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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Demographics Form

4,848 Shared Subjects

N/A
Clinical Assessments
Demographics
12/09/2014
dm01
10/27/2023
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported
crcid String 40 Recommended CRC ID/ROA ID
Query update Integer Recommended Updated form 0;1 1= yes; 0= no
Query lang_visit Integer Recommended Language during visit 0;1 1=Spanish; 0=English spanish
Query resid Integer Recommended Current residence 1::8 1=Detached house; 2=Rowhouse or townhouse; 3=Mobile home; 4=Apartment or condominium; 5=Rooming house or hotel; 6=Retirement complex or senior housing; 7=Healthcare facility or nursing home; 8=Homeless
Query rtown Integer Recommended Rent or own current residence 1::3 1=Own without mortgage; 2=Own with mortgage; 3=Rent
Query resy Integer Recommended Years lived at residence
Query resm Integer Recommended Months lived at residence
Query marital Integer Recommended What is your current marital status 1::9 1= never married; 2= living with someone; 3= married; 4= separated; 5=divorced; 6=widowed; 7= engaged; 8= lived with, but now single; 9= other marit
Query spous Integer Recommended Spouse/partner lives with patient 0;1 0=No; 1=Yes
Query relat Integer Recommended Number of relatives living with patient
Query frend Integer Recommended Number of friends living with patient
Query thous Integer Recommended Total number of persons in household 0=Does not apply (e.g., in institution), 99=unknown
Query educat Float Recommended Number of years in formal education 999=Unknown/Missing school
Query grade_highed String 50 Recommended Grade/Highest education 1= Less than 6th grade; 2= Some high school; 3= High school diploma or GED; 4= Some college, no degree; 5= Associates degree; 6= Bachelors degree; 7= Some graduate school; 8= Masters degree and above; 9= Some post-graduate training, no degree; 10= Completed 8th grade, no high school; 11= High school; 12= College or University; 13= Graduate school; 14= Other; 15= Less than high school; 99= Information not available degree
Query student Integer Recommended Currently a student 0::2;-5;-999 0=No; 1=Yes; 2=Part time; -5=item seen but not answered; -999=data not submitted (incomplete)
Query empl Integer Recommended Current employment status 1::24; -7;999 1=Unemployed not looking for employment; 2=Unemployed looking for employment; 3=Full time employed for pay; 4=Part time employed for pay; 5=Self employed for pay; 6=Retired not working; 7=Unemployed, volunteer work; 8=Unemployed, disabled; 9=Other, specify; 10= Paid employment or self-employed; 11= Voluntary employment; 12= Sheltered/Welfare employment; 13= Unemployed; 14= Student; 15= Other; 16= Stay-at-home Parent; 17= Part-Time Student; 18= Receiving Disability/ Unemployed; 19= Receiving Disability with Part-Time Employment; 20= Retired, Part-Time Employment; 21= Retired, Unemployed; 22= Full-time Caregiver; 23= Student and Employed; 24= Homemaker; -7=Refused; 999= Missing
Query volun Integer Recommended Currently do volunteer work 0::2; -7 0=No; 1=Full time; 2=Part time; -7=Refused
Query leave Integer Recommended On medical or psychiatric leave 0;1; -7 0=No; 1=Yes; -7=Refused
Query publica Integer Recommended Public Insurance: Medicare 0;1;-7; 3 0 = No; 1 = Yes; -7 = Refused; 3=DK medicare
Query medicaid Integer Recommended receives medicaid benefits 0;1; -7 0= no; 1= yes; -7=Refused
Query privins Integer Recommended has private insurance 0;1;-7 0= no; 1= yes; -7=Refused
Query mkedc Integer Recommended Better able make important decisions 1::5; -7 1=Strongly agree; 2=Agree; 3=Neutral; 4=Disagree; 5=Strongly disagree; -7=Refused
Query enjoy Integer Recommended Better able to enjoy things 1::5; -7 1=Strongly agree; 2=Agree; 3=Neutral; 4=Disagree; 5=Strongly disagree; -7=Refused
Query famim Integer Recommended Impact of your family and friends 1::7; -7 1=Very helpful; 2=Moderately helpful; 3=Minimally helpful; 4=Neutral; 5=Minimally more difficult; 6=Moderately more difficult; 7=Much more difficult; -7=Refused
Query days_baseline Integer Recommended Days since baseline date
Query inc_curr String 40 Recommended Receive money from employment 0=No, 1=Yes; -4=Refused; -3=DK
mempl String 40 Recommended Monthly employment income 0=No, 1=Yes; -4=Refused; -3=DK
Query assist String 40 Recommended Receive public assistance 0=No, 1=Yes; -4=Refused; -3=DK
massist String 40 Recommended Monthy public assistance income 0=No, 1=Yes; -4=Refused; -3=DK
Query unempl String 40 Recommended Receive unemployment benefits 0=No, 1=Yes; -4=Refused; -3=DK
munempl String 40 Recommended Monthly unemployment income 0=No, 1=Yes; -4=Refused; -3=DK
Query otherinc String 40 Recommended Receive other income 0=No, 1=Yes; -4=Refused; -3=DK other
minc_other String 40 Recommended Monthly other income 0=No, 1=Yes; -4=Refused; -3=DK mother
totincom String 40 Recommended Monthly household income
Query site String 101 Recommended Site Study Site siteid
Query phase Integer Recommended Phase 9 =follow up
Query week Float Recommended Week in level/study 99=week 10-week 14
level String 10 Recommended Treatment level
Query incmpcra Integer Recommended clinician rated incomplete 0;1;-7 0=No; 1=Yes; -7=Refused
ihinterviewer String 20 Recommended interviewer
arith_work_ct String 50 Recommended Work
Query have_children Integer Recommended Do you have children? 0;1 0 = No; 1 = Yes
gender_other_spec String 100 Recommended Gender identity of subject, if other
psych_p52 Integer Recommended Primary sexual orientation 1::13 1=Heterosexual; 2=Homosexual; 3=Bisexual; 4=Mostly heterosexual; 5=Mostly homosexual; 6=Pansexual; 7=Pansexual; 8=Asexual; 9=Other; 10=Demisexual; 11=Queer; 12=Unlabeled; 13=Not sure
demo_sex_orient_other String 20 Recommended If you selected Other for sexual orientation, please specify.
