|
subjectkey |
GUID |
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Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
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Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
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gender |
Query
|
eisi_cogn_aeps |
Integer |
|
Recommended |
Child Development - Cognition - AEPS score |
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Query
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eisi_cogn_ss |
Integer |
|
Recommended |
Child Development - Cognition - Specialized services are needed |
0; 1
|
0 = No; 1 = Yes
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Query
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eisi_phys_aeps_fine |
Integer |
|
Recommended |
Child Development - Physical Development - Fine AEPS score |
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Query
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eisi_phys_aeps_gross |
Integer |
|
Recommended |
Child Development - Physical Development - Gross AEPS score |
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Query
|
eisi_phys_ss |
Integer |
|
Recommended |
Child Development - Physical Development - Specialized services are needed |
0; 1
|
0 = No; 1 = Yes
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Query
|
eisi_comm_aeps |
Integer |
|
Recommended |
Child Development - Communication - AEPS score |
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Query
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eisi_comm_ss |
Integer |
|
Recommended |
Child Development - Communication - Specialized services are needed |
0; 1
|
0 = No; 1 = Yes
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Query
|
eisi_social_aeps |
Integer |
|
Recommended |
Child Development - Social - AEPS score |
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Query
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eisi_social_ss |
Integer |
|
Recommended |
Child Development - Social - Specialized services are needed |
0; 1
|
0 = No; 1 = Yes
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Query
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eisi_adapt_aeps |
Integer |
|
Recommended |
Child Development - Adaptive - AEPS score |
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Query
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eisi_adapt_ss |
Integer |
|
Recommended |
Child Development - Adaptive - Specialized services are needed |
0; 1
|
0 = No; 1 = Yes
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Query
|
eisi01 |
Integer |
|
Recommended |
1. How well do you understand your child's development? |
1; 2; 3; 4; 5; 6; 7
|
1 = We are just beginning to understand our child's development; 2 = Between 1 and 3; 3 = We have a basic understanding of our child's development, but still have a lot to learn; 4 = Between 3 and 5; 5 = We have a pretty good understanding of our child's development; 6 = Between 5 and 7; 7 = We understand our child's development very well
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Query
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eisi01_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi02 |
Integer |
|
Recommended |
2. How much do you know about your child's special needs? |
1; 2; 3; 4; 5; 6; 7
|
1 = Right now we do not know very much; 2 = Between 1 and 3; 3 = We have learned some things, but still have a lot of unanswered questions; 4 = Between 3 and 5; 5 = We know a lot, but still need or want to know more; 6 = Between 5 and 7; 7 = We are confident that we know most of what we need to know right now
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Query
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eisi02_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi03 |
Integer |
|
Recommended |
3. Do you know what is available for your child and family? |
1; 2; 3; 4; 5; 6; 7
|
1 = We are just beginning to learn about the programs and service that are available; 2 = Between 1 and 3; 3 = We know abuot some programs and services, but still have a lot to learn; 4 = Between 3 and 5; 5 = We think we are aware of most available programs and services; 6 = Between 5 and 7; 7 = We are very aware of the programs and services that are available
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Query
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eisi03_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi04 |
Integer |
|
Recommended |
4. How comfortable are you participating in these meetings? |
1; 2; 3; 4; 5; 6; 7
|
1 = Right now we are very uncomfortable participating in meetings; 2 = Between 1 and 3; 3 = We are not very comfortable participating in meetings, but we do it anyway; 4 = Between 3 and 5; 5 = We are pretty comfortable participating in meetings; 6 = Between 5 and 7; 7 = We are very comfortable participating in meetings.
