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Demographics Form. Clinical Trials

798 Shared Subjects

N/A
Clinical Assessments
Demographics
01/20/2015
demgr01

View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query days_baseline Integer Recommended Days since baseline dayd, daydemo
Query assbdic String 5 Recommended Assessment Point D;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; C D=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78) assd, assdemo
Query relationship Integer Recommended Relationship of respondent to individual
1::94;-999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker reld, reldemo
Query actbdic Integer Recommended Active status 0::5 0=Inactive-Data collected after the 14 month treatment phase/after early termination from treatment phase/prior to treatment phase; 1=Active-Data collected during the 14 month treatment phase while subject received originally assigned treatment regardless of degree of compliance; 2=Active-This is the last active assessment for subjects who were about to violate treatment arm by receiving alternate treatment; 3=Active-This is the last active assessment for subjects who were about to leave the study by moving away;4=Yes, Active; 5=No, Not Active actd, actdemo
Query site String 101 Recommended Site Study Site sitenum
Query sjtyp Integer Recommended Subject type 1;2 1=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
Query demo1 Integer Recommended Adolescent's usual living arrangement (Not where the adolescent is just visiting) 1::10;12 1=In parental family home (include joint custody); 2=In home of other relative; 3=In home of unrelated friend; 4=College or boarding school dormitory; 5=Shared apartment or residence with friends or roommates; 6=In own home/apartment/residence; 7=Shelter/street/homeless/transient; 8=Jail; 9=Hospital/residential treatment center; 10=Halfway house/group home/supervised living arrangement; 12=Other d5
Query demo2 Integer Recommended Adolescent 0::9 0=none in home; 1= one in home; 2= two in home; 9=9 in home
Query demo3 Integer Recommended Mother figure 0::9 0=none in home; 1= one in home; 2= two in home; 9=9 in home
Query demo4 Integer Recommended Father figure 0::9 0=none in home; 1= one in home; 2= two in home; 9=9 in home
Query demo5 Integer Recommended Brothers 0::9 0=none in home; 1= one in home; 2= two in home; 9=9 in home
Query demo6 Integer Recommended Sisters 0::9 0=none in home; 1= one in home; 2= two in home; 9=9 in home
Query demo7 Integer Recommended Other relatives 0::9 0=none in home; 1= one in home; 2= two in home; 9=9 in home
Query demo8 Integer Recommended Non relatives 0::9 0=none in home; 1= one in home; 2= two in home; 9=9 in home
Query demo9 Integer Recommended Spouse/significant other 0::9 0=none in home; 1= one in home; 2= two in home; 9=9 in home
Query demo10 Integer Recommended Children of adolescent 0::9 0=none in home; 1= one in home; 2= two in home; 9=9 in home
Query demo11 Integer Recommended Total number of persons in home
Query das1ms String 200 Recommended Marital status demo12
Query demo13 Integer Recommended If Adolescent's current marital status is 2 (Currently married/common law) or 3 (Currently not married, living together), number of years
Query demo14 Integer Recommended Adolescent's current level of physical health 1::5 1=Very poor; 2=Poor; 3=Fair; 4=Good; 5=Excellent
Query demo15 Integer Recommended Type of middle school or high school adolescent attends 1::6 1=Past high school age or not in middle or high school; 2=Regular public school; 3=Regular private or parochial school; 4=Special school for persons with emotional/behavioral or learning problems; 5=Home schooling; 6=Other
Query demo16 Integer Recommended Adolescent's current grade in school (If between grades, e.g., summer vacation, circle last gradecompleted) (If not currently in school, use Code 19.) 5::19 5=5th grade; 6=6th grade; 7=7th grade; 8=8th grade; 9=9th grade; 10=10th grade; 11=11th grade; 12=12th grade or 1st year CEGEP in Canada; 13=1st year college/university/community college (or 2nd year CEGEP in Canada); 14=2nd year college/university/community college; 15=3rd year college/university/community college; 16=4th year or more college/university/community college; 17=Technical/trade/vocational school (e.g. auto mechanic or computer technician school); 18=Un-graded Special Education classroom; 19=Not in middle school, not in high school, not in college, and not in technical school
