|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
guid, plot_ndar_guid |
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
id, patid, pid, plot_id, plotstudy_full_id, randid, subjectid |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
demdat, plot_visit1_date, visit_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
age, age_v, agem, plot_age_totalmonths |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender, plot_child_sex, sex |
Query
|
visit |
String |
60
|
Recommended |
Visit name |
|
|
int1, timept, visit_name, vtypdhs |
Query
|
asstyp |
Integer |
|
Recommended |
Assessment type |
1::20
|
1=TADS GATE A; 2=TADS GATE B; 3 = TADS Gate C; 4 = TADS Week 6; 5 = TADS Week 12; 6 = TADS Week 18; 7 = TADS Week 24; 8 = TADS Week 30; 9 = TADS Week 36; 10 = TADS F/U Mo 3; 11 = TADS F/U Mo 6; 12 = TADS F/U Mo 9; 13 = TADS F/U Mo 12; 14 = SOFTAD month 6; 15 = SOFTAD month 12; 16 = SOFTAD month 18; 17 = SOFTAD month 24; 18 = SOFTAD month 30; 19 = SOFTAD month 36; 20 = SOFTAD month 42
|
|
Query
|
stage |
Integer |
|
Recommended |
Study stage |
|
0 = Pre-Randomization (TADS) 1 = Stage 1 (TADS) 2 = Stage 2 (TADS) 3 = Stage 3 (TADS) 4 = Stage 4 (TADS) 5 = Stage 5 (SOFTAD); 51=Treatmentas Usual; 52=Screening Alone; 53=Intervention; 67=Unknown; -888=Not Applicable; -999=Missing;
|
|
Query
|
enroll |
Integer |
|
Recommended |
SOFTAD enrollment record |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
bsit0 |
Float |
|
Recommended |
Weeks from Time 0/baseline to assessment |
|
|
demt0, stet0 |
Query
|
bsimo |
Float |
|
Recommended |
Months from Time 0 to assessment |
|
|
demmo, ste_m |
Query
|
bsistm |
Float |
|
Recommended |
Months from SOFTAD enrollment date to assessment |
|
|
demstm |
Query
|
height_met |
Float |
|
Recommended |
Height - Metric Unit |
|
999 = Missing; -999 = No Data
|
ht_cm, steht |
Query
|
weight_met |
Float |
|
Recommended |
Weight - Metric Unit |
|
999 = Missing; -999 = No Data
|
stewt, wt_kg |
Query
|
marist |
Integer |
|
Recommended |
Marital status |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
signifot |
Integer |
|
Recommended |
Living with significant other |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
livehome |
Integer |
|
Recommended |
Living at home |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
primarm |
Integer |
|
Recommended |
Primary female caretaker/mother figure (maternal demographics) |
0::10
|
0 = No female caretaker 1 = Biological mother 2 = Adoptive mother 3 = Foster mother 4 = Stepmother 5 = Grandmother 6 = Sister 7 = Aunt 8 = Other 9 = Other female relative 10 = Other female non-relative
|
dem_05af, fpcare |
Query
|
fpcareo |
String |
40
|
Recommended |
Other female primary caregiver |
|
|
|
Query
|
primarf |
Integer |
|
Recommended |
Primary male caretaker/father figure (paternal demographics) |
0::10
|
0 = No male caretaker 1 = Biological father 2 = Adoptive father 3 = Foster father 4 = Stepfather 5 = Grandfather 6 = Brother 7 = Uncle 8 = Other 9 = Other male relative 10 = Other male non-relative
|
dem_05bf, mpcare |
Query
|
mpcareo |
String |
40
|
Recommended |
Other male primary caregiver |
|
|
|
Query
|
independ |
Integer |
|
Recommended |
Living independently in past 6 months |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
foster |
Integer |
|
Recommended |
Foster home in past 6 months |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
college_6m |
Integer |
|
Recommended |
College/university in past 6 months |
0;1
|
0 = No; 1 = Yes
|
college |
Query
|
treatctr |
Integer |
|
Recommended |
Treatment center in past 6 months |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
homeless |
Integer |
|
Recommended |
Homeless in past 6 months |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
boardsc |
Integer |
|
Recommended |
Boarding school in past 6 months |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
grouphm |
Integer |
|
Recommended |
Group home in past 6 months |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
detent |
Integer |
|
Recommended |
Detention center in past 6 months |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
ceducat |
Integer |
|
Recommended |
Current educational status |
0::6
|
0 = Not in an educational pgm.; 1 = Graduate or professional pgm.; 2 = College / junior college; 3 = Trade school; 4 = High school; 5 = GED / high school diploma pgm.; 6 = Middle school
|
|
Query
|
grades |
Integer |
|
Recommended |
How are teen's grades in school at the present time? |
0::5
|
0 = Teen dropped out of school 1 = Enrolled, but school not in session 2 = Better than average 3 = Average 4 = Below average 5 = Failing
|
|
Query
|
suspend |
Integer |
|
Recommended |
Expelled/suspended in past 6 months |
0;1
|
0 = No; 1 = Yes
|
|
Query
|
suspcnt |
Integer |
|
Recommended |
No. expulsions/suspensions, past 6 mos.Number of expulsions or suspensions in the past 6 months |
|
|
|
Query
|
employst |
Integer |
|
Recommended |
