|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
tpid |
|
session_id |
String |
20
|
Recommended |
session ID/screening ID |
|
|
|
|
isg_expected_discussions |
Integer |
|
Recommended |
Expected to find: Discussions with other participants |
0;1
|
0=No; 1=Yes
|
expected_discussions |
|
isg_expected_advice |
Integer |
|
Recommended |
Expected to find: Advice from experts/ physicians |
0;1
|
0=No; 1=Yes
|
expected_advice |
|
isg_expected_resource |
Integer |
|
Recommended |
Expected to find: Access to more resources |
0;1
|
0=No; 1=Yes
|
expected_resource |
|
isg_expected_research |
Integer |
|
Recommended |
Expected to find: Information about research |
0;1
|
0=No; 1=Yes
|
expected_research |
|
isg_expected_tips |
Integer |
|
Recommended |
Expected to find: Self-management tips for mood and anxiety |
0;1
|
0=No; 1=Yes
|
expected_tips |
|
isg_other_spec |
Integer |
|
Recommended |
Expected to find: Other; specify |
0;1
|
0=No; 1=Yes
|
other_spec |
|
isg_no_expectations |
Integer |
|
Recommended |
Expected to find: I had no expectations |
0;1
|
0=No; 1=Yes
|
no_expectations |
|
isg_helpful_following |
Integer |
|
Recommended |
Find helpful: Following discussion boards |
0;1
|
0=No; 1=Yes
|
helpful_following |
|
isg_helpful_responses |
Integer |
|
Recommended |
Find helpful: Responses to my own posts/ comments |
0;1
|
0=No; 1=Yes
|
helpful_responses |
|
isg_helpful_resource |
Integer |
|
Recommended |
Find helpful: Links to resources |
0;1
|
0=No; 1=Yes
|
helpful_resource |
|
isg_helpful_advice |
Integer |
|
Recommended |
Find helpful: Expert Advice |
0;1
|
0=No; 1=Yes
|
helpful_advice |
|
isg_helpful_news |
Integer |
|
Recommended |
Find helpful: News updates |
0;1
|
0=No; 1=Yes
|
helpful_news |
|
isg_helpful_email |
Integer |
|
Recommended |
Find helpful: Weekly emails |
0;1
|
0=No; 1=Yes
|
helpful_email |
|
isg_helpful_multimedia |
Integer |
|
Recommended |
Find helpful: Multimedia and videos |
0;1
|
0=No; 1=Yes
|
helpful_multimedia |
|
isg_helpful_spec |
Integer |
|
Recommended |
Find helpful: Other; specify |
0;1
|
0=No; 1=Yes
|
helpful_spec |
|
isg_helpful_none |
Integer |
|
Recommended |
Find helpful: None |
0;1
|
0=No; 1=Yes
|
helpful_none |
|
isg_feel_connected |
Integer |
|
Recommended |
Log on to: Feel connected with people who can understand my condition |
0;1
|
0=No; 1=Yes
|
feel_connected |
|
isg_seek_advice |
Integer |
|
Recommended |
Log on to: Seek advice |
0;1
|
0=No; 1=Yes
|
seek_advice |
|
isg_help_others |
Integer |
|
Recommended |
Log on to: Help others |
0;1
|
0=No; 1=Yes
|
help_others |
|
isg_look_responses |
Integer |
|
Recommended |
Log on to: Look for responses on my posts/ comment |
0;1
|
0=No; 1=Yes
|
look_responses |
|
isg_check_email |
Integer |
|
Recommended |
Log on to: Check out content of emails Chris sent |
0;1
|
0=No; 1=Yes
|
check_email |
|
isg_get_recognition |
Integer |
|
Recommended |
Log on to: Get recognition for participation |
0;1
|
0=No; 1=Yes
|
get_recognition |
|
isg_win_contest |
Integer |
|
Recommended |
Log on to: Win a contest |
0;1
|
0=No; 1=Yes
|
win_contest |
|
isg_log_spec |
Integer |
|
Recommended |
Log on to: Other; Specify |
0;1
|
0=No; 1=Yes
|
log_spec |
|
isg_interactions |
Integer |
|
Recommended |
Did you think that you could discuss certain issues more openly than in face-to-face interactions? |
1::5
|
1= Yes, I completely agree that I could discuss my problems more openly; 2= Yes, I somewhat agree that I could discuss my problems more openly; 3= I think it made no difference that it was anonymous; 4= No, I somewhat disagree that I could discuss my problems more openly; 5= No, I definitely disagree that I could discuss my problems more openly
|
interactions |
|
isg_mood_symptoms |
Integer |
|
Recommended |
Did you think that logging in/engaging in the ISG was helpful in managing your mood symptoms? |
1::6
|
1= A lot; 2= Somewhat; 3= A little; 4= Not at all; 5= No, it worsened my mood symptoms; 6= I did not have any mood symptoms
|
mood_symptoms |
|
isg_anxiety_symptoms |
Integer |
|
Recommended |
Did you think that logging in/ engaging in the ISG was helpful in managing your anxiety symptoms? |
1::6
|
1= A lot; 2= Somewhat; 3= A little; 4= Not at all; 5= No, it worsened my anxiety symptoms; 6= I did not have any anxiety symptoms
|
anxiety_symptoms |
|
isg_logins |
Integer |
|
Recommended |
Number of internet support group logins |
|
|
|
|
isg_posts |
Integer |
|
Recommended |
Number of internet support group posts |
|
|
|
|
isg_comments |
Integer |
|
Recommended |
Number of internet support group comments |
|
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
formid |