2;8
|
0 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
|
|
Query
|
aosi_q3_orientsnamep1t2 |
Integer |
|
Recommended |
Orients to name, Press #1, Trial #2 |
0;1;2;8
|
0 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
|
|
Query
|
aosi_q3_orientsnamep2t2 |
Integer |
|
Recommended |
Orients to name, Press #2, Trial #1 |
0;1;2;8
|
0 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
|
|
Query
|
aosi_q3_orientsnamep3t1 |
Integer |
|
Recommended |
Orients to name, Press #2, Trial #2 |
0;1;2;8
|
0 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
|
|
Query
|
aosi_q3_orientsnamep4t1n |
Integer |
|
Recommended |
Orients to name, Press #3, Trial #1 |
0;1;2;8
|
0 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
|
|
Query
|
aosi_q3_orientsnamep4t2n |
Integer |
|
Recommended |
Orients to name, Press #3, Trial #2 |
0;1;2;8
|
0 = Orients + eye contact; 1 = Orients w/o eye contact; 2 = Fail to orient within 2 sec; 8 = N/A
|
|
Query
|
aosi_q3_orientsnameinstruct |
Integer |
|
Recommended |
Orients to name score |
0;1;2;8
|
0 = Orients (with eye contact) to name being called on both presses; 1 = Inconsistent orienting to name; 2 = Does not orient with eye contact; 8 = Not applicable
|
q3_orients_to_name_score_override |
|
aosi_q3_orientsnamenotes |
String |
1,000
|
Recommended |
Orients to name score Notes |
|
Note whether the child did respond
|
q3_orients_to_name_notes |
Query
|
aosi_q4_diffresp |
Integer |
|
Recommended |
Differential response to facial emotion score |
|
0 = Clear change in facial expression; 1 = Questionable change; 3 = Does not show change; 8 = Not applicable
|
q4_differential_response_to_facial_emotion |
|
aosi_q4_diffrespnotes |
String |
1,000
|
Recommended |
Differential response to facial emotion Notes |
|
Indicate number of presses required
|
q4_differential_response_to_facial_emotion_notes |
Query
|
aosi_q5_antiresp |
Integer |
|
Recommended |
Anticipatory responses score |
|
0 = Clear anticipatory response; 1 = The change in behavior is subtle; 2 = Anticipatory response only during physical; 3 = Does not show; 8 = Not applicable
|
q5_anticipatory_response |
|
aosi_q5_antirespnotes |
String |
1,000
|
Recommended |
Anticipatory responses Notes |
|
Indicate game(s) played and type of anticipatory response displayed
|
q5_anticipatory_response_notes |
|
aosi_q5_antirespaffect |
String |
1,000
|
Recommended |
Note child's affect during peek-a-boo |
|
|
|
|
aosi_q6_activity1item |
String |
50
|
Recommended |
Imitation of Actions: Activity #1: Item/Activity |
|
SUGGESTED ACTIVITIES: Ages 6-11 mos: Tongue protrusion, raspberries, "O" mouth movement. Ages 12-24 mos: Bang table, pat squeaky toy, hop bunny, tap rod. For any questionable responses, persist up to third press to obtain the best score up to a maximum of 3 actions. 6-11 months: Maximum 3 trials (e.g., 3 opportunities for the child to copy the model) for each action. 12-18 months: Maximum 3 trials (e.g., 3 opportunities for the child to copy the model) for each object/action.
