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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Parent Demographics Form

44 Shared Subjects

N/A
Clinical Assessments
Demographics
06/25/2015
pardemogr01
02/05/2024
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. par_age, pre_demo3
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY demo_p_date, pre_demo1, t2_demo1
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender, pre_demo2
Query relationship Integer Recommended Relationship of respondent to individual
1::94;-999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker pr_demo1, relationship_to_par, t2_demo2
respond_detail_oth_spec String 255 Recommended Respondent details pr_demo1a, relation_to_par_other, t2_demo2a
Query resp_age Integer Recommended Respondent's age 0::1200; -777 -777=Not applicable pr_demo2
Query resp_race String 150 Recommended Respondent's race American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported demo_p_race, pr_demo3
parent_et_sp String 50 Recommended Specify ethnicity pr_demo3a
Query resp_ethnicity String 30 Recommended Respondent's ethnicity Hispanic or Latino;Not Hispanic or Latino;Unknown or not reported demo_p_ethnicity, pr_demo4
Query resp_education Integer Recommended Respondent's education 1::9 1 = Less than 8th grade; 2 = 9th-11th grade; 3 = High school or GED; 4 = Trade or vocational; 5 = Associate's degree or 2 years; 6 = Courses towards college; 7 = Bachelor's degree; 8 = Master's degree; 9 = Professional degree (MD, PhD, JD) pr_demo5
Query pr_demo6 Integer Recommended What is your employment status? 1::6 1=Working a full time paid job; 2=Working a part time paid job; 3=Full time student; 4= Part time student; 5=Not currently working; 6=Other
pr_demo7 String 100 Recommended What is your employment status. Please describe:
resp_occupation String 255 Recommended Respondent's occupation demo_p_curr_occup, pr_demo8
Query pr_demo9 Integer Recommended What is your current household income? 1::9 1= $20000 or less ; 2= $20001-$40000 ; 3= $40000-$60000 ; 4= $60000-$80000 ; 5= $80001-$100000 ; 6= $100001-$125000 ; 7= $125001-$150000 ; 8= $150001-$200000 ; 9= $200001 or higher
Query pr_demo10 Integer Recommended What is your marital status? 0::6 0= Never Married; 1= Living with a partner; 2= Married to adolescent/young adult's biological parent; 3= Married but not to the biological parent of the adolescent/young adult with ASD; 4= Separated; 5= Divored; 6= Widowed
Query pr_demo11 Integer Recommended Does your adolescent/young adult have any siblings? 0;1 0=NO; 1=Yes
Query demo_siblingscount Integer Recommended Number of siblings 888 = not applicable; 999 = missing pr_demo11a
Query ques_age1 Integer Recommended Age -Sibling 1(in months) 0 :: 1200 pr_demo11b
pr_demo11c String 50 Recommended Does this sibling have any diagnoses? If so= please list any diagnoses
Query ques_age2 Integer Recommended Age -Sibling 2(in months) 0 :: 1200 pr_demo11d
pr_demo11e String 50 Recommended Does this sibling have any diagnoses? If so= please list any diagnoses
Query ques_age3 Integer Recommended Age -Sibling 3(in months) 0 :: 1200 pr_demo11f
pr_demo11g String 50 Recommended Does this sibling have any diagnoses? If so= please list any diagnoses
Query ques_age4 Integer Recommended Age -Sibling 4(in months) 0 :: 1200 pr_demo11h
pr_demo11i String 50 Recommended Does this sibling have any diagnoses? If so= please list any diagnoses
