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Parent Treatment Preference Questionnaire

124 Shared Subjects

N/A
Clinical Assessments
Treatment
03/23/2017
ptpq01
03/24/2017
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query daysrz Integer Recommended days since randomization
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
site String 101 Recommended Site Study Site
Query treatmt Integer Recommended Do you have a preference for which treatment you receive in this study? 1::3;999 1 = Medication only;2 = Combined medication and psychotherapy;3 = No preference ; 999=Skipped
Query ptpq1 Integer Recommended If given the behavior intervention, my child's behavior will improve. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq2 Integer Recommended The behavior intervention program is probably going to be a lot of work, but it's worth it. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq3 Integer Recommended The behavior intervention program is probably going to be a lot of work, and I doubt that it's worth it. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq4 Integer Recommended I feel confident that my family can pull this off (implement the behavior therapy). 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq5 Integer Recommended I have some difficulty giving my child rewards for what s/he should be doing. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq6 Integer Recommended I think that the behavior intervention may cramp my family's lifestyle. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq7 Integer Recommended I feel confident that the school will be able to implement the behavior intervention program. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq8 Integer Recommended I feel that the other adult caregivers in my child's life (other than those at school) will handle the behavior intervention program pretty well. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq9 Integer Recommended My first choice for treatment assignment would be behavior therapy without medication. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq10 Integer Recommended If given the medicine, my child's behavior will improve. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq11 Integer Recommended I have serious concerns about possible side effects with risperidone or aripiprazole. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq12 Integer Recommended The medicine will allow my child to lead a more normal life. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq13 Integer Recommended Even though I know that risperidone is not "habit forming," I still worry about that. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq14 Integer Recommended I am afraid that one of my other children will get the medicine by mistake. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq15 Integer Recommended If the medicine works, I will be willing to use it as long as it helps, even if that is for five years. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq16 Integer Recommended I feel guilty about considering a medical solution to my child's problems. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq17 Integer Recommended I will be able to give my child the medicine exactly as prescribed. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq18 Integer Recommended Medicine is over-used in today's society. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq19 Integer Recommended It is not important to give medicine exactly as prescribed. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq20 Integer Recommended I cannot recall anyone in my family having a bad reaction to medicine. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Query ptpq21 Integer Recommended My first choice for treatment would be medication without behavior therapy. 1::6 1 = Strongly disagree; 2 = Moderately disagree; 3 = Disagree a little; 4 = Agree a little; 5 = Agree moderately; 6 = Agree a lot
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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