|
|
|
aosi_q6_activity1attempt1 |
String |
50
|
Recommended |
Imitation of Actions: Activity #1: Attempt #1 |
|
|
|
|
aosi_q6_activity1attempt2 |
String |
50
|
Recommended |
Imitation of Actions: Activity #1: Attempt #2 |
|
|
|
|
aosi_q6_activity1attempt3 |
String |
50
|
Recommended |
Imitation of Actions: Activity #1: Attempt #3 |
|
|
|
|
aosi_q6_activity2item |
String |
50
|
Recommended |
Imitation of Actions: Activity #2: Item/Activity |
|
|
|
|
aosi_q6_activity2attempt1 |
String |
50
|
Recommended |
Imitation of Actions: Activity #2: Attempt #1 |
|
|
|
|
aosi_q6_activity2attempt2 |
String |
50
|
Recommended |
Imitation of Actions: Activity #2: Attempt #2 |
|
|
|
|
aosi_q6_activity2attempt3 |
String |
50
|
Recommended |
Imitation of Actions: Activity #2: Attempt #3 |
|
|
|
|
aosi_q6_activity3item |
String |
50
|
Recommended |
Imitation of Actions: Activity #3: Item/Activity |
|
|
|
|
aosi_q6_activity3attempt1 |
String |
50
|
Recommended |
Imitation of Actions: Activity #3: Attempt #1 |
|
|
|
|
aosi_q6_activity3attempt2 |
String |
50
|
Recommended |
Imitation of Actions: Activity #3: Attempt #2 |
|
|
|
|
aosi_q6_activity3attempt3 |
String |
50
|
Recommended |
Imitation of Actions: Activity #3: Attempt #3 |
|
|
|
Query
|
aosi_q6_activitiesinstruction |
Integer |
|
Recommended |
Imitation of Actions score |
|
0 = Clear imitation; 1 = Equivocal imitation; 2 = Does not imitate even if same; 8 = Not applicable
|
q6_imitation_of_actions_score_override |
|
aosi_q6_activitiesnotes |
String |
1,000
|
Recommended |
Imitation of Actions Notes |
|
|
q6_imitation_of_actions_notes |
Query
|
aosi_q7_socialbabbling |
Integer |
|
Recommended |
Social babbling score |
|
0 = Engages in to-and-fro vocalizations; 1 = Infant engages only in equivocal; 2 = Vocalizations are not in response to others' vocalizations; 3 = Little or no directed vocalization; 8 = Not applicable
|
q7_social_babbling |
|
aosi_q7_socialbabblingnotes |
String |
1,000
|
Recommended |
Social babbling score Notes: Indicate vocalizations made by child |
|
|
q7_social_babbling_notes |
Query
|
aosi_q8_eyecontact |
Integer |
|
Recommended |
Eye contact score |
|
0 = Consistent and sustained; 2 = Eye contact is limited; 8 = Not applicable
|
q8_eye_contact |
|
aosi_q8_eyecontactnotes |
String |
1,000
|
Recommended |
Eye contact Notes |
|
|
q8_eye_contact_notes |
Query
|
aosi_q9_reciprocal |
Integer |
|
Recommended |
Reciprocal social smile score |
|
0 = Smiles in response; 1 = Delayed, partial; 2 = Smiles at an adult only after being tickled; 3 = Does not smile; 8 = Not applicable
|
q9_reciprocal_social_smile |
|
aosi_q9_reciprocalnotes |
String |
1,000
|
Recommended |
Reciprocal social smile. Notes: Specify whether infant smiles |
|
|
q9_reciprocal_social_smile_notes |
Query
|
aosi_q10_coordinationeye |
Integer |
|
Recommended |
Coordination of eye gaze and action score |
|
0 = Effectively coordinates; 1 = Brief/fleeting; 2 = Coordinates eye gaze only when an object is being moved; 3 = Does not coordinate eye gaze; 8 = Not applicable
|
q10_coordination_of_eye_gaze_and_action |
Query
|
aosi_q10_coordinationeyenotes |
String |
1,000
|
Recommended |
Coordination of eye gaze and action. Notes |
|
|
q10_coordination_of_eye_gaze_and_action_notes |
Query
|
aosi_q11_reactivity |
Integer |
|
Recommended |
Reactivity score |
|
0 = Clear and consistent; 1 = Somewhat under- and/or over-reactive; 2 = Clearly under- and/or over-reactive; 3 = Either intolerant of; 8 = Not applicable
