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Warning Notice This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.
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This is a U.S. Government computer system, which may be accessed and used only for authorized Government business by authorized personnel. Unauthorized access or use of this computer system may subject violators to criminal, civil, and/or administrative action. All information on this computer system may be intercepted, recorded, read, copied, and disclosed by and to authorized personnel for official purposes, including criminal investigations. Such information includes sensitive data encrypted to comply with confidentiality and privacy requirements. Access or use of this computer system by any person, whether authorized or unauthorized, constitutes consent to these terms. There is no right of privacy in this system.

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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL

Parent Expectations Form

38 Shared Subjects

N/A
Clinical Assessments
Questionnaire
06/30/2017
paref01
01/25/2024
View Change History
01
Definition
Submission Template
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
Query sixmo_med Integer Recommended How would you rate the quality of care your son or daughter receives? 1::4 1= Poor; 2= Okay; 3= Good; 4= Excellent
Query sixmo_medpcp Integer Recommended Does your son or daughter have a primary care provider? 0;1 0=No;1=Yes
Query sixmo_medtreat Integer Recommended Does that doctor treat children, adults, or both? 1::3 1= children; 2= adults; 3= both
Query sixmo_medadult Integer Recommended Have you talked about switching to an adult doctor? 0;1 0=No;1=Yes
Query sixmo_medother Integer Recommended If you son or daughter does not have a primary care provider, who do you call when he/she needs primary care? 1::6 1= Emergency room; 2= Hospital outpatient department; 3= Specialist; 4= Walk-in clinic; 5= Urgent care; 6= Other
sixmo_medspec String 50 Recommended Please specify type of specialist:
sixmo_medother1 String 50 Recommended Please specify specialist:
sixmo_meddiff2 String 50 Recommended Please explain: ability to access health care
Query sixmo_medresp Integer Recommended How often have your son or daughter's doctors or other health care providers encouraged him or her to take responsibility for his or her own health care needs, such as taking medications, understanding his or her diagnosis, or following medical advice? 1::4 1= 1 Never; 2= 2 Sometimes; 3= 3 Usually; 4= 4 Often
Query sixmo_pexp1 Integer Recommended 1. Get a driver's license? 1::4; -9 1= Definitely won't; 2= Probably won't; 3= Probably will; 4= Definitely will; -9 Already has
Query sixmo_pexp2 Integer Recommended 2. Eventually live away from home on his or her own without supervision? 1::4; -9 1= Definitely won't; 2= Probably won't; 3= Probably will; 4= Definitely will; -9 Already has
Query sixmo_pexp3 Integer Recommended 3. Eventually live away from home on his or her own with supervision 1::4; -9 1= Definitely won't; 2= Probably won't; 3= Probably will; 4= Definitely will; -9 Already has
Query sixmo_pexp4 Integer Recommended 4. Eventually get a paid job? 1::4; -9 1= Definitely won't; 2= Probably won't; 3= Probably will; 4= Definitely will; -9 Already has
Query sixmo_pexp5 Integer Recommended 5. Earn enough to support him or herself without financial help from his or her family or government benefit programs? 1::4; -9 1= Definitely won't; 2= Probably won't; 3= Probably will; 4= Definitely will; -9 Already has
Query sixmo_hsinfo5 Integer Recommended What is the ultimate level of education you expect your son/daughter to complete? 1::5 1= Finish/graduate from high school; 2= Take some classes from a 2-year/community college or technical school; 3= Graduate from a 2-year/community college or technical school; 4= Take some classes from a 4-year college or university; 5= Graduate from a 4-year college or university
Query sixmo_meddiff___1 Integer Recommended As far as your ability to access health care for your son or daughter, do you...Have regular medical/health check appointments scheduled for person 0;1 0=No; 1=Yes
Query sixmo_meddiff___2 Integer Recommended As far as your ability to access health care for your son or daughter, do you...Schedule appointments on an 'as-needed' basis 0;1 0=No; 1=Yes
Query sixmo_meddiff___3 Integer Recommended As far as your ability to access health care for your son or daughter, do you...Experience difficulties due to lack of available local medical resources 0;1 0=No; 1=Yes
Query sixmo_meddiff___4 Integer Recommended As far as your ability to access health care for your son or daughter, do you...Experience difficulties due to other reasons 0;1 0=No; 1=Yes
timepoint_label String 50 Recommended Timepoint/visit label
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

Please email the The NDA Help Desk with any questions.

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