|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
respondent |
String |
20
|
Required |
Respondent |
|
|
p7902completedform, rel_child |
Query
|
respondent_other |
String |
50
|
Recommended |
FIGS Y1: Respondent other than mother or father |
|
|
|
Query
|
respondent_other_specify |
String |
50
|
Recommended |
Respondent: Other (specify) |
|
|
p7902completedformother |
Query
|
srsprs_q1 |
Integer |
|
Required |
1. Seems much more fidgety in social situations than when alone |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
fidgety_soc_situation, seemsmuchmorefidgety |
Query
|
srsprs_q2 |
Integer |
|
Required |
2. Expressions on his or her face don't match what he or she is saying |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
expression_match_say, expressionsfacematch |
Query
|
srsprs_q3 |
Integer |
|
Required |
3. Seems self-confident when interacting with others |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
seemselfconfident, self_confident_interact |
Query
|
srsprs_q4 |
Integer |
|
Required |
4. When under stress, he or she shows rigid or inflexible patterns of behavior that seem odd. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
stress_rigid_pattern, understresschild, understressodd |
Query
|
srsprs_q5 |
Integer |
|
Required |
5. Doesn't recognize when others are trying to take advantage of him or her |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
otherstryingtakeadvantage, taken_advantage |
Query
|
srsprs_q6 |
Integer |
|
Required |
6. Would rather be alone than with others |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
bealone, wouldratheralone |
Query
|
srsprs_q7 |
Integer |
|
Required |
7. Is aware of what others are thinking or feeling |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
aware_think_feel, awarewhatothers |
Query
|
srsprs_q8 |
Integer |
|
Required |
8. Behaves in ways that seem strange or bizarre |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
seemstrange, strange |
Query
|
srsprs_q9 |
Integer |
|
Required |
9. Clings to adults, seems too dependent on them |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
clingsadults, dependent_child |
Query
|
srsprs_q10 |
Integer |
|
Required |
10. Takes things too literally and doesn't get the real meaning of a conversation |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
misuderstand_convo, takesthingstooliterally, unablepickuponconversations |
Query
|
srsprs_q11 |
Integer |
|
Required |
11. Has good self-confidence |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
goodselfconfidence, selfconf |
Query
|
srsprs_q12 |
Integer |
|
Required |
12. Is able to communicate his or her feelings to others |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
abletocommunicate, communicate_feeling, isabletocommunicate |
Query
|
srsprs_q13 |
Integer |
|
Required |
13. is awkward in turn-taking interactions with peers (e.g., doesn't seem to understand the give-and-take of conversations) |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
awkwardturntakinginteractions, sloworawkward, take_turn_awkward |
Query
|
srsprs_q14 |
Integer |
|
Required |
14. Is not well coordinated |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
coord_trouble, notwellcoordinated, wellcoordinated |
Query
|
srsprs_q15 |
Integer |
|
Required |
15. is able to understand the meaning of other people's tone of voice and facial expressions |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
respond_tone_expression, understandthemeaning |
Query
|
srsprs_q16 |
Integer |
|
Required |
16. Avoids eye contact or has unusual eye contact |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
avoideyecontact, eye_contact |
Query
|
srsprs_q17 |
Integer |
|
Required |
17. Recognizes when something is unfair |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
recognizesunfair, unfair |
Query
|
srsprs_q18 |
Integer |
|
Recommended |
18. Has difficulty making friends, even when trying his or her best |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true; 999=NA/NK/missing
|
difficultymakingfriends, fail_interact_othrs, playgroundyoungchildren |
Query
|
srsprs_q19 |
Integer |
|
Required |
19 Gets frustrated trying to get ideas across in conversations |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
frustrate_idea_across, frustratedtogetideas |
Query
|
srsprs_q20 |
Integer |
|
Required |
20. Shows unusual sensory interests (e.g., mouthing or spinning objects) or strange ways of playing with toys |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
strange_play_toys, strangewayplaying, unusualsensoryinterests |
Query
|
srsprs_q21 |
Integer |
|
Required |
21. Is able to imitate others' actions |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
abletoimitateothers, imitate_othrs |
Query
|
srsprs_q22 |
Integer |
|
Required |
22. Plays appropriately with children his or her age |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
play_approp, playappropriately |
Query
|
srsprs_q23 |
Integer |
|
Required |
23 Does not join group activities unless told to do so |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
join_group_act, notjoingroupactivities |
Query
|
srsprs_q24 |
Integer |
|
Required |
24. Has more difficulty than other children with changes is his or her routine. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
