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PQ Demographics

920 Shared Subjects

PQ Demographics
Clinical Assessments
Demographics
05/30/2014
pqdem01
01/12/2022
View Change History
01
Query Element Name Data Type Size Required Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project subjid
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY INTERVIEW_DATE_PQD, fdi_q2
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month. INTERVIEW_AGE_PQD
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported GENDERPQ, fdi_q4, gender
Query relationship Integer Recommended Relationship of respondent to individual
1::94;-999
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker PRELATION
respondent_other_specify String 50 Recommended Respondent: Other (specify) PREL_SP, fdi_q11a
Query ethnicity String 30 Recommended Ethnicity of participant
Hispanic or Latino; Not Hispanic or Latino; Unknown
CHETHN, fdi_q6
Query race String 30 Recommended Race of study subject American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported; Other Non-White; Other CHRACE, fdi_q5
ch_race String 55 Recommended Child's/study subject Race specify CHRACE_OTH, fdi_q5_other
Query sclgender String 15 Recommended respondent's gender M;F M = Male; F = Female PGENDERPQ
Query resp_ethnicity String 30 Recommended Respondent's ethnicity Hispanic or Latino;Not Hispanic or Latino;Unknown or not reported PETHN, fdi_q14
Query resp_race String 150 Recommended Respondent's race American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported PRACE, fdi_q13
race_other String 100 Recommended Race of Respondent Specify PRACE_OTH, fdi_q13_other
Query resp_education Integer Recommended Respondent's education 1::9 1 = Less than 8th grade; 2 = 9th-11th grade; 3 = High school or GED; 4 = Trade or vocational; 5 = Associate's degree or 2 years; 6 = Courses towards college; 7 = Bachelor's degree; 8 = Master's degree; 9 = Professional degree (MD, PhD, JD) PED, fdi_q15
Query resp_occupation String 255 Recommended Respondent's occupation OCCUP, fdi_q18, subjectwork
Query occup_fulljob Integer Recommended Occupation(choice=1: Working at a full-time paid job (35 or more hours a week)) 0;1 0=Unchecked; 1=Checked fdi_q17___1
Query occup_partjob Integer Recommended Occupation(choice=2: Working at a part-time paid job (less than 35 hours a week)) 0;1 0=Unchecked; 1=Checked fdi_q17___2
Query occup_fullstud Integer Recommended Occupation(choice=3: Full-time student (3 or more classes a semester)) 0;1 0=Unchecked; 1=Checked fdi_q17___3
Query occup_partstud Integer Recommended Occupation(choice=4: Part-time student (1 or 2 classes a semester)) 0;1 0=Unchecked; 1=Checked fdi_q17___4
Query occup_nojob Integer Recommended Occupation(choice=5: Not currently working) 0;1 0=Unchecked; 1=Checked fdi_q17___5
Query occup_occoth Integer Recommended Occupation(choice=6: Other) 0;1 0=Unchecked; 1=Checked fdi_q17___6
occup_sp String 100 Recommended Occupation other. Please describe: fdi_q17a
Query num_in_house_adults Integer Recommended Number of Individuals in Household Adults ADINHOME
Query num_in_house_kids Integer Recommended Number of Individuals in Household Children CHINHOME
Query demo_resp_status Integer Recommended respondent's marital status 1::13 1 = Married; 2 = Remarried; 3 = Live with partner (not married); 4 = Separated; 5 = Divorced; 6 = Single (never married); 7 = Widowed; 8=Married or Living Together;9 = Missing/Not Applicable; 10 = Other; 11=Refused to answer; 12= Engaged; 13=Civil union fdi_q16, marital
Query livewith Integer Recommended Does this child currently live with you? 0;1 0=No; 1=Yes
