|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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Query
|
asd_yes_no |
String |
10
|
Required |
Has the subject been diagnosed with Autism Spectrum Disorder? |
|
NK = Not known
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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asd_when |
String |
32
|
Recommended |
when was the ASD diagnosed? |
|
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asd_where |
String |
200
|
Recommended |
where was the ASD diagnosed? |
|
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Query
|
asd_diagnosis |
Integer |
|
Required |
If yes, What was the previous diagnosis of Autism Spectrum Disorder? |
1;2;3;999
|
1 = Autism; 2 = Aspergers; 3 = PDD-NOS
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asd_details |
String |
200
|
Recommended |
Details of ASD diagnosis |
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Query
|
dd_yes_no |
String |
10
|
Recommended |
Has the subject been diagnosed with Developmental Disorder? |
|
NK = Not known
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Query
|
dd_when |
String |
32
|
Recommended |
when was the DD diagnosed? |
|
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dd_where |
String |
200
|
Recommended |
where was the DD diagnosed? |
|
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Query
|
dd_diagnosis |
Integer |
|
Recommended |
If Yes, What was the previous diagnosis of Developmental Disorder? |
1;2;3;4
|
1 = Chromosome disorder; 2 = Syndrome; 3 = Learning disability; 4 = Other
|
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dd_details |
String |
200
|
Recommended |
Details of DD diagnosis |
|
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Query
|
wechslertest |
Integer |
|
Recommended |
Has Wechsler (WISC, WPPSI) test been done? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
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Query
|
leitertest |
Integer |
|
Recommended |
Has Leiter test been done? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
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Query
|
denvertest |
Integer |
|
Recommended |
Has Denver Developmental test been done? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
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Query
|
vinelandtest |
Integer |
|
Recommended |
Has Vineland test been done? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
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Query
|
otherdevelopmentaltest |
Integer |
|
Recommended |
Has any other developmental test been done? |
|
0 = No/False; 1 = Yes/True; 2 = Unknown
|
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|
developmentaltestdetails |
String |
200
|
Recommended |
Details of other developmental tests |
|
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Query
|
iq_assessment |
Integer |
|
Recommended |
the IQ score |
1 :: 10
|
1 = Superior >130+; 2 = High average 116-130; 3 = Average 85-115; 4 = Borderline 71-84; 5 = Mild MR 55-70; 6 = Moderate MR 40-54; 7 = Severe MR 20-39; 8 = Profound MR <20; 9 = Unspecified MR; 10 = Unknown
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|
Query
|
motherhandedness |
Integer |
|
Recommended |
Handedness of the Child's Mother |
1;2;3
|
1 = Left; 2 = Right; 3 = Ambidextrous
|
|
Query
|
fatherhandedness |
Integer |
|
Recommended |
Handedness of the Child's Father |
1;2;3
|
1 = Left; 2 = Right; 3 = Ambidextrous
|
|
Query
|
tics |
Integer |
|
Recommended |
Does (did) the Child have Tics? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
tremors |
Integer |
|
Recommended |
Does (did) the Child have Tremors? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
hypotonia |
Integer |
|
Recommended |
Does (did) the Child have Hypotonia (low muscle tone)? |
0;1;2
|
0 = No; 1 = Yes; 2 = Not known
|
|
Query
|
hypertonia |
Integer |
|
Recommended |
Does (did) the Child have Hypertonia (tight muscle tone)? |
0;1;2
|
0 = No; 1 = Yes; 2 = Not known
|
|
Query
|
attentiondisorder |
Integer |
|
Recommended |
Does (did) the subject have Attention Deficit Disorder +/- Hyperactivity? |
|
0 = No/False; 1 = Yes/True; 2 = Unknown
|
|
Query
|
abnormalsedationresponse |
Integer |
|
Recommended |
was there an abnormal sedation response? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
toewalker |
Integer |
|
Recommended |
Does (did) the Child have Toe walker? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
|
toewalkerdetails |
String |
255
|
Recommended |
