|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
vocal_1 |
Integer |
|
Recommended |
Moanin, whining, whimpering (fairly soft) |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
vocal_2 |
Integer |
|
Recommended |
Crying (moderately loud) |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
vocal_3 |
Integer |
|
Recommended |
Screaming/yelling (very loud) |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
vocal_4 |
Integer |
|
Recommended |
A specific sound or word for pain |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
social_5 |
Integer |
|
Recommended |
Not cooperating, cranky, irritable, unhappy |
0::4;-99
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable; -99= Missing Value
|
|
Query
|
social_6 |
Integer |
|
Recommended |
Less interactions with others, withrawn |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
social_7 |
Integer |
|
Recommended |
Seeking comfort or physical closeness |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
social_8 |
Integer |
|
Recommended |
Neing difficult to distract, not able to satisfy or pacify |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
facial_9 |
Integer |
|
Recommended |
A furrowed brow |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
facial_10 |
Integer |
|
Recommended |
A cahnge in eyes, including: squinching of eyes, eyes opened wide, eyes frowning |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
facial_11 |
Integer |
|
Recommended |
Turning down of mouth, not smiling |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
facial_12 |
Integer |
|
Recommended |
Lips puckering up, tight, pouting, or quivering |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
facial_13 |
Integer |
|
Recommended |
Clenching or grinding teeth, chewing or thrusting tongue out |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
activity_14 |
Integer |
|
Recommended |
Not moving, less active, quiet |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
activity_15 |
Integer |
|
Recommended |
Jumping around, agitated, fidgety |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
bodylimbs_16 |
Integer |
|
Recommended |
Floppy |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
bodylimbs_17 |
Integer |
|
Recommended |
Stiff, spastic, tense, rigid |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
bodylimbs_18 |
Integer |
|
Recommended |
Gesturing to or touching part of the body that hurts |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
bodylimbs_19 |
Integer |
|
Recommended |
Protecting, favoring or guarding part of body that hurts |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
bodylimbs_20 |
Integer |
|
Recommended |
Flinching or moving the body part away, being sensitive to touch |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
bodylimbs_21 |
Integer |
|
Recommended |
Moving the body in a specific way to show pain |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
physiolog_22 |
Integer |
|
Recommended |
Shivering |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
physiolog_23 |
Integer |
|
Recommended |
Change in color, pallor |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
physiolog_24 |
Integer |
|
Recommended |
Sweating, perspiring |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
physiolog_25 |
Integer |
|
Recommended |
Tears |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
physiolog_26 |
Integer |
|
Recommended |
Sharp intake of breath, gasping |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
physiolog_27 |
Integer |
|
Recommended |
Breath holding |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
eatsleep_28 |
Integer |
|
Recommended |
Eating less, not interested in food |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
eatsleep_29 |
Integer |
|
Recommended |
Increase in sleep |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
eatsleep_30 |
Integer |
|
Recommended |
Decrease in sleep |
0::4
|
0=Not at all; 1= Just a little; 2= Fairly often; 3-Very often; 4=Not applicable
|
|
Query
|
vocal_score |
Integer |
|
Required |
Vocal category score |
0::12
|
|
|
Query
|
social_score |
Integer |
|
Required |
Social category score |
0::12
|
|
|
Query
|
facial_score |
Integer |
|
Required |
Facial category score |
0::15
|
|
|
Query
|
activity_score |
Integer |
|
Required |
Activity category score |
0::6
|
|
|
Query
|
bodylimbs_score |
Integer |
|
Required |
Body and Limbs category score |
0::18
|
|
|
Query
|
physiolog_score |
Integer |
|
Required |
Physiological category score |
0::18
|
|
|
Query
|
eatsleep_score |
Integer |
|
Required |
Eating/Sleeping category score |
0::9
|
|
|
Query
|
summary_total |
Integer |
|
Required |
Summary total score |
0::90
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
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|