Query resarr Integer Recommended Please specify residential arangement for child: 1::4 1=Lives at home with parents; 2=Lives in residential setting including weekends; 3=Lives in residential setting excluding weekends; 4=Other
resarr_sp String 100 Recommended Please specify:
Query spoken_eng Integer Recommended Are you fluent in spoken English? 0;1 0 = No; 1 = Yes NATIVESPK
Query ccalanguage Integer Recommended Is English the main language spoken at home? 0;1;-9 0 = No; 1 = Yes; -9 = Missing value ENGHOUSE, fdi_q29___1
language_specify String 255 Recommended Language in the home - Specify if other than standard english OTHLANG
Query sibyn Integer Recommended Does this child have any siblings? 0;1 0=No; 1=Yes
Query demo_siblingscount Integer Recommended Number of siblings 888 = not applicable; 999 = missing NUMSIBS, fdi_q8a
ques_sub1 GUID Recommended GUID -Sibling 1
Query ques_gender1 String 50 Recommended Gender -Sibling 1
M;F;T
M = Male; F = Female; 1= Male; 2= Female; 3= Transgender SIBGENDER1, fdi_q10_1c
Query sibling1_diag String 20 Recommended sibling 1 diagnosis None; ASD; Other/specify SIBDIAG1, fdi_q10_1d___3
ques_sub2 GUID Recommended GUID -Sibling 2
Query ques_gender2 String 50 Recommended Gender -Sibling 2
M;F
M = Male; F = Female; 1= Male; 2= Female; 3= Transgender SIBGENDER2, fdi_q10_2c
Query sibling2_diag String 20 Recommended sibling 2 diagnosis None; ASD; Other/specify SIBDIAG2, fdi_q10_2d___3
ques_sub3 GUID Recommended GUID -Sibling 3
Query ques_gender3 String 50 Recommended Gender -Sibling 3
M;F
M = Male; F = Female; 1= Male; 2= Female; 3= Transgender SIBGENDER3, fdi_q10_3c
Query sibling3_diag String 20 Recommended sibling 3 diagnosis None; ASD; Other/specify SIBDIAG3, fdi_q10_3d___3
ques_sub4 GUID Recommended GUID -Sibling 4
Query ques_gender4 String 50 Recommended Gender -Sibling 4
M;F
M = Male; F = Female; 1= Male; 2= Female; 3= Transgender SIBGENDER4, fdi_q10_4c
Query sibling4_diag String 20 Recommended sibling 4 diagnosis None; ASD; Other/specify SIBDIAG4, fdi_q10_4d___3
ques_sub5 GUID Recommended GUID -Sibling 5
Query ques_gender5 String 50 Recommended Gender -Sibling 5
M;F
M = Male; F = Female; 1= Male; 2= Female; 3= Transgender SIBGENDER5, fdi_q10_5c
Query sibling5_diag String 20 Recommended sibling 5 diagnosis None; ASD; Other/specify SIBDIAG5, fdi_q10_5d___3, fdi_q10_6d___1
Query ed_incl Integer Recommended 18. What is your childs current educational placement (choice=1: Inclusion Classroom) 0;1 0=Unchecked; 1=Checked
Query ed_gened Integer Recommended 18. What is your childs current educational placement (choice=2: General Education Classroom) 0;1 0=Unchecked; 1=Checked
Query ed_selfcont Integer Recommended 18. What is your childs current educational placement (choice=3: Self-Contained Classroom) 0;1 0=Unchecked; 1=Checked
Query ed_outdist Integer Recommended 18. What is your childs current educational placement (choice=4: Out of District Placement (i.e. specialized placement, private setting)) 0;1 0=Unchecked; 1=Checked
Query ed_oth Integer Recommended 18. What is your childs current educational placement (choice=5: Other (e.g., day program)) 0;1 0=Unchecked; 1=Checked
edoth String 100 Recommended Please describe:
Query partlive Integer Recommended Do you have a spouse or partner who lives with you and your child? 0;1 0=No; 1=Yes fdi_q21preq
Query partgender Integer Recommended Partner or spouses gender 1;2 1=Male; 2=Female
Query partner_resp_relationship String 100 Recommended Respondent's partner/spouse relationship to child 1 = Biological mom; 2 = Stepmom; 3 = Adoptive mom; 4 = Grandmother; 5 = Foster mother; 6 = Biological dad; 7 = Stepdad; 8 = Adoptive dad; 9 = Grandfather; 10 = Other PARTRELATION, fdi_q24
partrel_sp String 100 Recommended Please specify: respondent's partner/spouse relationship to child fdi_q24_other