Query ques_age5 Integer Recommended Age -Sibling 5(in months) 0 :: 1200 pr_demo11j
pr_demo11k String 50 Recommended Does this sibling have any diagnoses? If so= please list any diagnoses
Query spouse_age Integer Recommended Spouse's age 0::1200 In months pr_demo12
Query partrace Integer Recommended Partner or spouses race 1::8 1=American Indian/Alaska Native; 2= Asian; 3= Native Hawaiian or Other Pacific Islander 4=Hispanic; 5=Black or African American; 6=White; 7=More than one race; 8=Unknown or not reported pr_demo13
partner_resp_relationship String 100 Recommended Respondent's partner/spouse relationship to child 1 = Biological mom; 2 = Stepmom; 3 = Adoptive mom; 4 = Grandmother; 5 = Foster mother; 6 = Biological dad; 7 = Stepdad; 8 = Adoptive dad; 9 = Grandfather; 10 = Other pr_demo15
Query partethn Integer Recommended Partner or spouses ethnicity 1::3 1=Hispanic; 2=Non-Hispanic; 3=Prefer not to respond pr_demo14
pr_demo14a String 50 Recommended Please specify partner's ethnicity
Query demo_partner_edu String 100 Recommended Spouse/partner highest education level
Less than 8th grade; 9th grade to 11th grade; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelor degree; Master degree; Professional degree (MD, PhD, JD)
demo_p_part_edu_comp, pr_demo16
Query pr_demo17 Integer Recommended Spouse or partner's employment status: 1::6 1=Working a full time paid job; 2=Working a part time paid job; 3=Full time student; 4= Part time student; 5=Not currently working; 6=Other
demo_partner_occupation String 100 Recommended Spouse/partner Occupation demo_p_part_curr_occup, pr_demo18
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other pre_demo4
ch_race String 55 Recommended Child's/study subject Race specify pre_demo4a
Query ethnicity String 30 Recommended Ethnicity of participant Hispanic or Latino; Not Hispanic or Latino; Unknown pre_demo5
Query pre_demo7 Integer Recommended Type of Residence 1::3 1=City(large urban area); 2=2 Town(small urban area); 3= Rural Community
Query pre_demo8 Integer Recommended Current Residence 1::16 1=with parent; 2=With his/her siblings; 3=With other relatives; 4=Alone in own home or apartment independantly(no staff); 5=Alone in own home or apartment with support(regular oversight by staff and/or family, but less than 100% supervision); 6= Home or apartment shared with another person(s)(no staff); 7= Home or apartment shared with another person(s); 8=Foster Home; 9= Group home or fully-staffed apartment with 100% supervision; 10=College Dorm; 11=Residential school for students(younger than 22 years of age) with disabilities; 12=Treatment setting other than a residential school; 13= Public or private institution; 14= Congregate Care; 15=Nursing home; 16= In some other living situation t2_demo3a
pre_demo8a String 50 Recommended Current Residence. Please specify t2_demo3a_b
Query pre_demo8b Integer Recommended Current Residence. Specify # of beds: t2_demo3a_c
pre_demo8c String 50 Recommended Please specify # of bed t2_demo3a_d
Query t2_demo3 Integer Recommended Does your son or daughter live in the same residence as he/she did at our last visit? 0;1 0=No; 1=Yes
t2_demo3b String 25 Recommended When did your son or daughter move to his/her current residence?
t2_demo3c String 100 Recommended Could you describe why he or she moved from the residence in which he or she was living during the summer?