|
q11_reactivity |
|
aosi_q11_reactivitynotes |
String |
1,000
|
Recommended |
Reactivity Notes: Specify whether under or over reactive |
|
|
q11_reactivity_notes |
Query
|
aosi_q14_socialinterest |
Integer |
|
Recommended |
Social interest and shared affect score |
|
0 = Shows sustained interest; 1 = Inconsistent interest; 2 = Interest or pleasure only in response; 3 = Does not show any interest; 8 = Not applicable
|
q14_social_interest |
|
aosi_q14_socialinterestnotes |
String |
1,000
|
Recommended |
Social interest and shared affect Notes |
|
|
q14_social_interest_notes |
Query
|
aosi_q15_transitions |
Integer |
|
Recommended |
Transitions score |
|
0 = Consistently and easily moves; 1 = Some difficulty; 2 = Repeated and marked difficulty; 8 = Not applicable
|
q15_transitions |
|
aosi_q15_transitionsnotes |
String |
1,000
|
Recommended |
Transitions Notes |
|
|
q15_transitions_notes |
Query
|
aosi_q16_motorcontrol |
Integer |
|
Recommended |
Motor control and behavior score |
|
0 = Clear and consistent; 1 = Partial or inconsistent; 2 = Marked difficulty; 8 = Not applicable
|
q16_motor_control_and_behaviour |
|
aosi_q16_motorcontrolnotes |
String |
1,000
|
Recommended |
Motor control and behavior Notes |
|
|
q16_motor_control_and_behaviour_notes |
Query
|
aosi_q17_atypicalmotorbehavior |
Integer |
|
Recommended |
Atypical motor behaviors score |
|
0 = Not atypical; 2 = Presence of atypical gait; 8 = Not applicable
|
q17_atypical_motor |
|
aosi_q17_atypmotorbehavnotes |
String |
1,000
|
Recommended |
Atypical motor behaviors Notes |
|
|
AOSI_q17_atypicalmotorbehaviorNotes, q17_atypical_motor_notes |
Query
|
aosi_q18_atypsensorybehav |
Integer |
|
Recommended |
Atypical sensory behaviors score |
|
0 = Not atypical; 2 = Presence of atypical sensory behaviors; 8 = Not applicable
|
AOSI_q18_AtypicalSensoryBehaviors, q18_atypical_sensory |
|
aosi_q18_atypsensorybehavnotes |
String |
1,000
|
Recommended |
Atypical sensory behaviors Notes |
|
|
AOSI_q18_AtypicalSensoryBehaviorsNotes, q18_atypical_sensory_notes |
Query
|
aosi_q18e_scoring |
String |
50
|
Recommended |
TOTAL SCORE (items 1-18) |
|
|
|
Query
|
aosi_q18e_scoring1 |
String |
50
|
Recommended |
NUMBER OF MARKERS (items 1-18) |
|
|
|
Query
|
aosi_q19_engagement |
Integer |
|
Recommended |
Engagement of Attention score |
|
0 = Sustained engagement; 1 = Only fleeting; 2 = Tends not to engage; 8 = Not applicable
|
q19_engagement_of_attention |
|
aosi_q19_engagementnotes |
String |
1,000
|
Recommended |
Engagement of Attention Notes |
|
|
q19_engagement_of_attention_notes |
Query
|
aosi_q20_insistence |
Integer |
|
Recommended |
Insistence on having or playing Score |
|
0 = No insistence; 1 = Excessive interest, but able to redirect; 2 = Excessive interest with persistent seeking; 8 = Not applicable
|
q20_insistence_on_particular_objects |
|
aosi_q20_insistencenotes |
String |
1,000
|
Recommended |
Insistence on having or playing. Notes: Provide specific examples |
|
|
q20_insistence_on_particular_objects_notes |
Query
|
aosi_q21_socialref |
Integer |
|
Recommended |
Social Referencing score |
|
0 = Infant spontaneously shifts gaze; 1 = Questionable social referencing; 2 = No clear example; 8 = Not applicable
|
q21_social_referencing |
|
aosi_q21_socialrefnotes |
String |
1,000
|
Recommended |
Social Referencing Notes |
|
|
q21_social_referencing_notes |
Query
|
validity_of_data |
Integer |
|
Recommended |
