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Demographics Form Short

1,626 Shared Subjects

N/A
Clinical Assessments
Demographics
03/22/2017
demolatn01
12/15/2023
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project subject_id
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY date_ctq, v2_ctq_date
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. v2_ctq_age
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query race String 30 Recommended Race of study subject
American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
dem1
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
dem2
Query demo_maritial_status Integer Recommended Marital Status:
1 :: 7
1=Single/Never married; 2=Married or living with someone as if married; 3= Divorced or annulled; 4= Separated; 5=Widowed; 6=Other; 7= Remarried dem3
Query dem4 Integer Recommended Please check the highest level of schooling that you completed. 1::8 1=Elementary school; 2=Junior high school; 3=High school; 4=Some college; 5=Technical school; 6= Junior college; 7=Four-year college; 8= Graduate or professional school
Query educat Float Recommended Number of years in formal education 999=Unknown/Missing dem5, year_of_education
resp_occupation String 255 Recommended Respondent's occupation dem6
Query fmincome String 100 Recommended family income
under 10,000; under 25,000; between 10,000 and 25,000;25,000 to 49,999;50,000 to 74,999;75,000 to 99,999; above 100,000; 100,000 to 124,999;125,000 and above;not provided
dem7
Query cepisode String 150 Recommended Current diagnosis diagnosis
Query smoker Integer Recommended Smoker? 0 :: 4; 9 0=No; 1=Yes; 2= Yes, but not regularly (less than 10 per day); 3= Yes, regularly (10 or more a day); 4= Former smoker; 9=NK/missing current_cigarette_status
Query smoke_current_packs Float Recommended how many packs per day if yes? 0::10 current_cigarette_packs_per_day
Query current_medication String 300 Recommended subject's current medications
Query mental_ill Integer Recommended Do you have a family history of mental illness? 0;1 0 = No; 1 = Yes family_mental_illness_history
Query notes String 200 Recommended Any additional notes note
Query handedness String 29 Recommended handedness R;L;B;999;888;777;555 R = Right; L = Left; B = Both; 999= No Answer; 888= Skipped; 777= Condition Skipped; 555= Missing
Query height Float Recommended Medical history and physical development - Height (inches) inches
weight String 50 Recommended weight -5=item seen but not answered; -999=data not submitted (incomplete)
Query bmi Float Recommended body mass index of subject -9 = Missing
demo_arc08 Date Recommended Opiates: Date of last use MM/DD/YYYY
demo_arc01 Integer Recommended What is your usual pattern of employment over the past 3 years? 1 :: 9 1= Full time (40 hours per week); 2= Part time (regular hours); 3= Part time (irregular hours); 4= Student; 5= Military service; 6= Retired, disability; 7= Homemaker; 8= Unemployed ;9= In controlled environment
demo_arc02 Integer Recommended Are you currently taking any medications? 0;1 0= No; 1= Yes
demo_arc03 Integer Recommended Have you used THC in the past 12 months? 0;1 0= No; 1= Yes
demo_arc04 Date Recommended THC: Date of last use MM/DD/YYYY
demo_arc05 Integer Recommended Have you used Cocaine in the past 12 months? 0;1 0= No; 1= Yes
demo_arc06 Date Recommended Cocaine: Date of last use MM/DD/YYYY
demo_arc07 Integer Recommended Have you used Opiates in the past 12 months? 0;1 0= No; 1= Yes
nimh_re_dem_03 Integer Recommended
yearlyincome Integer Recommended What is your current yearly income? Please estimate the wages from all jobs, public assistance, disability, and money earned off the books. 1::7 1 = Under $15,000; 2 = $15,000 - $24,999; 3 = $25,000 - $34,999; 4 = $35,000 - $49,999; 5 = $50,000 - $74,999; 6 = $75,000 - $99,999; 7 = $100,000 and over
demo_wom01 Integer Recommended At present which statement best describes your menstrual cycle? My periods are regular 0;1 0=No; 1=Yes
demo_wom02 Integer Recommended At present which statement best describes your menstrual cycle? My periods are irregular 0;1 0=No; 1=Yes
demo_wom03 Integer Recommended At present which statement best describes your menstrual cycle? I am pregnant, or my last pregnancy ended within the past 2 months 0;1 0=No; 1=Yes
demo_wom04 Integer Recommended At present which statement best describes your menstrual cycle? My periods have stopped due to menopause 0;1 0=No; 1=Yes
demo_wom05 Integer Recommended At present which statement best describes your menstrual cycle? I have had menopause, but now have periods because I am taking hormones 0;1 0=No; 1=Yes
