|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
GUID |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
child_date, chrdemo_interview_date_2bfaf2, chrdemo_interview_date_2bfaf2_v2 |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
chi_gen, gender |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
cg_comments_misc |
Query
|
race |
String |
30
|
Recommended |
Race of study subject |
|
|
Child_q5, chi_race, demo_race |
Query
|
fh13 |
Integer |
|
Recommended |
Birth order |
0::13; 99
|
99 = Missing value
|
Child_q6, chi_order |
Query
|
chi_living |
Integer |
|
Recommended |
child living arrangement |
1::3
|
1 = At home; 2 = In an institution; 3 = Other
|
Child_q7 |
|
chi_living_other |
String |
255
|
Recommended |
child living arrangement_other |
|
Other living arrangement
|
Child_other1 |
Query
|
chi_livedcg |
Integer |
|
Recommended |
percent of time child lived with caregiver in previous year |
1::4
|
1 = 0-25%; 2 = 25-50%; 3 = 50-75%; 4 = 75-100%
|
Child_q8 |
Query
|
chi_school |
Integer |
|
Recommended |
Highest grade of school child has completed / What is the highest level of education your child has completed? |
1::22
|
1 = Preschool; 2 = Kindergarten; 3 = 1st grade; 4 = 2nd grade; 5 = 3rd grade; 6 = 4th grade; 7 = 5th grade; 8 = 6th grade; 9 = 7th grade; 10 = 8th grade; 11 = 9th grade; 12 = 10th grade; 13 = 11th grade; 14 = 12th grade; 15 = High school graduate / Other; 16 = GED; 17 = Some college credite but less than 1 year; 18 = One or more years of college at a 2-year program, no degree; 19 = Two years of college at a 4-year program, no degree; 20 = Three years or more of college at a 4-year, no degree; 21 = Associates degree; 22 = Bachelors degree
|
Child_q9, sbf_8_parent |
Query
|
chi_school_other |
String |
255
|
Recommended |
highest grade of school child has completed_other |
|
If 15 (other), what level of school is the highest the child has completed?
|
Child_other2 |
Query
|
chi_schtype |
Integer |
|
Recommended |
why type of school does your child attend? |
1::7
|
1 = Non-specialized public; 2 = Specialized public school; 3 = Vocational public school; 4 = Private school; 5 = Home school; 6 = Special education school; 7 = Something else (specify)
|
Child_q10 |
|
chi_schtype_other |
String |
255
|
Recommended |
why type of school does your child attend_other |
|
If 7 (other), what is the type of school the child attends?
|
Child_other3 |
|
comments |
String |
4,000
|
Recommended |
Comments about assessment |
|
|
chi_finalcomment, child_comment |
|
ethnicity |
String |
30
|
Recommended |
Ethnicity of participant |
|
|
demo_ethnicity |
|
m12_d_livewith05 |
Integer |
|
Recommended |
Who do you live with? Adoptive Parent(s) |
0;1
|
0= No; 1= Yes
|
d_livewith05 |
|
m12_d_livewith06 |
Integer |
|
Recommended |
Who do you live with? Grandparent(s) |
0;1
|
0= No; 1= Yes
|
d_livewith06 |
|
m12_d_livewith07 |
Integer |
|
Recommended |
Who do you live with? Other Relative(s) |
0;1
|
0= No; 1= Yes
|
d_livewith07 |
|
m12_d_livewith08 |
Integer |
|
Recommended |
Who do you live with? Other |
0;1
|
0= No; 1= Yes
|
d_livewith08 |
|
m12_d_livewith_specify |
String |
100
|
Recommended |
If you live with Other, please specify: |
|
|
d_livewith_specify |
|
m12_d_grade |
Integer |
|
Recommended |
What grade are you in? |
3 :: 12
|
3= 3rd Grade; 4= 4th Grade; 5= 5th Grade; 6= 6th Grade; 7= 7th Grade; 8= 8th Grade; 9= 9th Grade; 10= 10th Grade; 11= 11th Grade; 12= 12th Grade
|
d_grade, demo_childs_edu |
|
m12_d_ladderc |
Float |
|
Recommended |
Where would you place yourself on this ladder? Fill in the circle that best represents where you would be on this ladder. |
0 :: 9;999
|
9= 9; 8.5= 8.5; 8= 8; 7.5= 7.5; 7= 7; 6.5= 6.5; 6= 6; 5.5= 5.5; 5= 5; 4.5= 4.5; 4= 4; 3.5= 3.5; 3= 3; 2.5= 2.5; 2= 2; 1.5= 1.5; 1= 1; 0.5= 0.5; 0= 0; 999= NA or Prefer Not to Answer
|
d_ladderc |
|
d_race01 |
Integer |
|
Recommended |
What is your racial background? White, Caucasian |
0;1
|
0= No; 1= Yes
|
|
|
d_race02 |
Integer |
|
Recommended |
What is your racial background? Black, African American |
0;1
|
0= No; 1= Yes
|
|
|
d_race03 |
Integer |
|
Recommended |
What is your racial background? Native American, Alaskan Native |
0;1
|
0= No; 1= Yes
|
|
|
d_race04 |
Integer |
|
Recommended |
What is your racial background? Asian (including Middle Eastern) |
0;1
|
0= No; 1= Yes
|
|
|
d_race05 |
Integer |
|
Recommended |
What is your racial background? Native Hawaiian, Pacific Islander |
0;1;-900;-300
|
0= No; 1= Yes; -900 = Missing; -300 = N/A
|
|
|
d_race06 |
Integer |
|
Recommended |
What is your racial background? Other |
0;1
|
0= No; 1= Yes
|
|
|
d_race_specify |
String |
100
|
Recommended |
If you put Other for race, please specify: |
|
|
|
|
d_hispanic |
Integer |
|
Recommended |
Are you Hispanic or Latina/Latino/Latinx? |
0;1;-888
|
0 = No; 1 = Yes; -888 = Decline to Answer
|
|
|
d_language |
Integer |
|
Recommended |
What is the main language you speak at home? |
1;2
|
1= English; 2= Other
|
|
|
d_language_specify |
String |
100
|
Recommended |
If you put Other for main language spoken at home, please describe: |
