|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
hcpa_id |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
inventoryadmin |
Integer |
|
Recommended |
How the assessment was administered |
1::4
|
1 = Participant read and answered items independently; 2 = Items read by examiner; 3 = Examiner read items and marked verbal given answers; 4 = Examiner marked answers given verbally
|
|
Query
|
adlnow1 |
Integer |
|
Recommended |
Housekeeping current ability |
0::4; 8
|
0 = I maintain my house/apartment by myself or only need occasional help for larger jobs; 1 = I only perform light daily tasks (wash dishes; make bed); 2 = I perform some light tasks; but have difficulty keeping my place clean; 3 = I need help with all housekeeping tasks; 4 = I do not participate in any housekeeping tasks; 8 = I am fully able to do housekeeping; but choose not to do so
|
iadl4 |
Query
|
adlbest1 |
Integer |
|
Recommended |
Housekeeping best ability |
0::3; 8
|
0 = I maintain my house/apartment by myself or only need occasional help for larger jobs; 1 = I only perform light daily tasks (wash dishes; make bed); 2 = I perform some light tasks; but have difficulty keeping my place clean; 3 = I need help with all housekeeping tasks; 8 = I am fully able to do housekeeping; but choose not to do so
|
|
Query
|
adlnow2 |
Integer |
|
Recommended |
Managing finances current ability |
0::2; 8
|
0 = I manage all of my finances (check cashing; banking; handling money) by myself; 1 = I manage routine small purchases; but need help with banking; checking; and balancing accounts; 2 = I am not able to handle money accurately; 8 = I am able to handle my own finances; but someone else does them for me
|
iadl8 |
Query
|
adlbest2 |
Integer |
|
Recommended |
Managing finances best ability |
0::2; 8
|
0 = I manage all of my finances (check cashing; banking; handling money) by myself; 1 = I manage routine small purchases; but need help with banking; checking; and balancing accounts; 2 = I am not able to handle money accurately; 8 = I am able to handle my own finances; but someone else does them for me
|
|
Query
|
adlnow3 |
Integer |
|
Recommended |
Buying Groceries current ability |
0::2; 8
|
0 = I create my own grocery list and do my own shopping; 1 = I need occasional assistance in buying groceries; 2 = I need someone else to do my grocery shopping for me; 8 = I am able to create my own grocery list and do my own shopping; but someone else does it for me
|
|
Query
|
adlbest3 |
Integer |
|
Recommended |
Buying Groceries best ability |
0::2; 8
|
0 = I create my own grocery list and do my own shopping; 1 = I need occasional assistance in buying groceries; 2 = I need someone else to do my grocery shopping for me; 8 = I am able to create my own grocery list and do my own shopping; but someone else does it for me
|
|
Query
|
adlnow4 |
Integer |
|
Recommended |
Cooking current ability |
0::3; 8
|
0 = I plan; prepare; and serve many of my own meals; 1 = I prepare meals if someone else provides me with the right ingredients; 2 = I heat and serve meals provided by others; 3 = I need to have meals prepared and served to me; 8 = I am able to plan; prepare; and serve my own meals but someone else does it for me
|
iadl3 |
Query
|
adlbest4 |
Integer |
|
Recommended |
Cooking best ability |
0::3; 8
|
0 = I plan; prepare; and serve many of my own meals; 1 = I prepare meals if someone else provides me with the right ingredients; 2 = I heat and serve meals provided by others; 3 = I need to have meals prepared and served to me; 8 = I am able to plan; prepare; and serve my own meals but someone else does it for me
|
|
Query
|
adlnow5 |
Integer |
|
Recommended |
Planning current ability |
1::3
|
1 = I frequently initiate and plan social activities (e.g. going out; having a party); 2 = I rarely initiate and plan social activities; 3 = I do not plan and initiate social activities
|
|
Query
|
adlbest5 |
Integer |
|
Recommended |
Planning best ability |
1::3
|
1 = I frequently initiate and plan social activities (e.g. going out; having a party); 2 = I rarely initiate and plan social activities; 3 = I do not plan and initiate social activities
|
|
Query
|
adlnow6 |
Integer |
|
Recommended |
Understanding reading current ability |
0::3
|
0 = I understand reading materials and TV without difficulty; 1 = I have occasional difficulty understanding reading materials or TV; 2 = I have frequent difficulty understanding reading materials or TV; 3 = I am unable to understand reading materials or TV
|
|
Query
|
adlbest6 |
Integer |
|
Recommended |
Understanding reading best ability |
0::3
|
