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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Childrens Hospital Medical History

275 Shared Subjects

N/A
Clinical Assessments
Med History
12/21/2015
chmedhx01
12/21/2015
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
abnormalbpdatedd Date Recommended Other renal abnormality Abnormal BP Date otherrenalabnormalityabnormalb
Query abnormalbpimaging String 25 Recommended Other renal abnormality Abnormal BP Imaging Renal/bladder US; VCUG otherrenalabnormalityabnormalb5
Query abnormalbpongoing String 5 Recommended Other renal abnormality Abnormal BP Ongoing Yes; No otherrenalabnormalityabnormalb4
agenesisdatedd Date Recommended Other renal abnormality Agenesis Date otherrenalabnormalityagenesisd
Query agenesisimaging String 25 Recommended Other renal abnormality Agenesis imaging Renal/bladder US; VCUG otherrenalabnormalityagenesisi
Query agenesisongoing String 5 Recommended Other renal abnormality Agenesis Ongoing Yes; No otherrenalabnormalityagenesiso
hydronephrosisdatedd Date Recommended Other renal abnormality Hydronephrosis Date otherrenalabnormalityhydroneph
Query hydronephrosisimaging String 25 Recommended Other renal abnormality Hydronephrosis imaging Renal/bladder US; VCUG otherrenalabnormalityhydroneph5
Query hydronephrosisongoing String 5 Recommended Other renal abnormality Hydronephrosis Ongoing Yes; No otherrenalabnormalityhydroneph4
hypoplasiadatedd Date Recommended Other renal abnormality Hypoplasia Date otherrenalabnormalityhypoplasi
Query hypoplasiaongoing String 5 Recommended Other renal abnormality Hypoplasia Ongoing Yes; No otherrenalabnormalityhypoplasi4
Query hypoplasiaimaging String 25 Recommended Other renal abnormality Hypoplasia imaging Renal/bladder US; VCUG otherrenalabnormalityhypoplasi5
Query orenalab String 10 Recommended Other renal abnormality Yes; No; Unknown; N/A otherrenalabnormality
Query orenalab_otherongo String 5 Recommended Other renal abnormality Other Ongoing Yes; No otherrenalabnormalityotherongo
Query orenalab_otherimag String 25 Recommended Other renal abnormality If Other imaging Renal/bladder US; VCUG otherrenalabnormalityotherimag
orenalab_otherdd Date Recommended Other renal abnormality Other DD otherrenalabnormalityotherdd
orenalab_otherspec String 150 Recommended Other renal abnormality Other specify otherrenalabnormalityotherspec
utidatedd Date Recommended Other renal abnormality UTI Date otherrenalabnormalityutidatedd
Query utiongoing String 5 Recommended Other renal abnormality UTI Ongoing Yes; No renalabnormalityutiongoing
Query utiimaging String 25 Recommended Other renal abnormality UTI imaging Renal/bladder US; VCUG otherrenalabnormalityutiimagin
vurdatedd Date Recommended Other renal abnormality VUR Date otherrenalabnormalityvurdatedd
Query vurimaging String 25 Recommended Other renal abnormality VUR imaging Renal/bladder US; VCUG otherrenalabnormalityvurimagin
Query vurongoing String 5 Recommended Other renal abnormality VUR Ongoing Yes; No otherrenalabnormalityvurongoin
Query rev_gastroother String 50 Recommended Other feeding difficulties Yes;No;NK NK = Not known ot_fdif, otherfeedingdifficulties
ot_fdif_datedd Date Recommended Other feeding difficulties Date otherfeedingdifficultiesdatedd
Query ot_fdif_ongoin String 5 Recommended Other feeding difficulties Ongoing Yes; No otherfeedingdifficultiesongoin
Query ot_fdif_specif String 200 Recommended Other feeding difficulties If yes specify otherfeedingdifficultiesifyess, otherfeedingdifficultiesspecif
Query rev_pulbreathab String 50 Recommended Abnormal Breathing Yes;No;NK NK = Not known abnormalbreathing
abnormalbreathingdatedd Date Recommended Abnormal breathing Date
Query abnormalbreathingongoing String 5 Recommended Abnormal breathing Ongoing Yes; No
Query rev_rythm String 10 Recommended Abnormal rhythm or heart rate Yes;No;NK NK = Not known ab_hrate, abnormalrhythmorheartrate
ab_hratedated Date Recommended Abnormal rhythm or heart rate Date abnormalrhythmorheartratedated
Query ab_hrateongoi String 5 Recommended Abnormal rhythm or heart rate Ongoing Yes; No abnormalrhythmorheartrateongoi
alt_otr_cs String 25 Recommended Alteration in other CSrelevant gene eg SDH alterationinothercsrelevantgen
Query anemia String 10 Recommended Anemia Yes; No; Unknown; N/A
anemiadatedd Date Recommended Anemia Date
Query anemiaongoing String 5 Recommended Anemia Ongoing Yes; No
Query child_anxiety String 50 Recommended Does (did) the Child have an Anxiety Disorder? Yes; No; NK; NS NK= Not known; NS = Not sure anxietydisorder
anxietydisorderdatedd Date Recommended Anxiety Disorder Date
Query anxietydisorderongoing String 5 Recommended Anxiety Disorder Ongoing Yes; No
Query rev_pulaspiration String 50 Recommended Aspiration Yes;No;NK NK = Not known aspiration
aspirationdatedd Date Recommended Aspiration Date
Query aspirationongoing String 5 Recommended Aspiration Ongoing Yes; No
Query rev_pulasthma String 50 Recommended Asthma Yes;No;NK NK = Not known asthma
asthmadatedd Date Recommended Asthma Date
Query asthmaongoing String 5 Recommended Asthma Ongoing Yes; No
Query attentiondeficit String 10 Recommended Attention Deficit Yes; No; Unknown; N/A
attentiondeficitdatedd Date Recommended Attention Deficit Date
Query attentiondeficitongoing String 5 Recommended Attention Deficit Ongoing Yes; No
Query begunexperiencepuberty String 10 Recommended Has the child begun to experience or completed puberty Yes; No; Unknown; N/A haschildbegunexperiencepuberty
pubertydatedd Date Recommended Has the child begun to experience or completed puberty Date begunexperiencepubertydatedd, haschildbegunexperiencepuberty2
Query pubertyongoing String 5 Recommended Has the child begun to experience or completed puberty Ongoing Yes; No begunexperiencepubertyongoing, haschildbegunexperiencepuberty5
Query othmem_bipolar String 50 Recommended Bipolar disorder (Manic/depression) Yes;No; NK NK = Not known bipolardisorder
bipolardisorderdatedd Date Recommended Bipolar Disorder Manic Depression Date
Query bipolardisorderongoing String 5 Recommended Bipolar Disorder Manic Depression Ongoing Yes; No
Query rev_skinbirthmark String 50 Recommended Birthmarks (e.g., cafe-au-lait spots, white spots) Yes;No;NK NK = Not known birthmarks
birthmarksdatedd Date Recommended Birthmarks Date
Query birthmarksongoing String 5 Recommended Birthmarks Ongoing Yes; No
Query rev_hembleeddisorder String 50 Recommended Bleeding disorder Yes;No;NK NK = Not known bleed_dis, bleedingdisorder
