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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Demographics and Medical History

1,506 Shared Subjects

Defined by Dr Sukhodolsky lab at Yale Child Study Center
Clinical Assessments
Demographics
01/12/2015
demrdoc01
03/25/2021
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project bid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY interviewyear
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. dema1
sex String 20 Required Sex of subject at birth
M;F; O; NR
M = Male; F = Female; O=Other; NR = Not reported dema2, gender
Query respondent String 20 Recommended Respondent
Mother;Father;Parent;Guardian;Teacher;Child;Self;Caregiver;Partner;Other
respondent_other_specify String 50 Recommended Respondent: Other (specify)
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
race_hispanic
Query handedness String 29 Recommended handedness
R;L;B;999;888;777;555
R = Right; L = Left; B = Both; 999= No Answer; 888= Skipped; 777= Condition Skipped; 555= Missing
Query motherocccat Integer Recommended Mother's occupation 1::10; 999 1=homemaker, 2=laborer, 3=clerical, 4=craftsman or artist, 5=technical, 6=professional, 7=farmer, 8=self-employed, 9=other(mother specify), 10=other (father)
Query momoccuc String 100 Recommended mother's current occupation motherocc_notes
Query fatherocccat Integer Recommended Father's occupation 1::10; 999 1=homemaker, 2=laborer, 3=clerical, 4=craftsman or artist, 5=technical, 6=professional, 7=farmer, 8=self-employed, 9=other(mother specify), 10=other (father)
Query fatherocup String 100 Recommended Father' occupation fatherocc_notes
Query mothered Integer Recommended Mother's years of education 1::5; 999 1=partial high school, 2=high school degree, 3=technical school/partial college, 4=college degree, 5=graduate school degree
motheredu_specify1 String 100 Recommended Mother Other education= specify mothered_notes
Query fathered Integer Recommended Father's years of education 1::5; 999 1=partial high school, 2=high school degree, 3=technical school/partial college, 4=college degree, 5=graduate school degree
fatheredu_specify1 String 200 Recommended Father Other education= specify fathered_notes
Query demo_siblingscount Integer Recommended Number of siblings 888 = not applicable; 999 = missing siblings
Query otherchildren Integer Recommended Number of children living with participant (include adopted and step siblings)
Query living Integer Recommended Living arrangements 1::4; 999 1=lives with both parents (same residence), 2=lives with both parents (different residence), 3=lives with one parent, 4= other
Query living_notes String 255 Recommended Living arrangements (specify)
Query lifedx_peri_1 Integer Recommended 1. Perinatal insult or serious neonatal illness (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_pulm_2 Integer Recommended 2. Pulmonary (including asthma) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_cardio_3 Integer Recommended 3. Cardiovascular (including high blood pressure) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga3, mhxa4, mxha19
Query lifedx_heart_4 Integer Recommended 4. Heart Murmur (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_renal_5 Integer Recommended 5. Renal (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga7, mhxa8
Query lifedx_hepatic_6 Integer Recommended 6. Hepatic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga6, mhxa7
Query lifedx_gi_7 Integer Recommended 7. Gastrointestinal (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga5, mhxa6
Query lifedx_endo_8 Integer Recommended 8. Endocrine/Metabolic (including diabetes) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga10, mhxa11
Query lifedx_opth_9 Integer Recommended 9. Ophthalmologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_derm_10 Integer Recommended 10. Dermatologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga8, mhxa9
Query lifedx_neuro_11 Integer Recommended 11. Neurologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga1, mhxa2, mxha23
Query lifedx_head_12 Integer Recommended 12. Head Injury (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_migr_13 Integer Recommended 13. Migraine Headaches (diagnosed) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_uro_14 Integer Recommended 14. Urologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_gyn_15 Integer Recommended 15. Gynecologic (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_psych_16 Integer Recommended 16. Psychiatric (known previous diagnosis) (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_surg_17 Integer Recommended 17. Major Surgeries (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_allg_18 Integer Recommended 18. Allergies (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga12, mhxa14
Query lifedx_musc_19 Integer Recommended 19. Musculoskeletal (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes mdga9, mhxa10
Query lifedx_enceph_20 Integer Recommended 20. Encephalitis (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
Query lifedx_mening_21 Integer Recommended 21. Meningitis (Lifetime Diagnosis for Child) 0::1; 999 0=no, 1=yes
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data lifedx_22_comments
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
Query fseqno Integer Recommended Sequence Number 0::999 The FSEQNO variable in the ADJ form has a special interpretation compared to other forms. For example, ADJ FSEQNO of '1' can be thought of as being '001', FSEQNO of '2' can be thought of as being '002', and FSEQNO of '3' can be thought of as being '003'. The first digit of FSEQNO relates to the corresponding ENF sequence number at that visit and the third digit relates to the specific adjudicator who completed the adjudication form.
