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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Activities of Daily Living

417 Shared Subjects

N/A
Clinical Assessments
Questionnaire
05/28/2015
acdayliv01

View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project catieid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query visit String 60 Recommended Visit name
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query adl01 Integer Recommended Regarding eating, which best describes (S) usual performance? 0;1;2;3 0 = Usually or always was fed by someone else; 1 = Used fingers to eat; 2 = Used a fork or spoon, but not a knife, to eat; 3 = Ate without physical help, and used a knife
Query adl02 Integer Recommended Regarding walking (or getting around in a wheelchair), which best describes his/her usual performance? 0;1;2;3 0 = Required physical help to walk or transfer; 1 = Transferred from bed to chair without help; 2 = Mobile across a room without physica help; 3 = Mobile outside of home without physical help
Query adl03 Integer Recommended Regarding bowel and bladder function 0;1;2;3 0 = Needed physical help, and was usually incontinent; 1 = Needed physical help, and was usually continent; 2 = Needed supervision, but no physical help; 3 = Did everything necessary without supervision or help
Query adl04 Integer Recommended Regarding bathing, which best describes his/her usual performance? 0;1;2;3 0 = Needed to be bathed completely; 1 = Needed minor physical help (e.g., washing hair) to bathe completely; 2 = No physical help, but needed supervision/reminders to bathe completely; 3 = Bathed without reminding or physical help
Query adl05 Integer Recommended Regarding grooming, which best describes his/her optimal performance 0;1;2;3 0 = Needed help for grooming of hair, face, hands, and fingernails; 1 = Kept face and hands clean without physical help; 2 = Brushed or combed hair without physical help; 3 = Cleaned and cut fingernails without physical help
Query adl06a Integer Recommended Regarding dressing, did subject select his/her first set of clothes for the day? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl06aa Integer Recommended Which best describes his/her usual performance? 1;2;3 1 = With physical help; 2 = With supervision; 3 = Without supervision or help
Query adl06b Integer Recommended Regarding physically getting dressed, which best describes his/her usual performance? 0::4 0 = Always need help, regardless of the type of clothing; 1 = Dressed without help if clothes needed no fastening or buttoning; 2 = Needed physical help only for buttons, clasps, or shoelaces; 3 = Dressed completely with supervision, but without physical help; 4 = Dressed completely without supervision or physical help
Query adl07 Integer Recommended Did subject use a telephone? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl07a Integer Recommended Which best describes his/her highest level of performance? 1;2;3;4;5 1 = Did not answer the phone, but spoke when put on the line; 2 = Answered the phone; did not make calls; 3 = Made calls only to well-known numbers, by using directory or list; 4 = Made calls only to well-known numbers, without referring to a directory or list; 5 = Made calls after looking in white or yellow pages, or by dialing directory assisstance telephonelist
Query adl08 Integer Recommended Did subject watch television? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl08a Integer Recommended Did subject usually select or ask for different programs or his/her favorite show? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl08b Integer Recommended Did subject usually talk about the content of a program while watching it? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl08c Integer Recommended Did subject talk about the content of a program within a day (24 hours) after watching it? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl09 Integer Recommended Did subject ever appear to pay attention to conversation or small talk for at least 5 minutes? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl09a Integer Recommended Which best describes his/her usual degree of participation? 1;2;3 1 = Rarely or never spoke; 2 = Usually said things that were not related to the topic; 3 = Usually said things that were related to the topice
Query adl10 Integer Recommended Did subject clear the dishes from the table after a meal or snack? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl10a Integer Recommended Which best describes how he/she usually performed? 1;2;3 1 = With physical help; 2 = With supervision; 3 = Without supervision or help
Query adl11 Integer Recommended 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl11a Integer Recommended Which best describes how he/she usually performed? 1;2;3 1 = With physical help; 2 = With supervision; 3 = Without supervision or help
Query adl12 Integer Recommended Did subject obtain a hot or cold beverage for him/herself? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl12a Integer Recommended Which best describes his/her highest level of performance? 1;2;3 1 = Obtained a cold beverage, usually without physical help; 2 = Made a hot beverage, usually if someone else heated the water; 3 = Made a hot beverage, usually without physical help
Query adl13 Integer Recommended Did subject make him/herself a meal or snack at home? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl13a Integer Recommended Which best describes his/her highest level of food preperation? 1;2;3;4 1 = Obtained food on his/her own, without mixing or cooking it; 2 = Mixed or combined food items for a meal or snack, without cooking or microwaving; 3 = Cooked or microwaved food, with extensive help; 4 = Cooked or microwaved food, with little or no help
Query adl14 Integer Recommended Did the subject dispose of garbage or litter in an appropriate place or container at home? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl14a Integer Recommended Whch best describes how he/she usually performs? 1;2;3 1 = With physical help; 2 = With supervision; 3 = Without supervision or help
Query adl15 Integer Recommended Did subject get around (or travel) outside of his/her home? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl15a Integer Recommended Which best describes his/her optimal performance 1::4 1 = Only with physical help, regardless of the trip; 2 = Only when accopmanied and supervised, regardless of the trip; 3 = Alone, but remained within 1 mile of home; 4 = Alone, went at least 1 mile away from home