diff_change_route, moredifficultythanotherchildre |
Query
|
srsprs_q25 |
Integer |
|
Recommended |
25. Doesnt seem to mind being out of step with or "not on the came wavelenght" as others. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true; 999=NA/NK/missing
|
doesnotseemtomind, mind_not_wavelngth |
Query
|
srsprs_q26 |
Integer |
|
Required |
26. Offers comfort to other when they are sad. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
comfort_sad, offerscomforttoothers |
Query
|
srsprs_q27 |
Integer |
|
Required |
27. Avoids starting social interactions with peers or adults. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
avoid_social_adult, socialinteractionswithpeers |
Query
|
srsprs_q28 |
Integer |
|
Recommended |
28. Thinks or talk about the same thing over and over. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true; 999=NA/NK/missing
|
talksaboutsamething, think_same_thing |
Query
|
srsprs_q29 |
Integer |
|
Required |
29. Is regarded by the other children as odd or weird. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
isregardedbyotherchildrenodd, regard_odd |
Query
|
srsprs_q30 |
Integer |
|
Required |
30. Becomes upset in a situation with lots of things going on. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
upset_lot_going_on, upsetinsituation |
Query
|
srsprs_q31 |
Integer |
|
Recommended |
31. Can't get his or her mind off something once he or she starts thinking about it. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true; 999=NA/NK/missing
|
cantgethismindoff, mind_off_something |
Query
|
srsprs_q32 |
Integer |
|
Required |
32. Has good personal hygeiene. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
change_diaper_wet, changedwhendiaperwet, goodpersonalhygiene |
Query
|
srsprs_q33 |
Integer |
|
Required |
33. Is socially awkward, even when he or she is trying to be polite |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
issociallyawkward, social_awkward_polite |
Query
|
srsprs_q34 |
Integer |
|
Required |
34. Avoids people who want to be emotionally close to him or her |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
avoid_ppl_emotion, p7902srspreschoolavoidspeople |
Query
|
srsprs_q35 |
Integer |
|
Recommended |
35. Has trouble keeping up with the flow of a normal conversation |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true; 999=NA/NK/missing
|
trouble_flow_conversation, troublekeepingupwithflow, troublekeepingwithflow |
Query
|
srsprs_q36 |
Integer |
|
Required |
36. Has difficulty relating to adults |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
diff_relate_adult, difficultyrelatingadults |
Query
|
srsprs_q37 |
Integer |
|
Required |
37. Has difficulty relating to peers |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
diff_relate_peer, p7902srspreschooldifficultyrel |
Query
|
srsprs_q38 |
Integer |
|
Required |
38. Responds appropriately to mood changes in others (e.g., when a friend's or playmate's mood changes from happy to sad) |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
respond_mood_change, respondstomoodchangesothers |
Query
|
srsprs_q39 |
Integer |
|
Required |
39. Has an unusually narrow range of interests |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
narrow_range_interest, restrictedrangeofinterests, unusuallynarrowinterests |
Query
|
srsprs_q40 |
Integer |
|
Required |
40. Is imaginative, good at pretending {without losing touch with reality) |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
goodatpretending, imagin_lose_reality |
Query
|
srsprs_q41 |
Integer |
|
Required |
41. Wanders aimlessly from one activity to another. |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
wander_act, wandersaimlessly |
Query
|
srsprs_q42 |
Integer |
|
Required |
42. Seems overly sensitive to sounds, textures, or smells |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
seemsoverlysensitivetosounds, sense_sound_texture |
Query
|
srsprs_q43 |
Integer |
|
Required |
43. Separates easily from caregivers |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
separate_caregiver, separateseasilyfromcaregivers |
Query
|
srsprs_q44 |
Integer |
|
Required |
44. Doesn't understand how events relate to one another (cause and effect) the way other children his or her age do |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
doesnotunderstandeventsrelated, understand_event_relate |
Query
|
srsprs_q45 |
Integer |
|
Required |
45. Focuses his or her attention to where others are looking or listening |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
focus_attn_othr, focusesattentiontoothers |
Query
|
srsprs_q46 |
Integer |
|
Required |
46. Has overly serious facial expressions |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
serious_face_expression, seriousfacialexpressions |
Query
|
srsprs_q47 |
Integer |
|
Required |
47. Is too silly or laughs inappropriately |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
laugh_inappropriate, sillylaughsinappropriately |
Query
|
srsprs_q48 |
Integer |
|
Required |
48. Has a sense of humor, understands jokes |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
hassenseofhumor, sense_humor |
Query
|
srsprs_q49 |
Integer |
|
Required |
49. Does extremely well at a few tasks, but does not do as well at most other tasks |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