rela_childnum Integer Recommended How many children do you have? Number of Children
fs18b Integer Recommended How many children are under age 18?
fs18c Integer Recommended How many children are living with you in your home?
fs18d Integer Recommended For how many children, if any, have you lost legal custody?
pets_cv Integer Recommended Do you currently have any pets? 1;0 1 = Yes ; 0 = No
race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
otherrace String 100 Recommended specify other race The following questions are about you or the child's family.
demooo_5 Integer Recommended Are you Hispanic or Latino/a? 0;1 0= No, 1= Yes
baseline_n_001 Integer Recommended Have you ever served on active duty in the United States Armed Forces, either in the regular military or in a National Guard or military reserve unit? 0::4; -888; -999 0=No; 1=Yes; 3=DontKnow; 4=Refused; -888=Not Applicable; -999=Missing;
fs23 Integer Recommended Use of medical and other community services (knowing whom to contact, how and when to use) 1::5; 7; -999 5 = Totally self-sufficient; 4 = Needs verbal advice or guidance; 3 = Needs some physical help or assistance; 2 = Needs substantial help; 1 = Totally dependent; 7 = No opportunity to perform; -999 = Missing
hosppsycur_lifetime Integer Recommended How many times have you been hospitalized for psychiatric reasons in your lifetime?
age_1st_hosp Integer Recommended Age at first psychiatric hospitalization (years)
fs26 Integer Recommended Works with minimal supervision 1::5; -999 5 = Highly Typical ; 4 = Generally Typical ; 3 = Somewhat Typical ; 2 = Generally Untypical ; 1 = Highly Untypical; -999 = Missing
psych_hosp_year Integer Recommended Number of psychiatric hospitalizations in last year
fs28 Integer Recommended Appears at appointments on time 1::5; -999 5 = Highly Typical ; 4 = Generally Typical ; 3 = Somewhat Typical ; 2 = Generally Untypical ; 1 = Highly Untypical; -999 = Missing
fs29 Integer Recommended Follows verbal instructions accurately 1::5; -999 5 = Highly Typical ; 4 = Generally Typical ; 3 = Somewhat Typical ; 2 = Generally Untypical ; 1 = Highly Untypical; -999 = Missing
fs3 Integer Recommended Communicate effectively 1::5; -999 5 = Highly Typical ; 4 = Generally Typical ; 3 = Somewhat Typical ; 2 = Generally Untypical ; 1 = Highly Untypical; -999 = Missing
fs4 Integer Recommended Engage in activities without prompting 1::5; -999 5 = Highly Typical ; 4 = Generally Typical ; 3 = Somewhat Typical ; 2 = Generally Untypical ; 1 = Highly Untypical; -999 = Missing
educat_subject Integer Recommended Subject's Highest Level of Education Completed: (Select One) 1::17 1 = Elementary School; 2 = Middle/Junior High School; 3 = High School, no degree; 4 = GED; 5 = High School, degree; 6 = Vocational School, but no diploma; 7 = Vocational School, diploma; 8 = Some University Courses; 9 = Associates Degree; 10 = Bachelors Degree; 11 = Some Grad. Level Courses; 12 = Masters Degree; 13 = Doctorate Level Courses; 14 = Doctorate Degree; 15=Other; 16= College Degree, Any; 17= Less than High School
demo_resp_status Integer Recommended respondent's marital status 1::13 1 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answer; 12= Engaged; 13=Civil union
fs15 Integer Recommended Shopping (selection of items, choice of stores, payment at register) 1::5; 7; -999 5 = Totally self-sufficient; 4 = Needs verbal advice or guidance; 3 = Needs some physical help or assistance; 2 = Needs substantial help; 1 = Totally dependent; 7 = No opportunity to perform; -999 = Missing
fs15a String 200 Recommended What relation(s) is/are the person(s) to you (who you are currently living with)?
demooo_1 Integer Recommended What is your gender? 1::10; 99 1= Male; 2= Female; 3= Trans male; 4= Trans female; 5= Genderqueer/Gender non-conforming; 6= Do not identify as any of these options; 7= Gender non-conforming; 8= Genderqueer or Gender Fluid; 9= Questioning or unsure; 10= Other; 99= Unknown or not reported
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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