Query visday Integer Recommended Number of days from study baseline to date of visit mdga0b, mhxa0b
Query mdga2 Integer Recommended Eye, Ears, Nose or Throat 0;1 1=Yes; 0=No mhxa3
Query othresp Integer Recommended Other respiratory abnormality 1;2 1=No; 2=Yes mdga4, mhxa5
Query hi_7e Integer Recommended Past two years. Osteoporosis 0;1 0=No; 1=Yes mdga9a, mhxa11a
Query baseline_k_005 Integer Recommended Has she/he ever been to a doctor for any of these things…Diabetes /Diabetes 0;1; -888; -999;-7 0=No; 1=Yes; -888=Not Applicable; -999=Missing/NK; -7=Refused //Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life. mdga10a
Query mdga10b Integer Recommended If Yes, now on insulin 0;1 1=Yes; 0=No mhxa11b
Query mdga10c Integer Recommended Is patient now on oral hypoglycemic agent 0;1 1=Yes; 0=No mhxa11c
Query mdga11 Integer Recommended Hematologic 0;1 1=Yes; 0=No mhxa12
Query hi_11l Integer Recommended Past two years. HIV Positive or AIDS 0;1 0=No; 1=Yes mdga13, mxha15
Query mdga14 Integer Recommended Other 0;1 1=Yes; 0=No
version_form String 121 Recommended Form used/assessment name
Query mhxa1a Integer Recommended Is the patient entering the study in an exacerbated state (i.e. current psychiatric hospitalization, crisis intervention, or increase in medication)? 0;1 1=Yes; 0=No
Query mhxa1b Integer Recommended Date crisis resolved (physician determination):
Query mhxa13 String 20 Recommended Drug induced leukopenia/neutropenia A;P;N A=Yes Active; P=Yes Past; N=No
Query mxha16 String 20 Recommended Other A;P;N A=Yes Active; P=Yes Past; N=No
Query mxha17 String 20 Recommended General Appearance/Skin A;N A=Abnormal; N=Normal
Query mxha18 String 20 Recommended HEENT A;N A=Abnormal; N=Normal
Query mxha20 String 20 Recommended Chest A;N A=Abnormal; N=Normal
Query abdompan Integer Recommended abdominal pain 0;1;-7 0=No; 1=Yes; -7=Refused mxha21
Query mxha22 String 20 Recommended Extremities/Joints A;N A=Abnormal; N=Normal
allergies String 300 Recommended allergies
Query smoker Integer Recommended Smoker? 0 :: 4; 9 0=No; 1=Yes; 2= Yes, but not regularly (less than 10 per day); 3= Yes, regularly (10 or more a day); 4= Former smoker; 9=NK/missing
Query start_smoke String 50 Recommended Start date of smoking (MM/YY) If unknown, describe briefly
Query cig_smoke String 200 Recommended The amount of cigarettes you smoke and ages you have smoked
otherrace String 100 Recommended specify other race The following questions are about you or the child's family.
