|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
Addate |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
ADagemos |
Query
|
interview_chrono_age |
Integer |
|
Recommended |
Interview Chronological Age |
0 :: 1200
|
|
|
Query
|
interview_adj_age |
Integer |
|
Recommended |
Interview Adjusted Age |
0 :: 1200
|
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
SEX, gender |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
Query
|
respondent |
String |
20
|
Recommended |
Respondent |
|
|
|
Query
|
hol101 |
String |
20
|
Recommended |
1. (child) demands that others do things for him/her more |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol102 |
String |
20
|
Recommended |
2. (child) understands the idea of time. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol103 |
String |
20
|
Recommended |
3. I have had to give up education (or a job) because of |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol104 |
String |
20
|
Recommended |
4. Members of the family share in the care of (child). |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol105 |
String |
20
|
Recommended |
5. Even if people don't look at (child), I am always wond |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol106 |
String |
20
|
Recommended |
6. (child) does not have problems with seeing or hearing |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol107 |
String |
20
|
Recommended |
7. I take on responsibility for (child) because I know h |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol108 |
String |
20
|
Recommended |
8. (child) has some unusual habits which draw attention. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol109 |
String |
20
|
Recommended |
9. A physician sees (child) at least once a month. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol110 |
String |
20
|
Recommended |
10. The special opportunities needed by (child) are avai |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol111 |
String |
20
|
Recommended |
11. I watch (child) to make sure he/she does not do physi |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol112 |
String |
20
|
Recommended |
12. (child) would be in no danger if he/she could get out |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol113 |
String |
20
|
Recommended |
13. I feel that our family situation will get better. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol114 |
String |
20
|
Recommended |
14. Medicine does not have to be given to (child) . |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol115 |
String |
20
|
Recommended |
15. (child) doesn't communicate with others of his/her a |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol116 |
String |
20
|
Recommended |
16. Other members of the family have to do without things |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol117 |
String |
20
|
Recommended |
17. (child)'s problems or illness do not stand in the way |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol118 |
String |
20
|
Recommended |
18. When others are around (child) I cannot relax; I am a |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol119 |
String |
20
|
Recommended |
19. Professionals (nurses, etc.) in an institution would |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol120 |
String |
20
|
Recommended |
20. I worry about what will happen to (child) when I can |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol121 |
String |
20
|
Recommended |
21. I would rather be caring for (child) than doing some |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol122 |
String |
20
|
Recommended |
22. I have given up things I have really wanted to do in |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol123 |
String |
20
|
Recommended |
23. (child) is able to fit into the family social group. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol124 |
String |
20
|
Recommended |
24. Some members of my family don't like the way I do thi |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol125 |
String |
20
|
Recommended |
25. It appears to me that it doesn't make any difference |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol126 |
String |
20
|
Recommended |
26. (child) knows the difference between strangers and fr |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol127 |
String |
20
|
Recommended |
27. I am afraid that other members of the family will be |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol128 |
String |
20
|
Recommended |
28. I avoid (child) taking out in public. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol129 |
String |
20
|
Recommended |
29. People simply don't understand what it is like to liv |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol130 |
String |
20
|
Recommended |
30. (child) can feed himself/herself. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol131 |
String |
20
|
Recommended |
31. There have been no emotional problems for anyone in o |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol132 |
String |
20
|
Recommended |
32. Our relatives have been helpful. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol133 |
String |
20
|
Recommended |
33. It is easier for me to do something for (child) than |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol134 |
String |
20
|
Recommended |
34. (child) is easy to manage. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol135 |
String |
20
|
Recommended |
35. I feel that I must protect (child) from the remarks o |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol136 |
String |
20
|
Recommended |
36. I have difficulty in leaving the house because of (ch |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol137 |
String |
20
|
Recommended |
37. The community is used to people like (child). |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol138 |
String |
20
|
Recommended |
38. Some friends are helpful when it comes to (child). |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol139 |
String |
20
|
Recommended |
39. The family does as many things together now as we eve |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol140 |
String |
20
|
Recommended |
40. (child) knows his/her address. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol141 |
String |
20
|
Recommended |
41. (child) is aware of who he/she is (for example, male, |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol142 |
String |
20
|
Recommended |
42. My spouse's poor understanding of (child)'s difficult |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol143 |
String |
20
|
Recommended |
43. I feel embarrassed because of (child) . |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol144 |
String |
20
|
Recommended |
44. Having to care for has enriched our family life. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol145 |
String |
20
|
Recommended |
45. It makes me feel good to know I can take care of (chi |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol146 |
String |
20
|
Recommended |
46. (child) does not interfere with our family's enjoyme |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol147 |
String |
20
|
Recommended |
47. I do not have enough time to give the other members o |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol148 |
String |
20
|
Recommended |
48. There are places where we can enjoy ourselves as a fa |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol149 |
String |
20
|
Recommended |
49. It is not hard to think of enough things to keep (ch |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol150 |
String |
20
|
Recommended |
50. (child) is over-protected. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol151 |
String |
20
|
Recommended |
51. Some of our family do not bring friends into the home |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol152 |
String |
20
|
Recommended |
52. I participate in an organization for families who sha |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol153 |
String |
20
|
Recommended |
53. If I were healthier it would be easier to care for (c |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol154 |
String |
20
|
Recommended |
54. People in public places indicate they don't want (chi |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol155 |
String |
20
|
Recommended |
55. (child) can get around the neighborhood quite nicely |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol156 |
String |
20
|
Recommended |
56. I have enough time to myself. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol157 |
String |
20
|
Recommended |
57. I have too much responsibility. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol158 |
String |
20
|
Recommended |
58. I am afraid that as (child) gets older it will be ha |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol159 |
String |
20
|
Recommended |
59. It is easy to keep (child) entertained. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol160 |
String |
20
|
Recommended |
60. (child) wants to do things for himself/herself. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol161 |
String |
20
|
Recommended |
61. I feel sad when I think of (child). |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol162 |
String |
20
|
Recommended |
62. The demands to care for (child) limit my growth and d |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol163 |
String |
20
|
Recommended |
63. I have become more understanding in my relationships |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol164 |
String |
20
|
Recommended |
64. Our family should do more together. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol165 |
String |
20
|
Recommended |
65. Caring for (child) puts a strain on me. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol166 |
String |
20
|
Recommended |
66. Members of our family get to do the same kinds of thi |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol167 |
String |
20
|
Recommended |
67. (child) embarrasses others in our family. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol168 |
String |
20
|
Recommended |
68. The demands (child) makes drives me out of my mind. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol169 |
String |
20
|
Recommended |
69. My family understands the problems I have. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol170 |
String |
20
|
Recommended |
70. I often have the desire to protect (child). |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol171 |
String |
20
|
Recommended |
71. (child)'s care falls on me. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol172 |
String |
20
|
Recommended |
72. No one can understand what I go through. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol173 |
String |
20
|
Recommended |
73. All members of the family are involved in household c |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol174 |
String |
20
|
Recommended |
74. (child) is irritable. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol175 |
String |
20
|
Recommended |
75. We have lost friends because of (child). |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol176 |
String |
20
|
Recommended |
76. I am worried much of the time. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol177 |
String |
20
|
Recommended |
77. (child) 's needs come first. |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|
Query
|
hol178 |
String |
20
|
Recommended |
78. My spouse has a great deal of insight into (child)'s |
Strong agreement;Partial agreement;Partial disagreement;Strong disagreement;missing
|
|
|