Query demo17 Integer Recommended Last school grade completed by the adolescent 5::19 5=5th grade; 6=6th grade; 7=7th grade; 8=8th grade; 9=9th grade; 10=10th grade; 11=11th grade; 12=12th grade or 1st year CEGEP in Canada; 13=1st year college/university/community college (or 2nd year CEGEP in Canada); 14=2nd year college/university/community college; 15=3rd year college/university/community college; 16=4th year or more college/university/community college; 17=Technical/trade/vocational school (e.g. auto mechanic or computer technician school); 18=Un-graded Special Education classroom; 19=Not in middle school, not in high school, not in college, and not in technical school
Query demo18 Integer Recommended How many years has adolescent attended a technical/trade/vocational school? 1::5 1=Up to 1 year; 2=Up to 2 years; 3=Up to 3 years; 4=Up to 4 years; 5=Never attended a technical/trade/vocational school
Query demo19 String 25 Recommended All schooling degrees earned by adolescent 1=No degree or certificate; 2=High school diploma or GED; 3=Certificate from technical school or equivalent; 4=Associate degree from 2 year program usually from community college or DEC in Canada; 5=Bachelors degree from 4 year college or university; 6=Post college graduate degree
demo25 String 25 Recommended Current employment status adolescent 1=Working full time; 2=Working part time; 3=Keeping house; 4=Unemployed and looking for work; 5=Unemployed and not looking for work; 6=Disabled; 7=Retired; 8=Full time student; 9=Part time student; 10=Other
demo35 String 25 Recommended Current employment status mother 1=Working full time; 2=Working part time; 3=Keeping house; 4=Unemployed and looking for work; 5=Unemployed and not looking for work; 6=Disabled; 7=Retired; 8=Full time student; 9=Part time student; 10=Other; 88=Not in household
demo46 String 25 Recommended Current employment status father 1=Working full time; 2=Working part time; 3=Keeping house; 4=Unemployed and looking for work; 5=Unemployed and not looking for work; 6=Disabled; 7=Retired; 8=Full time student; 9=Part time student; 10=Other; 88=Not in household
Query demo57 Integer Recommended How many times in the past two years has the adolescent experienced job losses by parental figures (include being fired, laid off, resigned because threatened with firing)?
Query demo58 Integer Recommended How many times in the past two years has the adolescent lost a job due to being fired, laid off, or resigned because threatened with firing?
Query demo59 Integer Recommended How many times in the past two years has the adolescent experienced separations, divorces, or deaths of parental figures?
Query demo60 Integer Recommended Annual household income before taxes, including income from all jobs, child support, public assistance, or Social Security payments. (include income from all working members of the household in item 2 who contribute financially) 1::10 1=less than $5,000; 2 = Less than $10,000; 3 = $10,001 to $20,000; 4 = $20,001 to $30,000; 5 = $30,001 to $40,000; 6 = $40,001 to $50,000; 7 = $50,001 to $60,000; 8 = $60,001 to $70,000; 9 = $70,001 to $80,000; 10 = $80,001 or more
Query demo61 Integer Recommended Does any part of your annual household income come from public assistance? 1;2 1=yes; 2=no
Query demo62 Integer Recommended Adolescent's annual income before taxes, including income from all jobs, child support, public assistance, or Social Security payments. (Do not include typical weekly allowance from parents or other parental financial support.) 1::10 1 = None, does not work; 2 = Less than $10,000; 3 = $10,001 to $20,000; 4 = $20,001 to $30,000; 5 = $30,001 to $40,000; 6 = $40,001 to $50,000; 7 = $50,001 to $60,000; 8 = $60,001 to $70,000; 9 = $70,001 to $80,000; 10 = $80,001 or more d10
Query demo63 Integer Recommended Does any part of adolescent's annual income come from public assistance? 1;2 1=yes; 2=no d11a
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
Query d1a Integer Recommended Never made a home with a romantic partner as a couple 1 1=True
Query d1b Integer Recommended Number of times legally married including common law
Query d1c Integer Recommended Number of times not married but living together as a couple
Query d1d Integer Recommended Number of times separated
Query d1e Integer Recommended Number of times divorced or annulled
