|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
skills_loss |
Integer |
|
Recommended |
Was your child's loss of skills gradual or sudden? |
1;2;9
|
1 = Gradual; 2 = Sudden; 9 = Don't know/NA
|
losssuddenorgradual |
Query
|
noskilldelay |
Integer |
|
Recommended |
If no skills seem to have been delayed ask In your judgment was your child typically developing prior to hisher loss of skills |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
numoflosses |
Integer |
|
Recommended |
If yes ask How many separate regressions |
|
|
|
Query
|
severallosses |
Integer |
|
Recommended |
If losses appeared within several timeframes ask Do you feel like your child had number of separate regressions |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p1beginningage |
Integer |
|
Recommended |
Skill 1. Beginning at what age |
|
|
|
Query
|
p1extentskilllost |
Integer |
|
Recommended |
Skill 1. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p1present3mths |
Integer |
|
Recommended |
Skill 1. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p1skilllost |
Integer |
|
Recommended |
Skill 1. When was this skill lost months |
|
|
|
Query
|
p1skillregained |
Integer |
|
Recommended |
Skill 1. When was it regained months |
|
|
|
Query
|
p2beginningage |
Integer |
|
Recommended |
Skill 2. Beginning at what age |
|
|
|
Query
|
p2extentskilllost |
Integer |
|
Recommended |
Skill 2. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p2present3mths |
Integer |
|
Recommended |
Skill 2. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p2skilllost |
Integer |
|
Recommended |
Skill 2. When was this skill lost months |
|
|
|
Query
|
p2skillregained |
Integer |
|
Recommended |
Skill 2. When was it regained months |
|
|
|
Query
|
p3beginningage |
Integer |
|
Recommended |
Skill 3. Beginning at what age |
|
|
|
Query
|
p3extentskilllost |
Integer |
|
Recommended |
Skill 3. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p3present3mths |
Integer |
|
Recommended |
Skill 3. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p3skilllost |
Integer |
|
Recommended |
Skill 3. When was this skill lost months |
|
|
|
Query
|
p3skillregained |
Integer |
|
Recommended |
Skill 3. When was it regained months |
|
|
|
Query
|
p4beginningage |
Integer |
|
Recommended |
Skill 4. Beginning at what age |
|
|
|
Query
|
p4extentskilllost |
Integer |
|
Recommended |
Skill 4. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p4present3mths |
Integer |
|
Recommended |
Skill 4. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p4skilllost |
Integer |
|
Recommended |
Skill 4. When was this skill lost months |
|
|
|
Query
|
p4skillregained |
Integer |
|
Recommended |
Skill 4. When was it regained months |
|
|
|
Query
|
p5beginningage |
Integer |
|
Recommended |
Skill 5. Beginning at what age |
|
|
|
Query
|
p5extentskilllost |
Integer |
|
Recommended |
Skill 5. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p5present3mths |
Integer |
|
Recommended |
Skill 5. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p5skilllost |
Integer |
|
Recommended |
Skill 5. When was this skill lost months |
|
|
|
Query
|
p5skillregained |
Integer |
|
Recommended |
Skill 5. When was it regained months |
|
|
|
Query
|
p6beginningage |
Integer |
|
Recommended |
Skill 6. Beginning at what age |
|
|
|
Query
|
p6extentskilllost |
Integer |
|
Recommended |
Skill 6. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p6present3mths |
Integer |
|
Recommended |
Skill 6. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p6skilllost |
Integer |
|
Recommended |
Skill 6. When was this skill lost months |
|
|
|
Query
|
p6skillregained |
Integer |
|
Recommended |
Skill 6. When was it regained months |
|
|
|
Query
|
p7beginningage |
Integer |
|
Recommended |
Skill 7. Beginning at what age |
|
|
|
Query
|
p7extentskilllost |
Integer |
|
Recommended |
Skill 7. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p7present3mths |
Integer |
|
Recommended |
Skill 7. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p7skilllost |
Integer |
|
Recommended |
Skill 7. When was this skill lost months |
|
|
|
Query
|
p7skillregained |
Integer |
|
Recommended |
Skill 7. When was it regained months |
|
|
|
Query
|
p8beginningage |
Integer |
|
Recommended |
Skill 8. Beginning at what age |
|
|
|
Query
|
p8extentskilllost |
Integer |
|
Recommended |
Skill 8. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p8present3mths |