If Yes, Describe at what ages, any treatments, etc. |
|
|
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Query
|
unusualwalkpattern |
Integer |
|
Recommended |
Does (did) the Child have Unusual walking pattern? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
balanceproblem |
Integer |
|
Recommended |
Does (did) the Child have Balance problem? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
coordinationproblem |
Integer |
|
Recommended |
Does (did) the Child have Coordination problem/clumsy? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
hearingloss |
Integer |
|
Required |
Hearing Loss: Does (did) the subject have Hearing loss? |
|
0 = No/False; 1 = Yes/True; 2 = Unknown
|
|
Query
|
hearinglosstype |
Integer |
|
Recommended |
Is the Child's Hearing loss Sensorineural or Conductive? |
1;2
|
1 = Sensorineural; 2 = Conductive
|
|
Query
|
hearinglosscorrectable |
Integer |
|
Recommended |
If Yes, Is the Child's Hearing loss Correctable? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
usehearingaid |
Integer |
|
Recommended |
If Yes, Does the Child Uses hearing aid? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
soundsensitive |
Integer |
|
Recommended |
If Yes, Does the Child have Sound sensitivity? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
visionproblems |
Integer |
|
Recommended |
Vision: Does (did) the subject have Vision/eye problems? |
|
0 = No/False; 1 = Yes/True; 2 = Unknown
|
|
|
visionproblemdetail |
String |
300
|
Recommended |
Details of the vision problem |
|
|
|
Query
|
vsionproblemcorrectable |
Integer |
|
Recommended |
If Yes, What the Vision/eye problems correctable? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
weareyeglasses |
Integer |
|
Recommended |
Does (did) the Child wear Glasses/lenses? |
0;1;2
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
migraineheadache |
Integer |
|
Required |
Does (did) the Child have Migraine headaches? |
0;1;2;999
|
0 = No; 1 = Yes; 2 = Unknown
|
|
Query
|
paintolerance |
Integer |
|
Recommended |
How is the Child's Pain Tolerance? |
1;2;3;4
|
1 = Very high; 2 = High; 3 = Normal; 4 = Low
|
|
Query
|
seizures |
Integer |
|
Required |
Does (did) the subject have Seizures? |
|
0 = No; 1 = Yes; 2 = Unknown; 999 =NA/missing
|
|
Query
|
seizuretype |
Integer |
|
Recommended |
If Yes, What type of seizures does the Child have? |
1;2;3;4;5;6
|
1 = Febrile; 2 = Myoclonic; 3 = Grand mal; 4 = Complex partial; 5 = Petit mal; 6 = Other
|
|
Query
|
ctscanofbrain |
String |
10
|
Recommended |
Did the subject take a CT scan of brain? |
|
NK = Not known
|
|
Query
|
ctscanresult |
Integer |
|
Recommended |
Details of MRI/CT scan result(s) |
1;2;3
|
1 = Normal; 2 = Abnormal; 3 = Unknown
|
|
Query
|
mribrainscan |
String |
10
|
Recommended |
Did the subject take an MRI scan of brain? |
|
NK = Not known
|
|
Query
|
mriscanresults |
Integer |
|
Recommended |
Details of the brain MRI result(s) |
1;2;3
|
1 = Normal; 2 = Abnormal; 3 = Unknown
|
|
Query
|
eegtest |
String |
10
|
Recommended |
Did the subject take a EEG exam? |
|
NK = Not known
|
|
Query
|
eegresults |
Integer |
|
Recommended |
Details of the EEG result(s) |
1;2;3
|
1 = Normal; 2 = Abnormal; 3 = Unknown
|
|
|
neurologictestdetails |
String |
255
|
Recommended |
Details/Examples |
|
|
|
Query
|
sweatabnormally |
String |
6
|
Recommended |
Sweat Does (did) the Child Sweat abnormally? |
TRUE;FALSE
|
|
|
Query
|
sweattoolittle |
String |
6
|
Recommended |
Does (did) the Child Sweat too little and gets overheated in the summer? |
TRUE;FALSE
|
|
|
Query
|
sweattoomuch |
String |
6
|
Recommended |
Does (did) the Child Sweat too much? |
TRUE;FALSE
|
|
|
Query
|
sweatmuchcold |
String |
6
|
Recommended |
Does (did) the Child Sweat too much in cold weather? |
TRUE;FALSE
|
|
|
Query
|
sweatmuchatnight |
String |
6
|
Recommended |
Does (did) the Child Sweat too much at night? |
TRUE;FALSE
|
|
|
Query
|
sweatmuchother |
String |
6
|
Recommended |
Does (did) the Child Sweat too much at other conditions? |
TRUE;FALSE
|
|
|
Query
|
abnormal_saliva |
String |
6
|
Recommended |
Saliva Does (did) the Child produce abnormal amount of saliva? |
TRUE;FALSE
|
|
|
Query
|
saliva_dry_mouth |
String |
6
|
Recommended |
Is (was) the abnormality Dry mouth? |
TRUE;FALSE
|
|
|
Query
|
saliva_too_much |
String |
6
|
Recommended |
Is (was) the abnormality too much saliva? |
TRUE;FALSE
|
|
|
Query
|
saliva_drools |
String |
6
|
Recommended |
Is (was) the abnormality Drools a lot? |
TRUE;FALSE
|
|
|
Query
|
abnormalurination |
String |
6
|
Recommended |