extremelywellfewtasks, tasks_not_well |
Query
|
srsprs_q50 |
Integer |
|
Required |
50. Has repetitive, odd behaviors such as hand flapping or rocking |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
odd_behaviors, repetitiveoddbehaviors |
Query
|
srsprs_q51 |
Integer |
|
Required |
51. Has difficulty answering questions directly and ends up talking around the subject |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
difficultyansweringquestions, respondscleardirectquestions, talk_around_subject |
Query
|
srsprs_q52 |
Integer |
|
Required |
52. Knows when he or she is talking too loud or making too much noise |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
knowstalkingtooloud, talk_loud |
Query
|
srsprs_q53 |
Integer |
|
Required |
53. Talks to people with an unusual tone of voice (e.g., talks like a robot or like he or she is giving a lecture) |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
talk_unusual_voice, talksunusualtone |
Query
|
srsprs_q54 |
Integer |
|
Required |
54. Seems to react to people as if they are objects |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
react_ppl_object, reactpeopleasobjects |
Query
|
srsprs_q55 |
Integer |
|
Required |
55. Knows when he or she is too close to someone or is invading someone's space |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
know_invade_space, knowswhentooclosetosomeone |
Query
|
srsprs_q56 |
Integer |
|
Required |
56. Walks in between two people who are talking |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
walk_between_ppl_talk, walksbetweentwopeoplewhentalki |
Query
|
srsprs_q57 |
Integer |
|
Recommended |
57. Gets teased a lot |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true; 999=NA/NK/missing
|
getsteasedlot, otherchildrendonotliketoplay, othr_dont_play |
Query
|
srsprs_q58 |
Integer |
|
Required |
58. Concentrates too much on parts of things rather than seeing the whole picture. For example, if asked to describe what happened in a story, he or she may talk only about the kind of clothes the characters were wearing |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
concentrate_part, concentratestoomuchonparts, concentratestoomuchonpartsofth |
Query
|
srsprs_q59 |
Integer |
|
Required |
59. Is overly suspicious |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
overlysuspicious, suspicious |
Query
|
srsprs_q60 |
Integer |
|
Required |
60. Is emotionally distant, doesn't show his or her feelings |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
emotion_distant, emotionallydistant |
Query
|
srsprs_q61 |
Integer |
|
Recommended |
61. Is inflexible, has a hard time changing his or her mind |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true; 999=NA/NK/missing
|
hashardtimechanging, inflexible_mind |
Query
|
srsprs_q62 |
Integer |
|
Required |
62. Gives unusual or illogical reasons for doing things |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
givesunusualillogicalreasons, illogical_reason |
Query
|
srsprs_q63 |
Integer |
|
Required |
63. Touches others in an unusual way (e.g., he or she may touch someone just to make contact and then walk away without saying anything) |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
touch_unusual_way, touchesothersunusualway |
Query
|
srsprs_q64 |
Integer |
|
Required |
64. Is too tense in social settings |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
tense_social_set, tootensesocial |
Query
|
srsprs_q65 |
Integer |
|
Required |
65. Stares or gazes off into space |
|
1 = Not true; 2 = Sometimes true; 3 = Often true; 4 = Almost always true
|
stares, staresgazesintospace |
Query
|
aware_raw_score |
Integer |
|
Recommended |
Raw Score: Social Awareness |
0 :: 24
|
|
p7902srspreschoolrawsa |
Query
|
cog_raw_score |
Integer |
|
Recommended |
Raw Score: Social Cognition |
0 :: 36
|
|
p7902srspreschoolrawscog |
Query
|
comm_raw_score |
Integer |
|
Recommended |
Raw Score: Social Communitcation |
0 :: 66
|
|
p7902srspreschoolrawscomm |
Query
|
motiv_raw_score |
Integer |
|
Recommended |
Raw Score: Social Motivation |
0 :: 33
|
|
p7902srspreschoolrawsmot |
Query
|
manner_raw_score |
Integer |
|
Recommended |
Raw Score: Autistic Mannerisms |
0 :: 36
|
|
p7902srspreschoolrawrb |
Query
|
total_raw_score |
Integer |
|
Required |
Total raw score |
0 :: 195; 999
|
999=NA/NK/missing
|
p7902srspreschooltotalrawscore |
Query
|
srsprs_invalid |
String |
50
|
Recommended |
Is form invalid (more than 6 responses missing)? |
|
|
|
Query
|
srsprs_missing_responses |
Integer |
|
Recommended |
Number of missing responses |
|
|
|
Query
|
phenotype |
String |
200
|
Required |
Phenotype/diagnosis for the subject |
|
|
|
Query
|
aware_t_score |
Integer |
|
Recommended |
T Score: Social Awareness |
|
|
p7902srspreschooltscoresa |
Query
|
cog_t_score |
Integer |
|
Recommended |
T Score: Social Cognition |
|
|
p7902srspreschooltscorescog |
Query
|
comm_t_score |
Integer |
|
Recommended |
T Score: Social Communitcation |
|
|
p7902srspreschooltscorescomm |
Query
|
motiv_t_score |
Integer |
|
Recommended |
T Score: Social Motivation |
|
|
p7902srspreschooltscoresmot |
Query
|
manner_t_score |
Integer |
|
Recommended |
T Score: Autistic Mannerisms |
|
|
p7902srspreschooltscorerb |
Query
|
total_t_score |
Integer |
|
Recommended |
Total T Score |
|
|
p7902srspreschooltscoretotal |