Query d1f Integer Recommended Number of times widowed
Query d21y Integer Recommended Years legally married including common law
Query d21m Integer Recommended Months legally married including common law
Query d22y Integer Recommended Years not married but living together as a couple
Query d22m Integer Recommended Months not married but living together as a couple
Query d3b Integer Recommended Number of biological children
Query d3c Integer Recommended Number of adopted children
Query d3d Integer Recommended Number of step children
Query d3e Integer Recommended Number of foster children
Query d4a Integer Recommended Number of biological children living with you
Query d4b Integer Recommended Number of adopted children living with you
Query d4c Integer Recommended Number of step children living with you
Query d4d Integer Recommended Number of foster children living with you
Query d6a Integer Recommended Have no full, half, adopted, or step- brothers or sisters 1 1=True
Query d6b1 Integer Recommended Number of full brothers
Query d6b2 Integer Recommended Number of full brothers diagnosed with ADHD
Query d6c1 Integer Recommended Number of full sisters
Query d6c2 Integer Recommended Number of full sisters diagnosed with ADHD
Query d6d1 Integer Recommended Number of half brothers
Query d6d2 Integer Recommended Number of half brothers diagnosed with ADHD
Query d6e1 Integer Recommended Number of half sisters
Query d6e2 Integer Recommended Number of half sisters diagnosed with ADHD
Query d6f1 Integer Recommended Number of adopted brothers
Query d6f2 Integer Recommended Number of adopted brothers diagnosed with ADHD
Query d6g1 Integer Recommended Number of adopted sisters
Query d6g2 Integer Recommended Number of adopted sisters diagnosed with ADHD
Query dembsbro Integer Recommended Number of step-brothers d6h1
Query d6h2 Integer Recommended Number of step-brothers diagnosed with ADHD
Query dembssis Integer Recommended Number of step-sisters d6i1
Query d6i2 Integer Recommended Number of step-sisters diagnosed with ADHD
Query d7a Integer Recommended Still in high school 1 1=Yes
Query d7b Integer Recommended Enrolled in GED classes 1 1=Yes
Query d7c Integer Recommended Enrolled in adult education classes 1 1=Yes
Query d7d1 Integer Recommended Enrolled in a technical, trade, or vocational school full-time 1 1=Yes
Query d7d2 Integer Recommended Enrolled in a technical, trade, or vocational school part-time 1 1=Yes
Query d7e1 Integer Recommended Enrolled in a college, university, or community college full-time 1 1=Yes
Query d7e2 Integer Recommended Enrolled in a college, university, or community college part-time 1 1=Yes
Query d7f1 Integer Recommended Enrolled in a post college graduate school full-time 1 1=Yes
Query d7f2 Integer Recommended Enrolled in a post college graduate school part-time 1 1=Yes
Query d7g Integer Recommended Not currently in school 1 1=Yes
Query d9a Float Recommended How many months were spent in parents household
Query d9b Float Recommended How many months were spent in other relatives household
Query d9c Float Recommended How many months were spent in non-relatives household
Query d9d Float Recommended How many months were spent in own household alone (or living with partner or spouse or minor children)
Query d9e Float Recommended How many months were spent in own household but shared with friends or roommates
Query d9f Float Recommended How many months were spent in College or University dormitory, or housing
Query d9g Float Recommended How many months were spent in military housing
Query d9h Float Recommended How many months were spent in jail or prison
Query d9i Float Recommended How many months were spent in homeless, shelter, street, or transient
Query d9j Integer Recommended How many months were spent hospitalized
Query d9k Integer Recommended How many months were spent in supervised living arrangement (halfway house or group home)
Query d9l Integer Recommended How many months were spent in another living arrangement
Query d9aa Integer Recommended How many times have you moved
Query d11b Integer Recommended Has any part of yearly individual income since leaving high school come from public assistance? 1;2 1=yes; 2=no
Query d12a Integer Recommended Amount received each month from parents 1::4 1 = up to $200 a month 2 = $201 to $500 a month 3 = $501 to $1,000 a month 4 = greater than $1,000 a month