0 = I understand reading materials and TV without difficulty; 1 = I have occasional difficulty understanding reading materials or TV; 2 = I have frequent difficulty understanding reading materials or TV; 3 = I am unable to understand reading materials or TV
|
|
Query
|
adlnow7 |
Integer |
|
Recommended |
Transportation current ability |
0::3
|
0 = I drive my own car or take public transportation on my own; 1 = I arrange my own travel using taxis; but do not drive or use public transportation; 2 = I can travel on public transportation or use taxis if I am assisted by another; 3 = I do not travel at all
|
|
Query
|
adlbest7 |
Integer |
|
Recommended |
Transportation best ability |
0::3
|
0 = I drive my own car or take public transportation on my own; 1 = I arrange my own travel using taxis; but do not drive or use public transportation; 2 = I can travel on public transportation or use taxis if I am assisted by another; 3 = I do not travel at all
|
|
Query
|
adlnow8 |
Integer |
|
Recommended |
Telephone current ability |
0::3; 8
|
0 = I handle using the telephone without difficulty; 1 = I only dial a few well-known numbers; 2 = I answer the telephone but do not dial; 3 = I do not use the telephone at all; 8 = I do not have access to a telephone
|
iadl1 |
Query
|
adlbest8 |
Integer |
|
Recommended |
Telephone bestability |
0::3; 8
|
0 = I handle using the telephone without difficulty; 1 = I only dial a few well-known numbers; 2 = I answer the telephone but do not dial; 3 = I do not use the telephone at all; 8 = I do not have access to a telephone
|
|
Query
|
adlnow9 |
Integer |
|
Recommended |
Home repair current ability |
0::2; 8
|
0 = I handle most minor home repairs (plubming; gardening); 1 = I need assistance with most minor home repairs; 2 = I am unable to do most repairs by myself; 8 = I am capable of making minor repairs but choose not to
|
|
Query
|
adlbest9 |
Integer |
|
Recommended |
Home repair best ability |
0::2; 8
|
0 = I handle most minor home repairs (plubming; gardening); 1 = I need assistance with most minor home repairs; 2 = I am unable to do most repairs by myself; 8 = I am capable of making minor repairs but choose not to
|
|
Query
|
adlnow10 |
Integer |
|
Recommended |
Bathing current ability |
0::2
|
0 = I handle all of my bathing needs by myself; 1 = I need occasional assistance with bathing (getting in and out of the tub/shower; etc.); 2 = I always need help from others when bathing
|
|
Query
|
adlbest10 |
Integer |
|
Recommended |
Bathing best ability |
0::2
|
0 = I handle all of my bathing needs by myself; 1 = I need occasional assistance with bathing (getting in and out of the tub/shower; etc.); 2 = I always need help from others when bathing
|
|
Query
|
adlnow11 |
Integer |
|
Recommended |
Dressing current ability |
0::3
|
0 = I am able to dress myself and pick out my own clothes; 1 = I dress myself but someone else must pick out my clothes for me; 2 = I need occasional assistance getting dressed or frequently make mistakes in choosing clothes; 3 = I need frequent assistance in getting dressed
|
|
Query
|
adlbest11 |
Integer |
|
Recommended |
Dressing best ability |
0::3
|
0 = I am able to dress myself and pick out my own clothes; 1 = I dress myself but someone else must pick out my clothes for me; 2 = I need occasional assistance getting dressed or frequently make mistakes in choosing clothes; 3 = I need frequent assistance in getting dressed
|
|
Query
|
adlnow12 |
Integer |
|
Recommended |
Shopping current ability |
0::3; 8
|
0 = I take care of all of my shopping needs; 1 = I only make small purchases; 2 = I need someone to go with me on any shopping trip; 3 = I am unable to shop; 8 = I am able to shop but choose to have someone else do my shopping for me
|
iadl2 |
Query
|
adlbest12 |
Integer |
|
Recommended |
Shopping best ability |
0::3; 8
|
0 = I take care of all of my shopping needs; 1 = I only make small purchases; 2 = I need someone to go with me on any shopping trip; 3 = I am unable to shop; 8 = I am able to shop but choose to have someone else do my shopping for me
|
|
Query
|
adlnow13 |
Integer |
|
Recommended |
Laundry current ability |
0::3; 8
|
0 = I do all of my own laundry; 1 = I need occasional help in doing the laundry; 2 = I launder only small items; 3 = All laundry must be done by others; 8 = I am able to do my own laundry; but choose to have others do it for me
|
|
Query
|
adlbest13 |
Integer |
|
Recommended |
Laundry best ability |
0::3; 8
|
0 = I do all of my own laundry; 1 = I need occasional help in doing the laundry; 2 = I launder only small items; 3 = All laundry must be done by others; 8 = I am able to do my own laundry; but choose to have others do it for me