Query partethn Integer Recommended Partner or spouses ethnicity 1::3 1=Hispanic; 2=Non-Hispanic; 3=Prefer not to respond fdi_q23
Query partrace Integer Recommended Partner or spouses race 1::8 1=American Indian/Alaska Native; 2= Asian; 3= Native Hawaiian or Other Pacific Islander 4=Hispanic; 5=Black or African American; 6=White; 7=More than one race; 8=Unknown or not reported PARTRACE_OTH, fdi_q22
otherrace String 100 Recommended specify other race The following questions are about you or the child's family. fdi_q22_other
Query demo_partner_edu String 100 Recommended Spouse/partner highest education level
Less than 8th grade; 9th grade to 11th grade; High School Graduate/GED or equivalent; Some college credit, but less than 1 year; Technical college/vocational school; Associate degree; Bachelor degree; Master degree; Professional degree (MD, PhD, JD)
PARTED, fdi_q25
Query demo_partner_occupation String 100 Recommended Spouse/partner Occupation PARTOCCUP, fdi_q27, spousework
Query part_fulljob Integer Recommended Is your partner(choice=1: Working at a full-time paid job (35 or more hours a week)) 0;1 0=Unchecked; 1=Checked fdi_q26___1
Query part_partjob Integer Recommended Is your partner(choice=2: Working at a part-time paid job (less than 35 hours a week)) 0;1 0=Unchecked; 1=Checked fdi_q26___2
Query part_fullstud Integer Recommended Is your partner(choice=3: Full-time student (3 or more classes a semester)) 0;1 0=Unchecked; 1=Checked fdi_q26___3
Query part_partstud Integer Recommended Is your partner(choice=4: Part-time student (1 or 2 classes a semester)) 0;1 0=Unchecked; 1=Checked fdi_q26___4
Query part_nojob Integer Recommended Is your partner(choice=5: Not currently working) 0;1 0=Unchecked; 1=Checked fdi_q26___5
Query part_occoth Integer Recommended Is your partner(choice=6: Other) 0;1 0=Unchecked; 1=Checked fdi_q26___6
partoccup_sp String 100 Recommended Please describe:
Query partner_involvem Integer Recommended How involved is your partner in caring for your child 0 :: 3 0 = Not at all involved; 1 = Somewhat involved; 2 = Very involved; 3 = Extremely involved PARTINV, fdi_q28
Query income_btx Integer Recommended What is your approximate annual household income (before taxes)? 1::7 1: Less than $20,000; 2: Between $20,000 and $49,999; 3: Between $50,000 and $99,999; 4: Between $100,000 and $149,999; 5: Between $150,000 and $200,000; 6: Over $200,000; 7: Prefer not to answer INCOME
Query agegroup Integer Recommended Age group 0;1 0=Younger adults (<60); 1=Older adults (?60 years)
spouseindustry String 100 Recommended Spouse's occupation: Industry or type of business
subjectindustry String 100 Recommended Subject's occupation: Industry or type of business
Query educat Float Recommended Number of years in formal education 999=Unknown/Missing education
Query tx_code Integer Recommended Treatment code 0::3 0=Olanzapine + Sertraline Placebo; 1=Olanzapine + Sertraline; 2=Olanzapine + Sertraline + Lithium Placebo; 3=Olanzapine + Sertraline + Lithium
living_notes String 255 Recommended Living arrangements (specify) comments_live
Query eo4 Integer Recommended Are you currently working at a job or business for pay 0;1;9 0=No; 1=Yes; 9 = Missing subjectcurrentwork
Query evaluation_actual_days Integer Recommended Evaluation days from baseline
Query hi_31a5 Integer Recommended Medication 1 days from baseline started medstartdays
Query live Integer Recommended Living arrangements 1::5 1 = Lives alone; 2 = Lives with Others; 3 = Senior Residence; 4 = Nursing home; 5 = Other
Query entry_status Integer Recommended Entry status 1::10 1 = Inpatient; 2 = Outpatient; 3 = Nursing Home ; 4 = Partial Hospital ; 5 = Other; 6= Normal Control; 7= Chrono; 8= Senior Center; 9= Mistreatment Agency; 10= Primary Care