Query d12b Integer Recommended Amount received each month from trust fund income? 1::4 1 = up to $200 a month 2 = $201 to $500 a month 3 = $501 to $1,000 a month 4 = greater than $1,000 a month
Query d12c Integer Recommended Amount received each month from investment income? 1::4 1 = up to $200 a month 2 = $201 to $500 a month 3 = $501 to $1,000 a month 4 = greater than $1,000 a month
Query d12d Integer Recommended Amount received each month from spouse or partner? 1::4 1 = up to $200 a month 2 = $201 to $500 a month 3 = $501 to $1,000 a month 4 = greater than $1,000 a month
Query d12e Integer Recommended Amount received each month from stipends? 1::4 1 = up to $200 a month 2 = $201 to $500 a month 3 = $501 to $1,000 a month 4 = greater than $1,000 a month
Query d12x Integer Recommended Amount received each month from public assistance? 1::4 1 = up to $200 a month 2 = $201 to $500 a month 3 = $501 to $1,000 a month 4 = greater than $1,000 a month
Query d12y Integer Recommended Amount received each month from unemployment compensation? 1::4 1 = up to $200 a month 2 = $201 to $500 a month 3 = $501 to $1,000 a month 4 = greater than $1,000 a month
Query d12f Integer Recommended Amount received each month from other sources? 1::4 1 = up to $200 a month 2 = $201 to $500 a month 3 = $501 to $1,000 a month 4 = greater than $1,000 a month
Query d13a Integer Recommended Amount of debt currently owed on credit cards 1::5 1 = up to $500 owed 2 = $501 to $1,000 owed 3 = $1,001 to $5,000 owed 4 = $5,001 to $10,000 owed 5 = greater than $10,001 owed
Query d13b Integer Recommended Amount of debt currently owed on car loans 1::5 1 = up to $500 owed 2 = $501 to $1,000 owed 3 = $1,001 to $5,000 owed 4 = $5,001 to $10,000 owed 5 = greater than $10,001 owed
Query d13c Integer Recommended Amount of debt currently owed on bank loans 1::5 1 = up to $500 owed 2 = $501 to $1,000 owed 3 = $1,001 to $5,000 owed 4 = $5,001 to $10,000 owed 5 = greater than $10,001 owed
Query d13d Integer Recommended Amount of debt currently owed on school loans 1::5 1 = up to $500 owed 2 = $501 to $1,000 owed 3 = $1,001 to $5,000 owed 4 = $5,001 to $10,000 owed 5 = greater than $10,001 owed
Query d13e Integer Recommended Amount of debt currently owed on home mortgage
Query d13f Integer Recommended Amount of debt currently owed parents 1::5 1 = up to $500 owed 2 = $501 to $1,000 owed 3 = $1,001 to $5,000 owed 4 = $5,001 to $10,000 owed 5 = greater than $10,001 owed
Query d13g Integer Recommended Amount of debt currently owed friends 1::5 1 = up to $500 owed 2 = $501 to $1,000 owed 3 = $1,001 to $5,000 owed 4 = $5,001 to $10,000 owed 5 = greater than $10,001 owed
Query d13x Integer Recommended Amount of debt currently owed medical bills 1::5 1 = up to $500 owed 2 = $501 to $1,000 owed 3 = $1,001 to $5,000 owed 4 = $5,001 to $10,000 owed 5 = greater than $10,001 owed
Query d13y Integer Recommended Amount of debt currently owed phone company 1::5 1 = up to $500 owed 2 = $501 to $1,000 owed 3 = $1,001 to $5,000 owed 4 = $5,001 to $10,000 owed 5 = greater than $10,001 owed
Query d13h Integer Recommended Amount of debt currently owed others 1::5 1 = up to $500 owed 2 = $501 to $1,000 owed 3 = $1,001 to $5,000 owed 4 = $5,001 to $10,000 owed 5 = greater than $10,001 owed
Query d14a Integer Recommended Taken out a payday loan or paycheck advance until your next payday 1;2 1=yes; 2=no
Query d14b Integer Recommended Taken out a cash advance on your credit card 1;2 1=yes; 2=no
Query d14c Integer Recommended Been late on one or more of your debts (delinquency) 1;2 1=yes; 2=no
Query d14d Integer Recommended Become unable to pay most of your debts as they fall due 1;2 1=yes; 2=no
Query d14e Integer Recommended Used debt consolidation (pay off all loans with one new loan) 1;2 1=yes; 2=no
Query d14f Integer Recommended Defaulted on a loan or other debt (other than mortgage) 1;2 1=yes; 2=no
Query d14g Integer Recommended Been contacted by a collection agency 1;2 1=yes; 2=no
Query d14h Integer Recommended Lost your home because of inability to pay the mortgage (foreclosure) 1;2 1=yes; 2=no
Query d14i Integer Recommended Declared legal bankruptcy 1;2 1=yes; 2=no
Query d14j Integer Recommended Other 1;2 1=yes; 2=no
Query d_8 Float Recommended How many months have you been out of high school (or since the last assessment)? 0=Still in high school d8
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