|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
site |
String |
101
|
Recommended |
Site |
|
Study Site
|
|
Query
|
daysrz |
Integer |
|
Recommended |
days since randomization |
|
|
|
Query
|
visnum |
Float |
|
Recommended |
Numeric Visit Number |
|
-1.5 = Pre-Screening; -1 = Screening; 0 = Baseline; ## = Visit ## (from 1 to 10); Whole numbers = standard monthly visits; #.001 - #.009 = Unscheduled; #.1 = End of Phase 1; #.2 = End of Phase 2; #.3 = End of Phase 3; #.4 = End of Open Choice Phase; #.5 = End of Study; #.6 = Genetic Analysis; 1000=all visits
|
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Query
|
form_completed |
Integer |
|
Recommended |
Was the form completed? |
1::4
|
1=Yes; 2=No; 3=Unverified; 4 = N/A-Not in age range
|
|
Query
|
s1q1 |
Integer |
|
Recommended |
1. Is the household safety proofed for the child (unsafe materials out of reach, no obvious hazards present)? |
0; 1; 2; 9
|
0=Not observed or not
present; 1=Somewhat, but not
consistent; 2=Observed where or
when appropriate; 9=N/A (Not applicable)
|
|
Query
|
s1q2 |
Integer |
|
Recommended |
2. Is the household organized to promote play in certain areas of the home? |
0; 1; 2; 9
|
0=Not observed or not
present; 1=Somewhat, but not
consistent; 2=Observed where or
when appropriate; 9=N/A (Not applicable)
|
|
Query
|
s1q3 |
Integer |
|
Recommended |
3. Does the child have easy access to preferred play activities? |
0; 1; 2; 9
|
0=Not observed or not
present; 1=Somewhat, but not
consistent; 2=Observed where or
when appropriate; 9=N/A (Not applicable)
|
|
Query
|
s1q4 |
Integer |
|
Recommended |
4. Does the child have developmentally appropriate toys/activities available? |
0; 1; 2; 9
|
0=Not observed or not
present; 1=Somewhat, but not
consistent; 2=Observed where or
when appropriate; 9=N/A (Not applicable)
|
|
Query
|
s1q5 |
Integer |
|
Recommended |
5. Does the layout of the home allow for a safe play area? |
0; 1; 2; 9
|
0=Not observed or not
present; 1=Somewhat, but not
consistent; 2=Observed where or
when appropriate; 9=N/A (Not applicable)
|
|
Query
|
s1q6 |
Integer |
|
Recommended |
6. Does the layout of the home allow parent supervision of the child while completing other household tasks? |
0; 1; 2; 9
|
0=Not observed or not
present; 1=Somewhat, but not
consistent; 2=Observed where or
when appropriate; 9=N/A (Not applicable)
|
|
Query
|
s1q7 |
Integer |
|
Recommended |
7. Are there toys and materials to teach and stimulate learning (i.e. books, computer with learning software, or other learning materials)? |
0; 1; 2; 9
|
0=Not observed or not
present; 1=Somewhat, but not
consistent; 2=Observed where or
when appropriate; 9=N/A (Not applicable)
|
|
Query
|
s1q8 |
Integer |
|
Recommended |
8. Are there materials/toys to promote gross motor skills (playground area, bikes, trampoline)? |
0; 1; 2; 9
|
0=Not observed or not
present; 1=Somewhat, but not
consistent; 2=Observed where or
when appropriate; 9=N/A (Not applicable)
|
|
Query
|
s2q1a |
Integer |
|
Recommended |
1.Does the parent spontaneously communicate with the child (excluding making requests or reprimanding)? |
0::8;-9
|
0=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
|
|
Query
|
s2q2a |
Integer |
|
Recommended |
2. Does the parent spontaneously verbally reinforce the child for
appropriate behavior? |
0::8;-9
|
0=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
|
|
Query
|
s2q3a |
Integer |
|
Recommended |
3. Does the parent attend to and reinforce the child's communication attempts? |
0::8;-9
|
0=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
|
|
Query
|
s2q4a |
Integer |
|
Recommended |
4. Does the parent use antecedent or prevent approaches to
manage the child? |
0::8;-9
|
0=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
|
|
Query
|
s2q5a |
Integer |
|
Recommended |
5. Does the parent use minimal physical guidance? |
0::8;-9
|
0=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
|
|
Query
|
s2q6a |
Integer |
|
Recommended |
6. Does the parent provide the child with appropriate activities? |
0::8;-9
|
0=Parent behavior not observed; 1 = Parent behavior not observed (Parent used independently); 2 = Parent behavior not observed (Parent was prompted by clinician); 3 = Parent behavior observed, but not consistent; 4= Parent behavior observed, but not consistent (Parent used independently); 5 = Parent behavior observed, but not consistent (Parent was prompted by clincian); 6 = Parent behavior observed when appropriate; 7 = Parent behavior observed when appropriate (Parent used independently); 8= Parent behavior observed when appropriate (Parent was prompted by clinician); -9=N/A-Not applicable to Parent