bleed_disdatedd Date Recommended Bleeding disorder Date bleedingdisorderdatedd
Query bleed_disifye_clinical Integer Recommended Bleeding Disorder if yes Clinical 0;1 0=Unchecked box; 1=Checked box bleedingdisorderifye_clinical
Query bleed_disifye_labbased Integer Recommended Bleeding Disorder if yes Lab-based 0;1 0=Unchecked box; 1=Checked box bleedingdisorderifye_labbased
Query bleed_disifye_unknown Integer Recommended Bleeding Disorder if yes Unknown 0;1 0=Unchecked box; 1=Checked box bleedingdisorderifye_unknown
Query bleedingdisorderongoing String 5 Recommended Bleeding disorder Ongoing Yes; No
Query bonecysts String 10 Recommended Bone cysts Yes; No; Unknown; N/A
bonecystsdatedd Date Recommended Bone cysts Date
Query bonecystsongoing String 5 Recommended Bone cysts Ongoing Yes; No
Query breast String 35 Recommended Breast development Yes; No; Not applicable; Yes but date of consent unknown breastdevelopment
Query breastageofoneset Integer Recommended Breast development age of oneset - years breastdevelopmentageofoneset
breastdateofonesetdd Date Recommended Breast development Date of oneset breastdevelopmentdateofonesetd
Query tsmfemale Integer Recommended TSM Female development stage 1::5; 9; 9998; 9999 1 = Prepubertal. No breast tissue; 2 = Areolar enlargement with breast bud; 3 = Enlargement of breast and areola as single mound; 4 = Projection of areola above breast as double mound; 5 = Adult. Papilla projects out of areola that is part of breast contour; 9 = Missing value; 9998 =subject skipped; 9999=not applicable--subject is not female breastdevelopmenttannerstage, breasttannerstage
ctdatedd Date Recommended CT date DD ifyesctdatedd
Query ctscanresult Integer Recommended Details of MRI/CT scan result(s) 1;2;3 1 = Normal; 2 = Abnormal; 3 = Unknown ctresults, ifyesctresults
Query cardio_tsc Integer Recommended Cardiovascular - TSC-related cardiac lesions 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown cardiaclesions, cardiaclesionsdefect
cardiaclesionsdatedd Date Recommended TSC related cardiac lesions Date
Query cardiaclesionsongoing String 5 Recommended TSC related cardiac lesions Ongoing Yes; No
Query cardiacdefect String 10 Recommended Cardiac defect Yes; No; Unknown; N/A
cardiacdefectdd Date Recommended Cardiac defect DD
Query cardiacdefectongoing String 5 Recommended Cardiac defect Ongoing Yes; No
Query rev_immunocellimmunedef String 50 Recommended Cell Mediated Immune Def. Yes;No;NK NK = Not known cellmed, cellmediatedimmunedeficiency
cellmedda Date Recommended Cellmediated immune deficiency Date cellmediatedimmunedeficiencyda, cellmediatedimmunedeficiencyda2
Query cellmedon String 5 Recommended Cellmediated immune deficiency Ongoing Yes; No cellmediatedimmunedeficiencyon
Query fhxcp String 5 Recommended Cerebral Palsy Yes;No; NK NK = Not known cerebralpalsy, cerebralpalsy2
cerebralpalsydatedd Date Recommended Cerebral Palsy Date
Query cerebralpalsyongoing String 5 Recommended Cerebral Palsy Ongoing Yes; No
Query changesincelastvisit String 10 Recommended Have there been any changes or development of any medical problemsconditions in the following body systems or in the status of genetic testing since the last study visit Yes; No; Unknown havetherebeenchangessincelastv
Query chrommicroyear Integer Recommended Chromosomal microarray year if known chromosomalmicroarrayyear
Query chromanalysisyear Integer Recommended Chromosome analysis karyotype year if known chromosomeanalysisyear
Query rev_mouthcleftlip String 50 Recommended Is there a cleft lip and/or cleft palate? Yes;No;NK NK = Not known cleftlip
cleftlipdatedd Date Recommended Cleft lip Date
Query cleftlipongoing String 5 Recommended Cleft lip Ongoing Yes; No
Query rev_mouthcleftpalate String 50 Recommended Cleft Palate Yes;No;NK NK = Not known cleftpalate
cleftpalatedatedd Date Recommended Cleft palateDate
Query cleftpalateongoing String 5 Recommended Cleft palateOngoing Yes; No
Query colonpolyps String 10 Recommended Colon polyps Yes; No; Unknown; N/A
colonpolypsdd Date Recommended Colon polyps DD
Query colonpolypsongoing String 5 Recommended Colon polyps Ongoing Yes; No
Query colonpolypsspecify String 50 Recommended Colon polyps a If yes specify number and type
Query gastro_constipation String 50 Recommended Does subject have issue of constipation? Yes; No; NK; NS NK= Not known; NS = Not sure constipation
constipationdatedd Date Recommended Constipation Date
Query constipationongoing String 5 Recommended Constipation Ongoing Yes; No
Query rev_cardiocyanosis String 50 Recommended Cyanosis Yes;No;NK NK = Not known cyanosis
cyanosisdatedd Date Recommended Cyanosis Date
Query cyanosisongoing String 5 Recommended Cyanosis Ongoing Yes; No
dtapdatedd Date Recommended Immunizations up to date DTap Date immunizationsuptodatedtapdated
Query hear_loss String 10 Recommended Deafness or significant hearing loss Yes;No;NK NK = Not known deafness
deafnessdatedd Date Recommended Deafnesssignificant hearing loss Date
Query deafnessongoing String 5 Recommended Deafnesssignificant hearing loss Ongoing Yes; No
Query rev_teethdentalab String 50 Recommended Dental abnormalities Yes;No;NK NK = Not known den_ab, dentalabnormalities
wk_dental_date Date Recommended Dental. Date den_abdatedd, dentalabnormalitiesdatedd
Query den_abifyesspecif String 100 Recommended Dental abnormalities If yes specify dentalabnormalitiesifyesspecif
Query den_abongoing String 5 Recommended Dental Abnormalities Ongoing Yes; No dentalabnormalitiesongoing
Query othmem_depression String 50 Recommended Depression Yes;No; NK NK = Not known depression
depressiondatedd Date Recommended Depression Date
Query depressionongoing String 5 Recommended Depression Ongoing Yes; No
Query dev_oral String 10 Recommended Development of oral conditions Yes; No; Unknown developmentoralconditions
dev_oralspe String 250 Recommended Development of oral conditions specify developmentoforalconditionsspe, oralcondspecify
Query rev_endodiabetes String 50 Recommended Diabetes Yes;No;NK NK = Not known diabetes
diabetesdatedd Date Recommended Diabetes Date
Query diabetesifyestype String 15 Recommended Diabetes G40a If yes type Type I; Type II; Unknown
Query diabetesongoing String 5 Recommended Diabetes Ongoing Yes; No
Query dia_loose String 10 Recommended Diarrhea loose stools Yes; No; Unknown; N/A diarrhealoosestools
dia_loosedatedd Date Recommended Diarrhea loose stools Date diarrhealoosestoolsdatedd
