|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
aid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
relcs |
Query
|
consq_1 |
Integer |
|
Recommended |
The degree of interest and concern shown for me and my child by the professional(s) administering the treatment has been |
1::7
|
1=Poor; 2=Fair; 3= slightly below average; 4=Average; 5= Slightly above average; 6=high; 7=Superior
|
cs1 |
Query
|
consq_2 |
Integer |
|
Recommended |
The skill level of professional(s) administrating the treatment has been |
1::7
|
1=Poor; 2=Fair; 3= slightly below average; 4=Average; 5= Slightly above average; 6=high; 7=Superior
|
cs2 |
Query
|
consq_3 |
Integer |
|
Recommended |
The demands placed upon me and my family by the assessment and testing components (e.g., completing forms, questionnaires, interviews) of the study were |
1::7
|
1=Very unacceptable; 2=Unacceptable; 3= Slightly unacceptable; 4=Neutral; 5= Slightly acceptable; 6=Acceptable; 7=Very acceptable
|
cs3 |
Query
|
consq_4 |
Integer |
|
Recommended |
Disregarding the assessment and testing components of the study, the demands placed upon me and my family by the treatment we received were |
1::7
|
1=Very unacceptable; 2=Unacceptable; 3= Slightly unacceptable; 4=Neutral; 5= Slightly acceptable; 6=Acceptable; 7=Very acceptable
|
cs4 |
Query
|
consq_5 |
Integer |
|
Recommended |
The length of duration of the treatment program that I/my child received was |
1::7
|
1=Much too short; 2=Too short; 3= slightly too short; 4=Appropriate; 5= Slightly too long; 6=too long; 7=Much too long
|
cs5 |
Query
|
consq_6 |
Integer |
|
Recommended |
Would you recommend the treatment(s) that you received to a friend or relative who had a child with an anxiety disorder |
1::7
|
1=I would strongly not recommend; 2=I would not recommend; 3= I might not recommend; 4=Neutral; 5= I might recommend; 6=I would recommend; 7=I would strongly recommend
|
cs6, csq_8 |
Query
|
consq_7 |
Integer |
|
Recommended |
Overall, my level of satisfaction with quality of the treatment services that I have received is |
1::7
|
1=Very dissatisfied; 2=Dissatisfied; 3= Slightly dissatisfied; 4=Neutral; 5= Slightly satisfied; 6=Satisfied; 7=Very satisfied
|
cs7, csq_11 |
Query
|
consq_8 |
Integer |
|
Recommended |
The major problems that originally prompted me to begin treatment for my child are at this point |
1::7
|
1=Much worse; 2=Worse; 3= slightly worse; 4=Unchanged; 5= Slightly improved; 6=Improved; 7=Much improved
|
cs8, csq_1 |
Query
|
consq_9 |
Integer |
|
Recommended |
My feelings at this point about my childs progress are that I am |
1::7
|
1=Very dissatisfied; 2=Dissatisfied; 3= Slightly dissatisfied; 4=Neutral; 5= Slightly satisfied; 6=Satisfied; 7=Very satisfied
|
cs9, csq_4 |
Query
|
consq_10 |
Integer |
|
Recommended |
Prior to beginning treatment, my outlook for my childs future was |
1::7
|
1=Very pessimistic; 2=Pessimistic; 3= slightly pessimistic; 4=Neutral; 5= Slightly optimistic; 6=Optimistic; 7=Very optimistic
|
cs10 |
Query
|
consq_11 |
Integer |
|
Recommended |
At this point in time, my outlook for my childs future is |
1::7
|
1=Poor; 2=Fair; 3= slightly below average; 4=Average; 5= Slightly above average; 6=high; 7=Superior
|
cs11 |
|
consq_12 |
String |
250
|
Recommended |
The thing that I liked most about the treatment I received was |
|
|
csq_13 |
|
consq_13 |
String |
250
|
Recommended |
The thing that I liked least about the treatment I received was |
|
|
csq_14 |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
Query
|
days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
daycs, lof |
Query
|
assbdic |
String |
5
|
Recommended |
Assessment Point |
D;14;E;24;LB;36;72;96;120; 9; B; 3; 7; 144; 168;192; C
|
D=MTA baseline assessment; 14=MTA 14 month assessment; E=MTA early termination assessment; B = MTA Pre-Baseline Screening Assessment (579/579); 09 = MTA 9 Month Assessment (530/530); 24=MTA 24 month assessment; LB=LNCG baseline assessment; 36=MTA and LNCG 3 year assessment; 72=MTA and LNCG 6 year assessment; 96=MTA and LNCG 8 year assessment; 03 = MTA 3 Month Assessment (438/687);120=MTA and LNCG 10 year assessment; 7= 7th Grade Assessment (221/276); 144 = MTA & LNCG 12 Month Assessment (578/578); 168 = MTA & LNCG 14 Month Assessment (585/585); 192 = MTA & LNCG 16 Month Assessment (505/505); C = MTA Pre-Baseline Screening Assessment (78/78)