|
|
|
|
d_nativity |
Integer |
|
Recommended |
In which country were you born? |
1;2
|
1= USA; 2= Other
|
|
|
d_nativity_specify |
String |
100
|
Recommended |
If you put Other for where you were born, please describe: |
|
|
|
|
d_handedness |
Integer |
|
Recommended |
Handedness - Are you: |
1 :: 3
|
1= Right-handed; 2= Left-handed; 3= I use my right and left hands equally
|
handedness |
|
m12_d_gender |
Integer |
|
Recommended |
Whatis your preferred gender identity? |
1 :: 5
|
1= Boy; 2= Girl; 3= Transgender; 4= Gender non-conforming, Non-binary; 5= Other
|
d_gender |
|
m12_d_gender_specify |
String |
100
|
Recommended |
If Other for preferred gender identified: Please specify |
|
|
d_gender_specify |
|
m12_d_sexuality |
Integer |
|
Recommended |
Which of the following best describes your sexual preferences? |
1 :: 4
|
1= Heterosexual (Straight); 2= Homosexual (Gay or Lesbian); 3= Bisexual; 4= Not sure
|
d_sexuality |
|
m12_d_livewith01 |
Integer |
|
Recommended |
Who do you live with? Biological Mother |
0;1
|
0= No; 1= Yes
|
d_livewith01 |
|
m12_d_livewith02 |
Integer |
|
Recommended |
Who do you live with? Biological Father |
0;1
|
0= No; 1= Yes
|
d_livewith02 |
|
m12_d_livewith03 |
Integer |
|
Recommended |
Who do you live with? Stepmother |
0;1
|
0= No; 1= Yes
|
d_livewith03 |
|
m12_d_livewith04 |
Integer |
|
Recommended |
Who do you live with? Stepfather |
0;1
|
0= No; 1= Yes
|
d_livewith04 |
|
demo_patern_mari |
Integer |
|
Recommended |
Paternal Marital Status |
1 :: 4
|
1= Married; 2= Divorced; 3= Single; 4= Widowed
|
|
|
demo_mat_edu |
Integer |
|
Recommended |
Maternal Highest Level of Education (years) |
10;12;13;14;16;18;20;999
|
10= No formal educational credential; 12= High school diploma or equivalent; 13= Postsecondary non-degree award or Some college= no degree; 14= Associates degree; 16= Bachelors degree; 18= Masters degree; 20= Doctoral or professional degree (20 or more years); 999= Unknown
|
|
|
demo_pat_edu |
Integer |
|
Recommended |
Paternal Highest Level of Education (years) |
10;12;13;14;16;18;20;999
|
10= No formal educational credential; 12= High school diploma or equivalent; 13= Postsecondary non-degree award or Some college= no degree; 14= Associates degree; 16= Bachelors degree; 18= Masters degree; 20= Doctoral or professional degree (20 or more years); 999= Unknown
|
|
|
demo_completed_by |
String |
10
|
Recommended |
Who will be completing these questionnaires? (i.e. mother, father, etc.) |
|
Mother; Father; Aunt; Uncle; Grandma; Grandpa; Guardian; Sister; Brother; any relative
|
|
|
childs_age |
Integer |
|
Recommended |
Age in Years |
10 :: 14
|
Age in Years between 10 to 14 years old
|
|
|
demo_gender |
Integer |
|
Recommended |
What is your childs current gender identity? |
1::9
|
1= FEMALE; 2= MALE; 3= Trans male/Trans man; 4= Trans female/Trans woman; 5= Genderqueer/Gender no-conforming; 6= Different identity / Other; 7= REFUSED; 8= DO NOT KNOW; 9 = Transgender
|
sbf_3_parent |
|
demo_gender_diff |
String |
25
|
Recommended |
Please state if your child has different identity: / If you selected Other, please explain here: |
|
|
sbf_3_other_parent |
|
demo_prim_lang |
String |
25
|
Recommended |
Primary Language spoken at home |
|
|
|
|
demo_secondary_language |
String |
25
|
Recommended |
Secondary Language |
|
|
|
|
demo_maternal_mari |
Integer |
|
Recommended |
Maternal Marital Status |
1 :: 4
|
1= Married; 2= Divorced; 3= Single; 4= Widowed
|
|
|
parent_rel07 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your current relationship status? Divorced |
0;1
|
0= No; 1= Yes
|
|
|
parent_rel08 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your current relationship status? Widowed |
0;1
|
0= No; 1= Yes
|
|
|
parent_rel09 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your current relationship status? Other |
0;1
|
0= No; 1= Yes
|
|
|
parent_rel09a |
String |
50
|
Recommended |
(Parent/Guardian Info): If other for relationship, please specify: |
|
|
|
|
parent_race01 |
Integer |
|
Recommended |
(Parent/Guardian Info): How would you describe yourself? American Indian or Alaska Native |
0;1
|
0= No; 1= Yes
|
|
|
parent_race02 |
Integer |
|
Recommended |
(Parent/Guardian Info): How would you describe yourself? Asian |
0;1
|
0= No; 1= Yes
|
|
|
parent_race03 |
Integer |
|
Recommended |
(Parent/Guardian Info): How would you describe yourself? Black or African American |
0;1
|
0= No; 1= Yes
|
|
|
parent_race04 |
Integer |
|
Recommended |
(Parent/Guardian Info): How would you describe yourself? Native Hawaiian or Other Pacific Islander |
0;1
|
0= No; 1= Yes
|
|
|
parent_race05 |
Integer |
|
Recommended |
(Parent/Guardian Info): How would you describe yourself? White/Caucasian |
0;1
|
0= No; 1= Yes
|
|
|
parent_race06 |
Integer |
|
Recommended |
(Parent/Guardian Info): How would you describe yourself? Other |
0;1
|
0= No; 1= Yes
|
|
|
parent_race06a |
String |
50
|
Recommended |
(Parent/Guardian Info): If other for ethnicity, please specify: |
|
|
|
|
parent_hispanic |
Integer |
|
Recommended |
