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subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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chrpromis_interview_date, sridate |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
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gender, sex |
Query
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aescode |
Integer |
|
Recommended |
Staff code number of person completing this form |
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999= Missing Data
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srira |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
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srinotes |
Query
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sri1 |
Integer |
|
Recommended |
In the past 7 days: I had a hard time getting things done because I was sleepy ... |
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1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
impairment_1, promis_sleep10, sleepprobdiffgetthingsdone |
Query
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sri2 |
Integer |
|
Recommended |
In the past 7 days: I felt alert when I woke up ... |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
impairment_2, promis_sleep119 |
Query
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an2 |
Integer |
|
Recommended |
In the past 7 days... I feel tired |
1::5
|
1=Not at all; 2=A little bit; 3=Somewhat; 4=Quite a bit; 5=Very much
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impairment_3, promis_sleep18, sri3 |
Query
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sri4 |
Integer |
|
Recommended |
In the past 7 days: I had problems during the day because of poor sleep ... |
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1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
impairment_4, promis_sleep25 |
Query
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sri5 |
Integer |
|
Recommended |
In the past 7 days: I had a hard time concentrating because of poor sleep .. |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
impairment_5, promis_sleep27 |
Query
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sri6 |
Integer |
|
Recommended |
In the past 7 days: I felt irritable because of poor sleep ... |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
impairment_6, promis_sleep30 |
Query
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sri7 |
Integer |
|
Recommended |
In the past 7 days: I was sleepy during the daytime ... |
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
impairment_7, promis_sleep6 |
Query
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sri8 |
Integer |
|
Recommended |
In the past 7 days: I had trouble staying awake during the day ... |
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
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impairment_8, promis_sleep7 |
Query
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sri_ts |
Float |
|
Recommended |
Sleep Impairment T-score |
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|
promis_sf_v10_sleeprelated_impairment_8a_tscore |
Query
|
sri_rs |
Integer |
|
Recommended |
Sleep Impairment rawscore |
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|
impairment_score, prom_sleep_rs |
Query
|
sri_se |
Float |
|
Recommended |
Sleep Impairment standard error |
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|
promis_sf_v10_sleeprelated_impairment_8a_std_error |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
tpid |
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
formid |
Query
|
timept |
Integer |
|
Recommended |
Time Point |
|
888 = not applicable; 999 = missing
|
timepoint |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
siteid |
Query
|
diffstayawakeinday |
Integer |
|
Recommended |
Difficulty to stay awake during a day, frequency |
0 :: 4; -7; -8
|
0=Never; 1=Less than once a week; 2=1-2 days a week; 3=3-4 days a week; 4=Every or nearly every day; -8=DON'T KNOW; -7=REFUSED
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|
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sri14 |
Integer |
|
Recommended |
In the past 7 days: My daytime activities were disturbed by poor sleep. |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
|
|
sri_sleepy |
Integer |
|
Recommended |
In the past 7 days: I had a hard time concentrating because I was sleepy. |
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
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|
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sri_ready |
Integer |
|
Recommended |
In the past 7 days: when I woke up I felt ready to start the day. |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
|
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sri9 |
Integer |
|
Recommended |
In the past 7 days: I had difficulty waking up. |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
|
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sri10 |
Integer |
|
Recommended |
In the past 7 days: I still felt sleepy when I woke up. |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
|
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sri11 |
Integer |
|
Recommended |
In the past 7 days: I had a hard time controlling my emotions because of poor sleep. |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
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sri12 |
Integer |
|
Recommended |
In the past 7 days: I had enough energy. |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
|
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sri13 |
Integer |
|
Recommended |
