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Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Parent Activation Measure for Developmental Disabilities

20 Shared Subjects

N/A
Clinical Assessments
Questionnaire
07/14/2016
pamdd01
07/14/2016
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query timept Integer Recommended Time Point 888 = not applicable; 999 = missing pam_time
Query pam_q1 Float Recommended Responsible for behavioral and developmental needs 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q2 Integer Recommended Active role 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q3 Integer Recommended Can prevent or reduce problems 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q4 Integer Recommended Medications 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q5 Float Recommended When to get services 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q6 Integer Recommended I can tell my service provider concerns 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q7 Integer Recommended Can follow behavioral and developmental treatments at home 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q8 Integer Recommended Understand the nature/ possible causes of behavior or developmental concerns 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q9 Integer Recommended Know what treatments are available 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q10 Integer Recommended Able to implement recommendations 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q11 Integer Recommended Know how to prevent problems 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q12 Integer Recommended Can figure out solutions for new situations 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_q13 Integer Recommended Can help maintain changes (progress) 1::4; 888; 999 1 = Strongly disagree; 2 = disagree; 3 = agree; 4 = strongly agree; 888 = not applicable; 999 = missing
Query pam_total Float Required Parent activation measure mean score 888 = not applicable; 999 = missing
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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