Current employment status |
1::8
|
1 = Working full-time job; 2 = Working part-time job; 3=not employed; 4=NA; 5 =retired;6=Disability recipient; 7=Student; 8=Other
|
|
Query
|
empcur |
Integer |
|
Recommended |
Currently employed |
0;1; -99; 77; 88
|
0 = No; 1 = Yes; -99= N/A ; 88= Missing ; 77= Refused
|
employ |
Query
|
daysrz |
Integer |
|
Recommended |
days since randomization |
|
|
visitdt |
Query
|
study |
String |
100
|
Recommended |
Study; The code for each individual study |
|
|
studyid |
Query
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
psite, site_uid, siteid |
Query
|
completed |
Integer |
|
Recommended |
Checks if completed |
0::3
|
0=No; 1=Yes; 2=Yes, lost; 3=Unverified
|
formcomp |
Query
|
subtrial_name |
Integer |
|
Recommended |
Name of subtrial |
1::3
|
1=Crossover; 2=Guanfacine; 3= Open Label MPH
|
|
Query
|
ethnicity |
String |
30
|
Recommended |
Ethnicity of participant |
|
|
ethnic, fbq_eth, hispanic |
Query
|
race |
String |
30
|
Recommended |
Race of study subject |
|
|
race |
Query
|
dem_04 |
Integer |
|
Recommended |
Childs usual living arrangement |
1::7
|
1=Parental Home(At least one parent) 2=Relative(Other than parent) 3=With Unrelated Adults
4=Shared apartment/ residence with parents friends
5=Shelter/street/homeless/ transient 6=Unknown
7=Other
|
|
Query
|
dem_05aa |
Integer |
|
Recommended |
Current mother figure age |
|
|
|
Query
|
dem_05ba |
Integer |
|
Recommended |
Current father figure age |
|
|
|
Query
|
dem_06a |
Integer |
|
Recommended |
Give the number of each of the following in the childs usual living arrangement - Brothers |
|
|
|
Query
|
dem_06b |
Integer |
|
Recommended |
Give the number of each of the following in the childs usual living arrangement - Sisters |
|
|
|
Query
|
dem_06c |
Integer |
|
Recommended |
Give the number of each of the following in the childs usual living arrangement - Other relatives |
|
|
|
Query
|
dem_06d |
Integer |
|
Recommended |
Give the number of each of the following in the childs usual living arrangement - Other non-relatives |
|
|
|
Query
|
dem_07 |
Integer |
|
Recommended |
Type of educational activity |
1::17
|
1=Regular public school grade; 2=Regular private/parochial school grade 3=Regular public nursery; 4=Regular public kindergarten; 5=Regular private/parochial nursery; 6=Regular private/parochial kindergarten; 7=Special school for preschoolers with emotional/behavioral or learning problems; 8=Day Care; 9=Play group; 10=Pre-nursery; 11=Pre-kindergarten; 12=Not in school, not in play group, not in day care; 13=Special Class within regular school; 14=Special school for school-age children with emotional/behavioral or learning problems; 15=Other (Specify);16=Special school; 17=Home school
|
|
Query
|
currgradelevel |
String |
50
|
Recommended |
Current grade level |
|
|
dem_07a |
Query
|
dem_08a |
Integer |
|
Recommended |
Mother current employment |
1::11;99
|
1=Working full time(35hrs or more a week at one or more jobs)
; 2=Working part time; 3=Keeping house
; 4=Unemployed, looking for work; 5=Unemployed, not looking for work; 6=Disabled; 7=Retired; 8=Student, full time; 9=Student, part time; 10=Other; 11 =Unemployed; 99=Not in household
|
|
Query
|
dem_08b |
Integer |
|
Recommended |
Father current employment |
1::12;99
|
1=Working full time(35hrs or more a week at one or more jobs); 2=Working part time; 3=Keeping house; 4=Unemployed, looking for work; 5=Unemployed, not looking for work; 6=Disabled; 7=Retired; 8=Student, full time; 9=Student, part time; 10=Other; 11 =Unemployed; 99=Not in household; 12 = Self-employed
|
|
Query
|
dem_09a |
Integer |
|
Recommended |
Mother highest occupation |
1::9;99
|
1=Higher executive, proprietor of large concern, major professional; 2=Business manager or large concern, proprietor of medium-sized business, lesser professiona;l 3=Administrative personnel, owner of small independent business, minor professional; 4=Clerical or sales worker, technician, owner of little business;5=Skilled manual employee; 6=Machine operator, semi-skilled employee; 7=Unskilled employee; 8=farm laborers, menial service workers, students, housewives, (dependent on welfare, no regular occupation); 99=Not ascertained; 9 = Not in household
|
job_moh |
Query
|
dem_09b |
Integer |
|
Recommended |
Father highest occupation |
1::9;99
|
1=Higher executive, proprietor of large concern, major professional; 2=Business manager or large concern, proprietor of medium-sized business, lesser professiona;l 3=Administrative personnel, owner of small independent business, minor professional; 4=Clerical or sales worker, technician, owner of little business;5=Skilled manual employee; 6=Machine operator, semi-skilled employee; 7=Unskilled employee; 8=farm laborers, menial service workers, students, housewives, (dependent on welfare, no regular occupation); 99=Not ascertained; 9 = Not in household
|
job_fahi |
Query
|
dem_10 |
Integer |
|
Recommended |