(Parent/Guardian Info): Are you Hispanic, Latino, or Spanish origin? |
0;1
|
0= No; 1= Yes
|
|
|
child_race01 |
Integer |
|
Recommended |
(Child Info): How would you describe your child? American Indian or Alaska Native |
0;1
|
0= No; 1= Yes
|
|
|
child_race02 |
Integer |
|
Recommended |
(Child Info): How would you describe your child? Asian |
0;1
|
0= No; 1= Yes
|
|
|
child_race03 |
Integer |
|
Recommended |
(Child Info): How would you describe your child? Black or African American |
0;1
|
0= No; 1= Yes
|
|
|
child_race04 |
Integer |
|
Recommended |
(Child Info): How would you describe your child? Native Hawaiian or Other Pacific Islander |
0;1
|
0= No; 1= Yes
|
|
|
child_race05 |
Integer |
|
Recommended |
(Child Info): How would you describe your child? White/Caucasian |
0;1
|
0= No; 1= Yes
|
|
|
child_race06 |
Integer |
|
Recommended |
(Child Info): How would you describe your child? Other |
0;1
|
0= No; 1= Yes
|
|
|
child_race06a |
String |
50
|
Recommended |
(Child Info): If other for ethnicity, please specify: |
|
|
|
|
child_hispanic |
Integer |
|
Recommended |
(Child Info): Is your Hispanic, Latino, or Spanish origin? |
0;1
|
0= No; 1= Yes
|
|
|
child_sex02 |
Integer |
|
Recommended |
Childs biological sex |
1::2
|
1= Male; 2= Female
|
|
|
parent_job |
Integer |
|
Recommended |
(Parent/Guardian Info): Which of the following best describes your current work status? |
1 :: 4
|
1= Full Time; 2= Part Time; 3= I am not working, and I am looking for work; 4= I am not working and I am not looking for work
|
|
|
parent_income01 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your total annual household income from all sources? In other words, how much does everyone in your household (combined) make per year before taxes? This should include income (before taxes) from all sources (e.g., wages, help from relatives, child support, rent from properties, unemployment, disability, etc.). |
1 :: 13
|
1= Less than 5,000; 2= 5,000 through 11,999; 3= 12,000 through 15,999; 4= 16,000 through 24,999; 5= 25,000 through 34,999; 6= 35,000 through 49,999; 7= 50,000 through 74,999; 8= 75,000 through 99,999; 9= 100,000 through 149,999; 10= 150,000 through 199,999; 11= 200,000 through 249,999; 12= 250,000 through 299,999; 13= 300,000 or more
|
|
|
parent_income02 |
Integer |
|
Recommended |
(Parent/Guardian Info): How many people are supported by this household income? Include yourself and any other children or adults that depend on this money? |
|
Number of People
|
|
|
parent_edu |
Integer |
|
Recommended |
(Parent/Guardian Info): What is the highest level of education you completed? |
0 :: 8
|
0= Did not attend high school; 1= Attended some high school, but did not earn a diploma; 2= Finished high school or earned a GED; 3= Vocational or training school after high school; 4= Attended college but did not earn a degree; 5= Attended college and earned an associate degree (AA); 6= Completed college and earned a bachelor?s degree (BA or BS); 7= Earned masters degree (MA or MS); 8= Earned doctoral degree (PhD, JD, MD)
|
|
|
parent_lang |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your primary language spoken at home? |
1 :: 3
|
1= English; 2= Spanish; 3= Other
|
|
|
parent_lang_a |
String |
50
|
Recommended |
(Parent/Guardian Info): If other for spoken language, please specify: |
|
|
|
|
parent_rel01 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your current relationship status? Single |
0;1
|
0= No; 1= Yes
|
|
|
parent_rel02 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your current relationship status? Dating |
0;1
|
0= No; 1= Yes
|
|
|
parent_rel03 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your current relationship status? In a committed relationship or engaged |
0;1
|
0= No; 1= Yes
|
|
|
parent_rel04 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your current relationship status? Living as married |
0;1
|
0= No; 1= Yes
|
|
|
parent_rel05 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your current relationship status? Married |
0;1
|
0= No; 1= Yes
|
|
|
parent_rel06 |
Integer |
|
Recommended |
(Parent/Guardian Info): What is your current relationship status? Separated |
0;1
|
0= No; 1= Yes
|
|
|
fi04 |
Integer |
|
Recommended |
4. What is your age? |
|
|
chrdemo_dob_8a6430 |
|
chrdemo_firstlang |
String |
50
|
Recommended |
3. What is your first language (mother tongue)? |
|
|
chrdemo_firstlang_af297d |
|
rays_demo03 |
Integer |
|
Recommended |
Were you born in the United States? |
0;1
|
0= No; 1= Yes
|
chrdemo_country_situation_6e36e8 |
|
born_out_us |
Integer |
|
Recommended |
If born out the U.S., which applies: |
1;2
|
1=1st generation (you and your parents were born abroad and you came to the U.S. after age 5); 2=1st generation plus (you and your parents were born abroad, but you came to the U.S. before age 5)
|
if_born_out_the_u_s_select |
|
born_in_us |
Integer |
|
Recommended |
If born in the U.S., which applies: |
0;1
|
0=Born in the U.S., parents born in the U.S.; 1=Born in the U.S., parents (one or both) not born in the U.S.
