|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
|
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
|
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
|
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
ieq_1 |
Integer |
|
Recommended |
Most people don't understand how severe my condition is. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_2 |
Integer |
|
Recommended |
My life will never be the same. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_3 |
Integer |
|
Recommended |
I am suffering because of someone else's negligence. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_4 |
Integer |
|
Recommended |
No one should have to live this way. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_5 |
Integer |
|
Recommended |
I just want to have my life back. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_6 |
Integer |
|
Recommended |
I feel that this has affected me in a permanent way. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_7 |
Integer |
|
Recommended |
It all seems so unfair. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_8 |
Integer |
|
Recommended |
I worry that my condition is not being taken seriously. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_9 |
Integer |
|
Recommended |
Nothing will ever make up for all that I have gone through. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_10 |
Integer |
|
Recommended |
I feel as if I have been robbed of something very precious. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_11 |
Integer |
|
Recommended |
I am troubled by fears that I may never achieve my dreams. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_12 |
Integer |
|
Recommended |
I can't believe this has happened to me. |
0::4; 9999
|
0= Never; 1= Rarely; 2= Sometimes; 3= Often; 4= All of the time; 9999= no data
|
|
Query
|
ieq_tot |
Integer |
|
Recommended |
IEQ total score |
|
|
|
Query
|
ieq_bu |
Integer |
|
Recommended |
Blame/Unfairness score |
|
Sum of items 3, 7, 9, 10, 11, 12
|
|
Query
|
ieq_si |
Integer |
|
Recommended |
Severity/Irreparability score |
|
Sum of items 1, 2, 4, 5, 6, 8
|
|
Query
|
ieq_perc |
Integer |
|
Recommended |
IEQ Percentile |
|
|
|