Income from public assistance |
|
1=Yes 0=No
|
|
Query
|
dem_11a |
Integer |
|
Recommended |
Mother level of education |
1::9; 99
|
1=Eighth grade or less; 2=Some high school
; 3=High school graduate or GED; 4=Some college or post-high school; 5=College graduate; 6=Advanced graduate or professional degree; 7=Attended grade school, not through 8th grade; 8=Some post-graduate training, no degree; 9=No schooling; 99=Information not available
|
ed_mo |
Query
|
dem_11b |
Integer |
|
Recommended |
Father level of education |
1::9; 99
|
1=Eighth grade or less; 2=Some high school; 3=High school graduate or GED; 4=Some college or post-high school; 5=College graduate; 6=Advanced graduate or professional degree; 7=Attended grade school, not through 8th grade; 8=Some post-graduate training, no degree; 9=No schooling; 99=Information not available
|
ed_fa |
Query
|
dem_12 |
Integer |
|
Recommended |
Parents marital status |
1::7
|
1=Married/common law 2=Not married, living together 3=Separated 4=Divorced/annulled 5=Widowed
; 6=Never married, not living with someone; 7=other
|
|
Query
|
dem_13 |
Integer |
|
Recommended |
Number of years married / living together |
|
|
|
Query
|
dem_14 |
Integer |
|
Recommended |
Parental separations or divorces |
|
|
|
Query
|
dem_15 |
Integer |
|
Recommended |
Number different foster homes |
|
|
|
Query
|
dem_16a |
Integer |
|
Recommended |
Current mother problems |
1::5;99
|
1=Never had any mental or nervous problems 2=Had mental or nervous problems, but was never seen by a doctor or counselor for this
3=Had mental or nervous problems and received outpatient treatment and/or medication for this 4=Had nervous or mental problems and received hospitalization and inpatient treatment only once 5=Had nervous or mental problems and received more than one hospitalization and/or commitment to a psychiatric hospital
99=Unknown
|
|
Query
|
dem_16b |
Integer |
|
Recommended |
Current father problems |
1::5;99
|
1=Never had any mental or nervous problems 2=Had mental or nervous problems, but was never seen by a doctor or counselor for this
3=Had mental or nervous problems and received outpatient treatment and/or medication for this 4=Had nervous or mental problems and received hospitalization and inpatient treatment only once 5=Had nervous or mental problems and received more than one hospitalization and/or commitment to a psychiatric hospital
99=Unknown
|
|
Query
|
dem_17a |
Integer |
|
Recommended |
Biologic mother problems |
1::5;99
|
1=Never had any mental or nervous problems 2=Had mental or nervous problems, but was never seen by a doctor or counselor for this
3=Had mental or nervous problems and received outpatient treatment and/or medication for this 4=Had nervous or mental problems and received hospitalization and inpatient treatment only once 5=Had nervous or mental problems and received more than one hospitalization and/or commitment to a psychiatric hospital
99=Unknown
|
|
Query
|
dem_17b |
Integer |
|
Recommended |
Biologic father problems |
1::5;99
|
1=Never had any mental or nervous problems 2=Had mental or nervous problems, but was never seen by a doctor or counselor for this
3=Had mental or nervous problems and received outpatient treatment and/or medication for this 4=Had nervous or mental problems and received hospitalization and inpatient treatment only once 5=Had nervous or mental problems and received more than one hospitalization and/or commitment to a psychiatric hospital
99=Unknown
|
|
Query
|
dem_18a |
Integer |
|
Recommended |
ADD or hyperactivity |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18b |
Integer |
|
Recommended |
LD dyslexia or learning problems |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18c |
Integer |
|
Recommended |
Behavior / discipline problems school |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18d |
Integer |
|
Recommended |
Behavior / discipline problems home |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18e |
Integer |
|
Recommended |
Problems with alcohol use or abuse |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18f |
Integer |
|
Recommended |
Problems with drug use or abuse |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18g |
Integer |
|
Recommended |
Aggression or conduct disorder |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18h |
Integer |
|
Recommended |
Problems with the law |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18i |
Integer |
|
Recommended |
Jail due to problems with the law |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18j |
Integer |
|
Recommended |
Muscle twitches or motor tics |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18k |
Integer |
|
Recommended |
Tourettes Syndrome |
0::4
|
1=Yes; 0=No; 2=Current;3=In partial remission; 4=Past
|
|
Query
|
dem_18l |
Integer |
|
Recommended |
Anxiety |
0;1; 999
|
1=Yes; 0=No; 999=missing
|
|
Query
|
dem_18m |
Integer |
|
Recommended |