Query diagnosis_majorpsy String 50 Recommended Major psychiatric Axis I diagnosis
Query diagnosis_psycom String 50 Recommended Psychiatric comorbid diagnoses
Query diagnosis_medcom String 500 Recommended Medical comorbid diagnoses
Query asaps01g Integer Recommended Suicide attempt 0;1 0 = No;1 = Yes
Query sub_use_disorder Integer Recommended Substance Use Disorder 0::4 0=None; 1=Current; 2=Past; 3=Both Current and Lifetime; 4=Lifetime
Query findrisc_8 Integer Recommended Have any members of your patient's immediate family or other relatives (only blood relatives) been diagnosed with diabetes (type 1 or type 2)? 0;3;5 0=No; 3=Yes; grandparent, aunt, uncle, or first cousin; 5=Yes: parent, brother, sister, or own child
Query visit String 60 Recommended Visit name
Query site String 101 Recommended Site Study Site site_id
das1ms String 200 Recommended Marital status maritalstatus
ed_1_y Integer Recommended Are you currently in school? 0;1;77;88;-99 0= No; 1= Yes; 77= Refused; 88= Missing; -99= NA education
white Integer Recommended 5. Race 0;1 1=yes, 0=no race_white
eo4 Integer Recommended Are you currently working at a job or business for pay 0;1;9 0=No; 1=Yes; 9 = Missing employment
subus_pdx Integer Recommended Substance Use Disorder Diagnosis 0;1 0=No; 1=Yes drug_diagnosis
fi78 Integer Recommended 78. attempt suicide past 6 months 0;1;97::99 0 = No; 1 = Yes; 97 = Refused; 98 = Don't know; 99 = NA sui_attempts
paofwork5 Integer Recommended 39. Are you a student 1::3; -9 1 = Yes, Full-time; 2 = Yes, Part-time; 3 = No, -9 = Missing Data ed_fullparttime
hc_2 Integer Recommended So, you are uninsured, is that correct 0;1 0=No; 1=Yes insured_none
participant_insurance_6 Integer Recommended What types of health insurance do they have? Check all that apply. Other [other] 0;1 0= no; 1= yes insured_other
mjuser Integer Recommended Marijuana user? 0;1;-900;-300 0=No; 1=Yes; -900 = Missing; -300 = N/A marijuana
native Integer Recommended American Indian or Alaska Native 0;1; 999 1=yes; 0=no; 999= missing race_americanindian
numchild Integer Recommended number of children children
demo_26 Integer Recommended Do you CURRENTLY use tobacco or nicotine products (cigarettes, e-cigarettes, pipes, cigars, smokeless tobacco chew, dipping, pinching)? 0;1 1 = Yes ; 0 = No tobacco
otdrg Integer Recommended other drugs 0;1;-7 0=No; 1=Yes; -7=Refused otherdrugs
curalc Integer Recommended Current alcohol use 0;1 0=No;1=Yes alcohol
chartreview061 Integer Recommended Psychiatric inpatient hospitalizations pi_numadmissions
chartreview016c_3 Integer Recommended What type of insurance does the patient have? Medicaid 0;1; -888;-999 0=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing; insured_medicaid
chartreview016c_10 Integer Recommended What type of insurance does the patient have? Medicare 0;1; -888;-999 0=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing; insured_medicare
chartreview016c_1 Integer Recommended What type of insurance does the patient have? Private Health Insurance 0;1; -888;-999 0=Unchecked; 1=Checked; -888=Not Applicable; -999=Missing; insured_private
black Integer Recommended Black or African-American 0;1; 999 1=yes; 0=no;999= missing race_black
asian String 5 Recommended Ethnicity: Asian
Yes;No; 999
999= missing race_asian
employcur Integer Recommended current employment status 1::12;-7 1=Full time; 2=Part time for pay; 3=Homemaker; 4=Incarcerated; 5=Disabled; 6=Leave of absence; 7=Unemployed; 8=Retired; 9=Other; 10=Student; 11=Volunteer; -7=Refused; 12 = Maternity leave emp_fullparttime
participate Integer Recommended Is the person currently participating in the site Coordinated Specialty Care (CSC) program? 0;1 1=Yes; 0 = No
federal_region Integer Recommended Federal Region 1::10
enroll_date Date Recommended When did the person first enroll in the Coordinated Specialty Care (CSC) program?
insured_otherspec String 200 Recommended Please specify other insurance 0= Unchecked; 1= Checked
onsetpsychosis Date Recommended Approximate date of onset of psychosis
aripiprazole Integer Recommended Current use of antipsychotic medication: Aripiprazole 0;1 0= Unchecked; 1= Checked
asenapine Integer Recommended Current use of antipsychotic medication: Asenapine 0;1 0= Unchecked; 1= Checked
brexpiprazole Integer Recommended Current use of antipsychotic medication: Brexipiprazole 0;1 0= Unchecked; 1= Checked
baseline_m_011 String 100 Recommended How many days were you in the hospital for psychiatric or mental health problems? pi_days_hospital
