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NIMH Data Archive
NDA ABCD CCF OAI NIAAADA AMP SCZ HEAL NBB

ABCD Follow-Up Scheduling Screener

0 Shared Subjects

ABCD Follow-Up Scheduling Screener
Clinical Assessments
Questionnaire
04/13/2020
abcd_screen02
10/27/2020
View Change History
02
Definition
Submission Template
Query Element Name Data Type Size Required Condition Description Value Range Notes Aliases
subjectkey GUID Required The NDAR Global Unique Identifier (GUID) for research subject NDAR*
src_subject_id String 20 Required Subject ID how it's defined in lab/project
interview_date Date Required Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY
interview_age Integer Required Age in months at the time of the interview/test/sampling/imaging. 0::1440 Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
sex String 20 Required Sex of subject at birth M;F; O; NR M = Male; F = Female; O=Other; NR = Not reported gender
eventname String 60 Required The event name for which the data was collected
scrn2_select_language___1 Integer Recommended Espanol? 0 ; 1 0 = No; 1 = Yes screener_select_language_v2
scrn_braces_v2 Integer Recommended Does (Child's name) have metal braces spacers or other dental appliances that you cannot remove? 1= Yes; 0= No screener_2yr_braces_v2
scrn_future_braces Integer Recommended scrn_braces_v2 == 0 || scrn_braces_v2 == 2 Is your child scheduled to have any dental appliances applied within the next few weeks? 1;0 screener_2yr_future_braces
scrn_bracesdate_v2 String 250 Recommended scrn_braces_v2 == 1 || scrn_future_braces == 1 If they are removable when could they come off? screener_2yr_bracesdate_v2
scrn_bracescallback_v2 Integer Recommended scrn_braces_v2 == 1 || scrn_future_braces == 1 If the removal is +/-90 days of ideal visit date delay appointment until braces are off. If braces removal is known to be happening +/- 365 days of ideal date the appointment CAN be delayed. If removal is not within +/-365 range bring child in +/-90 days of ideal visit to complete all portions of the protocol except the MRI (do fMRI tasks behaviorally. 0::2 2= Removal is more than +/-90=days but less than +/-365 days- delay appointment & re-administer FUSS; 1= Removal is scheduled +/-90=days of ideal visit- delay appt until removed; 0= Removal is not within +/-365 range- schedule child within +/-90=days for non-imaging appt if there are no other concerns screener_2yr_bracescallback_v2
scrn_nr_hair_v2 Integer Recommended scrn_future_braces == 0 || scrn_bracescallback_v2 == 1 Does your child have any new hair extensions or a hair piece? screener_2yr_nr_hair_v2
scrn_nr_hair_metal_v2 Integer Recommended scrn_nr_hair_v2 == 1 Do the extensions or hair piece contain metal fasteners or any other metallic elements? screener_2yr_nr_hair_metal_v2
scrn_nr_hair_remove Integer Recommended scrn_nr_hair_metal_v2 == 1 Can they be removed for the MRI scan or within the next few months? screener_2yr_nr_hair_remove
scrn_nr_hair_date_v2 Integer Recommended scrn_nr_hair_remove == 0 When will they be able to be removed? screener_2yr_nr_hair_date_v2
scrn_nr_hair_callback_v2 Integer Recommended scrn_nr_hair_remove == 0 If removal is within =/- 90 days of ideal date schedule after removal within +/-90 period.i. If removal is not within +/-365 range bring child in +/-90 days of ideal visit to complete all portions of the protocol except the MRI (do fMRI tasks behaviorally. If parent is unsure ask for their best guess; if estimated removal is within =/- 90 days of ideal date schedule after removal within +/-90 period. 1;0 1= Removal is scheduled +/-90=days of ideal visit- delay appt until removed if no other contraindications or concerns; 0= Removal is not within +/-365 range- schedule child within +/-90=days for non-imaging appt if there are no other concerns screener_2yr_nr_hair_callback_v2