informant_gender String 5 Recommended Sex of the respondent M; F M = Male; F = Female par_sex
par_handedness Integer Recommended Respondent Handedness 1::4 1= Left; 2= Right; 3= Both; 4= Unknown
race_other String 100 Recommended Race of Respondent Specify demo_p_race_other
demo_p_edu_comp Integer Recommended Respondent Highest education completed 0::9 0= None; 1= Some K-12; 2= High School Graduate; 3= Some college, no degree; 4= Associate's degree, occupational; 5= Associate's degree, academic; 6= Bachelor's degree; 7= Master's degree; 8= Professional degree; 9= Doctoral degree
demo_p_part_grade_comp_2 String 20 Recommended Respondent highest grade completed:
par_special_ed Integer Recommended Has Respondent ever received Special Education Services? 1::3 1= Yes; 2= No; 3= Don't know
demo_p_high_occup String 50 Recommended Respondent highest occupation
demo_p_income Integer Recommended Respondent annual income range (Choose one): 1::5 1= $0 - $25,000; 2= $25,000 - $50,000; 3= $50,000 - $75000; 4= $75,000 - $100,000; 5= more than $100,000
demo_p_part_grade_comp Integer Recommended Partner/Spouse specify highest grade: 0::9 0= None; 1= Some K-12; 2= High School Graduate; 3= Some college, no degree; 4= Associate's degree, occupational; 5= Associate's degree, academic; 6= Bachelor's degree; 7= Master's degree; 8= Professional degree; 9= Doctoral degree
par_special_ed_2 Integer Recommended Has your spouse/partner ever received Special Education Services? 1::3 1= Yes; 2= No; 3= Don't know
demo_p_part_high_occup String 50 Recommended Partner/Spouse highest occupation
demo_p_part_income Integer Recommended Partner/Spouse annual income range (Choose one): 1::5 1= $0 - $25,000; 2= $25,000 - $50,000; 3= $50,000 - $75000; 4= $75,000 - $100,000; 5= more than $100,000
back_marital Integer Recommended What is your current marital status 1::9 1= never married; 2= living with someone; 3= married; 4= separated; 5=divorced; 6=widowed; 7= engaged; 8= lived with, but now single; 9= other
back_pbc_2 Integer Recommended With whom do you currently live? 1::4 1=Spouse,partner; 2=Child(ren) more than half the time; 3= Child(ren) less than half the time; 4=Other
back_pbc_3 String 250 Recommended If you currently live others, please specify
back_grade_highed Integer Recommended Grade/Highest education 1::19 1 = Less than 6th grade; 2 = Some high school; 3 = High school diploma or GED; 4 = Some college, no degree; 5 = Associate's degree; 6 = Bachelor's degree; 7 = Some graduate school; 8 = Master's degree and above; 9=Some post-graduate training, no degree; 10=Completed 8th grade, no high school; 99=Information not available; 11= High schoo; l 12= College or University; 13= Graduate school; 14= Other; 15 = Less than high school
back_pbc_5 Integer Recommended Which of the following categories best describes your annual household income? 1::9 1=Less than 25,000; 2=25,000 to 34,999; 3=35,000 to 49,999; 4=50,000 to 74,999; 5=75,000 to 99,999; 6=100,000 to 149,999; 7=150,000 to 199,999; 8=200,000 or more; 9=I prefer not to say
back_pbc_6 Integer Recommended Have you used Zoom or a similar video conferencing application before? 0;1 0= No; 1= Year
pbkgd_char01 Integer Recommended I tend to show different sides of myself to different people 1::5 1 = Strongly disagree; 2 = Moderately disagree; 3 = Neither agree nor disagree; 4 = Moderately agree; 5 = Strongly agree
pbkgd_char02 Integer Recommended I become nervous if others around me seem to be 1::5 1 = Strongly disagree; 2 = Moderately disagree; 3 = Neither agree nor disagree; 4 = Moderately agree; 5 = Strongly agree
pbkgd_char03 Integer Recommended I have said something bad about a friend behind his or her back 1::5 1 = Strongly disagree; 2 = Moderately disagree; 3 = Neither agree nor disagree; 4 = Moderately agree; 5 = Strongly agree
pbkgd_char04 Integer Recommended Group Assigned 0::5 0 = Control; 1 = P.Chat; 2 = P.Chat plus; 3 = PBI; 4 = Attention Matched Control; 5 = PBI plus
p_child_living Integer Recommended How many children do you live with? 1::6 1=1 child; 2=2 children; 3=3 children; 4=4 children; 5=5 children; 6=6 or more children