Query adl16 Integer Recommended Did subject ever go shopping? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl16a Integer Recommended Which best describes how subject usually selects items? 1;2;3 1 = Not at all, or selected mainly random or inappropriate items; 2 = With some supervision or physical help; 3 = Without supervision or physical help
Query adl16b Integer Recommended Did subject usually pay for items without supervision or physical help? 1;0;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl17 Integer Recommended Did subject keep appointments or meetings with other people, such as relatives, a doctor, the hairdresser, etc.? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl17a Integer Recommended Which best describes his/her awareness of the meeting ahead of time? 1;2;3 1 = Usually did not remember, in spite of verbal reminders on the day; 2 = Only remembered the appointment after verbal reminders on the day; 3 = Usually remembered, may have needed written reminders
Query adl18 Integer Recommended Was subject ever left on his/her own? 0;1;8;9 0 = No; 1 = Yes; 8 = S is institutionalized; 9 = Don't Know
Query adl18a Integer Recommended Was subject left away from home, for 15 minutes or longer, during the day? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl18b Integer Recommended Was subject left at home, for an hour or linger, during the day? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl18c Integer Recommended Was subject left at home, for less than an hour, during the day? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl19 Integer Recommended Did subject talk about current events? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl19a Integer Recommended Did subject talk about events that he/she heard or read about or saw on TV but did not take part of it? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl19b Integer Recommended Did subject talk about events that took part outside the home involving family, friends, or neighbors? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl20 Integer Recommended Did subject read a magazine, newspaper, or book for more than 5 minutes at a time? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl20a Integer Recommended Did subject usually talk about details of what he/she read while or shortly (<1 hour) after reading? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl20b Integer Recommended Did subject usually talk about what he'she read 1 hour or longer after reading 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl21 Integer Recommended Did subject ever write things down? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl21a Integer Recommended Which best describes the most complicated things that he/she wrote? 1;2;3 1 = His/her signature or name; 2 = Short notes or messages that other people understood; 3 = Letters or long notes that other people understood
Query adl22 Integer Recommended Did subject perform a pastime, hobby or game? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Query adl22aa Integer Recommended card or board games 0;1 0=no; 1=yes
Query adl22ab Integer Recommended bingo 0;1 0=no; 1=yes
Query adl22ac Integer Recommended musical instrument 0;1 0=no; 1=yes
Query adl22ad Integer Recommended reading 0;1 0=no; 1=yes
Query adl22ae Integer Recommended tennis 0;1 0=no; 1=yes
Query adl22af Integer Recommended crosswords 0;1 0=no; 1=yes
Query adl22ag Integer Recommended knitting 0;1 0=no; 1=yes
Query adl22ah Integer Recommended gardening 0;1 0=no; 1=yes
Query adl22ai Integer Recommended workshop 0;1 0=no; 1=yes
Query adl22aj Integer Recommended art 0;1 0=no; 1=yes
Query adl22ak Integer Recommended sewing 0;1 0=no; 1=yes
Query adl22al Integer Recommended golf 0;1 0=no; 1=yes
Query adl22am Integer Recommended fishing 0;1 0=no; 1=yes
Query adl22an Integer Recommended other 0;1 0=no; 1=yes
Query adl22b Integer Recommended Did subject perform hobbies/pastime only at day care? 0;1 0=no; 1=yes
Query adl22c Integer Recommended How did subject usually perform his/her most common pastimes? 1::3 1 = With physical help; 2 = With supervision; 3 = Without supervision or help
Query adl23 Integer Recommended In the past 4 weeks, did subject use a household applicance to do chores? 0;1; 9 0=no; 1=yes; 9=don't know
Query adl23aa Integer Recommended washer? 0;1 0=no; 1=yes
Query adl23ab Integer Recommended dishwasher 0;1 0=no; 1=yes
Query adl23ac Integer Recommended range 0;1 0=no; 1=yes
Query adl23ad Integer Recommended dryer 0;1 0=no; 1=yes
Query adl23ae Integer Recommended toaster 0;1 0=no; 1=yes
Query adl23af Integer Recommended microwave 0;1 0=no; 1=yes
Query adl23ag Integer Recommended vacuum 0;1 0=no; 1=yes
Query adl23ah Integer Recommended toaster oven 0;1 0=no; 1=yes
Query adl23ai Integer Recommended food processor 0;1 0=no; 1=yes
Query adl23aj Integer Recommended other 0;1 0=no; 1=yes
Query adl23b Integer Recommended For the most commonly used appliances, which best describes how the subject usually used them? 1;2;3;4 1 = With physical help; 2 = With supervision, but no physical help; 3 = Without help, but operated only on/off controls; 4 = Without help, operating more than on-off controls if needed
Query adl24 Integer Recommended Total score 0::78
Query adl25 Integer Recommended Number of Don't Know responses in ADL 0::30
Query visnum Float Recommended Numeric Visit Number -1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
Query phase_ct String 20 Recommended Current Phase. Phase patient was in at the time of the assessment Phase 4 refers to the follow-up phase. Pre-Rand; Phase 1/1A; Phase 2; Phase 3; Phase 4; Phase 1B; Open-Choice Phase; Screening; Phase 1 phase
Query adcs_ts Integer Recommended ADCS Total Score
Query last1 Integer Recommended Flag Last Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query base1 Integer Recommended Flag Baseline Phase 1/1A Visit 1=Yes for all records meeting this criteria
Query base_ts Float Recommended Baseline Total Score Scare at Phase 1 baselline
Query c_ts Float Recommended Changed from Baseline ADAS Total Score Change from Phase 1 baseline
Query adl19c Integer Recommended Did subject talk about events that occurred at home that he/she took part in or watched? 0;1;9 0 = No; 1 = Yes; 9 = Don't Know
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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