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Query
|
eisi04_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi05 |
Integer |
|
Recommended |
5. How well do you feel you can share your child's needs with professionals? |
1; 2; 3; 4; 5; 6; 7
|
1 = We need to feel a lot more comfortable before sharing our child's needs, including asking questions or asking them for help; 2 = Between 1 and 3; 3 = We are beginning to feel more comfortable sharing our child's needs and requesting help from professionals; 4 = Between 3 and 5; 5 = We can usually share our child's needs and ask our providers for help to meet his or her needs; 6 = Between 5 and 7; 7 = We feel very comfortable sharing our child's needs and requesting help from professionals
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Query
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eisi05_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
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Query
|
eisi06 |
Integer |
|
Recommended |
6. How well do you know your rights and what to do if you are not satisfied? |
1; 2; 3; 4; 5; 6; 7
|
1 = We are not sure about our rights or what to do if we are not satisfied; 2 = Between 1 and 3; 3 = We understand our basic rights but are not sure about all of our options if we are not satisfied; 4 = Between 3 and 5; 5 = We think we know most of our rights and what to do if we are not satisfied; 6 = Between 5 and 7; 7 = We are very aware of our rights and know exactly what to do if we are not satisfied
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Query
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eisi06_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi07 |
Integer |
|
Recommended |
7. How would you describe your ability to help your child develop and learn |
1; 2; 3; 4; 5; 6; 7
|
1 = We need to know a lot more about how to help our child develop and learn; 2 = Between 1 and 3; 3 = We know the basics ofhelping our child develop and learn, but still have many questions; 4 = Between 3 and 5; 5 = We feel pretty sure that we know how to help our child develop and learn; 6 = Between 5 and 7; 7 = We are very sure that we know how to help our child develop and learn
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Query
|
eisi07_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
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Query
|
eisi08 |
Integer |
|
Recommended |
8. How would you describe your ability to help your child learn to behave the way you would like? |
1; 2; 3; 4; 5; 6; 7
|
1 = We need to know a lot more about how to help our child behave like we want; 2 = Between 1 and 3; 3 = We know the basics of helping our child behave, but still have many questions; 4 = Between 3 and 5; 5 = We feel pretty sure that we know how to help our child behave; 6 = Between 5 and 7; 7 = We are very sure that we know how to help our child behave
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Query
|
eisi08_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
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Query
|
eisi09 |
Integer |
|
Recommended |
9. Does your family have someone you trust to listen and talk with you? |
1; 2; 3; 4; 5; 6; 7
|
1 = Right now, we don't have anyone we can talk with about the things that are happening in our lives; 2 = Between 1 and 3; 3 = We can probably find at least one person we could talk with, but are not very satisfied with the situation; 4 = Between 3 and 5; 5 = We usually have other people that we can talk with about thigns; 6 = Between 5 and 7; 7 = There are definitely people in our lives we can talk with whenever we need to
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Query
|
eisi09_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi10 |
Integer |
|
Recommended |
10. Do you know how to get help if you need or want it? |
1; 2; 3; 4; 5; 6; 7
|
1 = We usually handle things by ourselves, but would like to know more about other resources; 2 = Between 1 and 3; 3 = We know about some community resources we could use, but wouldn't mind more information; 4 = Between 3 and 5; 5 = We usually have resources we can use when we need to; 6 = Between 5 and 7; 7 = We have access to a variety of friends and community resources, and use them whenever we need to
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Query
|
eisi10_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi11 |
Integer |
|
Recommended |
11. How much is your famiyl able to do the things you enjoy? |
1; 2; 3; 4; 5; 6; 7
|
1 = Right now it is really difficult to do any of the things we enjoy; 2 = Between 1 and 3; 3 = We are able to participate in some of the things we enjoy, but not nearly as much as we would like; 4 = Between 3 and 5; 5 = We are able to participate in many of the activities we enjoy; 6 = Between 5 and 7; 7 = We are able to participate in almost all of the activities we enjoy
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Query
|