Integer |
|
Recommended |
Skill 8. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p8skilllost |
Integer |
|
Recommended |
Skill 8. When was this skill lost months |
|
|
|
Query
|
p8skillregained |
Integer |
|
Recommended |
Skill 8. When was it regained months |
|
|
|
Query
|
p9beginningage |
Integer |
|
Recommended |
Skill 9. Beginning at what age |
|
|
|
Query
|
p9extentskilllost |
Integer |
|
Recommended |
Skill 9. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p9present3mths |
Integer |
|
Recommended |
Skill 9. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p9skilllost |
Integer |
|
Recommended |
Skill 9. When was this skill lost months |
|
|
|
Query
|
p9skillregained |
Integer |
|
Recommended |
Skill 9. When was it regained months |
|
|
|
Query
|
p10beginningage |
Integer |
|
Recommended |
Skill 10. Beginning at what age |
|
|
|
Query
|
p10extentskilllost |
Integer |
|
Recommended |
Skill 10. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p10present3mths |
Integer |
|
Recommended |
Skill 10. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p10skilllost |
Integer |
|
Recommended |
Skill 10. When was this skill lost months |
|
|
|
Query
|
p10skillregained |
Integer |
|
Recommended |
Skill 10. When was it regained months |
|
|
|
Query
|
p11beginningage |
Integer |
|
Recommended |
Skill 11. Beginning at what age |
|
|
|
Query
|
p11extentskilllost |
Integer |
|
Recommended |
Skill 11. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p11present3mths |
Integer |
|
Recommended |
Skill 11. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p11skilllost |
Integer |
|
Recommended |
Skill 11. When was this skill lost months |
|
|
|
Query
|
p11skillregained |
Integer |
|
Recommended |
Skill 11. When was it regained months |
|
|
|
Query
|
p12beginningage |
Integer |
|
Recommended |
Skill 12. Beginning at what age |
|
|
|
Query
|
p12extentskilllost |
Integer |
|
Recommended |
Skill 12. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p12present3mths |
Integer |
|
Recommended |
Skill 12. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p12skilllost |
Integer |
|
Recommended |
Skill 12. When was this skill lost months |
|
|
|
Query
|
p12skillregained |
Integer |
|
Recommended |
Skill 12. When was it regained months |
|
|
|
Query
|
p13beginningage |
Integer |
|
Recommended |
Skill 13. Beginning at what age |
|
|
|
Query
|
p13extentskilllost |
Integer |
|
Recommended |
Skill 13. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p13present3mths |
Integer |
|
Recommended |
Skill 13. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p13skilllost |
Integer |
|
Recommended |
Skill 13. When was this skill lost months |
|
|
|
Query
|
p13skillregained |
Integer |
|
Recommended |
Skill 13. When was it regained months |
|
|
|
Query
|
p14beginningage |
Integer |
|
Recommended |
Skill 14. Beginning at what age |
|
|
|
Query
|
p14extentskilllost |
Integer |
|
Recommended |
Skill 14. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p14present3mths |
Integer |
|
Recommended |
Skill 14. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p14skilllost |
Integer |
|
Recommended |
Skill 14. When was this skill lost months |
|
|
|
Query
|
p14skillregained |
Integer |
|
Recommended |
Skill 14. When was it regained months |
|
|
|
Query
|
p15beginningage |
Integer |
|
Recommended |
Skill 15. Beginning at what age |
|
|
|
Query
|
p15extentskilllost |
Integer |
|
Recommended |
Skill 15. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p15present3mths |
Integer |
|
Recommended |
Skill 15. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p15skilllost |
Integer |
|
Recommended |
Skill 15. When was this skill lost months |
|
|
|
Query
|
p15skillregained |
Integer |
|
Recommended |
Skill 15. When was it regained months |
|
|
|
Query
|
p16beginningage |
Integer |
|
Recommended |
Skill 16. Beginning at what age |
|
|
|
Query
|
p16extentskilllost |
Integer |
|
Recommended |
Skill 16. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p16present3mths |
Integer |
|
Recommended |
Skill 16. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p16skilllost |
Integer |
|
Recommended |
Skill 16. When was this skill lost months |
|
|
|
Query
|
p16skillregained |
Integer |
|
Recommended |
Skill 16. When was it regained months |
|
|
|
Query
|
p17beginningage |
Integer |
|
Recommended |
Skill 17. Beginning at what age |
|
|
|
Query
|
p17extentskilllost |
Integer |