|
asscs |
Query
|
actbdic |
Integer |
|
Recommended |
Active status |
0::5
|
0=Inactive-Data collected after the 14 month treatment phase/after early termination from treatment phase/prior to treatment phase; 1=Active-Data collected during the 14 month treatment phase while subject received originally assigned treatment regardless of degree of compliance; 2=Active-This is the last active assessment for subjects who were about to violate treatment arm by receiving alternate treatment; 3=Active-This is the last active assessment for subjects who were about to leave the study by moving away;4=Yes, Active; 5=No, Not Active
|
actcs |
Query
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
asite, sitenum |
Query
|
sjtyp |
Integer |
|
Recommended |
Subject type |
1;2
|
1=MTA randomized trial subject; 2=Local normative comparison group (LNCG) subject
|
|
Query
|
csattotx |
Float |
|
Recommended |
Consumer satisfaction total mean score |
|
|
|
Query
|
csattott |
Float |
|
Recommended |
Consumer satisfaction total total score |
|
|
|
Query
|
nrawsat1 |
Integer |
|
Recommended |
How dissatisfied or satisfied were you with the overall health care available to you during the past 6 months? |
1::5
|
1 = very dissatisfied; 2 = dissatisfied; 3 = neither satisfied nor dissatisfied; 4 = satisfied; 5 = very satisfied
|
sat1 |
Query
|
nrawsat2 |
Integer |
|
Recommended |
How dissatisfied or satisfied were you with the health care available to you for personal or emotional problems in the past 6 months? |
1::5
|
1 = very dissatisfied; 2 = dissatisfied; 3 = neither satisfied nor dissatisfied; 4 = satisfied; 5 = very satisfied
|
sat2 |
Query
|
clinicid |
Integer |
|
Recommended |
Clinic ID |
|
|
aclinic |
Query
|
interv |
Integer |
|
Recommended |
Intervention Status |
0;1
|
1=ITV, intervention; 0=TAU, treatment as usual
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
wave |
|
study |
String |
100
|
Recommended |
Study; The code for each individual study |
|
|
|
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
|
|
consq12 |
String |
50
|
Recommended |
What part of the program was most helpful to you? |
|
|
csq_12 |
|
consq15 |
String |
50
|
Recommended |
What part of the program was least helpful to you? |
|
|
csq_15 |
|
consq16 |
String |
50
|
Recommended |
How could the program have been improved to help you more? |
|
|
csq_16 |
|
consq2 |
Integer |
|
Recommended |
My child's problems that have been treated at the clinic are at this point |
1::7
|
1= considerably worse; 2= worse; 3= slightly worse; 4= the same; 5= slightly improved; 6= improved; 7= greatly improved
|
csq_2 |
|
consq3 |
Integer |
|
Recommended |
My child's problems that have not been treated at the clinic are |
1::7
|
1= considerably worse; 2= worse; 3= slightly worse; 4= the same; 5= slightly improved; 6= improved; 7= greatly improved
|
csq_3 |
|
consq5 |
Integer |
|
Recommended |
To what degree has the treatment program helped with other general or personal or family problems not directly related to your child? |
1::7
|
1= hindered much more than helped; 2= hindered; 3= hindered slightly; 4= neither helped nor hindered; 5= helped slightly; 6= helped; 7= helped very much
|
csq_5 |
|
consq6 |
Integer |
|
Recommended |
At this point, my expectation for a satisfactory outcome of the treatment is |
1::7
|
1= very pessimistic; 2= pessimistic; 3= slightly pessimistic; 4= neutral; 5= slightly optimistic; 6= optimistic; 7= very optimistic
|
csq_6 |
|
consq7 |
Integer |
|
Recommended |
I feel the approach to treating my child's behavior problems in the home by using this type of program is |
1::7
|
1= very inappropriate; 2= inappropriate; 3=, slightly inappropriate; 4= neutral; 5= slightly appropriate; 6= appropriate; 7= very appropriate
|
csq_7 |
|
consq9 |
Integer |
|
Recommended |
How confident are you in managing current behavior problems in the home on your own? |
1::7
|
1= very unconfident; 2= unconfident; 3= somewhat unconfident; 4= neutral; 5= somewhat confident; 6= confident; 7= very confident
|
csq_9 |
|
consq10 |
Integer |
|
Recommended |
How confident are you in your ability to manage future behavior problems in the home using what you have learned from this program? |
1::7
|
1= very unconfident; 2= unconfident; 3= somewhat unconfident; 4= neutral; 5= somewhat confident; 6= confident; 7= very confident
|
csq_10 |