|
if_born_in_the_u_s_select |
|
chrdemo_refugee_status |
Integer |
|
Recommended |
8. Do you have refugee status? |
0;1;-99;-900;-300
|
0=No; 1=Yes; -99=Prefer not to say ;-900=Missing;-300=N/A
|
chrdemo_refugee_status_ea7d2d |
|
chrdemo_racial_back |
Integer |
|
Recommended |
9. How would you describe your racial background (i.e., not necessarily your country of birth)? |
1::12;99;-900;-300
|
1=Indigenous/Aboriginal Persons (e.g.=North American Indian=First Nation=Metis=Inuit=Aboriginal people=Torres Strait Islander); 2=East Asian (e.g.=China=Japan=Korea); 3=Southeast Asian (e.g.=Cambodia=Indonesia=Vietnam); 4=South Asian (e.g.=India=Pakistan=Sri Lanka); 5=Black/African/African American; 6=West/Central Asian and Middle Eastern (e.g.=Egypt=Lebanon=United Arab Emirates=Afghanistan=Iran); 7=White/European/North American/Australian; 8=Native Hawaiian or Pacific Islander; 9=Mexican American; 10=Two or more races/mixed race; 11=Prefer to self-describe; 12=Central / South American; 99=Prefer not to answer; -900=Missing;-300=N/A
|
chrdemo_racial_back_b10df4 |
|
chrdemo_gender_identity |
Integer |
|
Recommended |
What is your gender identity? |
1 :: 8;-99;99;-900;-300
|
1=Male; 2=Female; 3= Transgender male; 4=Non binary; 5= Transgender female; 6= Agender; 7= Gender Queer; 8= Other/Prefer to self-identify; -99=Prefer not to say; 99=Other ;-900=Missing;-300=N/A
|
chrdemo_gender_identity_1b9aad_v2 |
|
describe_race |
String |
50
|
Recommended |
Describe race: |
|
|
|
|
hispanic_or_latino |
Integer |
|
Recommended |
Are you Hispanic or Latino? |
0::2;4::9;-99
|
0=No, not of Hispanic/Latino/a/e or Spanish origin; 1=Yes, Mexican, Mexican American, Chicano/a; 2=Yes, Central American; 4=Yes, Puerto Rican; 5=Yes, Cuban; 6=Yes, Dominican; 7=Yes, South American; 8=Yes, Another Hispanic, Latino/a/e, or Spanish origin; 9=Prefer to self-describe; -99=Prefer not to say
|
chrdemo_hispanic_latino_81cbb6 |
|
describe_latin |
String |
50
|
Recommended |
Describe Latin background: |
|
|
|
|
chrdemo_marital_status |
Integer |
|
Recommended |
11. What is your current relationship/marital status? |
1::6;99;-900;-300
|
1=Never married or Single; 2=In a relationship; 3=Married/Common law/de facto (two people who live together as partners); 4=Separated but not divorced; 5=Divorced; 6=Widowed; 99=Other ;-900=Missing;-300=N/A
|
chrdemo_marital_status_9d9ba8, chrdemo_marital_status_9d9ba8_v2 |
|
chrdemo_marital_status_other |
String |
50
|
Recommended |
If Other, please specify relationship/marital status: |
|
|
chrdemo_marital_status_other_facaf3, chrdemo_marital_status_other_facaf3_v2 |
|
sex_ori |
Integer |
|
Recommended |
What is your sexual orientation? |
|
1=Straight or Heterosexual; 2= Homosexual or Lesbian or Gay; 3= Bisexual; 4= Asexual; 5= Prefer not to answer; 6= Prefer to self-describe; 7= Queer
|
sex_o |
|
counselor06 |
String |
50
|
Recommended |
If sexual orientation is not listed, please specify |
|
|
describe_sexo |
|
religion_identity |
Integer |
|
Recommended |
What is your Religion? |
1::11;99
|
1= Christian; 2= Jewish; 3= Musli(m); 4= Buddhist; 5= Hindu; 6= Unaffiliated (Agnostic or Atheist); 7= Other; 8=Wicca/Pagan; 9=Prefer to self-describe; 10=Agnostic; 11=Atheist; 99=Prefer not to answer
|
relig |
|
describe_relig |
String |
50
|
Recommended |
Describe the religion you identify with: |
|
|
|
|
chrdemo_children |
Integer |
|
Recommended |
12. How many children do you have? |
0::5;-900;-300
|
0=0; 1=1; 2=2; 3=3; 4=4; 5=5 or more ;-900=Missing;-300=N/A
|
chrdemo_children_ea1e7f, chrdemo_children_ea1e7f_v2 |
|
chrdemo_housing |
Integer |
|
Recommended |
13. What is your current living situation? |
1::7;99;-900;-300
|
1=House/flat/apartment with family of origin; 2=Rented room; 3=Rented flat/house/apartment; 4=Owned flat/house/apartment; 5=Boarding house/hostel; 6=Supported residential home; 7=Homeless or couch surfing; 99=Other ;-900=Missing;-300=N/A
|
chrdemo_housing_fc7780, chrdemo_housing_fc7780_v2 |
|
chrdemo_housing_other |
String |
50
|
Recommended |
If Other, please specify housing: |
|
|
chrdemo_housing_other_d0f49b, chrdemo_housing_other_d0f49b_v2 |
|
ampscz_entry_date |
Date |
|
Recommended |
Date of Data Entry |
|
MM/DD/YYYY
|
chrdemo_entry_date_dd5cf7, chrdemo_entry_date_dd5cf7_v2 |
|
chrdemo_living_situtation |
String |
50
|
Recommended |
14. Who do you currently live with? (tick all that apply) |
|
1=Alone; 2=Both parents; 3=Mother/step-mother/foster mother only; 4=Father/step-father/foster father only; 5=Sibling(s); 6=Partner; 7=Son(s)/daughter(s); 8=Friend(s); 9=Housemate; 10=Grandparents or extended family; 11=Support workers; 99=Other;-900=Missing;-300=N/A ;-900=Missing;-300=N/A
|
chrdemo_living_situtation_a86418, chrdemo_living_situtation_a86418_v2 |
|
chrdemo_living_situtationother |
String |
50
|
Recommended |
If other, please specify: |
|
|
chrdemo_living_situtation_other_a41f43, chrdemo_living_situtation_other_a41f43_v2 |
|
chrdemo_education |
Integer |
|
Recommended |
16. How many years of education have you completed after preschool/ kindergarten ? (Select your choice) |
0::20;-900;-300
|
0=0; 1=1; 2=2; 3=3; 4=4; 5=5; 6=6; 7=7; 8=8; 9=9; 10=10; 11=11; 12=12; 13=13; 14=14; 15=15; 16=16; 17=17; 18=18; 19=19; 20=20 plus ;-900=Missing;-300=N/A
|
chrdemo_education_2df23b, chrdemo_education_2df23b_v2 |
