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Health Utilitities Index

417 Shared Subjects

N/A
Clinical Assessments
Questionnaire
05/28/2015
healthui01
03/22/2023
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project catieid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query hui01 Integer Recommended During the past two weeks, has subject been able to see well enough to read ordinary newsprint without glasses or contact lenses? 0::4 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui02 Integer Recommended Has subject been able to see well enough to read ordinary newsprint with glasses or contact lenses? 0::3 0 = No; 1 = Yes; 2 = Don't Know/Didn't wear glasses or contac; 3 = Refused
Query hui03 Integer Recommended During the past two weeks, has subject been able to see at all? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui04 Integer Recommended During the past two weeks, has subject been able to see well enough to recognize a friend on the other side of the street without glasses or contact lenses? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui05 Integer Recommended Has subject been able to see well enough to recognize a friend on the other side of the street with glasses or contact lenses? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui06 Integer Recommended During the past two weeks, has subject been able to hear what is said in a group conversation with at least three other people without a hearing aid? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui07 Integer Recommended Has subject been able to hear what is said in a group conversation with at least three other people without a hearing aid? 0::3 0 = No; 1 = Yes; 2 = Don't Know/Didn't wear hearing aid; 3 = Refused
Query hui08 Integer Recommended During the past two weeks, has subject been able to hear at all? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui09 Integer Recommended During the past two weeks, has subject been able to hear what is said in a group conversation with one other person in a quiet room without a hearing aid? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui10 Integer Recommended Has the subject been able to hear what is said in a conversion with one other person in a quiet room with a hearing aid? 0::3 0 = No; 1 = Yes; 2 = Don't Know/Didn't wear hearing aid; 3 = Refused
Query hui11 Integer Recommended During the past two weeks, has the subject been able to be understood completely when speaking his/her own language with people who do not know the subject? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui12 Integer Recommended Has the subject been able to be understood partially when speaking with people who do not know the subject? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui13 Integer Recommended During the past two weeks, has the suubject been able to be understood completely when speaking with people who know the subject? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui14 Integer Recommended Has the subject been able to be understood partially when speaking with people the subject well? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui15 Integer Recommended During the past two weeks, has the subject been able to speak at all? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui16 Integer Recommended During the past two weeks, has the subject been able to bend, lift, jump and run without difficulty and without help or equipment of any kind? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui17 Integer Recommended Has the subject been able to walk around the neighborhood without difficulty and without help or equipment of any kind? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui18 Integer Recommended Has the subject been able to walk around the neighborhood with difficulty but without help or equipment of any kind? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui19 Integer Recommended During the past two weeks, has the subject been able to walk at all? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui20 Integer Recommended Has the subject needed mechanical support, such as braces or a cane or crutches, to be able to walk around the neighborhood? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui21 Integer Recommended Has the subject needed the help of another person to walk? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui22 Integer Recommended Has the subject needed a cheelchair to get around the neighborhood? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui23 Integer Recommended Has the subject needed the help of another person to get around in the wheelchair? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui24 Integer Recommended During the past two weeks, has the subject had the full use of both hands and ten fingers? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui25 Integer Recommended Has the subject needed the help of another person because of limitations in the use of his/her hands or fingers? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui26 Integer Recommended Has the subject needed the help of another person with some tasks, most tasks, or all tasks? 1::5 1 = Some tasks; 2 = Don't Know; 3 = Refused; 4 = Most tasks; 5 = All tasks
Query hui27 Integer Recommended Has the subject needed special equipment, for example special tools to help with dressing or eating, because of limitations in the use of his/her hands or fingers? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui28 Integer Recommended During the past two weeks, has the subject been able to eat, bathe, dress and use the toilet without difficulty? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui29 Integer Recommended has the subject needed the help of another person to eat, bathe, dress, and use the toilet? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui30 Integer Recommended Has the subject needed special equipment or tools to eat, bathe, dress or use the toilet? 0::3 0 = No; 1 = Yes; 2 = Don't Know; 3 = Refused