Query dia_looseongoing String 5 Recommended Diarrhea loose stools Ongoing Yes; No diarrhealoosestoolsongoing
Query sleep_pat String 10 Recommended Disrupted sleep patterns Yes;No;NK NK = Not known disruptedsleeppatterns
sleep_patdatedd Date Recommended Disrupted sleep patterns Date disruptedsleeppatternsdatedd
Query sleep_patongoing String 5 Recommended Disrupted sleep patterns Ongoing Yes; No disruptedsleeppatternsongoing
Query dysphagia_sd String 10 Recommended Dysphagia swallowing difficult Yes; No; Unknown; N/A dysphagiaswallowingdifficult
dysphagia_sdda Date Recommended Dysphagia swallowing difficult Date dysphagiaswallowingdifficultda
Query dysphagia_sdon String 5 Recommended Dysphagia swallowing difficult Ongoing Yes; No dysphagiaswallowingdifficulton
Query child_eatingdis String 50 Recommended Does (did) the Child have an Eating Disorder? Yes; No; NK; NS NK= Not known; NS = Not sure eatingdisorder
eatingdisorderdatedd Date Recommended Eating Disorder Date
Query eatingdisorderongoing String 5 Recommended Eating Disorder Ongoing Yes; No
Query child_eatingdis_cmt String 255 Recommended Specify Child's Eating Disorder eatingdisordertype
Query rev_skineczema String 50 Recommended Eczema Yes;No;NK NK = Not known eczema
eczemadatedd Date Recommended Eczema Date
Query eczemaongoing String 5 Recommended Eczema Ongoing Yes; No
Query rev_headencephalitis String 50 Recommended Encephalitis Yes; No; NK; NS NK= Not known; NS = Not sure encephalitis
encephalitisdatedd Date Recommended Encephalitis Date DD
encephalitisifyestype String 25 Recommended Encephalitis If yes type of organism
Query encephalitisongoing String 5 Recommended Encephalitis Ongoing Yes; No
Query rev_immunoenvallergy String 50 Recommended Environmental Allergies Yes;No;NK NK = Not known env_allergy, environmentalallergies
env_allergydatedd Date Recommended Environmental allergies Date environmentalallergiesdatedd
rev_immunoenvallergytype String 255 Recommended Environmental Allergies: Type environmentalallergiesifyes
Query env_allergyongoing String 5 Recommended Environmental allergies Ongoing Yes; No environmentalallergiesongoing
Query fishyear Integer Recommended FISH year if known
Query rev_headfebseiz String 50 Recommended Febrile Seizures Yes; No; NK; NS NK= Not known; NS = Not sure febrileseizures
Query febseiz_eeg Integer Recommended Head/Brain - Febrile Seizures - EEG done? 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown febrileseizuresifyeseegdone
febrileseizuresifyeseegdonedat Date Recommended Febrile Seizures - If yes was EEG done date
Query febrileseizuresifyeseegdoneres String 50 Recommended Febrile Seizures - If yes was EEG done - If yes results Normal; Abnormal; Unknown
Query gtm_chromosomal Integer Recommended Genetic testing method: Chromosomal microarray 0;1 0=Unchecked box; 1=Checked box genetictestingmethod_chromosomal, genetictestingresult_chromosomal
Query gtm_chromosomea Integer Recommended Genetic testing method: Chromosome analysis (karyotype) 0;1 0=Unchecked box; 1=Checked box genetictestingmethod_chromosomea, genetictestingresult_chromosomea
Query gtm_fish Integer Recommended Genetic testing method: FISH 0;1 0=Unchecked box; 1=Checked box genetictestingmethod_fish, genetictestingresult_fish
Query gtm_otherplease Integer Recommended Genetic testing method: Other, please specify 0;1 0=Unchecked box; 1=Checked box genetictestingmethod_otherplease, genetictestingresult_otherplease
Query gtm_sangerornex Integer Recommended Genetic testing method: Sanger or next-generation sequencing 0;1 0=Unchecked box; 1=Checked box genetictestingmethod_sangerornex, genetictestingresult_sangerornex
Query gtm_singlegenet Integer Recommended Genetic testing method: Single gene testing 0;1 0=Unchecked box; 1=Checked box genetictestingmethod_singlegenet, genetictestingresult_singlegenet
Query genetic_test_notes String 255 Recommended note regarding genetic tests genetictestingmethodotherspeci
genetictestingresultsdd Date Recommended Genetic testing results known If yes date of testing
genetic_test_otr String 50 Recommended Genetic testing Other please specify
Query gentest_tsc Integer Recommended Genetics - Genetic testing results known? 1 :: 3 1 = Yes; 2 = No; 3 = Never tested genetictestingresultsknown
hpvdatedd Date Recommended Immunizations up to date HPV Date immunizationsuptodatehpvdatedd
Query hashimoto String 200 Recommended If yes Hashimoto Yes; N/A; No; NK
hashimotoonsetdd Date Recommended If yes Hashimoto Date
Query hist_trauma String 10 Recommended History of head trauma Yes; No; NK; NS NK= Not known; NS = Not sure headtrauma, historyheadtrauma
headtraumadatedd Date Recommended History of head trauma Date historyheadtraumadatedd
Query headtraumaifyesimaging String 5 Recommended If Head trauma were imaging studies done Yes; No historyheadtraumaifyesimaging
headtraumaifyesimagingdatedd Date Recommended If head trauma were imaging studies done Date historyheadtraumaifyesimagingd
Query headtraumaimagingify_ct Integer Recommended HeadTraumaImagingIfY: CT 0;1 0=Unchecked box; 1=Checked box
Query headtraumaimagingify_mri Integer Recommended HeadTraumaImagingIfY: MRI 0;1 0=Unchecked box; 1=Checked box
Query headtraumaimagingify_pet Integer Recommended HeadTraumaImagingIfY: PET 0;1 0=Unchecked box; 1=Checked box
Query headtraumaimagingify_us Integer Recommended HeadTraumaImagingIfY: US 0;1 0=Unchecked box; 1=Checked box
Query headtraumalostconsciousness String 5 Recommended Head trauma loss of consciousness Yes; No; NK ifyeslossofconciousness
Query headtraumaongoing String 5 Recommended History of head trauma Ongoing Yes; No historyheadtraumaongoing
Query rev_eartest String 50 Recommended Hearing Testing: Yes;No;NK NK = Not known hearingtesting
hearingtestingdatedd Date Recommended Hearing testing Date
Query rev_eartestresult String 50 Recommended Hearing Testing: Result Normal;Abnormal;Unknown hearingtestingifyesresult
Query hearingtestingongoing String 5 Recommended Hearing testing Ongoing Yes; No
hepatitisadatedd Date Recommended Immunizations up to date Hepatitis A Date immunizationsuptodatehepatitis3
hepatitisbdatedd Date Recommended Immunizations up to date Hepatitis B Date immunizationsuptodatehepatitis
Query rev_endohyperthyroidism String 50 Recommended Hyperthyroidism Yes;No;NK NK = Not known hyperthyroidism
hyperthyroidismdatedd Date Recommended Hyperthyroidism Date
Query hyperthyroidismongoing String 5 Recommended Hyperthyroidism Ongoing Yes; No
Query rev_endohypoglycemia String 50 Recommended Hypoglycemia Yes;No;NK NK = Not known hypoglycemia