Query study_id Integer Recommended Study ID number 46=Acute Phase; 47=Stabilization Phase
Query week Float Recommended Week in level/study 99=week 10-week 14 intid
site String 101 Recommended Site Study Site
c_race_bir String 50 Recommended Child race, specified for more than one race fdi_q5b
Query cdiag_asd Integer Recommended Child current diagnosis: Autism Spectrum Disorder 0;1 0=No; 1=Yes fdi_q7___1
Query cast39_other Integer Recommended Other diagnosis (please specify) 0; 1 0 = No; 1 = Yes fdi_q7___2
Query cdiag_none Integer Recommended Child current diagnosis: none 0;1 0=No; 1=Yes fdi_q7___3
cepisp String 500 Recommended Current diagnosis specify fdi_q7a
Query fh13 Integer Recommended Birth order 0::13; 99 99 = Missing value fdi_q8
Query fdi_9 Integer Recommended number of biological siblings with an ASD diagnosis
Query ques_age1 Integer Recommended Age -Sibling 1(in months) 0 :: 1200 fdi_q10_1b
demo_sib1_diagnosis String 150 Recommended Diagnosis (if any) Sibling 1 fdi_q10_1e
Query ques_age2 Integer Recommended Age -Sibling 2(in months) 0 :: 1200 fdi_q10_2b
demo_sib2_diagnosis String 25 Recommended Diagnosis (if any) Sibling 2 fdi_q10_2e
Query ques_age3 Integer Recommended Age -Sibling 3(in months) 0 :: 1200 fdi_q10_3b
demo_sib3_diagnosis String 25 Recommended Diagnosis (if any) Sibling 3 fdi_q10_3e
Query ques_age4 Integer Recommended Age -Sibling 4(in months) 0 :: 1200 fdi_q10_4b
demo_sib4_diagnosis String 25 Recommended Diagnosis (if any) Sibling 4 fdi_q10_4e
Query ques_age5 Integer Recommended Age -Sibling 5(in months) 0 :: 1200 fdi_q10_5b
demo_sib5_diagnosis String 25 Recommended Diagnosis (if any) Sibling 5 fdi_q10_5e
Query ques_age6 Integer Recommended Age -Sibling 6(in months) 0 :: 1200 fdi_q10_6b
Query ques_gender6 String 50 Recommended Gender -Sibling 6 M;F M = Male; F = Female; 1= Male; 2= Female; 3= Transgender fdi_q10_6c
demo_sib6_diagnosis String 25 Recommended Diagnosis (if any) Sibling 6 fdi_q10_6e
Query resp_relationship Integer Recommended Respondent's relationship to child 1 = Mother (biological); 2 = Stepmother; 3 = Adoptive mother; 4 = Grandmother; 5 = Foster mother; 6 = Other; 7 = Father (biological); 8 = Stepfather; 9 = Adoptive father; 10 = Grandfather; 11 = Foster father fdi_q11
Query resp_age Integer Recommended Respondent's age 0::1200; -777 -777=Not applicable fdi_q12a
fdi_q13_more String 20 Recommended Describe more than one race: respondent
Query fdi_q19 Integer Recommended Household income 1 :: 13 1=$20,000 or less; 2=$20,001-$40,000; 3=$40,001-$60,000; 4=$60,001-$80,000; 5=$80,001-$100,000; 6=$100,001 - $125,000; 7=$125,001-$150,000; 8=$150,000-$200,000; 9=$200,000 or higher; 10=I don't know; 11=I prefer not to answer; 12 = $60,001 - $90,000;13 = More than $90,000
Query adults_household Integer Recommended Number adults in household fdi_q20a
Query fdi_q20a_1___1 Integer Recommended Adult in the house is parent 0; 1 0=No; 1=Yes
Query fdi_q20a_1___2 Integer Recommended Adult in the house is step-parent 0; 1 0=No; 1=Yes
Query fdi_q20a_1___3 Integer Recommended Adult in the house is adoptive parent 0; 1 0=No; 1=Yes
Query fdi_q20a_1___4 Integer Recommended Adult in the house is foster parent 0; 1 0=No; 1=Yes
Query fdi_q20a_1___5 Integer Recommended Adult in the house is grandparent 0; 1 0=No; 1=Yes
Query fdi_q20a_1___6 Integer Recommended Adult in the house is aunt/uncle 0; 1 0=No; 1=Yes
Query fdi_q20a_1___7 Integer Recommended Adult in the house is cousin 0; 1 0=No; 1=Yes
Query fdi_q20a_1___8 Integer Recommended Adult in the house is family friend 0; 1 0=No; 1=Yes
Query fdi_q20a_1___9 Integer Recommended Adult in the house is another relative 0; 1 0=No; 1=Yes