Depression |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18n |
Integer |
|
Recommended |
Alternating mania and depression |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18o |
Integer |
|
Recommended |
Suicide |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18p |
Integer |
|
Recommended |
Obsessive thoughts or compulsions |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18q |
Integer |
|
Recommended |
Nervous breakdown |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18r |
Integer |
|
Recommended |
Hospitalized for emotional problems |
0;1;9
|
1=Yes; 0=No; 9=Don't Know
|
|
Query
|
dem_18s |
Integer |
|
Recommended |
Other psych / behavior problems |
0;1
|
1=Yes 0=No
|
|
Query
|
dem_18t |
Integer |
|
Recommended |
Mental retardation |
0;1
|
1=Yes 0=No
|
|
Query
|
emp_01 |
Integer |
|
Recommended |
Employment update visit: Change in Employment |
0;1
|
1=Yes 0=No
|
|
Query
|
emp_02 |
Integer |
|
Recommended |
Employment update visit: Mother current employment |
1::10;99
|
1 = Working full time (35 hrs or more a week at one or more jobs)
2 = Working part time 3 = Keeping house
4 = Unemployed, looking for work
5 = Unemployed, not looking for work 6 = Disabled
7 = Retired
8 = Student, full time 9 = Student, part time 10 = Other:
99 = Not in household
|
|
Query
|
emp_03 |
Integer |
|
Recommended |
Employment update visit: Mother highest occupation |
1::8;99
|
1 = Higher executive; proprietor of large concern, major professional
2 = Business manager of large concern, proprietor of medium-sized business, lesser professional
3 = Administrative personnel, owner of small independent business, minor professional
4 = Clerical or sales worker, technician, owner of little business
5 = Skilled manual employee
6 = Machine operator, semi-skilled employee 7 = Unskilled employee
8 = Never worked in paid employment 99 = Not ascertained
|
|
Query
|
emp_04 |
Integer |
|
Recommended |
Date of employment status change in days from the randomization date (EMP_04 = date of employment status change - randomization date) |
|
|
|
|
session_id |
String |
20
|
Recommended |
session ID/screening ID |
|
|
screeningid |
|
version_form |
String |
121
|
Recommended |
Form used/assessment name |
|
|
form_name |
Query
|
vis_type |
Integer |
|
Recommended |
Visit type |
0::2
|
1=Phone/remote; 0=doctor's office/In person; 2=No, not phone interview
|
phone |
Query
|
days_baseline |
Integer |
|
Recommended |
Days since baseline |
|
|
date |
Query
|
educat |
Float |
|
Recommended |
Number of years in formal education |
|
999=Unknown/Missing
|
school, years_of_school |
Query
|
education_level |
Integer |
|
Recommended |
Highest level of education completed for adult subject |
1::6; 9
|
1 = Grades 1 to 11; 2 = High school graduate or GED; 3 = Associate or technical degree; 4 = Bachelor's degree; 5 = Master's degree; 6 = Doctorate or equivalent professional degree; 9 = Unknown
|
|
|
totincom |
String |
40
|
Recommended |
Monthly household income |
|
|
income |
Query
|
week |
Float |
|
Recommended |
Week in level/study |
|
99=week 10-week 14
|
|
Query
|
visday |
Integer |
|
Recommended |
Number of days from study baseline to date of visit |
|
|
daygeninfo |
|
otherrace |
String |
100
|
Recommended |
specify other race |
|
The following questions are about you or the child's family.
|
raceoth, racespec |
Query
|
liveswith_scid |
String |
30
|
Recommended |
Lives with: |
|
|
livwith |
|
jobh |
String |
150
|
Recommended |
job title |
|
|
|
Query
|
grade_highed |
String |
50
|
Recommended |
Grade/Highest education |
|
1= Less than 6th grade; 2= Some high school; 3= High school diploma or GED; 4= Some college, no degree; 5= Associates degree; 6= Bachelors degree; 7= Some graduate school; 8= Masters degree and above; 9= Some post-graduate training, no degree; 10= Completed 8th grade, no high school; 11= High school; 12= College or University; 13= Graduate school; 14= Other; 15= Less than high school; 99= Information not available
|
ed_pt, educ |
Query
|
p_p2job |
String |
100
|
Recommended |
What is his/her primary occupation? |
|
If unemployed or disabled, list his/her past occupation
|
occode |
Query
|
resp_employmentstatus |
Integer |
|
Recommended |
Respondent's employment status |
1::6
|
1 = Working at a full-time paid job (35 or more hours a week); 2 = Working at a part-time paid job (less than 35 hours a week); 3 = A full-time student (3 or more class/semester); 4 = A part-time student (1 or 2 classes/semester); 5 = Not currently working; 6 = Other
|
|
Query
|
ses |
Integer |
|
Recommended |
Hollingshead SES Score |
|
SES at age of entry to study
|
|
Query
|
sestot |
Integer |
|
Recommended |
Socio-Economic Status (SES) |
1::5
|
1 = SES score of 08 to 19;2 = SES score of 20 to 29;3 = SES score of 30 to 39;4 = SES score of 40 to 54;5 = SES score of 55 to 66
|
|
Query
|
refothers |
String |
50
|
Recommended |
Referral source: specify |
|
|
|
Query
|
respondent |
String |
20
|
Recommended |