hypoglycemiadatedd Date Recommended Hypoglycemia Date
Query hypoglycemiaongoing String 5 Recommended Hypoglycemia Ongoing Yes; No
Query rev_endohypothyroidism String 50 Recommended Hypothyroidism Yes;No;NK NK = Not known hypothyroidism
hypothyroidismdatedd Date Recommended Hypothyroidism Date
Query hypothyroidismongoing String 5 Recommended Hypothyroidism Ongoing Yes; No
Query brain_mri_corttub Integer Recommended Head/Brain - Brain MRI - Cortical tuber 0; 1 0 = No; 1 = Yes follow_mri_corticaltub, ifyesmriwerefollowin_corticaltub
Query brain_mri_subnod Integer Recommended Head/Brain - Brain MRI - Subependymal Nodule 0; 1 0 = No; 1 = Yes follow_mri_subependym1, ifyesmriwerefollowin_subependym1
Query brain_mri_astroc Integer Recommended Head/Brain - Brain MRI - Subependymal giant cell - Astrocytoma 0; 1 0 = No; 1 = Yes follow_mri_subependym2, ifyesmriwerefollowin_subependym2
ipvdatedd Date Recommended Immunizations up to date IPV Date immunizationsuptodateipvdatedd
ifyeshearingcorrecteddatedd Date Recommended If yes was hearing corrected with hearing aids or cochlear implants If yes date corrected DD
Query ifyeswashearingcorrected String 5 Recommended If yes was hearing corrected with hearing aids or cochlear implants Yes; No
Query immundtap Integer Recommended Immunologic - Immunizations up to date - Dtap 0; 1 0 = No; 1 = Yes imm_dat_dtap, immunizationsuptodat_dtap
Query imm_dat_hpv Integer Recommended Immunizations Up to Date: HPV 0;1 0=No; 1=Yes immunizationsuptodat_hpv
Query imm_dat_hepatitisa Integer Recommended Immunizations Up to Date: Hepatitis A 0;1 0=Unchecked box; 1=Checked box immunizationsuptodat_hepatitisa
Query imm_dat_hepatitisb Integer Recommended Immunizations Up to Date: Hepatitis B 0;1 0=Unchecked box; 1=Checked box immunizationsuptodat_hepatitisb
Query imm_dat_ipv Integer Recommended Immunizations Up to Date: IPV 0;1 0=Unchecked box; 1=Checked box immunizationsuptodat_ipv
Query imm_dat_mmr Integer Recommended Immunizations Up to Date: MMR 0;1 0=Unchecked box; 1=Checked box immunizationsuptodat_mmr
Query imm_dat_prevnar Integer Recommended Immunizations Up to Date: Prevnar 0;1 0=Unchecked box; 1=Checked box immunizationsuptodat_prevnar
Query imm_dat_varicella Integer Recommended Immunizations Up to Date: Varicella 0;1 0=Unchecked box; 1=Checked box immunizationsuptodat_varicella
Query imm_date String 10 Recommended Immunizations up to date Yes; No; Unknown; N/A immunizationsuptodate
Query imm_dateongoing String 5 Recommended Immunizations up to date Ongoing Yes; No immunizationsuptodateongoing
Query immunoglobiniggdeficiency String 10 Recommended Immunoglobin IgG deficiency Yes; No; Unknown; N/A
immunoglobiniggdeficiencydated Date Recommended Immunoglobin IgG deficiency Date DD
Query immunoglobiniggdeficiencyongoi String 5 Recommended Immunoglobin IgG deficiency Ongoing Yes; No
Query influenzavaccine String 10 Recommended Influenza vaccine this year Yes; No; Unknown; N/A
influenzavaccinedatedd Date Recommended Influenza vaccine Date
Query influenzavaccineongoing String 5 Recommended Influenza vaccine Ongoing Yes; No
Query rev_pullungmalfunc String 50 Recommended Lung Malformations Yes;No;NK;NA NK = Not known lungmalformations
lungmalformationsdatedd Date Recommended Lung malformations Date
Query lungmalformationsongoing String 5 Recommended Lung malformations Ongoing Yes; No
mmrdatedd Date Recommended Immunizations up to date MMR Date immunizationsuptodatemmrdatedd
wk_mri_date Date Recommended MRI. Date mridatedd
Query mriscanresults Integer Recommended Details of the brain MRI result(s) 1;2;3 1 = Normal; 2 = Abnormal; 3 = Unknown mriresults
Query rev_immunomedallergy String 50 Recommended Medication Allergies Yes;No;NK;NA NK = Not known; NA=Not Applicable medicationallergies
medicationallergiesdatedd Date Recommended Medication allergies Date
Query rev_immunomedallergymed String 255 Recommended Medication Allergies: Medications medicationallergiesifyes
Query medicationallergiesongoing String 5 Recommended Medication allergies Ongoing Yes; No
Query rev_headmeningitis String 50 Recommended Meningitis Yes; No; NK; NS NK= Not known; NS = Not sure meningitis
meningitisdatedd Date Recommended Meningitis Date
rev_headmeningitisorg String 255 Recommended Meningitis: Organism meningitisifyestype
Query meningitisongoing String 5 Recommended Meningitis Ongoing Yes; No
Query menstruation String 35 Recommended Menstruation Yes; No; Not applicable; Yes but date of consent unknown
Query menstruationageofonset Integer Recommended Menstruation Age Of Onset
menstruationdateofonsetdd Date Recommended Menstruation Date Of Onset
Query rev_teethneonatal String 50 Recommended Neonatal Teeth Yes;No;NK NK = Not known neonatalteeth
neonatalteethdatedd Date Recommended Neonatal Teeth Date
Query neonatalteethongoing String 5 Recommended Neonatal Teeth Ongoing Yes; No
Query nonrenalhamartoma String 10 Recommended Nonrenal hamartoma Yes; No; Unknown; N/A
nonrenalhamartomadatedd Date Recommended Nonrenal hamartoma Date
Query nonrenalhamartomaongoing String 5 Recommended Nonrenal hamartoma Ongoing Yes; No
Query rev_endoobesity String 50 Recommended Obesity Yes;No;NK NK = Not known obesity
obesitydatedd Date Recommended Obesity Date
Query obesityongoing String 5 Recommended Obesity Ongoing Yes; No
Query child_ocd String 50 Recommended Does (did) the Child have Obsessive Compulsive Disorder? Yes; No; NK; NS NK= Not known; NS = Not sure obsessivecompulsivedisorder
ocddat Date Recommended ObsessiveCompulsive Disorder Date obsessivecompulsivedisorderdat
ocddat2 Date Recommended ObsessiveCompulsive Disorder Date 2 obsessivecompulsivedisorderdat2
Query ocdong String 5 Recommended ObsessiveCompulsive Disorder Ongoing Yes; No obsessivecompulsivedisorderong
Query otherabnor String 10 Recommended Otherabnormality Yes; No; Unknown; N/A
Query otr_ren_ab_abnormalbp Integer Recommended Other Renal Abnormality: Abnormal BP 0;1 0=Unchecked box; 1=Checked box otherrenalabnormalit_abnormalbp
Query otr_ren_ab_agenesis Integer Recommended Other Renal Abnormality: Agenesis 0;1 0=Unchecked box; 1=Checked box otherrenalabnormalit_agenesis
Query otr_ren_ab_hydronephro Integer Recommended Other Renal Abnormality: Hydronephrosis 0;1 0=Unchecked box; 1=Checked box otherrenalabnormalit_hydronephro
Query otr_ren_ab_hypoplasia Integer Recommended Other Renal Abnormality: Hypoplasia 0;1 0=Unchecked box; 1=Checked box otherrenalabnormalit_hypoplasia