demo_wom06 Integer Recommended At present which statement best describes your menstrual cycle? I have had an operation (surgery) which has stopped my periods 0;1 0=No; 1=Yes
demo_wom07 Integer Recommended At present which statement best describes your menstrual cycle? I am taking a medication other than birth control which has stopped my periods 0;1 0=No; 1=Yes
demo_wom08 Integer Recommended Specify other medications
demo_wom09 Integer Recommended Specify average length of period in days: Number of Days
demo_wom10 Integer Recommended Approximate first date of last period: MM/DD/YYYY
demo_wom11 Integer Recommended Are you currently taking birth control? 0;1 0=No; 1=Yes
demo_wom12 String 500 Recommended If yes, specify the type of birth control:
dem_emp01 Integer Recommended Are you currently employed? 1::5 1 = Yes, I work full time, and I am not a student; 2 = Yes, I work part time and I am not a student; 3 = No, I am not currently employed; 4 = I am a full time student; 5 = I am retired
dem_emp02 Integer Recommended If not employed, why are not you employed? 1 :: 4 1= Because of alcohol or other drug problems; 2= Because of other health problems; 3= Laid Off; 4= Other
dem_emp03 String 500 Recommended If other, please specify why you are not employed:
dem_ment01 String 150 Recommended Did a first degree relative (mother, father, siblings) have any of the following mental health problems? If no mental health problems among first degree relatives, leave this question blank. Anxiety; Depression; Alcoholism; Drug Addiction; Other Mental Health Problem
dem_ment02 String 500 Recommended Other mental health problem, specify:
dem_ment03 String 150 Recommended For each mental health problem checked above, please specify which relative had the problem (e.g., mother, father, sister, brother), if they received treatment for the problem, and if the treatment was inpatient or outpatient:
dem_ment04 Integer Recommended If your mother had alcoholism, did she drink heavily or regularly while she was pregnant with you? 0;1; 88;99 0=No; 1=Yes; 88= Unknown; 99= N/A, my mother did not have alcoholism
demo_upd_income Integer Recommended (Updated) What is your yearly income (if you are married, please include the income of your spouse)? 1 :: 5 1= 0 to 10,000; 2= 10,000 to 25,000; 3= 25,000 to 50,000; 4= 50,000 to 100,000; 5= Above 100,000
demo_upd_edu Integer Recommended (Updated) What is the highest level of education you have achieved? 1 :: 8 1= Some high school, no diploma; 2= High school diploma, GED, no college; 3= High school diploma, GED, some college/technical college, no degree; 4= 2 year college degree/technical degree; 5= 4 year college degree; 6= College degree and some graduate school, but no graduate degree; 7= Masters degree; 8= Ph.D., M.D. or J.D. (or some other professional degree)
dem_ment03_02 String 150 Recommended For each mental health problem checked above, please specify which relative had the problem (e.g., mother, father, sister, brother), if they received treatment for the problem, and if the treatment was inpatient or outpatient: Depression
dem_ment03_03 String 150 Recommended For each mental health problem checked above, please specify which relative had the problem (e.g., mother, father, sister, brother), if they received treatment for the problem, and if the treatment was inpatient or outpatient: Alcoholism
dem_ment03_04 String 150 Recommended For each mental health problem checked above, please specify which relative had the problem (e.g., mother, father, sister, brother), if they received treatment for the problem, and if the treatment was inpatient or outpatient: Drug Addiction
dem_ment03_05 String 150 Recommended For each mental health problem checked above, please specify which relative had the problem (e.g., mother, father, sister, brother), if they received treatment for the problem, and if the treatment was inpatient or outpatient: Other Mental Health Problems
race_demo1 Integer Recommended Race of study subject 1 :: 6 1= American Indian or Alaskan Native; 2= Asian or Pacific Islander; 3= Black, not of Hispanic origin; 4= Hispanic; 5= White, not of Hispanic origin; 6= Other or Unknown
dem_ment01_01 Integer Recommended Did a first degree relative (mother, father, siblings) have any of the following mental health problems? Anxiety 0;1 0= No; 1= Yes
dem_ment01_02 Integer Recommended Did a first degree relative (mother, father, siblings) have any of the following mental health problems? Depression 0;1 0= No; 1= Yes