Respondent |
|
|
|
Query
|
respondent_other_specify |
String |
50
|
Recommended |
Respondent: Other (specify) |
|
|
nfogeninfo |
Query
|
race_c |
Integer |
|
Recommended |
Race in two category (white only vs. other) |
1;2
|
1=White alone; 2=other
|
racebi, racebi_m |
Query
|
sestotbi |
Integer |
|
Recommended |
Dichotomous SES variable |
0;1
|
0 = SES 1-3;1 = SES 4-5
|
|
Query
|
referral_d |
Integer |
|
Recommended |
Referral Derived |
1::12
|
Changed documentation to 1-12 to match the data file (was 0-11).1 = Newspaper Ad;2 = Poster/Brochure;3 = Radio Ad;4 = Inpatient Unit;5 = Outpatient Clinic;6 = Private clinician;7 = Other;8 = Internet/Website;9 = Television Ad;10 = School Staff;11 = Friend;12 = Seminar
|
|
Query
|
referraltri |
Integer |
|
Recommended |
Trichotomous Referral Variable |
0::2
|
0 = Other;1 = Through Ads/Outreach;2 = Through Referral
|
|
Query
|
agebi |
Integer |
|
Recommended |
Dichotomous Age Variable |
0;1
|
0 = Child (7-12 years);1 = Adolescent (13-17 years)
|
|
Query
|
relationship |
Integer |
|
Recommended |
Relationship of respondent to individual |
|
1 = Biological mom; 2 = Biological dad; 3 = Grandparent; 4 = Special education (sped) teacher; 5 = General education teacher; 6 = Occupational therapist; 7 = Speech and language therapist; 8 = Behavioral therapist; 9 = Paraprofessional; 10 = Aide; 11 = Principal; 12 = Administrator; 14 = Content teacher; 15 = Parent center director; 16 = Self; 17=Adoptive mother; 18=Adoptive father; 19=Foster mother; 20 = Foster father; 21=Grandmother; 22=Grandfather; 23=Step-mother; 24 = Step-father; 25=Aunt; 26=Uncle; 28=Both parents;31= Grandmother from mother side; 32= Grandfather from mother side; 33= Grandmother from father side; 34= Grandfather from father side; 36= Brother; 37= Sister; 38= Cousin; 39= female caregiver; 40=male caregiver; 41=Female child; 42=Male child; 43=Spouse/Mate; 44=Friend; 45=Parent; 46=Significant other; 47=Sibling; 48=Son/Daughter; 49=Son-in-law/Daughter-in law; 50=Other Relative; 51=Paid caregiver; 52=Friends; 53=Roommate; 54=Supervisor; 55=mother's boyfriend; 56=other parental figure; 57=Summary; 58=counselor ; 59 = other female relative; 60 = other male relative; 61 = non-relative ; 62=Maternal Aunt; 63=Maternal Uncle; 64=Maternal Cousin; 65 = Paternal Aunt; 66=Paternal Uncle; 67=Paternal Cousin ; 68=Biological/Adoptive Mother and Grandmother; 69=Biological/Adoptive Mother and Stepmother and Grandmother; 70=Biological/Adoptive Mother and Grandmother and Foster Father; 71=Biological/Adoptive Mother and Stepmother and Foster Mother; 72=Biological/Adoptive Mother and Foster Mother; 73=Biological/Adoptive Mother and Biological/Adoptive Father; 74=Biological/Adoptive Mother and Stepmother and Biological/Adoptive Father; 75=Biological/Adoptive Mother and Other; 76=Biological/Adoptive Mother and Stepmother and Stepfather; 77=Biological/Adoptive Mother and Stepfather; 78=Biological/Adoptive Mother and Grandfather; 79=Biological/Adoptive Mother and Stepmother and Foster Father; 80=Biological/Adoptive Mother and Stepmother; 81=Guardian, female; 82=Other female; 83=Guardian, male; 84=Other male; 85=Other/Grandparent/Nanny; 86 = Mother, Father, Guardian; 87 = Daughter, son, grandchild; 88 = Professional (e.g., social worker, nurse, therapist, psychiatrist, or group home staff); -999=Missing; 89 = Biological parent; 90=Other; 91 = Stepparent; 92 = Adoptive parent; 93 = Foster parent; 94 = Co-worker
|
|
Query
|
rcsestot |
Integer |
|
Recommended |
Hollingshead Socio-Economic Status (SES) Total Score (Recoded) |
1::5
|
1 = SES score of 08 to 19; 2 = SES score of 20 to 29; 3 = SES score of 30 to 39; 4 = SES score of 40 to 54; 5 = SES score of 55 to 66
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|
Query
|
imputation |
Integer |
|
Recommended |
Indicator noting imputed data set number |
1::20
|
|
|
|
date_updated |
Date |
|
Recommended |
Date record updated |
|
|
edit_date |
Query
|
das1ms |
String |
200
|
Recommended |
Marital status |
|
|
|
Query
|
living_notes |
String |
255
|
Recommended |
Living arrangements (specify) |
|
|
res_oth |
Query
|
residenc1 |
Integer |
|
Recommended |
Patients Current Residence |
1;2;3;4;5;6;7
|
1=Living alone; 2=Supported living arrangement; 3=Structured environment; 4=Family of origin; 5=Family of orientation; 6=Other relatives; 7=Other living situation
|
residenc |
Query
|
job_pthi |
Integer |
|
Recommended |
Level of Occupation. Patient highest |
1;2;3;4;5;6;7;9; 99
|
1=Higher executive, proprietor of large concern, major professional; 2=Business manager or large concern, proprietor of medium-sized business, lesser professiona;l 3=Administrative personnel, owner of small independent business, minor professional; 4=Clerical or sales worker, technician, owner of little business;5=Skilled manual employee; 6=Machine operator, semi-skilled employee; 7=Unskilled employee; 8=farm laborers, menial service workers, students, housewives, (dependent on welfare, no regular occupation); 99=Not ascertained; 9 = Not in household