In the past 7 days: I tried to sleep whenever I could. |
1::5
|
1 = Not at all ; 2 = A little bit ; 3 = Somewhat ; 4 = Quite a bit ; 5 = Very much
|
|
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prom_sleepimp8a_rs |
Float |
|
Recommended |
Promis Sleep Related Impairment - Raw score, fully imputed based on f1b cohort |
0::8
|
Higher score indicates more problems
|
|
|
prom_sleepimp8a_rs_imputed_f1b |
Float |
|
Recommended |
Promis Sleep Related Impairment - Raw score |
0::8
|
Higher score indicates more problems
|
|
|
chrpromise_sleep108 |
Integer |
|
Recommended |
In the past 7 days... My sleep was restless |
1::5;-900;-300
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -900 = Missing; -300 = N/A
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chrpromis_sleep72 |
Integer |
|
Recommended |
In the past 7 days... I tried hard to get to sleep |
1::5;-900;-300
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -900 = Missing; -300 = N/A
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|
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chrpromis_sleep67 |
Integer |
|
Recommended |
In the past 7 days... I worried about not being able to fall asleep |
1::5;-900;-300
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -900 = Missing; -300 = N/A
|
|
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chrpromis_sleep115 |
Integer |
|
Recommended |
In the past 7 days... I was satisfied with my sleep |
1::5;-900;-300
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -900 = Missing; -300 = N/A
|
|
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ampscz_missing |
Integer |
|
Recommended |
Please click if this form is missing all of its data |
0;1
|
0 = Not clicked; 1 = Clicked
|
chrpromis_missing |
|
ampscz_missing_spec |
Integer |
|
Recommended |
Please specify the reason for missing data on this form |
0::6
|
0 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit; 1 = Measure refusal (no reason provided); 2 = No show; 3 = Research assistant forgot; 4 = Uncontrollable circumstance; 5 = Participant dropped out; 6 = Evaluation not necessary because the screening visit was less than 21 days from baseline visit
|
chrpromis_missing_spec |
|
ampscz_entry_date |
Date |
|
Recommended |
Date of Data Entry |
|
MM/DD/YYYY
|
chrpromis_entry_date |
|
chrpromis_sleep109 |
Integer |
|
Recommended |
In the past 7 days... My sleep quality was |
1::5;-900;-300
|
1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good; -900 = Missing; -300 = N/A
|
|
|
chrpromis_sleep116 |
Integer |
|
Recommended |
In the past 7 days... My sleep was refreshing |
1::5;-900;-300
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -900 = Missing; -300 = N/A
|
|
|
chrpromis_sleep20 |
Integer |
|
Recommended |
In the past 7 days... I had a problem with my sleep |
1::5;-900;-300
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -900 = Missing; -300 = N/A
|
|
|
chrpromis_sleep44 |
Integer |
|
Recommended |
In the past 7 days... I had difficulty falling asleep |
1::5;-900;-300
|
1 = Not at all; 2 = A little bit; 3 = Somewhat; 4 = Quite a bit; 5 = Very much; -900 = Missing; -300 = N/A
|
|
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parent_sri_05 |
Integer |
|
Recommended |
In the past 7 days: My child had trouble staying awake during the day |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
|
parent_sri_06 |
Integer |
|
Recommended |
In the past 7 days: It was hard for my child to have fun because he/she was sleepy |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
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parent_sri_07 |
Integer |
|
Recommended |
In the past 7 days: My child could not keep his/her eyes open during the day |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
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parent_sri_08 |
Integer |
|
Recommended |
In the past 7 days: My child was in a bad mood because he/shewas sleepy |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
|
sri_15 |
Integer |
|
Recommended |
In the past 7 days: It was hard for me to have fun because I was sleepy. |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
|
sri_16 |
Integer |
|
Recommended |
In the past 7 days: I could not keep my eyes open during the day |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
|
sri_17 |
Integer |
|
Recommended |
In the past 7 days: I was in a bad mood because I was sleepy |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
|
parent_sri_01 |
Integer |
|
Recommended |
In the past 7 days: My child was sleepy during the daytime |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
|
parent_sri_02 |
Integer |
|
Recommended |
In the past 7 days: My child had a hard time concentrating because he/she was sleepy |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
|
parent_sri_03 |
Integer |
|
Recommended |
In the past 7 days: My child had a hard time getting things done because he/she was sleepy |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
|
parent_sri_04 |
Integer |
|
Recommended |
In the past 7 days: My child had problems during the day because of poor sleep |
1 :: 5
|
1= Never; 2= Almost Never; 3= Sometimes; 4= Almost Always; 5= Always
|
|
|
chrpromis_total |
Integer |
|
Recommended |
Sleep quality (Patient-Reported Outcomes Measurement Information System [PROMIS]): A total of the 8 items with very poor being 1 and up to very good being 5 |
8::40;-900;-300
|
-900 = Missing; -300 = N/A; chrpromis_sleep109+chrpromis_sleep116+(6-chrpromis_sleep20)+(6-chrpromis_sleep44)+(6-chrpromise_sleep108)+(6-chrpromis_sleep72)+(6-chrpromis_sleep67)+chrpromis_sleep115
|
|