Loading...

National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Enter the email address associated with your existing NDA Account and click Continue Linking Process.

If you do not have an existing NDA account, click Go Back.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
National Institute of Mental Health Data Archive (NDA) Sign In
NDA

Success! An email is on its way!

Please check your email to complete the linking process. The link you receive is only valid for 30 minutes.

Check your spam or junk folder if you do not receive the email in the next few minutes.

Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
Create or Link an Existing NDA Account

Warning Notice

This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

NIMH Data Archive (NDA) Sign In or Create An Account
Update Password

You have logged in with a temporary password. Please update your password. Passwords must contain 8 or more characters and must contain at least 3 of the following types of characters:

  • Uppercase
  • Lowercase
  • Numbers
  • Special Characters limited to: %,_,!,@,#,$,-,%,&,+,=,),(,*,^,:,;
Update Password

Subscribe to our mailing list

Mailing List(s)
Email Format

You are now leaving the NIMH Data Archive (NDA) web site to go to:

Click on the address above if the page does not change within 10 seconds.

Disclaimer

NDA is not responsible for the content of this external site and does not monitor other web sites for accuracy.

Accept Terms
Data Access Terms - Decline Terms

Are you sure you want to cancel? This will decline terms and you will not be authorized for access.

NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Pediatric Quality of Life Scale

533 Shared Subjects

N/A
Clinical Assessments
Quality of Life
01/02/2015
pqlq01

View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR* guid
src_subject_id String 20 Required Subject ID how it's defined in lab/project patid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY interviewyear
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query asstyp Integer Recommended Assessment type 1::20 1=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
Query stage Integer Recommended Study stage
0::5; 51::53; 67; -888; -999
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
Query bsit0 Float Recommended Weeks from Time 0/baseline to assessment pqlqt0
Query pqlq1_u Integer Recommended Question 1. Over the past week, how have things been with your health? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq2_u Integer Recommended Question 2. Over the past week, how have things been with your mood or feelings? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq3_u Integer Recommended Question 3. Over the past week, how have things been with school? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq4_u Integer Recommended Question 4. Over the past week, how have things been with helping out at home? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq5_u Integer Recommended Question 5. Over the past week, how have things been with getting along with friends? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq6_u Integer Recommended Question 6. Over the past week, how have things been with getting along with your family? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq7_u Integer Recommended Question 7. Over the past week, how have things been with play or free time? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq8_u Integer Recommended Question 8. Over the past week, how have things been with getting things done? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq9_u Integer Recommended Question 9. Over the past week, how have things been with your love life? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq10_u Integer Recommended Question 10. Over the past week, how have things been with having enough money? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq11_u Integer Recommended Question 11. Over the past week, how have things been with where you live? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq12_u Integer Recommended Question 12. Over the past week, how have things been with paying attention? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq13_u Integer Recommended Question 13. Over the past week, how have things been with your energy level? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq14_u Integer Recommended Question 14. Over the past week, how have things been with feelings about yourself? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq15_u Integer Recommended Question 15. Over the past week, how have things been Overall, how has your life been? 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq1 Integer Recommended Question 1. Over the past week, how have things been with your health? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ1 is missing then PQLQ1 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq2 Integer Recommended Question 2. Over the past week, how have things been with your mood or feelings? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ2 is missing then PQLQ2 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq3 Integer Recommended Question 3. Over the past week, how have things been with school? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ3 is missing then PQLQ3 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq4 Integer Recommended Question 4. Over the past week, how have things been with helping out at home? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ4 is missing then PQLQ4 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq5 Integer Recommended Question 5. Over the past week, how have things been with getting along with friends? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ5 is missing then PQLQ5 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq6 Integer Recommended Question 6. Over the past week, how have things been with getting along with your family? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ6 is missing then PQLQ6 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq7 Integer Recommended Question 7. Over the past week, how have things been with play or free time? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ7 is missing then PQLQ7 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq8 Integer Recommended Question 8. Over the past week, how have things been with getting things done? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ8 is missing then PQLQ8 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq9 Integer Recommended Question 9. Over the past week, how have things been with your love life? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ9 is missing then PQLQ9 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq10 Integer Recommended Question 10. Over the past week, how have things been with having enough money? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ10 is missing then PQLQ10 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq11 Integer Recommended Question 11. Over the past week, how have things been with where you live? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ11 is missing then PQLQ11 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq12 Integer Recommended Question 12. Over the past week, how have things been with paying attention? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ12 is missing then PQLQ12 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq13 Integer Recommended Question 13. Over the past week, how have things been with your energy level? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ13 is missing then PQLQ13 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq14 Integer Recommended Question 14. Over the past week, how have things been with feelings about yourself? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ14 is missing then PQLQ14 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlq15 Integer Recommended Question 15. Over the past week, how have things been Overall, how has your life been? (Imputed Version). Imputation Rule: if less than 4 of PQLQ1_U through PQLQ15_U are missing and PQLQ15 is missing then PQLQ15 = integer(median of non-missing PQLQ1_U through PQLQ15_U) 1::5 1 = Very Poor; 2 = Poor; 3 = Fair; 4 = Good; 5 = Very Good
Query pqlqtot Integer Recommended PQLQ Total Score using imputed values 15::75 Items included in score: PQLQ1 through PQLQ15
Query gf1 Integer Recommended I feel tired 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query gf2 Integer Recommended I feel physically weak (not strong) 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query gf3 Integer Recommended I feel too tired to do things that I like to do 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query gf4 Integer Recommended I feel too tired to spend time with my friends 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query gf5 Integer Recommended I have trouble finishing things 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query gf6 Integer Recommended I have trouble starting things 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query srf_1 Integer Recommended I sleep a lot 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete srf1
Query srf_2 Integer Recommended It is hard for me to sleep through the night 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete srf2
Query srf_3 Integer Recommended I feel tired when I wake up in the morning 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete srf3
Query srf_4 Integer Recommended I rest a lot 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete srf4
Query srf_5 Integer Recommended I take a lot of naps 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete srf5
Query srf_6 Integer Recommended I spend a lot of time in bed 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete srf6
Query cf1 Integer Recommended It is hard for me to keep my attention on things 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query cf2 Integer Recommended It is hard for me to remember what people tell me 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query cf3 Integer Recommended It is hard for me to remember what I just heard 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query cf4 Integer Recommended It is hard for me to think quickly 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query cf5 Integer Recommended I have trouble remembering what I was just thinking 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query cf6 Integer Recommended I have trouble remembering more than one thing at a time 0::4;-9 0 = never; 1 = almost never; 2 = sometimes; 3 = often; 4 = almost always; -9 = incomplete
Query gftot Integer Recommended general fatigue (problems with) total 0::24;-9 -9 = incomplete
Query srftot Integer Recommended sleep/rest fatigue (problems with) 0::24;-9 -9 = incomplete
Query cftot Integer Recommended cognitive fatigue (problems with) 0::24;-9 -9 = incomplete
Query pedsqltot Integer Recommended pedsql total 0::72;-9 -9 = incomplete
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

Additional Information
Training Privacy Policy Disclaimer Contact Us
External Resources
Accessibility FOIA OIG HHS Vulnerability Disclosure
NIH Logo HHS Logo USA Gov Logo
4d04865a98436a58f1a2a6c5d744acef99e2441f