|
|
Query
|
job_ptcu |
Integer |
|
Recommended |
Level of Occupation. Patient current |
1::9; 99
|
1=Higher executive, proprietor of large concern, major professional; 2=Business manager or large concern, proprietor of medium-sized business, lesser professiona;l 3=Administrative personnel, owner of small independent business, minor professional; 4=Clerical or sales worker, technician, owner of little business;5=Skilled manual employee; 6=Machine operator, semi-skilled employee; 7=Unskilled employee; 8=farm laborers, menial service workers, students, housewives, (dependent on welfare, no regular occupation); 99=Not ascertained; 9 = Not in household
|
|
Query
|
surfqha |
Integer |
|
Recommended |
Dollar amount for other social welfare |
|
|
fin_wel |
Query
|
surfqea |
Float |
|
Recommended |
Dollar amount for SSI |
|
|
fin_ssi |
Query
|
other_amount |
Float |
|
Recommended |
Dollar amount per month |
|
|
fin_oth |
Query
|
fin_pt |
Float |
|
Recommended |
Patients current sources of finacial support-Patient (including earnings, unemployment benefits) |
|
|
|
Query
|
fin_fam |
Float |
|
Recommended |
Patients current sources of finacial support-Family Members |
|
|
|
Query
|
fin_tot |
Float |
|
Recommended |
Patients current sources of finacial support-TOTAL |
|
|
|
Query
|
longest |
Integer |
|
Recommended |
longest lasting job in months |
|
|
job_len |
Query
|
begin_pd |
Integer |
|
Recommended |
When did patient begin regular paid employment? |
1;2;3
|
1=During or before adolescence; 2=After 20 years of age; 3=Never had regular paid employment
|
|
|
cg_work_hours |
String |
255
|
Recommended |
Number of hours worked per week for Pay |
|
|
job_hr |
|
spc_ptcu |
String |
255
|
Recommended |
Specify Occupation and Size of Business- Patient current |
|
|
|
|
spc_mohi |
String |
255
|
Recommended |
Specify Occupation and Size of Business- Mother highest |
|
|
|
|
spc_fahi |
String |
255
|
Recommended |
Specify Occupation and Size of Business- Father highest |
|
|
|
Query
|
con_dx |
Float |
|
Recommended |
Consensus DSM-IV Diagnosis code |
|
295.0 = Schizophrenia, NOS; 295.1=Schizophrenia, Disorganized Type; 295.2=Schizophrenia, Catatonic Type; 295.3=Schizophrenia, Paranoid Type; 295.4=Schizophreniform Disorder; 295.6=Schizophrenia, Residual Type; 295.7=Schizoaffective Disorder; 295.9=Schizophrenia, Undifferentiated Type
|
|
Query
|
intrt |
Integer |
|
Recommended |
Treatment Status Code |
0::2
|
0=Baseline; 1=In Treatment; 2=In Follow-up
|
|
Query
|
trtgrp_p |
Integer |
|
Recommended |
Treatment Group |
1;2
|
1=Long-Acting Injectable Risperidone Microspheres; 2=Second Generation Oral Antipsychotic Medication
|
|
Query
|
days_visit1 |
Integer |
|
Recommended |
Days from Visit 1 |
|
|
dav1dhs |
Query
|
visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
|
|
|
spc_pthi |
String |
255
|
Recommended |
Specify Occupation and Size of Business-Patient Highest |
|
|
|
Query
|
rlhqlql |
Integer |
|
Recommended |
Patient's status is childbearing potential |
|
1=No; 2=Yes; 9=unknown
|
chdpot |
Query
|
numchild |
Integer |
|
Recommended |
number of children |
|
|
|
Query
|
dem14 |
Integer |
|
Recommended |
Household income |
1::4
|
1=24,999 or less; 2=25,000 - 49,999; 3=50,000 - 74,999; 4=75,000 or greater
|
|
Query
|
country_origin |
String |
100
|
Recommended |
Country of Origin |
|
|
|
Query
|
born_us |
Integer |
|
Recommended |
Were you born in the United States |
0;1;99
|
0=No;1=Yes;99=Prefer not to answer/Unknown
|
|
Query
|
read_eng |
Integer |
|
Recommended |
How well do you read English |
0::3; 8; 9
|
0 = Poor; 1 = Fair; 2 = Good; 3 = Excellent; 8 = Don¿t know; 9 = Refused
|
|
Query
|
write_eng |
Integer |
|
Recommended |
How well do you write in English |
0::3; 8; 9
|
0 = Poor; 1 = Fair; 2 = Good; 3 = Excellent; 8 = Don¿t know; 9 = Refused
|
|
Query
|
speak_eng |
Integer |
|
Recommended |
How well do you speak English? ¿Qué tan bien habla usted el inglés? |
0::3; 8; 9
|
0 = Poor/Mal; 1 = Fair/Regular; 2 = Good/Bien; 3 = Excellent/Excelente; 8 = Don't Know/No se; 9 = Refused/Niego contestar
|
|
Query
|
dem_ptd |
Integer |
|
Recommended |
Days from date of negative pregnancy test to baseline visit date |
|
|
|
Query
|
totaladults |
Integer |
|
Recommended |
How many total adults are in the home, including PCG? |
|
|
|
Query
|
zipdist |
Float |
|
Recommended |
Distance between home to clinic in miles |
|
|
|
Query
|
proccode |
Integer |
|
Recommended |
Procedure/rationale code for educational placement |
1::4
|
1=IEIS data collected before Week 4; 2=No IEIS data collected - Demographic data used with confirmation; 3=IEIS was collected later than 4 Weeks into the study and matched demographic information; 4=IEIS was collected later than 4 weeks into the study, and conflicted with demographic data regarding placement. Resolved by using all information available.