fdi_q20a_2 String 25 Recommended Describe other relative adult
Query fdi_q20b Integer Recommended number of children living in the house
Query fdi_q20b_1___1 Integer Recommended Child in the house is a sibling 0; 1 0=No; 1=Yes
Query fdi_q20b_1___2 Integer Recommended Child in the house is a step-sibling 0; 1 0=No; 1=Yes
Query fdi_q20b_1___3 Integer Recommended Child in the house is an adoptive sibling 0; 1 0=No; 1=Yes
Query fdi_q20b_1___4 Integer Recommended Child in the house is a cousin 0; 1 0=No; 1=Yes
Query fdi_q20b_1___5 Integer Recommended Child in the house is a family friend 0; 1 0=No; 1=Yes
Query fdi_q20b_1___6 Integer Recommended Child in the house is another relative 0; 1 0=No; 1=Yes
fdi_q20b_2 String 150 Recommended Describe other relative child
Query fdi_q21 Integer Recommended Spouse/partner's age
fdi_q22_more String 25 Recommended Describe more than one race:
employotr String 200 Recommended Employment situation other, specify fdi_26a
Query fdi_q29___2 Integer Recommended Spanish is spoken in the home 0; 1 0=No; 1=Yes
nonenglish String 20 Recommended Non-English language spoken at home 0 = No; 1 = Yes fdi_q29___3
oth_lang String 150 Recommended What other languages are you fluent in? fdi_q29a
Query child_englishexposure Integer Recommended How often do you and your spouse speak to your child in English 1;2;3 1 = We always talk to him/her in English; 2 = We sometimes talk to him/her in English; 3 = We rarely talk to him/her in English fdi_q30
Query fdi_q31a Integer Recommended Respondent knows biological mother's birthdate 0; 1 0=No; 1=Yes
Query fdi_q31b Integer Recommended Respondent knows biological mother's age 0; 1 0=No; 1=Yes
Query ques_agebm Integer Recommended Age (or age at death) -Biological Mother(in months) 0 :: 1200; -999 -999 = Missing value fdi_q31b2
Query bio_mother_race String 150 Recommended Biological Mother Race American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported fdi_q32
mother_other_race String 50 Recommended Mother Other race (please specify): fdi_q32_other
p_race_bir String 50 Recommended Mother race, specified for more than one race fdi_q32_more
Query bio_mother_ethnicity String 50 Recommended Biological Mother Ethnicity Hispanic or Latino;Not Hispanic or Latino; No Answer fdi_q33
Query fdi_q34a Integer Recommended Respondent knows biological father's birthdate 0; 1 0=No; 1=Yes
Query fdi_q34b Integer Recommended Respondent knows biological father's age 0; 1 0=No; 1=Yes
Query ques_agebf Integer Recommended Age (or age at death) -Biological Father(in months) 0 :: 1200; -999 -999 = Missing value fdi_q34b1
Query bio_father_race String 150 Recommended Biological Father Race American Indian/Alaska Native; Asian; Hawaiian or Pacific Islander; Black or African American; White; More than one race; Unknown or not reported fdi_q35
father_other_race String 35 Recommended Father Other race (please specify): fdi_q35_other
p2_race_bir String 50 Recommended Father race, specified for more than one race/biracial fdi_q35_more
Query bio_father_ethnicity String 50 Recommended Biological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer) Hispanic or Latino; Not Hispanic or Latino; No Answer fdi_q36
demooo_24 Integer Recommended TOTAL COMBINED HOUSEHOLD INCOME OF THE CHILD'S PRIMARY RESIDENCE (before last year's taxes)? 0::10; 888 1=Less than $10,000; 2=$10,000-$24,999; 3=$25,000-$49,999; 4=$50,000-$74,999; 5=$75,000-$99,999; 6=$100,000-$124,999: 7=$125,000-$149,999; 8=$150,000-$174,999; 9=$175,000-$199,999; 10=$200,000 or above; 888=Prefer not to answer demo_24
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

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