|
chrdemo_edu_max_fb08d7 |
Integer |
|
Recommended |
What is the appropriate option regarding education? |
1;2
|
1=Has not yet completed High School; 2=Has completed High School
|
|
|
chrdemo_student |
Integer |
|
Recommended |
18. Are you currently enrolled or were you enrolled as a student within the past 6 months? |
0;1;-900;-300
|
0=No; 1=Yes ;-900=Missing;-300=N/A
|
chrdemo_student_0fbb14, chrdemo_student_0fbb14_v2 |
|
chrdemo_working |
Integer |
|
Recommended |
19. Are you currently working in paid employment? |
0::2;-900;-300
|
0=No; 1=Yes,working full-time; 2=Yes,working part-time ;-900=Missing;-300=N/A
|
chrdemo_working_71770e, chrdemo_working_71770e_v2 |
|
gfsr_19 |
String |
25
|
Recommended |
Where do you work? What are your job responsibilities? |
|
|
where_do_you_work, where_do_you_work_v2 |
|
chrdemo_volwork |
Integer |
|
Recommended |
20. Are you currently volunteering? |
0;1;-900;-300
|
0=No; 1=Yes ;-900=Missing;-300=N/A
|
chrdemo_volwork_56ec2f, chrdemo_volwork_56ec2f_v2 |
|
voc_hs_notes |
String |
500
|
Recommended |
Volunteering Notes or What volunteer work do you do? |
|
|
what_volunteer_work_do_you, what_volunteer_work_do_you_v2 |
|
bio_sib |
Integer |
|
Recommended |
Do you have any biological siblings? |
0;1
|
0=No; 1=Yes
|
|
|
about_yourself |
String |
500
|
Recommended |
Tell me about yourself. (Ex: What are your hobbies? How are things going for you? What are your strengths?) |
|
|
tell_me_about_yourself_wha_a71190 |
|
chrdemo_sibling |
Integer |
|
Recommended |
21. Do you have a biological sibling in the study? |
1::6;-900;-300
|
1=No; 2=An identical twin; 3=A brother; 4=A sister; 5=A half-brother; 6=A half-sister ;-900=Missing;-300=N/A
|
chrdemo_sibling_5581b8, chrdemo_sibling_5581b8_v2 |
|
chrdemo_sibling_id |
String |
50
|
Recommended |
Please enter the sibling''s Study ID |
|
|
chrdemo_sibling_id_b297b3, chrdemo_sibling_id_b297b3_v2 |
|
chrdemo_mom_edu |
Integer |
|
Recommended |
What is the highest level of formal education that your mother achieved (biological)? |
1::8;-3
|
1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training; 8=I don't know; -3=N/A - I did not have a primary caregiver
|
chrdemo_parent_edu_first_ccad53 |
|
chrdemo_dad_edu |
Integer |
|
Recommended |
What is the highest level of formal education that your father achieved (biological)? |
1::8;-3
|
1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training; 8=I don't know; -3=N/A - I was raised by only one parent or did not have a primary caregiver
|
chrdemo_parent_edu_other_886506 |
|
meds_detials |
String |
100
|
Recommended |
Do you take any medications? If so, list: |
|
|
meds |
|
med_cond |
Integer |
|
Recommended |
Do you have any medical condition? |
0;1
|
0=No; 1=Yes
|
do_you_have_any_medical_co_b25d3c, do_you_have_any_medical_co_b25d3c_v2 |
|
name_of_med_cond |
String |
100
|
Recommended |
Name of medical condition: |
|
|
name_of_medical_condition_e895ab, name_of_medical_condition_e895ab_v2 |
|
date_of_onset |
String |
100
|
Recommended |
Date of Onset: |
|
|
date_of_onset_7a9495, date_of_onset_7a9495_v2 |
|
any_other_med_cond1 |
Integer |
|
Recommended |
Do you have any other medical conditions 1? |
0;1
|
0=No; 1=Yes
|
do_you_have_any_other_medi_bfffe2, do_you_have_any_other_medi_bfffe2_v2 |
|
name_of_other_med_cond1 |
String |
100
|
Recommended |
Name of other medical condition 1: |
|
|
name_of_medical_condition_2_6b4cda, name_of_medical_condition_2_6b4cda_v2 |
|
change_life |
String |
100
|
Recommended |
If you could wave a magic wand and change three things about your life, what would you change? |
|
|
if_you_could_wave_a_magic_0f7e0c |
|
date_of_onset1 |
String |
100
|
Recommended |
Date of Onset 1: |
|
|
date_of_onset_2_f32c10, date_of_onset_2_f32c10_v2 |
|
any_other_med_cond2 |
Integer |
|
Recommended |
Do you have any other medical conditions 2? |
0;1
|
0=No; 1=Yes
|
do_you_have_any_other_medi_2_25dbe2, do_you_have_any_other_medi_2_25dbe2_v2 |
|
name_of_other_med_cond2 |
String |
100
|
Recommended |
Name of other medical condition 2: |
|
|
name_of_medical_condition_3_b5b62b, name_of_medical_condition_3_b5b62b_v2 |
|
date_of_onset2 |
String |
100
|
Recommended |
Date of Onset 2: |
|
|
date_of_onset_3_47a5df, date_of_onset_3_47a5df_v2 |
|
allother_med_cond_details |
String |
500
|
Recommended |
Please list any other medical condition(s) and date(s) of onset: |
|
|
please_list_any_other_medi_c1deca, please_list_any_other_medi_c1deca_v2 |
|
med_cond_notes |
String |
100
|
Recommended |
Medical Condition Notes: |
|
|
medical_condition_notes_8f865d, medical_condition_notes_8f865d_v2 |
|
fam_mental_tx |
Integer |
|
Recommended |
Has any of your immediate family been treated for mental health? |
0::2
|
0=Unknown; 1=Yes; 2=No
|
has_any_of_your_immediate_dd9d50 |
|
fam_mental_dx |
Integer |
|
Recommended |
Does any of your immediate family have any diagnosed psychiatric disorders? |
0::2
|
0=Unknown; 1=Yes; 2=No
|
do_either_of_your_biologic_f9271b |
|
fam_psych_dx |
Integer |
|
Recommended |
Which of your family members have a psychiatric diagnosis? |
1::3
|
1=Father; 2=Mother; 3=Full-Sibling
|
which_of_your_family_membe_3691fc |
|
fam_psych_dx_spec |
String |
100
|
Recommended |
What are their psychiatric diagnoses? |
|
|
what_are_their_psychiatric_676240 |
