|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
GUID |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
cg_interview_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
cg_Months_Difference |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
chi_gen, gender |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
cg_comments_misc |
Query
|
cg_enjoytime |
Integer |
|
Recommended |
My family enjoys spending time together. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q55 |
Query
|
cg_talkopen |
Integer |
|
Recommended |
My family members talk openly with each other. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q56 |
Query
|
cg_solveprob |
Integer |
|
Recommended |
Our family solves problems together. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q57 |
Query
|
cg_support |
Integer |
|
Recommended |
My family members support each other to accomplish goals. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q58 |
Query
|
cg_showlove |
Integer |
|
Recommended |
My family members show that they love and care for each other. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q59 |
Query
|
cg_updown |
Integer |
|
Recommended |
My family is able to handle life’s ups and downs. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q60 |
Query
|
cg_help_indep |
Integer |
|
Recommended |
My family members help the children learn to be independent. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q61 |
Query
|
cg_help_scl |
Integer |
|
Recommended |
My family members help the children with schoolwork and activities. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q62 |
Query
|
cg_getalong |
Integer |
|
Recommended |
My family members teach the children how to get along with others. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q63 |
Query
|
cg_gdchoice |
Integer |
|
Recommended |
Adults in our family teach the children to make good decisions. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q64 |
Query
|
cg_otherppl |
Integer |
|
Recommended |
Adults in my family know other people in the children’s lives (friends, teachers, etc.). Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q65 |
Query
|
cg_indiv_need |
Integer |
|
Recommended |
Adults in my family have time to take care of the individual needs of every child. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q66 |
Query
|
cg_spt_stress |
Integer |
|
Recommended |
My family has the support we need to relieve stress. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q67 |
Query
|
cg_othershelp |
Integer |
|
Recommended |
My family members have friends or others who provide support. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q68 |
Query
|
cg_ownint |
Integer |
|
Recommended |
My family members have some time to pursue our own interests. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q69 |
Query
|
cg_specneeds |
Integer |
|
Recommended |
My family has outside help available to us to take care of special needs of all family members. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q70 |
Query
|
cg_transp |
Integer |
|
Recommended |
My family members have transportation to get to the places they need to be. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q71 |
Query
|
cg_dental |
Integer |
|
Recommended |
My family gets dental care when needed. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q72 |
Query
|
cg_medical |
Integer |
|
Recommended |
My family gets medical care when needed. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q73 |
Query
|
cg_expenses |
Integer |
|
Recommended |
My family has a way to take care of our expenses. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q74 |
Query
|
cg_safe |
Integer |
|
Recommended |
My family feels safe at home, work, school, and in our neighborhood. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q75 |
Query
|
cg_mem_schsup |
Integer |
|
Recommended |
My family member with a disability has support to accomplish goals at school or at workplace. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q76 |
Query
|
cg_mem_homsup |
Integer |
|
Recommended |
My family member with a disability has support to accomplish goals at home. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q77 |
Query
|
cg_mem_frisup |
Integer |
|
Recommended |
My family member with a disability has support to make friends. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q78 |
Query
|
cg_prov_rel |
Integer |
|
Recommended |
My family has good relationships with the service providers who provide services and support to our family member with a disability. Frequency |
1::5
|
1 = Never; 2 = Sometimes; 3 = Generally; 4 = Mostly; 5 = Always
|
q79 |
|
famq08 |
Integer |
|
Recommended |
My family members teach the children how to get along with others. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq09 |
Integer |
|
Recommended |
My family members have some time to pursue our own interests. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq10 |
Integer |
|
Recommended |
Our family solves problems together. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq11 |
Integer |
|
Recommended |
My family members support each other to accomplish goals. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq12 |
Integer |
|
Recommended |
My family members show that they love and care for each other. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq13 |
Integer |
|
Recommended |
My family has outside help available to us to take care of special needs of all family members. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq14 |
Integer |
|
Recommended |
Adults in our family teach the children to make good decisions. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq15 |
Integer |
|
Recommended |
My family gets medical care when needed. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq16 |
Integer |
|
Recommended |
My family has a way to take care of our expenses. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq17 |
Integer |
|
Recommended |
Adults in my family know other people in the children?s lives (friends, teachers, etc.). Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq18 |
Integer |
|
Recommended |
My family is able to handle life?s ups and downs. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq19 |
Integer |
|
Recommended |
Adults in my family have time to take care of the individual needs of every child. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq20 |
Integer |
|
Recommended |
My family gets dental care when needed. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq21 |
Integer |
|
Recommended |
My family feels safe at home, work, school, and in our neighborhood. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq22 |
Integer |
|
Recommended |
My family member with a disability has support to accomplish goals at school or at workplace. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq23 |
Integer |
|
Recommended |
My family member with a disability has support to accomplish goals at home. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq24 |
Integer |
|
Recommended |
My family member with a disability has support to make friends. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq25 |
Integer |
|
Recommended |
My family has good relationships with the service providers who provide services and support to our family member with a disability. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq01 |
Integer |
|
Recommended |
My family enjoys spending time together. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq02 |
Integer |
|
Recommended |
My family members help the children learn to be independent. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq03 |
Integer |
|
Recommended |
My family has the support we need to relieve stress. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq04 |
Integer |
|
Recommended |
My family members have friends or others who provide support. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq05 |
Integer |
|
Recommended |
My family members help the children with schoolwork and activities. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq06 |
Integer |
|
Recommended |
My family members have transportation to get to the places they need to be. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|
|
famq07 |
Integer |
|
Recommended |
My family members talk openly with each other. Satisfaction |
1::5
|
1=Very Dissatisfied; 2= Dissatisfied; 3=Neither; 4=Satisfied; 5=Very Satisfied
|
|