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Family History Interview

188 Shared Subjects

Family History Interview
Clinical Assessments
Med History
08/17/2012
fhi01
12/29/2021
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY fhdate
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported fh08, gender
family_user_def_id String 25 Required Family Pedigree User-Defined ID fh01
Query fh03 Integer Recommended 3. Generation number 1;2;3;4;5; 9
Query control_proband_relation Integer Recommended if the participant has a relative diagnosed with ASD, specify the relationship to the affected person 0=mother; 1=father; 2=sister; 3=brother; 4=uncle; 5=aunt; 6=cousin; 7=grandmother; 8=grandfather 0 :: 8 0 = Mother; 1 = Father; 2 = Sister; 3 = Brother; 4 = Uncle; 5 = Aunt; 6 = Cousin; 7 = Grandmother; 8 = Grandfather fh04
Query fh04oth String 12 Recommended (specify other)
fh05 String 20 Recommended 5. Biological mother's id
fh06 String 20 Recommended 6. Biological father's id
Query fh07 Integer Recommended 7. Subject adopted 0;1;9
Query fh13 Integer Recommended Birth order 0::13; 99 99 = Missing value
Query fh14 Integer Recommended 14. Social sibship order 0;1;2;3;8; 9
Query fh15 Integer Recommended 15. Side of family 0;1;8; 9
Query age_at_death_months Integer Recommended Age at death in months fh16
Query fh17 Integer Recommended 17. Marital status 0;1;2;3;4;5;6;7;8; 9
Query fh18 Integer Recommended 18. Consanguineous marriage 0;1;2;8; 9
Query fh18b String 40 Recommended (specify relationship)
Query fh19 Integer Recommended 19. Offspring of consanguineous parents 0;1;2; 9
Query fh19b String 40 Recommended (specify details)
Query fh20 Integer Recommended 20. Number of marriages 0::9
Query fh21 Integer Recommended 21. Education 0;1;2;3;4;6;7;8; 9
Query fh22 Integer Recommended 22. Occupation 0;1;2;3;4;5;6;7;8; 9
Query fh23 Integer Recommended 23. Inapplicability 0;2; 9
Query fh24 Integer Recommended 24. Peculiar gait 0;1;2;7;8; 9
Query fh25 Integer Recommended 25. Epilepsy 0;1;2; 9
Query fh26 Integer Recommended 26. Language delay 0;1;2;7;8; 9
Query fh27 Integer Recommended 27. Mental retardation 0;1;2;3;4;7;8; 9
Query fh28 Integer Recommended 28. Cause of retardation 0;1;2;3;7;8; 9
Query fh29 Integer Recommended 29. Reading retardation 0;1;2;7;8; 9
Query fh29am Integer Recommended 29A. Learning disability: Math 0;1;2;7;8; 9
Query fh29as Integer Recommended 29A. Learning disability: Spelling 0;1;2;7;8; 9
Query fh29aw Integer Recommended 29A. Learning disability: Writing 0;1;2;7;8; 9
Query fh29b Integer Recommended 29B. Language articulation 0;1;2;8; 9
Query fh30 Integer Recommended 30. Social disorder 0;1;8; 9
Query fh31 Integer Recommended 31. Lack of affection 0;1;2;7;8; 9
Query fh32 Integer Recommended 32. Impaired social play 0;1;2;7;8; 9
Query fh33 Integer Recommended 33. Circumscribed interests (childhood) 0;1;2;7;8; 9
Query fh34 Integer Recommended 34. Circumscribed interests (adultdhood) 0;1;2;7;8; 9
Query fh35 Integer Recommended 35. Impaired friendships (childhood) 0;1;2;7;8; 9
Query fh36 Integer Recommended 36. Impaired friendships (adulthood) 0;1;2;7;8; 9
Query fh37 Integer Recommended 37. Shyness (childhood) 0;1;2;7;8; 9
Query fh38 Integer Recommended 38. Shyness (adulthood) 0;1;2;7;8; 9
Query fh39 Integer Recommended 39. Lack of conversation (childhood) 0;1;2;7;8; 9
Query fh40 Integer Recommended 40. Impaired conversation (adulthood) 0;1;2;7;8; 9
Query fh41 Integer Recommended 41. Social dysfunction (childhood) 0;1;2;7;8; 9
Query fh42 Integer Recommended 42. Social dysfunction (adulthood) 0;1;2;7;8; 9
Query fh43 Integer Recommended 43. Socially odd (childhood) 0;1;2;7;8; 9
Query fh44 Integer Recommended 44. Socially odd (adulthood) 0;1;2;7;8; 9
Query fh45 Integer Recommended 45. Over-sensitive (childhood) 0;1;2;7;8; 9
Query fh46 Integer Recommended 46. Over-sensitive (adulthood) 0;1;2;7;8; 9
Query fh47 Integer Recommended 47. Rigid style (childhood) 0;1;2;7;8; 9
Query fh48 Integer Recommended 48. Rigid style (adulthood) 0;1;2;7;8; 9
Query fh49 Integer Recommended 49. Impairment in social interaction 0;1;2;7; 9
Query fh50 Integer Recommended 50. Impairment in communication 0;1;2;7; 9
Query fh51 Integer Recommended 51. Repetitive behavior 0;1;2;7; 9
Query fh52 Integer Recommended 52. Age abnormalities manifest 0;1;8; 9
Query fh53 Integer Recommended 53. Autism 0;1;2;6;7; 9
Query fh54 Integer Recommended 54. Psychiatric disorder screen 0;1;8; 9
Query fh55 Integer Recommended 55. Alcohol abuse 0;1;2;3;8; 9
Query fh56 Integer Recommended 56. Drug abuse 0;1;2;3;8; 9
Query fh57 Integer Recommended 57. Depression 0;1;2;3;5;7;8; 9
Query fh571 Integer Recommended 57.1. Number of 2-week episodes 0::888; 9
Query fh572 Integer Recommended 57.2. Number since second child with disability 0::888; 9
Query fh57a Integer Recommended 57A. Anxiety 0;1;2;3;5;7;8; 9