Query otr_ren_ab_other Integer Recommended Other Renal Abnormality: Other 0;1 0=Unchecked box; 1=Checked box otherrenalabnormalit_other
Query otr_ren_ab_renalcellca Integer Recommended Other Renal Abnormality: Renal cell carcinoma 0;1 0=Unchecked box; 1=Checked box otherrenalabnormalit_renalcellca
Query otr_ren_ab_uti Integer Recommended Other Renal Abnormality: UTI 0;1 0=Unchecked box; 1=Checked box otherrenalabnormalit_uti
Query otr_ren_ab_vur Integer Recommended Other Renal Abnormality: VUR 0;1 0=Unchecked box; 1=Checked box otherrenalabnormalit_vur
othertscdatedd Date Recommended Other TSC Date
Query othertscongoing String 5 Recommended Other TSC Ongoing Yes; No
Query other_tsc4 String 255 Recommended Other TSC-Related Conditions - Other - Specify othertscspecify
Query rev_earrecuotitis String 50 Recommended Recurrent Otitis Media Yes; No; NK; NS NK= Not known; NS = Not sure ottismedia, recurrentottismedia
ottismediadatedd Date Recommended Recurrent Otitis Media OM Date DD recurrentottismediadatedd
Query ottismedianumber Integer Recommended If Recurrent otitis number recurrentottismediaifyesnumber
Query ottismedianumbersincelastvisit Integer Recommended If Recurrent otitis number since last visit
Query ottismediaongoing String 5 Recommended Recurrent Otitis Media OM Ongoing Yes; No recurrentottismediaongoing
Query rev_earrecuotitisyear Integer Recommended Recurrent Otitis Media: #Year ottismediayear, recurrentottismediaifyesyear
Query rev_earpetube String 50 Recommended PE Tubes Yes;No;NK NK = Not known peeartubes
peeartubesdatedd Date Recommended PE ear tubes Date
Query peeartubesongoing String 5 Recommended PE ear tubes Ongoing Yes; No
petdd Date Recommended PET date ifyespetdd
Query petres Integer Recommended Results: PET scan 1::3 1=Normal; 2=Abnormal; 3= Not Sure ifyespetresults, petresults
Query ptenresults_altecsr Integer Recommended PTEN results: Alteration in other CS-relevant gene (e.g., SDH) 0;1 0=Unchecked box; 1=Checked box ptenresults_alterationinothercsr
Query ptenresults_knowndiseasecaus Integer Recommended PTEN results: PTEN, known disease causing 0;1 0=Unchecked box; 1=Checked box ptenresults_ptenknowndiseasecaus
Query ptenresults_uncertainsignifi Integer Recommended PTEN results: PTEN, uncertain significance 0;1 0=Unchecked box; 1=Checked box ptenresults_ptenuncertainsignifi
Query ptenskinmanifestatio_other Integer Recommended PTENskinmanifestatio: Other 0;1 0=Unchecked box; 1=Checked box
Query ptenskinman_paollomatou Integer Recommended PTENskinmanifestatio: Paollomatous papules 0;1 0=Unchecked box; 1=Checked box ptenskinmanifestatio_paollomatou
Query ptenskinman_trichilemom Integer Recommended PTENskinmanifestatio: Trichilemommas 0;1 0=Unchecked box; 1=Checked box ptenskinmanifestatio_trichilemom
Query ptenskinmanifestations String 10 Recommended PTEN skin manifestations Yes; No; Unknown; N/A
Query ptenskinmanifestationsongoing String 5 Recommended PTEN skin manifestations Ongoing Yes; No
Query ptenskinmanifestationsother String 250 Recommended PTEN skin manifestations a If yes check all that apply Other Specify ptenskinmanifestationsspecify
prevnardatedd Date Recommended Immunizations up to date Prevnar Date immunizationsuptodateprevnarda
Query pubichair String 35 Recommended Pubic hair development Yes; No; Not applicable; Yes but date of consent unknown pubichairdevelopment
Query pubichairageatoneset Integer Recommended Pubic hair development Age at oneset pubichairdevelopmentageatonese
pubichairdateatonesetdd Date Recommended Pubic hair development Date at onesetDD pubichairdevelopmentdateatones
Query tsftphg Integer Recommended Developmental pictures: Teenager's rating of Pubic Hair Growth 1::5;99 For Males: 1 = There is no pubic hair at all. 2 = There is a little soft, long, lightly colored hair 3 = The hair is darker in this stage. It is more curled 4 = The hair is now as dark and curly as that of an adult man 5 = The hair has spread out to the legs For Females: 1 = There is no pubic hair. 2 = There is a little long, lightly colored hair 3 = The hair is darker in this stage. It is coarser and more curled 4 = The hair is now as dark, curly, and coarse as that of an adult woman 5 = The hair now is like that of an adult woman; 99 = Refused pubichairdevelopmenttannerstag
Query rev_immunorecurinfectio Integer Recommended 73. Recurrent infections (>2 pneumonia or sinus infections/yr, >8 OM /yr, abscesses) 0;1;-9 0=No;1=Yes;-9=Unknown recurrentinfections
recurrentinfectionsdatedd Date Recommended Recurrent infections ie 2 pneumonia or sinus infections per year 8 OM per year abscesses Date
Query recurrentinfectionsongoing String 5 Recommended Recurrent infections ie 2 pneumonia or sinus infections per year 8 OM per year abscesses Ongoing Yes; No; NK
Query rev_gastroreflux String 50 Recommended Reflux Yes; No; NK; NS NK= Not known; NS = Not sure reflux
refluxdatedd Date Recommended Reflux Date
Query refluxongoing String 5 Recommended Reflux Ongoing Yes; No
Query renal_angiom Integer Recommended Renal - Renal angiomyolipoma 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown renalangiomyolipoma
renalangiomyolipomadatedd Date Recommended Renal angiomyolipoma Date
Query renalangiomyolipomaongoing String 5 Recommended Renal angiomyolipoma Ongoing Yes; No
Query renal_cyst Integer Recommended Renal - Renal cyst 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown renalcyst
renalcystdatedd Date Recommended Renal cyst Date
Query renalcystongoing String 5 Recommended Renal cyst Ongoing Yes; No
renalcellcarcinomadd Date Recommended Renal cell carcinoma Date
Query renalcellcarcinomaongoing String 5 Recommended Renal cell carcinoma Ongoing Yes; No
Query renalcellcarcinomaimaging String 25 Recommended Renal cell carcinoma If yes imaging Renal/bladder US; VCUG
Query sangeryear Integer Recommended Sanger or nextgeneration sequencing year if known
Query schizophreniaorotherpsychosis String 10 Recommended Schizophrenia or other psychosis Yes; No; Unknown; N/A
schizophreniaorotherpsychosisd Date Recommended Schizophrenia or other psychosis Date
Query schizophreniaorotherpsychosiso String 5 Recommended Schizophrenia or other psychosis Ongoing Yes; No
seizuresdatedd Date Recommended Seizures Date
Query seizureshistory String 10 Recommended Seizures History Yes; No; Unknown; N/A
Query strseizuresongoing String 5 Recommended Seizures, convulsions, epilepsy: Ongoing issue? Yes; No;999 seizuresongoing
Query seizuresreview String 5 Recommended Seizures Review Yes; No