|
Recommended |
Skill 17. To what extent was the skill lost |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p17present3mths |
Integer |
|
Recommended |
Skill 17. Was it present for at least months |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p17skilllost |
Integer |
|
Recommended |
Skill 17. When was this skill lost months |
|
|
|
Query
|
p17skillregained |
Integer |
|
Recommended |
Skill 17. When was it regained months |
|
|
|
|
p18additionalskillorbehavior |
String |
100
|
Recommended |
Skill 18. What skill or behavior |
|
|
|
Query
|
p18beginningage |
Integer |
|
Recommended |
Skill 18. If so beginning at what age |
|
|
|
Query
|
p18extent |
Integer |
|
Recommended |
Skill 18. To what extent |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p18present1mth |
Integer |
|
Recommended |
Skill 18. Was it present for at least one month |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p18skilllost |
Integer |
|
Recommended |
Skill 18. At what age was this skill first lost |
|
|
|
Query
|
p18skillregained |
Integer |
|
Recommended |
Skill 18. When was it regained |
|
|
|
Query
|
p19additionalskillorbehavior |
String |
100
|
Recommended |
Skill 19. What skill or behavior |
|
|
|
Query
|
p19beginningage |
Integer |
|
Recommended |
Skill 19. If so beginning at what age |
|
|
|
Query
|
p19extent |
Integer |
|
Recommended |
Skill 19. To what extent |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p19present1mth |
Integer |
|
Recommended |
Skill 19. Was it present for at least one month |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p19skilllost |
Integer |
|
Recommended |
Skill 19. At what age was this skill first lost |
|
|
|
Query
|
p19skillregained |
Integer |
|
Recommended |
Skill 19. When was it regained |
|
|
|
Query
|
p20additionalskillorbehavior |
String |
100
|
Recommended |
Skill 20. What skill or behavior |
|
|
|
Query
|
p20beginningage |
Integer |
|
Recommended |
Skill 20. If so beginning at what age |
|
|
|
Query
|
p20extent |
Integer |
|
Recommended |
Skill 20. To what extent |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p20present1mth |
Integer |
|
Recommended |
Skill 20. Was it present for at least one month |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p20skilllost |
Integer |
|
Recommended |
Skill 20. At what age was this skill first lost |
|
|
|
Query
|
p20skillregained |
Integer |
|
Recommended |
Skill 20. When was it regained |
|
|
|
Query
|
p21additionalskillorbehavior |
String |
100
|
Recommended |
Skill 21. What skill or behavior |
|
|
|
Query
|
p21beginningage |
Integer |
|
Recommended |
Skill 21. If so beginning at what age |
|
|
|
Query
|
p21extent |
Integer |
|
Recommended |
Skill 21. To what extent |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p21present1mth |
Integer |
|
Recommended |
Skill 21. Was it present for at least one month |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p21skilllost |
Integer |
|
Recommended |
Skill 21. At what age was this skill first lost |
|
|
|
Query
|
p21skillregained |
Integer |
|
Recommended |
Skill 21. When was it regained |
|
|
|
Query
|
p22additionalskillorbehavior |
String |
100
|
Recommended |
Skill 22. What skill or behavior |
|
|
|
Query
|
p22beginningage |
Integer |
|
Recommended |
Skill 22. If so beginning at what age |
|
|
|
Query
|
p22extent |
Integer |
|
Recommended |
Skill 22. To what extent |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p22present1mth |
Integer |
|
Recommended |
Skill 22. Was it present for at least one month |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p22skilllost |
Integer |
|
Recommended |
Skill 22. At what age was this skill first lost |
|
|
|
Query
|
p22skillregained |
Integer |
|
Recommended |
Skill 22. When was it regained |
|
|
|
Query
|
p23additionalskillorbehavior |
String |
100
|
Recommended |
Skill 23. What skill or behavior |
|
|
|
Query
|
p23beginningage |
Integer |
|
Recommended |
Skill 23. If so beginning at what age |
|
|
|
Query
|
p23extent |
Integer |
|
Recommended |
Skill 23. To what extent |
1;2;9
|
1=possible loss;2=definite loss; 9=NK/NA
|
|
Query
|
p23present1mth |
Integer |
|
Recommended |
Skill 23. Was it present for at least one month |
0;1; 9
|
0=No;1=Yes; 9=NA/NK
|
|
Query
|
p23skilllost |
Integer |
|
Recommended |
Skill 23. At what age was this skill first lost |
|
|
|
Query
|
p23skillregained |
Integer |
|
Recommended |
Skill 23. When was it regained |
|
|
|