|
|
Query
|
s3q1a |
Integer |
|
Recommended |
1.Daily Schedule Followed |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q2a |
Integer |
|
Recommended |
2.Visual Schedule for Child Used |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q3a |
Integer |
|
Recommended |
3.Other Visual Prompts/Cues Used |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q4a |
Integer |
|
Recommended |
4.Contingent Verbal Reinforcement Used |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q5a |
Integer |
|
Recommended |
5.Verbal Reinforcement paired with Tangible Reinforcer |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q6a |
Integer |
|
Recommended |
6.Use of Token Economy Used |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q7a |
Integer |
|
Recommended |
7.Parent reinforces compliance |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q8a |
Integer |
|
Recommended |
8.Parent appropriately addresses noncompliance |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q9a |
Integer |
|
Recommended |
9.Parent encourages functional communication behavior and reinforces child for using |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q10a |
Integer |
|
Recommended |
10. Parent uses appropriate teaching skills to promote new skill |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q11a |
Integer |
|
Recommended |
11. Parent uses planned ignoring as intended |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q12a |
Integer |
|
Recommended |
12. Parent uses timeout as intended |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s3q13dtl |
String |
200
|
Recommended |
13. Other parenting strategies observed(1) - specify: |
|
|
|
Query
|
s3q13a |
Integer |
|
Recommended |
13. Other strategy in place(1) (specify) |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
|
s3q14dtl |
String |
200
|
Recommended |
14. Other parenting strategies observed(2) - specify: |
|
|
|
Query
|
s3q14a |
Integer |
|
Recommended |
14. Other strategy in place(2) (specify) |
0::8;-9
|
0= Not observed or not
present; 1 = Not observed or not
present (Parent used independently); 2 = Not observed or not
present (Parent used, but was prompted by clinician); 3=Observed, but not
used consistently; 4 = Observed, but not
used consistently (Parent used independently); 5 = Observed, but not
used consistently (Parent used, but was prompted by clinician); 6= Observed where or
when appropriate; 7 = Observed where or
when appropriate (Parent used independently); 8 = Observed where or
when appropriate (Parent used, but was prompted by clinician); -9=NA-Not applicable for child
|
|
Query
|
s4q1 |
Integer |
|
Recommended |
1. Observations relevant for Prevention Strategies |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|
Query
|
s4q2 |
Integer |
|
Recommended |
2. Observations relevant for Reinforcement Strategies |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|
Query
|
s4q3 |
Integer |
|
Recommended |
3. Observations relevant for Compliance Training |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|
Query
|
s4q4 |
Integer |
|
Recommended |
4. Observations relevant for Use of Planned Ignoring |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|
Query
|
s4q5 |
Integer |
|
Recommended |
5. Observations relevant for Functional Communication Training |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|
Query
|
s4q6 |
Integer |
|
Recommended |
6. Observations relevant for Teaching Skills |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|
Query
|
s4q7 |
Integer |
|
Recommended |
7. Observations relevant for Generalization and Maintenance |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|
Query
|
s4q8 |
Integer |
|
Recommended |
8. Observations relevant for Time Out |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|
Query
|
s4q9 |
Integer |
|
Recommended |
9. Observations relevant for Token Economy or Contingency Contracting |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|
|
s4q10dtl |
String |
200
|
Recommended |
10. Observations relevant for Other (specify): |
|
|
|
Query
|
s4q10 |
Integer |
|
Recommended |
10. Observations relevant for Other (specify) |
0; 1; 2; -9
|
0=No; 1=Partial; 2=Yes; -9=N/A
|
|