|
gender_identity |
Integer |
|
Recommended |
Gender identity: Do you identify as: |
1::12
|
1 = Female; 2 = Male; 3 = Other; 4 = Agender; 5 = Nonbinary/Fluid; 6 = Transgender female; 7 = Transgender male; 8 = Genderqueer; 9 = Do not wish to report; 10 = Multiple Identities Listed; 11 = Non-binary; 12 = Genderfluid
|
chrdemo_gender_identity_1b9aad |
|
fam_treated |
Integer |
|
Recommended |
Were they treated for this? |
0;1
|
0=No; 1=Yes
|
were_they_treated_for_this_747483 |
|
fam_txtype |
Integer |
|
Recommended |
What type of treatment did they receive? |
1::5
|
1=Counseling/Therapy; 2=Psychiatry; 3=Inpatient Hospitalization; 4=Partial Hospitalization; 5=Other - Specify
|
what_type_of_treatment_did_8d8498 |
|
fam_txduration |
String |
100
|
Recommended |
How long were they receiving this treatment? Please list who, type of treatment and duration. |
|
|
how_long_were_they_receivi_85fd36 |
|
other_rel_psych_dx |
Integer |
|
Recommended |
Do you have any other relatives with psychiatric diagnoses? (aunt, uncle, grandpa, half-sibling, etc.) |
0;1
|
0=No; 1=Yes
|
do_you_have_any_other_rela_41238e |
|
other_rel_spec |
String |
500
|
Recommended |
Who are they to you and what are their diagnoses? |
|
|
who_are_they_to_you_and_wh_7cb495 |
|
curr_mental_tx |
Integer |
|
Recommended |
Are you currently receiving mental health treatment? |
1::6
|
1=Therapy/Counseling; 2=Psychiatry; 3=Group Therapy; 4=Residential; 5=Partial Hospitalization; 6=Other - Specify
|
what_kind_of_mental_health_ec0c5a, what_kind_of_mental_health_ec0c5a_v2 |
|
curr_mental_tx_type |
String |
100
|
Recommended |
Type of treatment - current: Other |
|
|
type_of_treatment_currentl_a2623c, type_of_treatment_currentl_a2623c_v2 |
|
curr_mental_tx_spec |
String |
100
|
Recommended |
When did you start treatment? list every treatment type and approx. date |
|
|
when_did_you_start_treatme, when_did_you_start_treatme_v2 |
|
curr_mental_tx_feel |
String |
100
|
Recommended |
How do you feel about the treatment you are currently receiving? |
|
|
how_do_you_feel_about_the_307df9, how_do_you_feel_about_the_307df9_v2 |
|
curr_mental_tx_rate |
Integer |
|
Recommended |
If you could rate your feelings about current treatment on a scale from 1 to 5, with 5 being very good and 1 being terrible, what would you rate it? |
1::5
|
1=Terrible; 5=Very good
|
if_you_could_rate_your_fee_978a18, if_you_could_rate_your_fee_978a18_v2 |
|
chrdemo_gender_other |
String |
50
|
Recommended |
If Other, please specify gender: |
|
|
chrdemo_gender_other_baa856, chrdemo_gender_other_baa856_v2 |
|
curr_mental_dx |
Integer |
|
Recommended |
Do you currently have any mental health diagnoses? |
0;1
|
0=No; 1=Yes
|
do_you_currently_have_any_0e34bc, do_you_currently_have_any_0e34bc_v2 |
|
curr_mental_dx_spec |
String |
100
|
Recommended |
What are your current mental health diagnoses? |
|
|
what_are_your_current_ment_72715a, what_are_your_current_ment_72715a_v2 |
|
curr_mental_dx_feel |
String |
100
|
Recommended |
How do you feel about this/these diagnoses? |
|
|
how_do_you_feel_about_this_0551a2, how_do_you_feel_about_this_0551a2_v2 |
|
curr_mental_dx_rate |
Integer |
|
Recommended |
If you could rate your feelings on a scale from 1 to 5, with 5 being good/accurate and 1 being wrong/bad about your current diagnoses, what would you rate it? |
1::5
|
1=Wrong/bad; 5=Good/accurate
|
if_you_could_4a9546, if_you_could_4a9546_v2 |
|
curr_psych_meds_spec |
Integer |
|
Recommended |
Do you take any psychiatric medication currently? |
0;1
|
0=No; 1=Yes
|
do_you_take_any_psychiatri_40a7f1, do_you_take_any_psychiatri_40a7f1_v2 |
|
curr_psych_meds |
String |
100
|
Recommended |
What psychiatric medications do you take? |
|
|
what_medications_do_you_ta_8d67a5, what_medications_do_you_ta_8d67a5_v2 |
|
past_mental_tx |
Integer |
|
Recommended |
Were you receiving any mental health treatment in the past? |
0;1
|
0=No; 1=Yes
|
what_kind_of_mental_969198 |
|
past_mental_tx_type |
Integer |
|
Recommended |
Type of treatment - past: |
1::6
|
1=Therapy/Counseling; 2=Psychiatry; 3=Group Therapy; 4=Residential; 5=Partial Hospitalization; 6=Other - Specify
|
type_of_treatment_past_c9133c |
|
past_mental_tx_spec |
String |
100
|
Recommended |
When did you start treatment? When did you stop treatment? list every treatment type and approx. date |
|
|
when_did_you_start_treatme_2 |
|
past_mental_tx_feel |
String |
100
|
Recommended |
How did you feel about the treatment you were receiving before? |
|
|
how_did_you_feel_about_the_4dbb50 |
|
pronouns |
Integer |
|
Recommended |
What are your pronouns? |
1::4
|
1=he/him; 2=she/her; 3=they/them; 4=other
|
b_what_are_your_pronouns, b_what_are_your_pronouns_v2 |
|
past_mental_tx_rate |
Integer |
|
Recommended |
If you could rate your feelings about your past treatment on a scale from 1 to 5, with 5 being very good and 1 being terrible, what would you rate it? |
1::5
|
1=Terrible; 5=Very good
|
if_you_could_rate_c09495 |
|
past_mental_dx |
Integer |
|
Recommended |
Did you have any past mental health diagnoses that you no longer have? |
0;1
|
0=No; 1=Yes
|
did_you_have_any_past_ment_56d992 |
|
past_mental_dx_spec |
String |
100
|
Recommended |
What are your past diagnoses? |
|
|
what_are_your_past_diagnos_19b876 |
|
past_mental_dx_feel |