p_child_time Integer Recommended How much time do your child(ren) spend living with you? 1::5 1=All of their time; 2=More than half their time; 3=Half their time; 4=Less than half their time; 5=Only for short visits
p_child_study Integer Recommended How is the child that is participating in the current study related to you? 1::7 1=Biological son or daughter; 2=Adopted son or daughter; 3=Stepson or stepdaughter; 4=Grandchild; 5=Niece or nephew; 6=Foster child; 7=Other
back_pbc_2a Integer Recommended With whom do you currently live? - Spouse/partner 0;1 0=No; 1=Yes
back_pbc_2b Integer Recommended With whom do you currently live? - Child(ren) more than half the time 0;1 0=No; 1=Yes
back_pbc_2c Integer Recommended With whom do you currently live? - Child(ren) less than half the time 0;1 0=No; 1=Yes
back_pbc_2d Integer Recommended With whom do you currently live? - Other 0;1 0=No; 1=Yes
p_partner Integer Recommended Do you live with your spouse or partner? 0::2 0=No; 1=Yes; 2=N/A - do not have spouse/partner
p_partner_living Integer Recommended How would you describe the spouse or partner that you live with? 1::5 1=opposite sex husband/wife/spouse; 2=opposite sex unmarried partner; 3=same-sex husband/wife/spouse; 4=same-sex unmarried partner; 5=Other
p_child Integer Recommended Do you live with any child(ren) 0;1 0=No; 1=Yes
pbkgd7_char01 Integer Recommended I tend to show different sides of myself to different people 1::7 1 = Strongly disagree; 2 = Moderately disagree; 3 = Slightly disagree; 4 = Neither agree nor disagree; 5 = Slightly agree; 6 = Moderately agree; 7 = Strongly agree
pbkgd7_char02 Integer Recommended I become nervous if others around me seem to be 1::7 1 = Strongly disagree; 2 = Moderately disagree; 3 = Slightly disagree; 4 = Neither agree nor disagree; 5 = Slightly agree; 6 = Moderately agree; 7 = Strongly agree
pbkgd7_char03 Integer Recommended I have said something bad about a friend behind his or her back 1::7 1 = Strongly disagree; 2 = Moderately disagree; 3 = Slightly disagree; 4 = Neither agree nor disagree; 5 = Slightly agree; 6 = Moderately agree; 7 = Strongly agree
rays_demo01h Integer Recommended Please select the term(s) which best describe(s) your gender(s). Cisgender 0;1 0= No; 1= Yes
rays_demo01i Integer Recommended Please select the term(s) which best describe(s) your gender(s). Transgender 0;1 0= No; 1= Yes
rays_demo01j Integer Recommended Please select the term(s) which best describe(s) your gender(s). Not Listed 0;1 0= No; 1= Yes
rays_demo01k Integer Recommended Please select the term(s) which best describe(s) your gender(s). Prefer not to answer 0;1 0= No; 1= Yes
rays_demo01l String 100 Recommended If you selected not listed for your gender, please state here:
rays_demo02 Integer Recommended Your relationship to teen: 1 :: 6 1= Biological Parent; 2= Step Parent; 3= Adoptive Parent; 4= Foster Parent; 5= Relative who serves as guardian; 6= Other guardian
rays_demo03 Integer Recommended Were you born in the United States? 0;1 0= No; 1= Yes
rays_demo04 Integer Recommended Do you speak another language in addition to English? 0;1 0= No; 1= Yes
rays_demo05 Integer Recommended In general, what language do you prefer to speak? 1 :: 5 1= English all the time; 2= English most of the time; 3= English and other language equally; 4= Other language most of the time; 5= Other language all the time
rays_demo06 Integer Recommended Years of Education Completed: 1 :: 20 0 = never attended school/no formal education1 = 1st grade; 2 = 2nd grade; 3 = 3rd grade; 4 = 4th grade; 5 = 5th grade; 6 = 6th grade; 7 = 7th grade; 8 = 8th grade; 9 = 9th grade; 10 = 10th grade; 11 = 11th grade; 12 = 12th grade OR GED; 13 = 1 year of college, career/tech schools, vocational/trade schools, apprenticeship programs, etc); 14 = 2 years of college or associate?s degree, career/tech schools, vocational/trade schools, apprenticeship programs, etc); 15 = 3 years of college, career/tech schools, vocational/trade schools, apprenticeship programs, etc); 16 = bachelor?s degree; 17 = 1 year of graduate school; 18 = 2 years of graduate school; 19 = 3 years of graduate school; 20 = 4 or more years of graduate school