|
|
Query
|
eduplace |
Integer |
|
Recommended |
Educational placement code |
1::9
|
1=Full time Regular Ed without aide; 2=Full time Regular Ed with aide; 3=Regular Ed with "pull out" for certain subjects; 4=Special Ed classroom(minimal or no inclusion); 5=Special School (grade school);6=Home School; 7=Special Preschool; 8=Regular Preschool; 9=No School
|
|
Query
|
fdi_q19 |
Integer |
|
Recommended |
Household income |
1 :: 13
|
1=$20,000 or less; 2=$20,001-$40,000; 3=$40,001-$60,000; 4=$60,001-$80,000; 5=$80,001-$100,000; 6=$100,001 - $125,000; 7=$125,001-$150,000; 8=$150,000-$200,000; 9=$200,000 or higher; 10=I don't know; 11=I prefer not to answer; 12 = $60,001 - $90,000;13 = More than $90,000
|
|
Query
|
dadempl |
Integer |
|
Recommended |
In the current household, which of the following best describes the father's (father figure) current employment status? |
1::91
|
1 = Working full time
2 = Working part time
3 = Unemployed, looking for work
4 = Unemployed, not looking for work
5 = Keeping house
6 = Disabled
7 = Retired
8 = Student, full time
9 = Student, part time
10 = Other
62 = Disabled and working part time
81 = Student full time and working full time
82 = Student full time and working part time
91 = Student part time and working full time
|
|
Query
|
psysoc_214 |
String |
160
|
Recommended |
Employment: Other1: |
|
|
|
Query
|
psysoc_217 |
String |
160
|
Recommended |
Employment: Other2: |
|
|
|
Query
|
pre001 |
Integer |
|
Recommended |
Was a pregnancy test done? |
0;1; 3; -9
|
0=No; 1=Yes; -9 =unknown; 3=N/A
|
|
Query
|
ifna |
Integer |
|
Recommended |
If N/A checked (pregnancy test), please select one reason |
1::3
|
1 = Male; 2 = Premanarche; 3 = Other (specify)
|
|
Query
|
specify |
String |
200
|
Recommended |
If "Other", (pregnancy test N/A) specify - TEXT |
|
|
|
Query
|
pre004 |
Integer |
|
Recommended |
Pregnancy Test Result |
1;2;9;-9
|
1=Positive; 2=Negative; 9=Equivocal; -9=Unknown
|
|
Query
|
chi_living_other |
String |
255
|
Recommended |
child living arrangement_other |
|
Other living arrangement
|
|
Query
|
eop10 |
Integer |
|
Recommended |
Investigators Signature Day signed: |
|
Number of days from study baseline to date investigator's signature was obtained
|
|
Query
|
recscore |
String |
150
|
Recommended |
Recruitment score |
|
|
|
|
race_someother |
String |
100
|
Recommended |
What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? SOME OTHER RACE PX010601_Race_Some_Other_Race |
|
|
raceothr |
Query
|
race_refuse |
Integer |
|
Recommended |
What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? REFUSED PX010601_Race_Refused |
|
1=Yes; 2=No
|
raceref |
|
resp_ethnicity |
String |
30
|
Recommended |
Respondent's ethnicity |
|
|
|
Query
|
gender_identify |
Integer |
|
Recommended |
What is your current gender? |
1::7
|
1= Male; 2= Female; 3= TransMale/Transman; 4= TransFemale/Transwoman; 5= Genderqueer; 6= Additional category; 7= Decline to state
|
|
|
gender_identity_descrip |
String |
50
|
Recommended |
What is your gender? specify |
|
|
gender_spec |
Query
|
current_residence |
Integer |
|
Recommended |
What best describes your current residence? |
1::7
|
1= House; 2= Rowhouse or townhouse; 3= Mobile home; 4= Apartment or condominium; 5= Communal housing (e.g., dormitory, co-op, boarding house, etc.); 6= Healthcare facility or nursing home; 7= Homeless
|
|
Query
|
length_residence |
Integer |
|
Recommended |
How long have you lived at your current residence? |
0;1
|
0= Less than 2 years; 1= 2 or more years
|
|
Query
|
months_residence |
Integer |
|
Recommended |
How many months have you lived at your current residence? |
|
|
|
Query
|
financial_support |
Integer |
|
Recommended |
What is your annual household income? |
1::5
|
1= $0 - $24,999; 2= $25,000 - $49,999; 3= $50,000 - $74,999; 4= $75,000 - $99,999; 5= $100,000 or more
|
|
Query
|
degree |
Integer |
|
Recommended |
What type of college degree do you have? |
1::5
|
1 = Associate ; 2 = Bachelors; 3 = Masters; 4 = Doctorate; 5 = Other (specify)
|
|
Query
|
residence_length |
Integer |
|
Recommended |
How long has your family lived in your current home? |
|
|
years_residence |
Query
|
marriage_status |
Integer |
|
Recommended |
What is your current marital status? |
1::6
|
1= Never married; 2= Cohabiting with partner; 3= Married; 4= Separated; 5= Divorced; 6= Widowed
|
|
Query
|
household_number_in_house |
Integer |
|
Recommended |