|
|
Query
|
adlnow14 |
Integer |
|
Recommended |
Medication current ability |
0::2; 8
|
0 = I take sole responsibility for taking medications in correct dosages at the correct time; 1 = I take medications that are prepared in individual doses by someone else; 2 = I am unable to track my own medications; 8 = I am able to take care of my own medications but choose to have someone else do it for me
|
iadl7 |
Query
|
adlbest14 |
Integer |
|
Recommended |
Medication best ability |
0::2; 8
|
0 = I take sole responsibility for taking medications in correct dosages at the correct time; 1 = I take medications that are prepared in individual doses by someone else; 2 = I am unable to track my own medications; 8 = I am able to take care of my own medications but choose to have someone else do it for me
|
|
Query
|
adlnow15 |
Integer |
|
Recommended |
Child Care current ability |
0::2; 8
|
0 = I am fully able to handle child care; 1 = I need occasional assistance in caring for my children; 2 = I need constant assistance in caring for my children; 8 = I do not have children
|
|
Query
|
adlbest15 |
Integer |
|
Recommended |
Child Care best ability |
0::2; 8
|
0 = I am fully able to handle child care; 1 = I need occasional assistance in caring for my children; 2 = I need constant assistance in caring for my children; 8 = I do not have children
|
|
Query
|
adlnow16 |
Integer |
|
Recommended |
Work current ability |
0::2; 8
|
0 = I am efficient at work; 1 = I am not very efficient at work and have difficulty maintaining attention or finishing tasks; 2 = I am having a great deal of difficulty in maintaining attention or finishing tasks at work; 8 = I am no longer able to work
|
|
Query
|
adlbest16 |
Integer |
|
Recommended |
Work best ability |
0::2; 8
|
0 = I am efficient at work; 1 = I am not very efficient at work and have difficulty maintaining attention or finishing tasks; 2 = I am having a great deal of difficulty in maintaining attention or finishing tasks at work; 8 = I am no longer able to work
|
|
|
lawtonadl17 |
String |
400
|
Recommended |
Please tell us of any other areas in which you are having difficulty |
|
|
|
|
lawtonadl18 |
String |
400
|
Recommended |
What do you think are your major areas of difficulty at this time? |
|
|
|
Query
|
lawtonadl19 |
Integer |
|
Recommended |
I feel that the difficulties that I am having on the above tasks, if any, are due to: |
1::3; 8
|
1 = Primarily cognitive problems (e.g. thinking; memory; paying attention); 2 = Primarily physical problems (e.g. fatigue; feeling sick); 3 = Equally cognitive and physical problems; 8 = I am not having any difficulties on the previous tasks
|
|
Query
|
lawtonadl20 |
Integer |
|
Recommended |
If you are having more difficulty than you used to with the above tasks, approximately when did the difficulties begin? |
1::5; 8
|
1 = Within the last month; 2 = 1 to 6 months ago; 3 = 6 months to 2 years ago; 4 = 2 to 5 years ago; 5 = More than 5 years ago; 8 = I am not having any difficulties
|
|
Query
|
form_completed |
Integer |
|
Recommended |
Was the form completed? |
1::4
|
1=Yes; 2=No; 3=Unverified; 4 = N/A-Not in age range
|
|
|
date_updated |
Date |
|
Recommended |
Date record updated |
|
|
|
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
|
dode |
String |
10
|
Recommended |
Date of Data Entry |
|
|
|
Query
|
lbadl_currtot |
Integer |
|
Recommended |
L & B Activities of Daily Living Scale total of current items |
|
|
iadl_score |
Query
|
lbadl_besttot |
Integer |
|
Recommended |
L & B Activities of Daily Living Scale total of best items |
|
|
|
|
lbadl_iadldep |
Integer |
|
Recommended |
indicate whether total score is IADL Dependent or IADL Independent |
0;1
|
0= IADL Dependent; 1= IADL Independent
|
totalscore |
|
iadl6 |
Integer |
|
Recommended |
Which ONE of the following statements best applies to your current ability to use transportation: |
1::5
|
1 = I can travel independently on public transportation or drive my own car ; 2 = I can arrange my own travel via taxis, but cannot otherwise use public transportation ; 3 = I can travel on public transportation when assisted or accompanied by another ; 4 = My travel is limited to taxi or automobile with the assistance of another ; 5 = I do not travel at all
|
|
|
iadl05 |
Integer |
|
Recommended |
Which ONE of the following statements best applies to your current ability to do laundry: |
1::3
|
1 = I can do my personal laundry completely ; 2 = I can launder small items, rinse socks, stockings, etc. ; 3 = All my laundry must be done by others
|
iadl5 |