Query child_selfinj String 50 Recommended Does (did) the Child have Self-Injuring Behavior? Yes;No selfinjuringbehavior
selfinjuringbehaviordatedd Date Recommended Self injuring behavior Date
Query selfinjuringbehaviorongoing String 5 Recommended Self injuring behavior Ongoing Yes; No
Query significantvisualloss String 10 Recommended Significant visual loss or congenital blindness Yes; No; Unknown; N/A
significantvisuallossdatedd Date Recommended Significant visual loss or congenital blindness Date
Query significantvisuallossongoing String 5 Recommended Significant visual loss or congenital blindness Ongoing Yes; No
Query singlegenetestingyear Integer Recommended Single gene testing year if known
Query skininfectionsabscesses String 10 Recommended Skin InfectionsAbscesses Yes; No; Unknown; N/A
skininfectionsabscessesdatedd Date Recommended Skin InfectionsAbscesses Date
Query skininfectionsabscessesongoing String 5 Recommended Skin InfectionsAbscesses Ongoing Yes; No
gentest_tsc_det String 600 Recommended Genetics - Detailed Genetic Test Results geneticsspecify, specifydetailedgenetictestresu
Query rev_neckspinalab String 50 Recommended Spinal abnormalities Yes;No;NK NK = Not known spinalabnormalities
spinalabnormalitiesdatedd Date Recommended Spinal abnormalities Date
Query spinalabnormalitiesongoing String 5 Recommended Spinal abnormalities Ongoing Yes; No
spinalabnormalitiesspecify String 100 Recommended Spinal abnormalities specify
Query rev_eyestrabismus String 50 Recommended Strabismus Yes;No;NK NK = Not known strabismus
Query strabismusongoing String 5 Recommended Strabismus Ongoing Yes; No
Query surgerycomplicationscode1_1 String 100 Recommended Complications Code
Query surgerycomplicationssearch1_1 String 200 Recommended Complications Search surgerycomplications1_1
surgerydatedd1_1 Date Recommended Date surgery 1
Query surgeryindicationcode1_1 String 100 Recommended Indication Code
surgeryindicationsearch1_1 String 200 Recommended Indication Search surgeryindication1_1
Query surgicalhistory String 10 Recommended Surgical History Yes; No; Unknown; N/A
Query surgicalhistoryongoing String 5 Recommended Surgical History Ongoing Yes; No
Query tsccard_multiplerha Integer Recommended TSCCardiacLesionsSpe: multiple rhabdomyomas 0;1 0=Unchecked box; 1=Checked box tsccardiaclesionsspe_multiplerha
Query tsccard_singlerhabd Integer Recommended TSCCardiacLesionsSpe: single rhabdomyomas 0;1 0=Unchecked box; 1=Checked box tsccardiaclesionsspe_singlerhabd
Query tscifyesspecify String 150 Recommended TSC If yes specify
Query tscrelatedfindings String 10 Recommended 6 TSC related findings Yes; No; Unknown; N/A
tscrelatedfindingsdatedd Date Recommended TSC related findings Date
Query tscrelatedfindingsongoing String 5 Recommended 6 TSC related findings Ongoing Yes; No
Query tsc1knowndiseasecausi Integer Recommended TSCResults: TSC 1, known disease causing 0;1 0=Unchecked box; 1=Checked box tscresults_tsc1knowndiseasecausi
Query tsc1uncertainsignific Integer Recommended TSCResults: TSC 1, uncertain significance 0;1 0=Unchecked box; 1=Checked box tscresults_tsc1uncertainsignific
Query tsc2knowndiseasecausi Integer Recommended TSCResults: TSC 2, known disease causing 0;1 0=Unchecked box; 1=Checked box tscresults_tsc2knowndiseasecausi
Query tsc2uncertainsignific Integer Recommended TSCResults: TSC 2, uncertain significance 0;1 0=Unchecked box; 1=Checked box tscresults_tsc2uncertainsignific
Query tscskinifotherspecify String 700 Recommended TSC skin manifestations If other specify
Query skin_tsc4 Integer Recommended Skin - TSC skin manifestations - Facial angiofibromas 0; 1 0 = No; 1 = Yes tsc_skinman_facialangio, tscskinmanifestation_facialangio
Query skin_tsc5 Integer Recommended Skin - TSC skin manifestations - Forehead plaque 0; 1 0 = No; 1 = Yes tsc_skinman_foreheadpla, tscskinmanifestation_foreheadpla
Query skin_tsc2 Integer Recommended Skin - TSC skin manifestations - Hypopigmented macules 0; 1 0 = No; 1 = Yes tsc_skinman_hypopigment, tscskinmanifestation_hypopigment
Query skin_tsc_other Integer Recommended Skin - TSC skin manifestations - Other 0; 1 0 = No; 1 = Yes tscskinmanifestation_other
Query skin_tsc3 Integer Recommended Skin - TSC skin manifestations - Shagreen patch 0; 1 0 = No; 1 = Yes tsc_skinman_shagreenpat, tscskinmanifestation_shagreenpat
Query skin_tsc1 Integer Recommended Skin - TSC skin manifestations 1; 2; 9 1 = Yes; 2 = No; 9 = Unknown tsc_skinmans, tscskinmanifestations
tsc_skinmansdd Date Recommended TSC skin manifestations Date tscskinmanifestationsdd
Query tsc_skinmansongoing String 5 Recommended TSC skin manifestations Ongoing Yes; No tscskinmanifestationsongoing
tscrelatedcardiaclesionsspecif String 50 Recommended TSC related cardiac lesions Specify any changes
Query ticdisorder String 10 Recommended Tic Disorder eg Tourette Yes; No; Unknown; N/A
ticdisorderdatedd Date Recommended Tic Disorder eg Tourette Date
Query ticdisorderongoing String 5 Recommended Tic Disorder eg Tourette Ongoing Yes; No
typeofsurgerycode1_1 String 100 Recommended Type of surgery Code snomedresult1_1
typeofsurgerysearch1_1 String 200 Recommended Type of surgery search snomedinputcode1_1
usdatedd Date Recommended US date DD ifyesusdatedd
Query usresults String 50 Recommended US results Normal; Abnormal; Unknown ifyesusresults
varicelladatedd Date Recommended Immunizations up to date Varicella Date immunizationsuptodatevaricella
Query corticalwhitematterpathology String 50 Recommended c If yes to MRI cortical white matter pathology Meningioma; Cerebellar dysplastic gangliocytoma
thyroidultrasounddd Date Recommended If yes was a thyroid ultrasound done DD
Query wasathyroidultrasounddone String 5 Recommended If yes was a thyroid ultrasound done Yes; N/A; No
rev_teethdentalabdesc String 255 Recommended Dental abnormalities: Describe
surgerycomplicationscode2_1 String 100 Recommended Complications Code 2
surgerycomplicationscode3_1 String 100 Recommended Complications Code 3
surgerycomplicationscode4_1 String 100 Recommended Complications Code 4
surgerycomplicationscode5_1 String 100 Recommended Complications Code 5
surgerycomplicationscode6_1 String 100 Recommended Complications Code 6
surgerycomplicationscode7_1 String 100 Recommended Complications Code 7
Query surgerycomplicationssearch2_1 String 50 Recommended Complications Search 2 surgerycomplications2_1
Query surgerycomplicationssearch3_1 String 50 Recommended Complications Search 3 surgerycomplications3_1