scrn_eyeliner_v2 Integer Recommended scrn_nr_hair_v2 == 0 || scrn_nr_hair_metal_v2 == 0 || scrn_nr_hair_remove == 1 || scrn_nr_hair_callback_v2 == 1 Does your child have tattooed eyeliner or permanent eyebrow fill-in or permanent makeup? 1;0 1= Yes - consult local expert to determine how to proceed with scan; 0= No screener_2yr_eyeliner_v2
scrn_nr_piercing_v2 Integer Recommended scrn_eyeliner_v2 == 0 || scrn_eyeliner_v2 == 1 Does your child have any new metal piercings on his/her head face tongue neck or chest? screener_2yr_nr_piercing_v2
scrn_nr_piercing_remove Integer Recommended scrn_nr_piercing_v2 == 1 Can they be removed for the follow-up visit? screener_2yr_nr_piercing_remove
scrn_nr_piercing_date Integer Recommended scrn_nr_piercing_remove == 0 When can they be removed for the scan? screener_2yr_nr_piercing_date
scrn_nr_piercing_callback Integer Recommended scrn_nr_piercing_remove == 0 If removal is within =/- 90 days of ideal date schedule after removal within +/-90 period.i. If removal is not within +/-365 range bring child in +/-90 days of ideal visit to complete all portions of the protocol except the MRI (do fMRI tasks behaviorally.<span/>If parent is unsure ask for their best guess; if estimated removal is within =/- 90 days of ideal date schedule after removal within +/-90 period. 1;0 1= Removal is scheduled +/-90=days of ideal visit- delay appt until removed if no other contraindications or concerns; 0= Removal is not within +/-365 range- schedule child within +/-90=days for non-imaging appt if no other concerns screener_2yr_nr_piercing_callback
scrn_surgery_v2 Integer Recommended scrn_nr_piercing_v2 == 0 || scrn_nr_piercing_remove == 1 || scrn_nr_piercing_callback == 1 Has your child had any surgery or procedures involving implants or insertion of non-removable devices into the body (e.g. pacemaker clips heart valve ocular or cochlear implants prosthesis stimulator wire sutures shunts rods metal mesh IUD tissue expander joint replacement)? "Ha tenido su nio(a) alguna ciruga o procedimientos que impliquen implantes o insercin de dispositivos no extrables en el cuerpo (por ejemplo marcapasos clips vlvula cardaca implantes oculares o cocleares prtesis estimulador suturas de alambre derivaciones varillas malla de metal DIU expansor de tejido reemplazo de articulacin)? 1;0 1= Yes - schedule child within +/-90=days for non-imaging appt if no other concerns; 0= No screener_2yr_surgery_v2
scrn_height_v2 Integer Recommended scrn_surgery_v2 == 0 What is (Child's name)'s height?" (inches) screener_2yr_height_v2
scrn_weight_v2 Integer Recommended scrn_surgery_v2 == 0 What is (Child's name)'s weight? (pounds) screener_2yr_weight_v2
scrn_concerns Integer Recommended scrn_bracescallback_v2 == 0 || scrn_surgery_v2 == 0 || scrn_nr_piercing_callback == 0 || scrn_nr_hair_callback_v2 == 0 || scrn_surgery_v2 == 1 Similar to your first visit this visit will involve your child working with our research team to answer questions and solve puzzles on an iPad follow directions and lie still in the MRI scanner. Do you have any concerns about (Child's name)'s ability to do these things that have not already been discussed? 1;0 1= Yes- consult PI on parent's concerns; 0= No screener_2yr_concerns
scrn_concerns_desc String 250 Recommended scrn_concerns == 1 What are your concerns? screener_2yr_concerns_desc
scrn_health_issues Integer Recommended scrn_concerns == 1 || scrn_concerns == 0 Has your child had any recent health problems since we last saw him/her about a year ago? screener_2yr_health_issues
scrn_health_describe String 250 Recommended scrn_health_issues == 1 What health problems would that be?" Depending on the problem you may need to consult your PI. We want to make sure the youth is able to safely and comfortably complete the protocol. screener_2yr_health_describe
scrn_meds Integer Recommended scrn_health_issues == 1 || scrn_health_issues == 0 Is your child currently taking any new medications? screener_2yr_meds
scrn_meds_describe String 250 Recommended scrn_meds == 1 What kind of medications? If the medication(s) could impact youth's performance consider postponing or rescheduling. screener_2yr_meds_describe
