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subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
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gender |
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
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|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
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prev_ex1 |
String |
10
|
Recommended |
Ophthalmologist ID |
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prev_ex2 |
Integer |
|
Recommended |
Did the participant cooperate during the exam |
1;2
|
2=No; 1=Yes
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prev_ex3 |
String |
50
|
Recommended |
Not cooperated, reason |
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prev_ex4 |
Integer |
|
Recommended |
Was the external exam normal |
1;2
|
2=No; 1=Yes
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|
prev_ex5 |
String |
50
|
Recommended |
Exam not normal, specify |
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prev_ex6 |
Integer |
|
Recommended |
Are the pupils normal |
1;2
|
2=No; 1=Yes
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|
prev_ex7 |
Integer |
|
Recommended |
Pupils abnormal |
1::3
|
1=irregular shape; 2= afferent defect; 3=other
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|
prev_ex8 |
String |
50
|
Recommended |
Pupils abnorm other, specify |
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prev_ex9 |
Integer |
|
Recommended |
Was the retinoscopy performed |
1;2
|
2=No; 1=Yes
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|
prev_ex10 |
Integer |
|
Recommended |
Retinoscopy result |
1;2
|
1=Normal; 2= abnormal
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prev_ex11 |
Integer |
|
Recommended |
Myopia |
1;2
|
1=Present; 2= absent
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prev_ex12 |
Integer |
|
Recommended |
Hyperopia |
1;2
|
1=Present; 2= absent
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prev_ex13 |
Integer |
|
Recommended |
Anisometropia |
1;2
|
1=Present; 2= absent
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prev_ex14 |
Integer |
|
Recommended |
Were corrective lenses recommended |
1;2
|
2=No; 1=Yes
|
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prev_ex15 |
Integer |
|
Recommended |
Was strabismus present |
1;2
|
2=No; 1=Yes
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prev_ex16 |
Integer |
|
Recommended |
Strabismus present, specify 1 |
1::3
|
1=Esotropia; 2=Exotropia; 3=None
|
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|
prev_ex17 |
Integer |
|
Recommended |
Strabismus present, specify 2 |
1::3
|
1=Hypertropia; 2=Hypotropia; 3=None
|
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|
prev_ex18 |
Integer |
|
Recommended |
Was visual acuity performed |
1;2
|
2=No; 1=Yes
|
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|
prev_ex19 |
Integer |
|
Recommended |
Visual acuity results |
1;2
|
1=Normal; 2= abnormal
|
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|
prev_ex20 |
String |
5
|
Recommended |
Visual acuity abnormal, specify |
|
1=Failure to fix and follow; 2=Failure to maintain central fixation
|
|
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prev_ex21 |
Integer |
|
Recommended |
Was the Bruckner test performed |
1;2
|
2=No; 1=Yes
|
|
|
prev_ex22 |
Integer |
|
Recommended |
Bruckner test results |
1;2
|
1=Normal; 2= abnormal
|
|
|
prev_ex23 |
String |
10
|
Recommended |
Bruckner test results abnormal, specify |
|
1=absent; 2= white; 3=dull, opacified; 4= asymmetric; 5=other
|
|
|
prev_ex24 |
String |
50
|
Recommended |
Bruckner test results abnormal other, specify |
|
|
|
|
prev_ex25 |
Integer |
|
Recommended |
Were corneal reflexes normal |
1;2
|
2=No; 1=Yes
|
|
|
prev_ex26 |
String |
5
|
Recommended |
Corneal reflexes abnormal |
|
1=Asymetric; 2=Displaced
|
|
|
prev_ex27 |
Integer |
|
Recommended |
Was a dilated funduscopic examination performed |
1;2
|
2=No; 1=Yes
|
|
|
prev_ex28 |
Integer |
|
Recommended |
Dilated funduscopic examination results |
1;2
|
1=Normal; 2= abnormal
|
|
|
prev_ex29 |
String |
5
|
Recommended |
Dilated funduscopic examination results abnormal, specify |
|
1=Retinal hamartomas; 2= optic atrophy
|
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|
prev_ex30 |
Integer |
|
Recommended |
Were photos taken |
1;2
|
2=No; 1=Yes
|
|
|
prev_ex31 |
Integer |
|
Recommended |
Is there a high index of suspicion for decreased visual function |
1;2
|
2=No; 1=Yes
|
|
|
prev_ex32 |
Integer |
|
Recommended |
Was OCT ordered |
1;2
|
2=No; 1=Yes
|
|
|
prev_ex33 |
Integer |
|
Recommended |
Does the parent report normal vision at home |
1;2
|
2=No; 1=Yes
|
|
|
comments |
String |
4,000
|
Recommended |
Comments about assessment |
|
|
|
|
prev_ex35 |
Integer |
|
Recommended |
Has there been a significant change in the eye exam since the last visit |
1;2
|
2=No; 1=Yes
|
|
|
prev_ex36 |
Integer |
|
Recommended |
Does the change warrant notigfication of site PI |
1;2
|
2=No; 1=Yes
|
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