Query surgerycomplicationssearch4_1 String 50 Recommended Complications Search 4 surgerycomplications4_1
surgerycomplicationssearch5_1 String 50 Recommended Complications Search 5 surgerycomplications5_1
surgerycomplicationssearch6_1 String 50 Recommended Complications Search 6 surgerycomplications6_1
surgerycomplicationssearch7_1 String 50 Recommended Complications Search 7
surgerydatedd2_1 Date Recommended Surgery Date 2
surgerydatedd3_1 Date Recommended Surgery Date 3
surgerydatedd4_1 Date Recommended Surgery Date 4
surgerydatedd5_1 Date Recommended Surgery Date 5
surgerydatedd6_1 Date Recommended Surgery Date 6
surgerydatedd7_1 Date Recommended Surgery Date 7
Query surgeryindicationcode2_1 String 150 Recommended Indication Code 2
Query surgeryindicationcode3_1 String 100 Recommended Indication Code 3
surgeryindicationcode4_1 String 100 Recommended Indication Code 4
surgeryindicationcode5_1 String 100 Recommended Indication Code 5
surgeryindicationcode6_1 String 100 Recommended Indication Code 6
surgeryindicationcode7_1 String 100 Recommended Indication Code 7
Query surgeryindicationsearch2_1 String 50 Recommended Indication Search 2 surgeryindication2_1
Query surgeryindicationsearch3_1 String 50 Recommended Indication Search 3 surgeryindication3_1
Query surgeryindicationsearch4_1 String 50 Recommended Indication Search 4 surgeryindication4_1
surgeryindicationsearch5_1 String 50 Recommended Indication Search 5 surgeryindication5_1
surgeryindicationsearch6_1 String 50 Recommended Indication Search 6 surgeryindication6_1
surgeryindicationsearch7_1 String 50 Recommended Indication Search 7
typeofsurgerycode2_1 String 100 Recommended Type of surgery Code 2 snomedresult2_1
Query typeofsurgerycode3_1 String 100 Recommended Type of surgery Code 3 snomedresult3_1
Query typeofsurgerycode4_1 String 100 Recommended Type of surgery Code 4 snomedresult4_1
Query typeofsurgerycode5_1 String 100 Recommended Type of surgery Code 5 snomedresult5_1
typeofsurgerycode6_1 String 100 Recommended Type of surgery Code 6 snomedresult6_1
typeofsurgerycode7_1 String 100 Recommended Type of surgery Code 7
typeofsurgerysearch2_1 String 200 Recommended Type of surgery search 2 snomedinputcode2_1
Query typeofsurgerysearch3_1 String 100 Recommended Type of surgery search 3 snomedinputcode3_1
Query typeofsurgerysearch4_1 String 50 Recommended Type of surgery search 4 snomedinputcode4_1
Query typeofsurgerysearch5_1 String 200 Recommended Type of surgery search 5 snomedinputcode5_1
Query typeofsurgerysearch6_1 String 200 Recommended Type of surgery search 6 snomedinputcode6_1
typeofsurgerysearch7_1 String 200 Recommended Type of surgery search 7
Query drooling String 5 Recommended Drooling Yes; No; NK
droolingdatedd Date Recommended Drooling Date
Query droolingongoing String 5 Recommended Drooling Ongoing Yes; No
Query esophagealmanometryresults String 10 Recommended Esophageal manometry Results Normal; Abnormal; Unknown
Query mri_arachnoidcy Integer Recommended MRI results - Arachnoid cysts 0;1 0=No;1=Yes ifyesmriwerefollowin_arachnoidcy
Query mri_dysmyelinat Integer Recommended MRI results - Dysmyelination 0;1 0=No;1=Yes ifyesmriwerefollowin_dysmyelinat
Query mri_frontalhypo Integer Recommended MRI results - Frontal Hypoplasia/Atrophy 0;1 0=No;1=Yes ifyesmriwerefollowin_frontalhypo
Query mri_morphologic Integer Recommended MRI results - Morphological changes in corpus callosum 0;1 0=No;1=Yes ifyesmriwerefollowin_morphologic
Query mri_other Integer Recommended MRI results - Other 0;1 0=No;1=Yes ifyesmriwerefollowin_other
mri_other_specified String 25 Recommended MRI results - Other SPECIFIED ifyestomriifother
Query mri_ventriculom Integer Recommended MRI results - Ventriculomegaly 0;1 0=No;1=Yes ifyesmriwerefollowin_ventriculom
rev_headimagestudyresult String 255 Recommended Imaging Studies: Results Normal; Abnormal imagingstudiesresults
Query oralmd String 5 Recommended Oral motor dysfunction Yes; No; NK oralmotordysfunction
oralmddatedd Date Recommended Oral motor dysfunction Date oralmotordysfunctiondatedd
Query oralmdongoing String 5 Recommended Oral motor dysfunction Ongoing Yes; No oralmotordysfunctionongoing
Query q19_b7_s2 String 100 Recommended Abnormal Other: Specify Complete if q19_b7 = 1 otherpleasespecify
Query pica String 35 Recommended Pica disorder Yes; No; Not applicable; Yes but date of consent unknown
picadatedd Date Recommended Pica disorder Date
Query picaongoing String 5 Recommended Pica disorder Ongoing Yes; No
Query refluxdiagnosedby String 20 Recommended Reflux diagnosed by Gastroenterologist; Pediatrician; Other; Unknown refluxongoingifyesdiagnosedby, reluxdaignosby
refluxdiagnosedbyo String 200 Recommended Reflux diagnosed by Other refluxongoingifyesdiagnosedbyo, reluxdaignosbyother
Query refluxte_esophagealm Integer Recommended Reflux - Esophageal manometry 0;1 0=No;1=Yes refluxongoingifyeste_esophagealm
Query refluxte_uppergixray Integer Recommended Reflux - Upper GI X-rays 0;1 0=No;1=Yes refluxongoingifyeste_uppergixray
uppergixraysresults String 15 Recommended Reflux - Upper GI X-rays results Normal; Abnormal; Unknown
Query refluxte_uppergiendo Integer Recommended Reflux - Upper GI endoscopy 0;1 0=No;1=Yes refluxongoingifyeste_uppergiendo
uppergiendoscopyresults String 15 Recommended Reflux - Upper GI endoscopy results Normal; Abnormal; Unknown
Query refluxte_phprobemoni Integer Recommended Reflux - pH probe monitoring 0;1 0=No;1=Yes refluxongoingifyeste_phprobemoni
phprobemonitoringresults String 15 Recommended Reflux - pH probe monitoring results Normal; Abnormal; Unknown
cardiac_lesion_type String 25 Recommended Cardiac lesions defect specified type cardiaclesionsdefectspecifytyp
ptenskinmanifestationsdd Date Recommended PTEN skin manifestations DD
strabismusdd Date Recommended Strabismus DD strabismusdatedd
Query medhx_add_adhd_specify String 255 Recommended If ADD/ADHD, specify: adhdspecify
Query abnormbreathspecify String 200 Recommended Abnormal breathing if yes specify
abnormhrspecify String 200 Recommended Abnormal rhythm or heart rate if yes specify
anemiaspecify String 50 Recommended Anemia if yes specify
Query medhx_anxiety_specify String 500 Recommended If Anxiety Disorder, specify: anxietyspecify
aspirationspecify String 200 Recommended Aspiration if yes specify
asthmaspecify String 50 Recommended Asthma if yes specify
hupbipdx String 250 Recommended Bipolar Disorder problem bipolarspecify
Query birthmarksspecify String 200 Recommended Birthmarks if yes specify
bleedingdisorderspecify String 200 Recommended Bleeding disorder if yes specify
