|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
ffi01 |
Integer |
|
Recommended |
Discuss the philosophy of the program |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi02 |
Integer |
|
Recommended |
Ask what you want for your family |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi03 |
Integer |
|
Recommended |
Ask what you need for your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi04 |
Integer |
|
Recommended |
Talk to you about the health of your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi05 |
Integer |
|
Recommended |
Talk to you about the developmental growth of your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi06 |
Integer |
|
Recommended |
Explain why tests are being used |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi07 |
Integer |
|
Recommended |
Want you to be there while your child is being tested |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi08 |
Integer |
|
Recommended |
Explain the results of tests |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi09 |
Integer |
|
Recommended |
Help to prepare you for the future of your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi10 |
Integer |
|
Recommended |
Show you how to help your child develop |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi11 |
Integer |
|
Recommended |
Show you how to play with your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi12 |
Integer |
|
Recommended |
Provide you with toys for your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi13 |
Integer |
|
Recommended |
Give you a plan to carry out during the month |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi14 |
Integer |
|
Recommended |
Provide books and pamphlets for you to use |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi15 |
Integer |
|
Recommended |
Show interest in hearing about your family |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi16 |
Integer |
|
Recommended |
Help you to be an informed advocate for your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi17 |
Integer |
|
Recommended |
Want you to choose what you do in the program |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi18 |
Integer |
|
Recommended |
Help you prepare for the next educational setting |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi19 |
Integer |
|
Recommended |
Ask how you are coping with your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi20 |
Integer |
|
Recommended |
Provide opportunities to share your feelings with the program staff |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi21 |
Integer |
|
Recommended |
Provide opportunities to share your feelings with other parents |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi22 |
Integer |
|
Recommended |
Assist you in getting help from friends and neighbors |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi23 |
Integer |
|
Recommended |
Provide family counseling |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi24 |
Integer |
|
Recommended |
Provide information on stress management strategies |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi25 |
Integer |
|
Recommended |
Help you to take time for yourself |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi26 |
Integer |
|
Recommended |
Assist you in getting your spouse or other relatives to help you with your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi27 |
Integer |
|
Recommended |
Help you get medical care for your child |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi28 |
Integer |
|
Recommended |
Make referrals to professionals such as social workers or family counselors |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi29 |
Integer |
|
Recommended |
Make referrals to other Early Intervention Programs |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi30 |
Integer |
|
Recommended |
Provide opportunities for you to participate in parent groups |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi31 |
Integer |
|
Recommended |
Help you fill out forms |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi32 |
Integer |
|
Recommended |
Help you obtain services for your child from other agencies |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi33 |
Integer |
|
Recommended |
Help you obtain funding that you are qualified to receive |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi34 |
Integer |
|
Recommended |
Help you find transportation for services or meetings if needed |
1::6; -9
|
1 = Never; 3 = Sometimes; 4 = Sometimes; 6 = Always; -9 = Missing value
|
|
Query
|
ffi35 |
Integer |
|
Recommended |
Encourage you to be the major decision maker about the care and education of your child |
|
-9 = Missing value
|
|
Query
|
ffi36 |
Integer |
|
Recommended |
Help you to find babysitting or childcare |
|
-9 = Missing value
|
|
Query
|
ffi37 |
Integer |
|
Recommended |
Help you with personal problems |
|
-9 = Missing value
|
|
Query
|
ffi38 |
Integer |
|
Recommended |
Help you learn how to deal with the system |
|
-9 = Missing value
|
|
Query
|
ffi39 |
Integer |
|
Recommended |
Assess how you play or interact with your child |
|
-9 = Missing value
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
FFINotes |