rays_demo07a Integer Recommended Your teen currently lives with: You 0;1 0= No; 1= Yes
rays_demo07b Integer Recommended Your teen currently lives with: Their (other) biological parent 0;1 0= No; 1= Yes
rays_demo07c Integer Recommended Your teen currently lives with: Their step parent 0;1 0= No; 1= Yes
rays_demo07d Integer Recommended Your teen currently lives with: Your live in partner 0;1 0= No; 1= Yes
rays_demo07e Integer Recommended Your teen currently lives with: Their other foster parent 0;1 0= No; 1= Yes
rays_demo07f Integer Recommended Your teen currently lives with: Other adult(s) who serve as guardians 0;1 0= No; 1= Yes
rays_demo07g Integer Recommended Your teen currently lives with: Other adult(s) who don?t serve as guardians 0;1 0= No; 1= Yes
rays_demo07h Integer Recommended Your teen currently lives with: Other adoptive parent 0;1 0= No; 1= Yes
rays_demo07i Integer Recommended Your teen currently lives with: On their own 0;1 0= No; 1= Yes
rays_demo01a Integer Recommended Please select the term(s) which best describe(s) your gender(s). Man 0;1 0= No; 1= Yes
rays_demo01b Integer Recommended Please select the term(s) which best describe(s) your gender(s). Women 0;1 0= No; 1= Yes
rays_demo01c Integer Recommended Please select the term(s) which best describe(s) your gender(s). Nonbinary 0;1 0= No; 1= Yes
rays_demo01d Integer Recommended Please select the term(s) which best describe(s) your gender(s). Genderqueer 0;1 0= No; 1= Yes
rays_demo01e Integer Recommended Please select the term(s) which best describe(s) your gender(s). Agender 0;1 0= No; 1= Yes
rays_demo01f Integer Recommended Please select the term(s) which best describe(s) your gender(s). Genderfliud 0;1 0= No; 1= Yes
rays_demo01g Integer Recommended Please select the term(s) which best describe(s) your gender(s). Multigender 0;1 0= No; 1= Yes
fis_gender Integer Recommended What is your gender? 1::4;9;99 1= Male; 2= Female; 3= Non-binary; 4= Unknown; 9= Prefer to self-describe/other; 99= Not reported
fis_genderdescribe String 100 Recommended What is your gender? Prefer to self-describe:
pdq_adults Integer Recommended How many adults line in your household? Number of Adults
pdq_child Integer Recommended How many children line in your household? Number of Children
subriderace_01a Integer Recommended What is your race (select all that apply)? American Indian or Alaska Native 0;1;77;88;-2;-3;-99 0= No/Unchecked; 1= Yes/Checked; 77= Refused; 88= Missing; -2= Not collected at this time point; -3= Historical missing; -99= NA
subriderace_01b Integer Recommended What is your race (select all that apply)? Asian 0;1;77;88;-2;-3;-99 0= No/Unchecked; 1= Yes/Checked; 77= Refused; 88= Missing; -2= Not collected at this time point; -3= Historical missing; -99= NA
subriderace_01c Integer Recommended What is your race (select all that apply)? Black or African American 0;1;77;88;-2;-3;-99 0= No/Unchecked; 1= Yes/Checked; 77= Refused; 88= Missing; -2= Not collected at this time point; -3= Historical missing; -99= NA
subriderace_01d Integer Recommended What is your race (select all that apply)? Native Hawaiian or Other Pacific Islander 0;1;77;88;-2;-3;-99 0= No/Unchecked; 1= Yes/Checked; 77= Refused; 88= Missing; -2= Not collected at this time point; -3= Historical missing; -99= NA
subriderace_01e Integer Recommended What is your race (select all that apply)? White/Caucasian 0;1;77;88;-2;-3;-99 0= No/Unchecked; 1= Yes/Checked; 77= Refused; 88= Missing; -2= Not collected at this time point; -3= Historical missing; -99= NA
subriderace_01f Integer Recommended What is your race (select all that apply)? Other 0;1;77;88;-2;-3;-99 0= No/Unchecked; 1= Yes/Checked; 77= Refused; 88= Missing; -2= Not collected at this time point; -3= Historical missing; -99= NA
subriderace_01g String 50 Recommended If other: please specify
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

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