String |
100
|
Recommended |
How did you feel about past diagnoses? |
|
|
how_did_you_feel_about_pas_1ea84d |
|
past_mental_dx_rate |
Integer |
|
Recommended |
And if you could rate your feelings at the time about your past diagnoses on a scale from 1 to 5, what would you rate it? |
1::5
|
1=Wrong/bad; 5=Good/accurate
|
and_if_you_could_rate_your_7258ec |
|
past_psych_meds_spec |
Integer |
|
Recommended |
Did you take any psychiatric medications in the past? |
0;1
|
0=No; 1=Yes
|
did_you_take_any_psychiatr_b645c4 |
|
past_psych_meds |
String |
100
|
Recommended |
What medications did you take? |
|
|
what_medications_did_you_t_d06b38 |
|
psqdcom |
String |
1,000
|
Recommended |
Additional comments |
|
|
additional_comments_070ef2, additional_comments_070ef2_v2 |
|
how_are_things_now |
String |
100
|
Recommended |
How are things going for you right now? |
|
|
how_are_things_going_for_y_b4338b_v2 |
|
things_now_rating |
Integer |
|
Recommended |
On a scale from 1-5, how would you say your life is going? With 1 being terrible and 5 being everything is going the way you would like. |
1::5
|
1=Terrible; 5=Everything is going the way you would like
|
on_a_scale_from_1_5_how_wo_f58f9a_v2 |
|
chrdemo_sexassigned |
Integer |
|
Recommended |
1b. What sex were you assigned at birth, what was on your original birth certificate? |
1::3;-900;-300; -5; -999
|
1=Male; 2=Female; 3=Intersex; -900=Missing;-300=N/A; -999 =data not submitted (incomplete); -5=item seen but not answered
|
chrdemo_sexassigned_7398b5 |
|
now_vs_p6mths |
Integer |
|
Recommended |
How is your life going now versus six months ago? |
1::3
|
1=Same; 2=Worse; 3=Better
|
how_is_your_life_going_now_8033c6_v2 |
|
demo_siblings |
Integer |
|
Recommended |
Do you have siblings? |
1;2;9
|
1=Yes; 2=No; 9=Unknown/Missing
|
sibs_f |
|
med_cond_p6mths |
Integer |
|
Recommended |
Are any of these medical conditions new within the last 6 months? |
0;1
|
0=No; 1=Yes
|
are_any_of_these_medical_c |
|
mentaltx_vs_p6mths |
Integer |
|
Recommended |
Is this new mental health treatment than you were receiving 6 months ago? |
0;1
|
0=No; 1=Yes
|
is_this_new_mental_health |
|
mentaldx_vs_p6mths |
Integer |
|
Recommended |
Is this diagnosis new from when we last saw you 6 months ago? |
0;1
|
0=No; 1=Yes
|
is_this_diagnosis_new_from |
|
med_cond_vs_p6mths |
Integer |
|
Recommended |
Are these new medications than you were taking 6 months ago? |
0;1
|
0=No; 1=Yes
|
are_these_new_medications |
|
chrdemo_parent_edu_first |
Integer |
|
Recommended |
24. What is the highest level of formal education that your first mentioned (child-rearing) parent/guardian achieved? |
|
1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training; -300=N/A or I did not have a primary caregiver; -900=Missing
|
chrdemo_parent_edu_first_ccad53_v2 |
|
chrdemo_parent_edu_other |
Integer |
|
Recommended |
25. What is the highest level of formal education that your other (child-rearing) parent/guardian achieved? |
|
1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training; -300=N/A or I was raised by only one parent or did not have a primary caregiver; -900=Missing
|
chrdemo_parent_edu_other_886506_v2 |
|
chrdemo_edu_max |
Integer |
|
Recommended |
17. What is the highest level of formal education that you have achieved? |
1::7;-900;-300
|
1=Less than seven years of school; 2=Junior high school (up to and including 8th grade); 3=Some high school/secondary school (grade 9-11); 4=Completed high school/secondary school (12th grade); 5=Partial college training; 6=College or university education; 7=Graduate or professional training ;-900=Missing;-300=N/A
|
chrdemo_edu_max_fb08d7_v2 |
|
curr_mental_tx_6 |
Integer |
|
Recommended |
Type of treatment - current: Other, Specify Below |
0;1
|
0= No; 1= Yes
|
|
|
now_vs_p6mths_notes |
String |
1,000
|
Recommended |
How is your life going now versus six months ago? |
|
|
|
|
b_pronouns |
String |
50
|
Recommended |
What are your pronouns? |
|
|
|
|
curr_mental_tx_yn |
Integer |
|
Recommended |
Are you currently receiving mental health treatment? |
0;1
|
0= No; 1= Yes
|
|
|
curr_mental_tx_1 |
Integer |
|
Recommended |
Type of treatment - current: Behavioral/Therapy/Counseling |
0;1
|
0= No; 1= Yes
|
|
|
curr_mental_tx_2 |
Integer |
|
Recommended |
Type of treatment - current: Psychiatry |
0;1
|
0= No; 1= Yes
|
|
|
curr_mental_tx_3 |
Integer |
|
Recommended |
Type of treatment - current: Group Therapy |
0;1
|
0= No; 1= Yes
|
|
|
curr_mental_tx_4 |
Integer |
|
Recommended |
Type of treatment - current: Residential |
0;1
|
0= No; 1= Yes
|
|
|
curr_mental_tx_5 |
Integer |
|
Recommended |
Type of treatment - current: Partial Hospitalization |
0;1
|
0= No; 1= Yes
|
|
|
sbf_15a_parent |
Integer |
|
Recommended |
What is the highest level of education the child's mother has completed? |
1::12
|
1 = Some grade school; 2 = Some high school; 3 = High school graduate; 4 = GED or equivalent; 5 = Some college; 6 = Associate's degree; 7 = Occupational = technical or vocational program; 8 = Bachelor's degree; 9 = Master's degree; 10 = Professional school degree; 11 = Doctoral degree; 12 = Refuse/don't know
|
|
|
sbf_15b_parent |
Integer |
|
Recommended |
What is the highest level of education the child's father has completed? |
1::12
|