chlorpromazine Integer Recommended Current use of antipsychotic medication: CHLORPROMAZINE 0;1 0= Unchecked; 1= Checked
clozapine Integer Recommended Current use of antipsychotic medication: CLOZAPINE 0;1 0= Unchecked; 1= Checked
fluphenazine Integer Recommended Current use of antipsychotic medication: FLUPHENAZINE 0;1 0= Unchecked; 1= Checked
haloperidol Integer Recommended Current use of antipsychotic medication: HALOPERIDOL 0;1 0= Unchecked; 1= Checked
loxapine Integer Recommended Current use of antipsychotic medication: LOXAPINE 0;1 0= Unchecked; 1= Checked
lurasidone Integer Recommended Current use of antipsychotic medication: LURASIDONE 0;1 0= Unchecked; 1= Checked
olanzapine Integer Recommended Current use of antipsychotic medication: OLANZAPINE 0;1 0= Unchecked; 1= Checked
paliperidone Integer Recommended Current use of antipsychotic medication: PALIPERIDONE 0;1 0= Unchecked; 1= Checked
perphenazine Integer Recommended Current use of antipsychotic medication: PERPHENAZINE 0;1 0= Unchecked; 1= Checked
quetiapine Integer Recommended Current use of antipsychotic medication: QUETIAPINE 0;1 0= Unchecked; 1= Checked
terdx String 200 Recommended Identify the tertiary diagnosis adddiagnosis
risperidone Integer Recommended Current use of antipsychotic medication: RISPERIDONE 0;1 0= Unchecked; 1= Checked
ziprasidone Integer Recommended Current use of antipsychotic medication: ZIPRASIDONE 0;1 0= Unchecked; 1= Checked
med_other Integer Recommended Current use of antipsychotic medication: Other 0;1 0= Unchecked; 1= Checked
med_otherspec String 100 Recommended Specify other antipsychotic medication used currently 0= Unchecked; 1= Checked
lai_aripiprazole Integer Recommended Was a Long-Acting Injectable (LAI) used to administer ARIPIPRAZOLE? 0;1 0= Unchecked; 1= Checked
lai_fluphenazine Integer Recommended Was a Long-Acting Injectable (LAI) used to administer FLUPHENAZINE? 0;1 0= Unchecked; 1= Checked
lai_haloperidol Integer Recommended Was a Long-Acting Injectable (LAI) used to administer HALOPERIDOL? 0;1 0= Unchecked; 1= Checked
lai_olanzapine Integer Recommended Was a Long-Acting Injectable (LAI) used to administer OLANZAPINE? 0;1 0= Unchecked; 1= Checked
lai_risperidone Integer Recommended Was a Long-Acting Injectable (LAI) used to administer RISPERIDONE? 0;1 0= Unchecked; 1= Checked
lai_other Integer Recommended Was a Long-Acting Injectable (LAI) used to administer other medications? 0;1 0= Unchecked; 1= Checked
secdx String 200 Recommended Identify the secondary diagnosis seconddiagnosis
homeless_6m Integer Recommended Was the person homeless at any time during past 6 months? 1;2 1= Full Time; 2 = Part Time
alc_diagnosis Integer Recommended If available, is there an alcohol disorder diagnosis? 0;1 1=Yes; 0 = No
alc_diagnosis_os String 50 Recommended If there is an alcohol disorder diagnosis, please enter DSM-5 or ICD-10 code
drug_diagnosis_os String 50 Recommended If there is a substance abuse diagnosis (other than alcohol or tobacco), enter DSM-5 or ICD-10 code
psychinpatient Integer Recommended Psychiatric inpatient hospitalization in past 6 months or during the time period that you usually collect 0;1 1=Yes; 0 = No
pi_timeperiod Integer Recommended Psychiatric inpatient hospitalization: Please specify the time period being reported (weekly, monthly, every 3 months, etc.) 1::5 1= Weekly; 2= Monthly; 3= Every 3 Months; 4= Every 6 months; 5= Annually
er_numvisits Integer Recommended Emergency department visit for psychiatric reasons in past 6 months: If available, number of visits
probationparole Integer Recommended In the past 6 months, have there been any legal issues, arrests, on probation or parole? 0;1 1=Yes; 0 = No
pacific String 5 Recommended Ethnicity: Pacific
Yes;No; 999
999= missing race_nativehawaiian
mentalt_diag String 150 Recommended What is the diagnosis? primeddiagnosis
fspgod String 70 Recommended Subject's gender OTHER describe
state_res String 14 Recommended State of residence state
er6_visits Integer Recommended Emergency department visit for psychiatric reasons in past 6 months? 0;1 1=Yes; 0 = No er_visits
time_point Integer Recommended Assessment time point 1=Baseline (STARD); 2=Level exit (STARD); 3= Quarterly follow up (STARD);5= Screening; 10= Baseline; 21, 22, 23 = Mid-point 1, 2, 3; 30= End-of-treatment; 41, 42, 43= Follow-up1, 2, 3 etc.; 601 = 6 Month Reassessment ; 602 = 12 Month Reassessment ; 603 = 18 Month Reassessment assessment
homeless Integer Recommended Homeless in past 6 months 0;1 0 = No; 1 = Yes
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
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