eisi11_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi12 |
Integer |
|
Recommended |
12. Do you have the medical care you want for your child right now? |
1; 2; 3; 4; 5; 6; 7
|
1 = We do not have the medical care we want for our child; 2 = Between 1 and 3; 3 = We have some medical care, but still have a long way to go before it is what we want; 4 = Between 3 and 5; 5 = We have good medical care for our child; 6 = Between 5 and 7; 7 = We have excellent medical care for our child
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|
Query
|
eisi12_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi13 |
Integer |
|
Recommended |
13. How safe do you feel your home is for your child? |
1; 2; 3; 4; 5; 6; 7
|
1 = We are just beginning to learn about things like lead paint, safely storing dangerous items, car seats, smoke detectors and safe sleeping that will make our home safe; 2 = Between 1 and 3; 3 = We are making changes in our home to make it safer, but still need information and assistance; 4 = Between 3 and 5; 5 = We fell our home is safe, but we are not sure if we have done all of the things we could do; 6 = Between 5 and 7; 7 = We feel we have done everything to make our home a very safe place for our child
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Query
|
eisi13_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi14 |
Integer |
|
Recommended |
14. How well do you feel your provide your child with nutritious meals? |
1; 2; 3; 4; 5; 6; 7
|
1 = We're not sure that our child is receiving the healthy, nutritious meals he or she needs; 2 = Between 1 and 3; 3 = We are learning more about healthy and nutritious foods, but still need information; 4 = Between 3 and 5; 5 = We are pretty sure we are providing our child with nutritious meals to keep him/her healthy. 6 = Between 5 and 7; 7 = We feel very comfortable that we know what to feed our child, and that his meals are very nutritious
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Query
|
eisi14_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi15 |
Integer |
|
Recommended |
15. How well do you feel your child is able to independently participate in these daily routines at home? |
1; 2; 3; 4; 5; 6; 7
|
1 = Our child is an infant and is just learning how to do these things OR our child needs total assistance; 2 = Between 1 and 3; 3 = Our child is becoming more nidependent, but due to his or her age or special needs, still needs a lot of help; 4 = Between 3 and 5; 5 = Our child's independece is growing, but he or she still needs some help with things other children the same age are doing; 6 = Between 5 and 7; 7 = Our child is doing all the things a child his or her age should be doing
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Query
|
eisi15_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi16 |
Integer |
|
Recommended |
16. How would you describe the childcare you have for your child right now? |
1; 2; 3; 4; 5; 6; 7
|
1 = We don't have the childcare we want OR because of our child's special needs we have decided not to look for it; 2 = Between 1 and 3; 3 = We have adequate childcare, but still have a way to go before it is what we want; 4 = Between 3 and 5; 5 = We are satisfied with our childcare, but would like to explore other possibilities; 6 = Between 5 and 7; 7 = We ahve excellent childcare for our child
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Query
|
eisi16_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi17 |
Integer |
|
Recommended |
17. How would you describe your child's participation in these activities right now? |
1; 2; 3; 4; 5; 6; 7
|
1 = Right now our child does not participate in activities we want OR because of our child's special needs, we have decided not to look into it; 2 = Between 1 and 3; 3 = Our child participates in some social or community activities, but we have a way to go before it is what we want; 4 = Between 3 and 5; 5 = Our child participates in many social or community activities, but we would like to do more; 6 = Between 5 and 7; 7 = Our child has excellent participation in social or community activities
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Query
|
eisi17_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|
Query
|
eisi18 |
Integer |
|
Recommended |
18. How well is your family able to do these things? |
1; 2; 3; 4; 5; 6; 7
|
1 = We would like to be able to take our child with us when we go out, but right now it is difficult; 2 = Between 1 and 3; 3 = We are able to do some things as a family, but we would like to find ways to make it easier for all of us; 4 = Between 3 and 5; 5 = We are able to do most of the things we would like to do, but occasionally find it difficult to take our child with us; 6 = Between 5 and 7; 7 = We take our child with us wherever we need to go
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Query
|
eisi18_ifsp |
Integer |
|
Recommended |
Something you would like written into your IFSP as an outcome for your family |
0; 1
|
0 = No; 1 = Yes
|
|