Does (did) the Child have trouble with Urination? |
TRUE;FALSE
|
|
|
Query
|
urination_toilet_trained |
String |
6
|
Recommended |
Is the child toilet trained? |
TRUE;FALSE
|
|
|
Query
|
urination_night_wetting |
String |
6
|
Recommended |
Does the child have night-wetting issue? |
TRUE;FALSE
|
|
|
Query
|
urination_retain |
String |
6
|
Recommended |
Does the child have bladder retaining issue? |
TRUE;FALSE
|
|
|
Query
|
red_handfeet |
String |
6
|
Recommended |
Does (did) the Child have Red hands and/or feet? |
TRUE;FALSE
|
|
|
Query
|
cold_handfeet |
String |
6
|
Recommended |
Does (did) the Child have Cold or clammy hands and feet, even in normal ambient temperature? |
TRUE;FALSE
|
|
|
Query
|
abnormal_vomit_swallow |
String |
6
|
Recommended |
Does (did) the Child have trouble with Vomitting or Swallowing? |
TRUE;FALSE
|
|
|
Query
|
vomitasbaby |
String |
6
|
Recommended |
Did the child vomit as a baby? |
TRUE;FALSE
|
|
|
Query
|
vomitgerd |
String |
6
|
Required |
Is the child diagnosedwith GERD? |
TRUE;FALSE;999
|
|
|
Query
|
troublewithsolid |
String |
6
|
Recommended |
Does the child have trouble with solid? |
TRUE;FALSE
|
|
|
Query
|
troublewithliquid |
String |
6
|
Recommended |
Does the child have trouble with liquid? |
TRUE;FALSE
|
|
|
Query
|
trouble_swallow_other |
String |
6
|
Recommended |
Does the child have other swallow issues? |
TRUE;FALSE
|
|
|
Query
|
hasfainted |
String |
6
|
Recommended |
Has the Child ever fained? |
TRUE;FALSE
|
|
|
Query
|
abnormal_blood_pressure |
String |
6
|
Recommended |
Was the Child diagnosed with Low Blood Pressure or "Orthostatic Hypotension"? |
TRUE;FALSE
|
|
|
Query
|
decrease_heartrate |
String |
6
|
Recommended |
Was the Child diagnosed with a Hyperactive or Decreased Heart Rate? |
TRUE;FALSE
|
|
|
Query
|
abnormal_breath |
String |
6
|
Recommended |
Does (did) the Child have an Abnormal Breathing Pattern? |
TRUE;FALSE
|
|
|
|
ans_details |
String |
255
|
Recommended |
Details/Examples |
|
|
|
Query
|
gi_bellypain |
String |
6
|
Recommended |
In the last 3 months, has the Child had Abdominal (belly) Pain? |
TRUE;FALSE
|
|
|
Query
|
gi_bellypain_duration |
Integer |
|
Recommended |
Duration of the belly pain? |
1;2;3;4;5
|
1 = <3 months; 2 = 3-5 months; 3 = 6-11 months; 4 = 1 year or longer; 5 = Unsure
|
|
Query
|
gi_constipation |
String |
6
|
Recommended |
In the last 3 months, has the Child had Constipation? |
TRUE;FALSE
|
|
|
Query
|
gi_constipation_duration |
Integer |
|
Recommended |
Duration of the constipation? |
1;2;3;4;5
|
1 = <3 months; 2 = 3-5 months; 3 = 6-11 months; 4 = 1 year or longer; 5 = Unsure
|
|
Query
|
gi_diarrhea |
String |
6
|
Recommended |
In the last 3 months, has the Child had Diarrhea (loose or watery stools)? |
TRUE;FALSE
|
|
|
Query
|
gi_diarrhea_duration |
Integer |
|
Recommended |
Duration of the diarrhea? |
1;2;3;4;5
|
1 = <3 months; 2 = 3-5 months; 3 = 6-11 months; 4 = 1 year or longer; 5 = Unsure
|
|
Query
|
gi_nausea |
String |
6
|
Recommended |
In the last 3 months, has the Child had Nausea? |
TRUE;FALSE
|
|
|
Query
|
gi_nausea_duration |
Integer |
|
Recommended |
Duration of the nausea problem? |
1;2;3;4;5
|
1 = <3 months; 2 = 3-5 months; 3 = 6-11 months; 4 = 1 year or longer; 5 = Unsure
|
|
Query
|
gi_bloating |
String |
6
|
Recommended |
In the last 3 months, has the Child had Bloating? |
TRUE;FALSE
|
|
|
Query
|
gi_bloating_duration |
Integer |
|
Recommended |
Duration of the bloating problem? |
1;2;3;4;5
|
1 = <3 months; 2 = 3-5 months; 3 = 6-11 months; 4 = 1 year or longer; 5 = Unsure
|
|
Query
|
gi_nothungry |
String |
6
|
Recommended |
In the last 3 months, has the Child been not hungry after eating very little? |
TRUE;FALSE
|
|
|
Query
|
gi_nothungry_duration |
Integer |
|
Recommended |
Duration of the "not hungry" problem? |
1;2;3;4;5
|
1 = <3 months; 2 = 3-5 months; 3 = 6-11 months; 4 = 1 year or longer; 5 = Unsure
|
|
Query
|
gi_othersymptom |
String |
6
|
Recommended |
In the last 3 months, has the Child had Other gastrointestinal (tummy) symptoms not listed? |
TRUE;FALSE
|
|
|
Query
|
gi_other_duratioin |
Integer |
|
Recommended |
Duration of the other GI symptoms? |
1;2;3;4;5
|
1 = <3 months; 2 = 3-5 months; 3 = 6-11 months; 4 = 1 year or longer; 5 = Unsure
|
|
|
other_gi_symptom_detail |
String |
255
|
Recommended |
Desribe other GI symptoms |
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
Query
|
handedness |
String |
29
|
Recommended |
handedness |
|
R = Right; L = Left; B = Both; 999= No Answer; 888= Skipped; 777= Condition Skipped; 555= Missing
|
|