Number of people living in primary residence for subject (proband) |
|
|
total_household |
Query
|
empl |
Integer |
|
Recommended |
Current employment status |
1::24; -7;999
|
1=Unemployed not looking for employment; 2=Unemployed looking for employment; 3=Full time employed for pay; 4=Part time employed for pay; 5=Self employed for pay; 6=Retired not working; 7=Unemployed, volunteer work; 8=Unemployed, disabled; 9=Other, specify; 10= Paid employment or self-employed; 11= Voluntary employment; 12= Sheltered/Welfare employment; 13= Unemployed; 14= Student; 15= Other; 16= Stay-at-home Parent; 17= Part-Time Student; 18= Receiving Disability/ Unemployed; 19= Receiving Disability with Part-Time Employment; 20= Retired, Part-Time Employment; 21= Retired, Unemployed; 22= Full-time Caregiver; 23= Student and Employed; 24= Homemaker; -7=Refused; 999= Missing
|
employment |
Query
|
student |
Integer |
|
Recommended |
Currently a student |
0::2;-5;-999
|
0=No; 1=Yes; 2=Part time; -5=item seen but not answered; -999=data not submitted (incomplete)
|
|
Query
|
medcaidb |
Integer |
|
Recommended |
Medicaid: Medicaid managed care |
0;1
|
0 = No; 1 = Yes
|
medicare |
Query
|
insmedc |
Integer |
|
Recommended |
Medicaire |
0;1
|
0 = Not Checked; 1 = Checked;
|
medicaid |
Query
|
inspp |
Integer |
|
Recommended |
Private plan (e.g., BC/BS, Aetna) |
0;1
|
0 = Not Checked; 1 = Checked;
|
private_insurance |
|
fbq_rel_p1 |
Integer |
|
Recommended |
What is Parent/Legal Guardian 1's relationship to the study participant? |
1 :: 8; 9999
|
1= Biological mother; 2= Biological father; 3= Step-mother; 4= Step-father; 5= Adoptive mother; 6= Adoptive father; 7= Other female guardian/relative; 8= Other male guardian/relative; 9999= Missing Data
|
|
|
fbq_rel_p2 |
Integer |
|
Recommended |
What is Parent/Legal Guardian 2's relationship to the study participant? |
1 :: 8; 9999
|
1= Biological mother; 2= Biological father; 3= Step-mother; 4= Step-father; 5= Adoptive mother; 6= Adoptive father; 7= Other female guardian/relative; 8= Other male guardian/relative; 9999= Missing Data
|
|
|
fbq2_inc |
Integer |
|
Recommended |
What is the approximate yearly income of participant's household? |
1 :: 7; 9999
|
1= Less than $25,000; 2= $25,000 - $50,000; 3= $50,001 - $75,000; 4= $75,001 - $100,000; 5= $100,001 - $150,000; 6= $150,001 - $250,000; 7= More than $250,000; 9999= Missing Data
|
|
|
fbq_race___5 |
Integer |
|
Recommended |
Participants Race: Native Hawaiian or Other Pacific Islander (Y/N) |
0 :: 1; 9999
|
0= No; 1=Yes; 9999=Missing
|
|
|
fbq_primary_english |
Integer |
|
Recommended |
Is English the primary language spoken in the home? (Y/N) |
0 :: 1
|
0= No; 1=Yes
|
|
|
fbq_edutype_p1 |
Integer |
|
Recommended |
What is Parent/Legal Guardian 1's highest level of education completed? |
1 :: 9; 9999
|
1= Kindergarten-8th grade (some or all); 2= Some high school; 3= Graduated high school/GED; 4= Some college or technical school; 5= Graduated with an associates/technical college degree; 6= Graduated college with a B.A./B.S.; 7= Some graduate work; 8= Master's/other graduate degree; 9= Terminal degree (Ph.D., M.D., MFA); 9999= N/A or Prefer Not to Answer
|
|
|
fbq_edutype_p2 |
Integer |
|
Recommended |
What is Parent/Legal Guardian 2's highest level of education completed? |
1 :: 9; 9999
|
1= Kindergarten-8th grade (some or all); 2= Some high school; 3= Graduated high school/GED; 4= Some college or technical school; 5= Graduated with an associates/technical college degree; 6= Graduated college with a B.A./B.S.; 7= Some graduate work; 8= Master's/other graduate degree; 9= Terminal degree (Ph.D., M.D., MFA); 9999= N/A or Prefer Not to Answer
|
|
|
fbq_race___9999 |
Integer |
|
Recommended |
Participants Race: N/A or Prefer Not to Answer (Y/N) (If Yes is selected, race variables 1-5 will be all have missing data values) |
0 :: 1
|
0= No; 1=Yes
|
|
|
fbq_race___1 |
Integer |
|
Recommended |
Participants Race: American Indian or Alaskan Native (Y/N) |
0 :: 1; 9999
|
0= No; 1=Yes; 9999=Missing
|
|
|
fbq_race___2 |
Integer |
|
Recommended |
Participants Race: Asian (Y/N) |
0 :: 1; 9999
|
0= No; 1=Yes; 9999=Missing
|
|
|
fbq_race___3 |
Integer |
|
Recommended |
Participants Race: African-American or Black (Y/N) |
0 :: 1; 9999
|
0= No; 1=Yes; 9999=Missing
|
|
|
fbq_race___4 |
Integer |
|
Recommended |
Participants Race: White (Y/N) |
0 :: 1; 9999
|
0= No; 1=Yes; 9999=Missing
|
|