|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0 :: 1260
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
|
study_info |
String |
250
|
Recommended |
How did you learn about study |
|
|
|
Query
|
brochure |
Integer |
|
Recommended |
Did you receive a brochure with information about the study |
0;1
|
0=No; 1=Yes
|
|
Query
|
bio_parent |
Integer |
|
Recommended |
Are you a biological parent to the child |
0;1; -99; 88; 77
|
0=No; 1=Yes; -99= N/A ; 88= Missing ; 77= Refused
|
|
Query
|
early_dev_parent |
Integer |
|
Recommended |
Have you been a parent to the child during his/her early development between the ages of 0 and 4. |
0;1
|
0=No; 1=Yes
|
|
Query
|
ethnic_group |
String |
255
|
Recommended |
Ethnic group |
|
|
|
Query
|
lang_raised |
String |
150
|
Recommended |
What language were you raised with? |
|
|
|
Query
|
spoken_lang |
Integer |
|
Recommended |
Are you more comfortable speaking |
1::3
|
1=more comfortable speaking Spanish than English; 2=equally comfortable speaking Spanish and English; 3=more comfortable speaking English than Spanish
|
|
Query
|
span_level |
Integer |
|
Recommended |
How well do you feel you speak Spanish |
1::4
|
1=poor; 2=fair; 3=good; 4= excellent
|
|
Query
|
child_age |
Integer |
|
Recommended |
how old is your child; months |
0 :: 1200
|
|
|
Query
|
livewith |
Integer |
|
Recommended |
Does this child currently live with you? |
0;1
|
0=No; 1=Yes
|
|
Query
|
devass |
Integer |
|
Recommended |
Has your child had a developmental assessment by a doctor or psychologist, for example at the uic family clinics? |
0::2
|
0 = No; 1-Yes; 2= Don't know
|
|
|
primary_diagnosis |
String |
200
|
Recommended |
Primary diagnosis of subject |
|
|
|
Query
|
aut_diag |
Integer |
|
Required |
Autism-related diagnosis |
1::4;999
|
1 = Autism; 2 = Autism Spectrum Disorder; 3 = Asperger syndrome; 4 = PDD-NOS
|
|
Query
|
diag_ageatdiag |
Integer |
|
Recommended |
Age at diagnosis(in months) |
|
|
|
Query
|
diagnosis_autism_madeby |
String |
100
|
Recommended |
If the participant has been diagnosed with autism, who gave this diagnosis? |
|
|
|
Query
|
mr_diagnosis |
Integer |
|
Recommended |
Mental Retardation: Formal diagnosis |
0;1;-7;-8;-9
|
0 = No; 1 = Yes; -7 = Don't know; -8 = Refused to answer; -9 = Does not apply
|
|
Query
|
mrdiag_madeby |
String |
100
|
Recommended |
Where did you receive the diagnosis. Intellectual Disability/Mental Retardation |
|
|
|
Query
|
mrdiag_age |
Integer |
|
Recommended |
How old was your child when he/she received the diagnosis? Intellectual Disability/Mental Retardation |
|
|
|
Query
|
cfmh_chd_devdelay |
Integer |
|
Recommended |
Does (did) the Child have a Developmental Delay? |
1;0
|
0 = No; 1 = Yes
|
|
Query
|
dddiag_madeby |
String |
100
|
Recommended |
Where did you receive the diagnosis. Developmental Delay |
|
|
|
Query
|
dddiag_age |
Integer |
|
Recommended |
How old was your child when he/she received the diagnosis? Developmental Delay |
|
|
|
Query
|
ds_diag |
Integer |
|
Recommended |
Down Syndrome diagnosis |
0;1
|
0=No; 1=Yes
|
|
Query
|
dsdiag_madeby |
String |
100
|
Recommended |
Where did you receive the diagnosis. Down Syndrome |
|
|
|
Query
|
dsdiag_age |
Integer |
|
Recommended |
How old was your child when he/she received the diagnosis? Down Syndrome |
|
|
|
Query
|
cfmh_chd_cerpalsy |
Integer |
|
Required |
Has she/he ever been to a doctor for any of these things…Cerebral Palsy /Parálisis Cerebral |
1;0;999
|
0 = No; 1 = Yes //Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life.
|
|
|
cpdiag_madeby |
String |
100
|
Recommended |
Where did you receive the diagnosis. Cerebral Palsy |
|
|
|
Query
|
cpdiag_age |
Integer |
|
Recommended |
How old was your child when he/she received the diagnosis? Cerebral Palsy |
|
|
|
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
|