scrn_time_v2 String 30 Recommended Time of screener completion: screener_2yr_time_v2
scrn_status_2_v2___1 Integer Recommended scrn_bracescallback_v2 == 1 || scrn_nr_hair_callback_v2 == 1 || scrn_nr_piercing_callback == 1 || scrn_concerns == 1 || scrn_eyeliner_v2 == 1 || scrn_health_issues == 1 || scrn_meds == 1 Screener Status: Consult PI or expert on child's condition or situation 0::2 0= Consult PI or expert on child's condition or situation; 1= Delay appt for removable contraindication health issue or medication; 2= PI consulted or health issue/medication will not impact youth's performance screener_2yr_status_2_v2___1
scrn_status_2_v2___2 Integer Recommended scrn_bracescallback_v2 == 1 || scrn_nr_hair_callback_v2 == 1 || scrn_nr_piercing_callback == 1 || scrn_concerns == 1 || scrn_eyeliner_v2 == 1 || scrn_health_issues == 1 || scrn_meds == 1 Screener Status: Delay appt for removable contraindication health issue or medication 0::2 0= Consult PI or expert on child's condition or situation; 1= Delay appt for removable contraindication health issue or medication; 2= PI consulted or health issue/medication will not impact youth's performance screener_2yr_status_2_v2___2
scrn_status_2_v2___0 Integer Recommended scrn_bracescallback_v2 == 1 || scrn_nr_hair_callback_v2 == 1 || scrn_nr_piercing_callback == 1 || scrn_concerns == 1 || scrn_eyeliner_v2 == 1 || scrn_health_issues == 1 || scrn_meds == 1 Screener Status : PI consulted or health issue/medication will not impact youth's performance 0::2 0= Consult PI or expert on child's condition or situation; 1= Delay appt for removable contraindication health issue or medication; 2= PI consulted or health issue/medication will not impact youth's performance screener_2yr_status_2_v2___0
scrn_status_2_v3 Integer Recommended ((scrn_bracescallback_v2 == 0 || scrn_nr_hair_callback_v2 == 0 || scrn_nr_piercing_callback == 0 || scrn_eyeliner_v2 == 0 || scrn_surgery_v2 == 1) && scrn_concerns == 0) || scrn_status_2_v2(2) == 1 || (scrn_concerns == 0 && scrn_eyeliner_v2 <> 1) Screener Status 0;1 0= Schedule for 2-year follow-up appt; 1= Schedule for non-imaging 2-year follow up appt screener_2yr_status_2_v3
checkbox_reminders_fuss___1 Integer Recommended Please check yes if you would like to display reminders for the 2 year followup visit 0;1 1= yes checkbox_reminders_fuss, screener_2yr_checkbox_reminders_fuss
Data Structure

This page displays the data structure defined for the measure identified in the title and structure short name. The table below displays a list of data elements in this structure (also called variables) and the following information:

  • Element Name: This is the standard element name
  • Data Type: Which type of data this element is, e.g. String, Float, File location.
  • Size: If applicable, the character limit of this element
  • Required: This column displays whether the element is Required for valid submissions, Recommended for valid submissions, Conditional on other elements, or Optional
  • Description: A basic description
  • Value Range: Which values can appear validly in this element (case sensitive for strings)
  • Notes: Expanded description or notes on coding of values
  • Aliases: A list of currently supported Aliases (alternate element names)
  • For valid elements with shared data, on the far left is a Filter button you can use to view a summary of shared data for that element and apply a query filter to your Cart based on selected value ranges

At the top of this page you can also:

  • Use the search bar to filter the elements displayed. This will not filter on the Size of Required columns
  • Download a copy of this definition in CSV format
  • Download a blank CSV submission template prepopulated with the correct structure header rows ready to fill with subject records and upload

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