Validity of data |
|
0= raw; 1 = Valid or clean; 2 = Question validity; 3 = Invalid data; 4 = Not answered; 999= missing
|
|
|
dode |
String |
10
|
Recommended |
Date of Data Entry |
|
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
strdatapt1 |
Query
|
aescode |
Integer |
|
Recommended |
Staff code number of person completing this form |
|
999= Missing Data
|
strcoder |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
|
baseline_a_002 |
String |
100
|
Recommended |
Interview Start Time: |
|
|
|
|
trial_duration |
String |
20
|
Recommended |
Trial Duration and Units ie 20 minutes |
|
|
|
|
stoptime |
String |
10
|
Recommended |
Stop time |
|
|
|
Query
|
strcodablet1 |
Integer |
|
Recommended |
Was Trial codable? |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
phase1readyt1 |
Integer |
|
Recommended |
When the examiner is bouncing the ball right before the roll on the first roll, after that ready occurs in between the examiner getting the ball back after the previous trial, and rolling the ball for the next trial. As ball is bounced, where is child looking? |
0 :: 4
|
0= elsewhere; 1=late onset gaze to ball; 2=late onset gaze to ball and examiner; 3=Immediate gaze to ball or examiner; 4=Immediate gaze to ball and examiner, in any order
|
strphase1t1 |
Query
|
phase2ballrollingt1 |
Integer |
|
Recommended |
When the ball is rolling on the table but before the child touches it, as ball approaches child, where is child looking? |
0 :: 3
|
0=Child is gazing elsewhere; 1=Child looks at least once to examiner but not the ball; 2=Child looks at ball fleetingly, with/without gaze to examiner; 3=Child watches most of ball's trajectory toward themselves
|
strphase2t1 |
Query
|
phase3anticipationt1 |
Integer |
|
Recommended |
If/how the child moves arm/hand when the ball rolls toward them |
0::3;8
|
0=no arm/hand movement; 1=moves arm/hand but no contact before ball hits body; 2=moves arm/hand with closed hand and makes contact before ball hits body; 3=moves arm/hand with open hand and makes contact before ball hits body; 8=N/A
|
strphase3t1 |
Query
|
phase4contactliftt1 |
Integer |
|
Recommended |
If the child catches the ball with their arm,hand(s) or chest |
0 :: 8
|
0= Ball contacts chest, no lift, or unintentional contact; 1= Ball contacts chest, lift with arm or hand(s); 2= Ball contacts arm only, no lift; 3= Ball contacts arm only, child lifts with arm (no hand on ball); 4= Ball contacts arm and 1 hand, no lift OR ball contacts 1 hand only, no lift; 5= Ball contacts arm and 1 hand, child lifts ball with hand; 6= Ball contacts 2 hands, no lift; 7= Ball contacts 2 hands, child lifts ball with hand(s); 8= Ball contacts 1 hand, child lifts ball with one hand
|
strphase4t1 |
Query
|
vismotorintt1 |
Integer |
|
Recommended |
Does the child look at the ball while manually exploring it |
0 :: 2
|
0=child does not look at ball; 1=child exhibits fleeting gaze at ball before or simultaneously with touching, grasping, or otherwise exploring ball; 2=Child visually explores the ball at the same time as they are manually exploring the ball
|
strvismotorintt1 |
Query
|
ovposturalcontt1 |
Integer |
|
Recommended |
Low Trunk tone; poor postural control of the trunk |
0 :: 2
|
0=child slumps and appears to have low tone/poor postural control; 1=child seems to have somewhat low tone and postural control; 2=child displays no indication of low tone/poor postural control
|
strovposturalcontt1 |