Query fh57a1 Integer Recommended 57A.1. Number of months symptoms lasted 0::888; 9
Query fh57a2 Integer Recommended 57A.2. Number since second child with disability 0::888; 9
Query fh58 Integer Recommended 58. Affective disorder (summary) 0;1;2;3;5;7;8; 9
Query fh59 Integer Recommended 59. Bipolar affective disorder (summary) 0;1;2;3;5;8; 9
Query fh60 Integer Recommended 60. Schizophrenia etc. 0;1;2;3;5;8; 9
Query fh61 Integer Required 61. Hyperactivity and ADD or ADHD 0;1;2;5;8; 9
Query fh62 Integer Recommended 62. Oppositional defiant disorder 0;1;2;5;8; 9
Query fh63 Integer Recommended 63. Conduct disorder 0;1;2;3;5;8; 9
Query fh64 Integer Recommended 64. Obsessive-Compulsive Disorder 0;1;2;3;5;8; 9
Query fh65 Integer Recommended 65. Tics 0;1;2; 9
Query fhsocdef Integer Required FHI Social (0=No, 1=TypeI, 2=TypeII) 0::2; -999 0 = No deficit; 1 = Type I deficit; 2 = Type II deficit; -999 = Missing value
Query fhcomdef Integer Required FHI Communcation (0=No, 1=TypeI, 2=TypeII) 0::2; -999 0 = No deficit; 1 = Type I deficit; 2 = Type II deficit; -999 = Missing value
Query fhrepdef Integer Required FHI Repetitive (0=No, 1=TypeI, 2=TypeII) 0::2; -999 0 = No deficit; 1 = Type I deficit; 2 = Type II deficit; -999 = Missing value
Query fhtot Integer Required FHI Total # of deficits (0,1,2-3)
Query fhsoc Integer Required FHI Social (0=No, 1=Yes) 0; 1;-999 0 = No deficit; 1 = Yes deficit; -999 = Missing value
Query fhcom Integer Required FHI Communcation (0=No, 1=Yes) 0; 1;-999 0 = No deficit; 1 = Yes deficit; -999 = Missing value
Query fhrep Integer Required FHI Repetitive (0=No, 1=Yes) 0; 1;-999 0 = No deficit; 1 = Yes deficit; -999 = Missing value
Query fhdefs Integer Required FHI Pattern of deficits
Query fhscrmsg String 200 Recommended FHI Scoring message
Query fhqual Integer Required FHI: Quality of information 0; 1;2;8;9
comments_misc String 4,000 Recommended Miscellaneous comments on study, interview, methodology relevant to this form data hcmnt
fhi_8 Integer Recommended We do not feel we can survive if another problem hits us 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_9 Integer Recommended We believe that things will work out for the better if we work together as a family 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_10 Integer Recommended Life seems dull and meaningless 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_11 Integer Recommended We strive together and help each other no matter what 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_12 Integer Recommended When our family plans activities we try new and exciting things 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_13 Integer Recommended We listen to each others' problems, hurts and fears 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_14 Integer Recommended We tend to do the same things over and over...it's boring 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_15 Integer Recommended We seem to encourage each other to try new things and experiences 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_16 Integer Recommended It is better to stay at home than go out and do things with others 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_17 Integer Recommended Being active and learning new things are encouraged 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_18 Integer Recommended We work together to solve problems 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_19 Integer Recommended Most of the unhappy things that happen are due to bad luck 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_20 Integer Recommended We realize our lives are controlled by accidents and luck 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_1 Integer Recommended Trouble results from mistakes we make 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_2 Integer Recommended It is not wise to plan ahead and hope because things do not turn out anyway 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_3 Integer Recommended Our work and efforts are not appreciated no matter how hard we try and work 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_4 Integer Recommended In the long run, the bad things that happen to us are balanced by the good things that happen 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_5 Integer Recommended We have a sense of being strong even when we face big problems 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_6 Integer Recommended Many times I feel I can trust that even in difficult times things will work out 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
fhi_7 Integer Recommended While we don't always agree, we can count on each other to stand by us in times of need 0::3;99 0= False; 1= Mostly False; 2= Mostly True; 3= True; 99= I do not wish to respond
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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