bonecystsspecify String 50 Recommended Bone cysts if yes specify
Query breast_cancer String 20 Recommended Breast Cancer Yes;No;Unknown breastcancerhistory
breastcancermonth Date Recommended Breast cancer date
Query breastcancerongoing String 3 Recommended Breast cancer Ongoing Yes;No
cellimmunedifspecify String 50 Recommended Cell mediated immune deficiency if yes specify
cerebralpalsyspecify String 50 Recommended Cerebral Palsy if yes specify
Query colonpolypshistory String 10 Recommended Colon polyps History Yes;No;Unknown
Query colorectalcancerhistory String 10 Recommended Colorectal cancer History Yes;No;Unknown
colorectalcancermonth Date Recommended Colorectal cancer date
Query colorectalcancerongoing String 3 Recommended Colorectal cancer Ongoing Yes;No
Query constipationspecify String 250 Recommended Constipation if yes specify
cyanosisspecify String 50 Recommended Cyanosis if yes specify
deafspecify String 100 Recommended Deafness significant hearing loss if yes specify
depressionspecify String 200 Recommended Depression if yes specify
diabetesspecify String 50 Recommended Diabetes if yes specify
Query diarrheaspecify String 200 Recommended Diarrhealoose stools if yes specify
disrsleepotherday Date Recommended Disrupted Sleep Other Date of Onset
dysphagiaspecify String 150 Recommended Dysphagia swallowing difficulties if yes specify
emwday Date Recommended EMW Date of Onset
eczemaspecify String 200 Recommended Eczema if yes specify
Query endometrialcancerhistory String 10 Recommended Endometrial cancer History Yes;No;Unknown
endometrialcancermonth String 3 Recommended Endometrial cancer Month
Query endometrialcancerongoing String 5 Recommended Endometrial cancer Ongoing Yes;No
Query endometrialcanceryear Integer Recommended Endometrial cancer Year
epilepsyday Date Recommended Epilepsy Date of Onset
Query epilepsyhistory String 10 Recommended Epilepsy History Yes;No;Unknown
Query epilepsyongoing String 5 Recommended Epilepsy Ongoing Yes;No
epilepsyspecify String 200 Recommended Epilepsy if yes specify
Query febrileseizureongoing String 5 Recommended Febrile Seizures Ongoing Yes;No
Query hashimothyroiditishistory String 10 Recommended Hashimo thyroiditis History Yes;No;Unknown
hashimothyroiditismonth Date Recommended Hashimo thyroiditis date
Query hashimothyroiditisongoing String 5 Recommended Hashimo thyroiditis Ongoing Yes;No
headtraumaspecify String 200 Recommended History of head trauma if yes specify
Query hearingtestspecify String 100 Recommended Hearing testing if yes specify
hyperthyroidismspecify String 50 Recommended Hyperthyroidism if yes specify
hypoglycemiaspecify String 200 Recommended Hypoglycemia if yes specify
hypothyroidismspecify String 100 Recommended Hypothyroidism if yes specify
iggdefspecify String 200 Recommended Immunoglobin IgG deficiency if yes specify
Query imaginstudieshistory String 10 Recommended if yes to head trauma were imaging studies done History Yes;No;Unknown
immunizationsspecify String 200 Recommended Immunizations if yes specify
Query influenzaspecify String 50 Recommended Influenza vaccine if yes specify
Query kidney_cancer String 20 Recommended Kidney Cancer Yes;No kidneycancerhistory
kidneycancermonth Date Recommended Kidney cancer date
Query kidneycancerongoing String 5 Recommended Kidney cancer Ongoing Yes;No
Query lossofconschist String 5 Recommended History of head trauma if Yes loss of consciousness History Yes;No
lungsmalformspecify String 50 Recommended Lung malformations if yes specify
mripresentother String 50 Recommended MRI Present Other specify
nonrenalhamartomaspecify String 50 Recommended Nonrenal hamartoma if yes specify
Query ocdspecify String 200 Recommended Obsessive Compulsive Disorder if yes specify
Query omspecify String 150 Recommended Reccurrent Otitis Media OM if yes specify
obesityspecify String 50 Recommended Obesity if yes specify
Query otherrenalspecify String 100 Recommended Other renal abnormality if yes specify
pespecify String 200 Recommended PE ear tubes if yes specify
Query pubertyspecify String 150 Recommended Has the particpant begun to experience or completed puberty if yes specify
Query recurrentinfectspecify String 150 Recommended Recurrent infections if yes specify
Query refluxspecify String 200 Recommended Reflux if yes specify
renalangiospecify String 200 Recommended Renal angiomyolipoma if yes specify
renalcystspecify String 200 Recommended Renal cyst if yes specify
smday Date Recommended Sleep Maintenance Date of Onset
soday Date Recommended Sleep Onset Date of Onset
schizospecify String 50 Recommended Schizophrenia or other psychosis if yes specify
Query seizuresspecify String 300 Recommended Seizures if yes specify
Query selfinjuryspecify String 500 Recommended Self injuring behavior if yes specify
sigvislossspecify String 100 Recommended Significant visual loss or congenital blindness if yes specify
Query skininfectionspecify String 100 Recommended Skin Infection if yes specify
Query sleeppatternspecifyother String 100 Recommended Disrupted sleep patterns if yes please specify Other
Query spspecify_earlymorning Integer Recommended Sleep Pattern Specify: Early morning wakening (EMW) 0;1 0 =unchecked box; 1 =checked box sleeppatternspecify_earlymorning
Query sleeppatternspecify_other Integer Recommended Sleep Pattern Specify: Other 0;1 0 =unchecked box; 1 =checked box
Query spspecify_sleepmainten Integer Recommended Sleep Pattern Specify: Sleep maintenance (SM) 0;1 0 =unchecked box; 1 =checked box sleeppatternspecify_sleepmainten
Query spspecify_sleeponsetso Integer Recommended Sleep Pattern Specify: Sleep onset (SO) 0;1 0 =unchecked box; 1 =checked box sleeppatternspecify_sleeponsetso
strabismusspecify String 200 Recommended Strabismus if yes specify
tscskinspecify String 500 Recommended TSC skin manifestation if yes specify
Query thyroid_cancer String 20 Recommended Thyroid Cancer Yes;No;999 999=NA/missing thyroidcancerhistory
thyroidcancerhistorymonth String 3 Recommended Thyroid cancer History Month
Query thyroidcancerhistoryongoing String 5 Recommended Thyroid cancer History Ongoing Yes;No
thyroidcancerhistoryyear Date Recommended Thyroid cancer History date
Query tic_symptoms_specify String 400 Recommended Tic Disorder: If yes, specify symptoms ticspecify
cardiaclesionstype String 200 Recommended yesspecifycardiaclesionstype
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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