dem_ment01_03 Integer Recommended Did a first degree relative (mother, father, siblings) have any of the following mental health problems? Alcoholism 0;1 0= No; 1= Yes
dem_ment01_04 Integer Recommended Did a first degree relative (mother, father, siblings) have any of the following mental health problems? Drug Addiction 0;1 0= No; 1= Yes
dem_ment01_05 Integer Recommended Did a first degree relative (mother, father, siblings) have any of the following mental health problems? Other Mental Health Problem 0;1 0= No; 1= Yes
dem_ment03_01 String 150 Recommended For each mental health problem checked above, please specify which relative had the problem (e.g., mother, father, sister, brother), if they received treatment for the problem, and if the treatment was inpatient or outpatient: Anxiety
nimh_rv_dem_03 Integer Recommended Current gender identity 0::11;999 0 = Male; 1 = Female; 2 = Trans male/Trans man; 3 = Trans female/Trans woman; 4 = Genderqueer or Gender non-conforming; 5 = Different identity; 6 = Non-binary; 7 = Refused/prefer not to answer; 8 = Do not know; 9 = Not listed; 10 = Multiple identities listed; 11 = Gender fluid; 999 = Missing dem_gender1
demo_drugs Integer Recommended Have you used recreational drugs within the past 6 months? 0;1 0 = No; 1 = Yes
demo_ect Integer Recommended Have you ever had Electroconvulsive Therapy (ECT) or shock treatment? 0;1 0 = No; 1 = Yes
demo_descrip_ect String 250 Recommended If you ever had Electroconvulsive Therapy (ECT) or shock treatment, please describe:
demo_mg_smoke Integer Recommended (Smoke or vape) If yes, how many cigarettes or milligrams per day?:
demo_firstvisit String 250 Recommended When was the first time you saw a psychiatrist/psychologist or were hospitalized for a psychiatric condition? Please describe:
demo_vision Integer Recommended Do you currently have problems with your vision, or wear contacts/glasses to correct your vision? 1::3 1 = No problems; 2 = Wear glasses or contacts to correct vision; 3 = Vision problems with no current corrections
demo_descrip_familyhistory String 250 Recommended If you indicate yes for a family history of mental illness, please describe:
numhosp1 Integer Recommended Number of hospitalizations for psychiatric illness, include current hospitalization if patient is identified during an admission
agefirsthosp Integer Recommended Age when first hospitalized
religious_specify String 100 Recommended If you can describe your religious affiliation more precisely, please do so here
ca27 Float Recommended How long have you been unemployed? Months
demo_alcohol Integer Recommended Have you consumed alcohol within the past 24 hours? 0;1 0 = No; 1 = Yes
demo_living_situation Integer Recommended Please select the choice that best describes your current living situation. 1::9 1 = I live alone; 2 = I live with my partner/spouse (no children); 3 = I live with my family (any combination of partner, parents, children, siblings, relatives); 4 = I live with friends or roommates; 5 = I live in a nursing home or a retirement facility; 6 = I live in a student resident hall or housing; 7 = I am homeless; 8 = Other; 9 = Prefer not to answer
descrip_living_situation String 250 Recommended Please provide a brief description of your living situation.
demo_housing Integer Recommended Please indicate the type of housing where you live. 1::8 1 = Large apartment complex; 2 = Small apartment building or townhouse; 3 = Single house; 4 = Residential facility (e.g. nursing home, student housing, residential facility); 5 = Military housing; 6 = Temporary housing (e.g. hotel, homeless shelter); 7 = No housing; 8 = Other
demo_religion_a Integer Recommended Please select your religious or spiritual affiliation. 1::14 1 = Roman Catholic; 2 = Protestant (e.g., Baptist, Episcopalian, Methodist, Presbyterian, Lutheran, Quaker etc.); 3 = Eastern or Greek Orthodox; 4 = Mormon; 5 = Muslim; 6 = Buddhist; 7 = Jewish; 8 = Hindu; 9 = Sikh; 10 = New Religious Movement; 11 = Agnostic; 12 = Atheist; 13 = Other; 14 = Prefer not to answer
demo_neurodisorder Integer Recommended Have you ever been diagnosed with a neurological disorder such as Parkinson''s Disease or epilepsy? 0;1 0 = No; 1 = Yes
demo_seizures Integer Recommended Have you ever had seizures? 0;1 0 = No; 1 = Yes
demo_headinjury Integer Recommended Have you ever had a head injury when you lost consciousness? Have you ever blacked out from a head injury? 0;1 0 = No; 1 = Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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