1 = Some grade school; 2 = Some high school; 3 = High school graduate; 4 = GED or equivalent; 5 = Some college; 6 = Associate's degree; 7 = Occupational = technical or vocational program; 8 = Bachelor's degree; 9 = Master's degree; 10 = Professional school degree; 11 = Doctoral degree; 12 = Refuse/don't know
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sbf_16a_parent |
String |
20
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Recommended |
Mother's most recent or current employment? (For example: Nurse, Accountant, etc.) |
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sbf_16b_parent |
String |
20
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Recommended |
Father's most recent or current employment? (For example: Nurse, Accountant, etc.) |
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sbf_17_parent |
Integer |
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Recommended |
Which category best describes your total household income in the last year? Household income means your income plus that of anyone else living with you. |
1::6
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1 = less than $25,000; 2 = $25,000-$49,000; 3 = $50,000-$74,000; 4 = $75,000 or more; 5 = Don't know; 6 = Prefer not to answer
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sbf_19_parent |
Integer |
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Recommended |
How many people are living in your home including you? |
0::99
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scrn_intdisab |
Integer |
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Recommended |
Has your child been diagnosed with... Intellectual disability /Discapacidad intelectual |
1 ; 0
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1 = Yes - GO TO END; 0 = No (Continue)
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sbf_12_parent |
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sbf_6_parent |
Integer |
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Recommended |
Is your child right-handed or left-handed? |
1::5
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1 = Right-handed; 2 = Left-handed; 3 = Ambidextrous; 4 = Other; 5 = Don't know
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sbf_6_other_parent |
String |
20
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Recommended |
If you selected Other, please explain here: |
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sbf_7_parent |
Integer |
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Recommended |
What is your child's grade level? |
1::6
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1 = Freshman; 2 = Sophomore; 3 = Junior; 4 = Senior; 5 = Adult Transitional; 6 = Don't know
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sbf_9_parent |
Integer |
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Recommended |
When will your child be searching for a job? |
1::7
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1 = Currently; 2 = 1-2 months from now; 3 = 3-4 months from now; 4 = 5-6 months from now; 5 = 7-12 months from now; 6 = More than a year from now; 7 = Don't know
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sbf_11_parent |
Integer |
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Recommended |
Does your child have a medical illness that affects the ability to learn and remember? |
1;2
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1 = Yes; 2 = No
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sbf_13_parent |
Integer |
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Recommended |
Does your child have vision problems that prevent him/her from reading a computer screen? |
1;2
|
1 = Yes; 2 = No
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sbf_14_parent |
Integer |
|
Recommended |
Does your child have hearing problems that prevent him/her from listening to audio from a computer? |
1;2
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1 = Yes; 2 = No
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et2a |
Integer |
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Recommended |
Highest Level of Education Achieved. Biological mother |
1::12; 99; 77
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99=Don't know; 77=Refused; 1=8th grade or less; 2=9th grade or above, not a high school graduate; 3= high school graduate or GED; 4= post high school education, no college degree; 5=vocational-technical = degree or certificate; 6=2-year college degree/associate degree; 7= 4-year college degree/BA, BS degree; 8= some BA/BS work, no degree; 9=master degree, e.g. MSW, MA, MFA, MPH, MBA; 10=PHD, MD, JD, LLB, or other professional graduate degree; 11=other; 12=Less than high school diploma/GED
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dem_08a |
Integer |
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Recommended |
Mother current employment |
1::11;99
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1=Working full time(35hrs or more a week at one or more jobs)
; 2=Working part time; 3=Keeping house
; 4=Unemployed, looking for work; 5=Unemployed, not looking for work; 6=Disabled; 7=Retired; 8=Student, full time; 9=Student, part time; 10=Other; 11 =Unemployed; 99=Not in household
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