Query hui31 Integer Recommended During the past two weeks, has the subject been feeling happy or unhappy? 0::3 0 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
Query hui32 Integer Recommended Would you describe subject as having felt: 1::4 1 = Happy interested in life, or; 2 = Don't Know; 3 = Refused; 4 = Somewhat happy
Query hui33 Integer Recommended Would you describe subject as having felt: 1::5 1 = Somewhat unhappy; 2 = Don't Know; 3 = Refused; 4 = Very unhappy; 5 = So unhappy that life is not worthwhile
Query hui34 Integer Recommended During the past two weeks, did subject ever feel fretful, angry, irritable, anxious, or depressed? 0::3 0 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
Query hui35 Integer Recommended How often did the subject feel fretful, angry, irritable, anxious or depressed? 1::6 1=Rarely; 2= Don't Know; 3=Refused; 4=Occasionally; 5=Often; 6=Almost always
Query hui36 Integer Recommended During the past two weeks did the subject feel extremely fretful, angry, irritable, anxious or depressed, to the point of needing professional help? 0::3 0 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
Query hui37 Integer Recommended How would you describe the subject's ability to remember things, during the past two weeks: 1::6 1=Able to remember most things; 2=Don't Know; 3=Refused; 4=Somewhat forgetful; 5=Very forgetful; 6=Unable to remember anything at all
Query hui38 Integer Recommended How would you describe the subject's ability to think and solve day-to-day problems, during the past two weeks: 1::7 1 = Able to think clearly and solve problems; 2 = Don't Know; 3 = Refused; 4 = Had a little difficulty; 5 = Had some difficulty; 6 = Had a great deal of difficulty; 7 =Unable to think or solve problems
Query hui39 Integer Recommended Has the subject had any trouble with pain or discomfort, during the past two weeks? 0::3 0 = Unhappy; 1 = Happy; 2 = Don't Know; 3 = Refused
Query hui40 Integer Recommended How many of the subject's activities, during the past two weeks, were limited by pain or discomfort? 1::7 1 = None; 2 = Don't Know; 3 = Refused; 4 = A few; 5 = Some; 6 = Most; 7 = All
Query hui41 Integer Recommended Overall, how would you rate the subject's health during the past two weeks? 1::7 1 = Excellent; 2 = Don't Know; 3 = Refused; 4 = Very good; 5 = Good; 6 = Fair; 7 = Poor
Query vision Integer Recommended Vision Level Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_vision Float Recommended Vision Utility Score Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_vision_s Float Recommended Hearling Level Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_hearing Float Recommended Hearing Utility Score Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_hear_s Float Recommended Speech Level Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_speech Float Recommended Speech Utility Score Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_speech_s Float Recommended Ambulation Level Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_ambul Float Recommended Ambulation Utility Score Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_ambul_s Float Recommended Dexterity Level Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_dexter Float Recommended Dexterity Utility Score Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_dexter_s Float Recommended Emotion Level Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_emotion Float Recommended Emotional Utility Score Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_emotn_s Float Recommended Cognition Level Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_cognit Float Recommended Cognition Utility Score Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_cognit_s Float Recommended Pain Level Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_pain Float Recommended Pain Utility Score Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_pain_s Float Recommended HUI Comprehensive Health Status Refer to the following website for complete scoring mechanism http://www.healthutilities.com/hui3.htm
Query hui_ts Float Recommended Total score
Query visit String 60 Recommended Visit name
Query visitid Integer Recommended MetaTrial Visit ID System variable: unique code for each type of visit -use to merge files
eq5d5l_1 Integer Recommended Mobility 0::4; 999 0 = I have no problems in walking about; 1 = I have slight problems in walking about; 2 = I have moderate problems in walking about; 3 = I have severe problems in walking about; 4 = I am unable to walk about; 999 = Missing
eq5d5l_2 Integer Recommended Self-Care 0::4; 999 0 = I have no problems in washing or dressing myself; 1 = I have slight problems washing or dressing myself; 2 = I have moderate problems washing or dressing myself; 3 = I have severe problems washing or dressing myself; 4 = I am unable to wash or dress myself; 999 = Missing
eq5d5l_3 Integer Recommended Usual Activities (e.g. work, study, housework, family or leisure activities) 0::4; 999 0 = I have no problems doing my usual activities; 1 = I have slight problems doing my usual activities; 2 = I have moderate problems doing my usual activities; 3 = I have severe problems doing my usual activities; 4 = I am unable to do my usual activities; 999 = Missing
eq5d5l_4 Integer Recommended Pain/Discomfort 0::4; 999 0 = I have no pain or discomfort; 1 = I have slight pain or discomfort; 2 = I have moderate pain or discomfort; 3 = I have severe pain or discomfort; 4 = I have extreme pain or discomfort; 999 = Missing
eq5d5l_5 Integer Recommended Anxiety/Depression 0::4; 999 0 = I am not anxious or depressed; 1 = I am slightly anxious or depressed; 2 = I am moderately anxious or depressed; 3 = I am severely anxious or depressed; 4 = I am extremely anxious or depressed; 999 = Missing
eq5d5l_6 Integer Recommended We would like to know how good or bad your health is TODAY. This scale is numbered from 0 to 100. 100 means the best health you can imagine. 0 means the worst health you can imagine. 0::100; 999
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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