|
subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
|
|
|
|
src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
|
|
SexSpecificGenAut_medicalhist_src_Subject_ID |
|
interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
|
|
SexSpecificGenAut_medicalhist_interview_date |
|
interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
|
SexSpecificGenAut_medicalhist_interview_age, child_age |
|
sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
SexSpecificGenAut_medicalhist_gender, child_gender, gender |
|
ethnic_group |
String |
255
|
Recommended |
Ethnic group |
|
|
SexSpecificGenAut_dem_ethnicity_subject |
|
comments_misc |
String |
4,000
|
Recommended |
Miscellaneous comments on study, interview, methodology relevant to this form data |
|
|
SexSpecificGenAut_medicalhist_comments_misc |
Query
|
height_std |
Float |
|
Recommended |
Height - Standard Unit |
|
-1 = Not known; 999 = Missing
|
SexSpecificGenAut_interview_height |
Query
|
weight_std |
Float |
|
Recommended |
Weight - Standard Unit |
|
-1 = Not known; 999 = Missing
|
SexSpecificGenAut_interview_weight |
Query
|
diag_diagnosis |
String |
4,000
|
Required |
Diagnosis |
|
Autism; PDD-NOS; Asperger's; ADHD; Language Disorder; Other; None
|
SexSpecificGenAut_diag_diagnosis |
Query
|
diag_diagnosismadeby |
String |
50
|
Required |
Diagnosis made by |
Physician;Psychologist;Other; NK
|
NK = Not known
|
SexSpecificGenAut_diag_madeby |
Query
|
preg_numberof |
Integer |
|
Recommended |
Total number of pregnancies by biological mother |
|
|
SexSpecificGenAut_preg_numberof |
Query
|
preg_numberofdeliv |
Integer |
|
Recommended |
Number of deliveries by biological mother |
|
|
SexSpecificGenAut_preg_numberofdeliv |
Query
|
preg_numberofmiscarr |
Integer |
|
Recommended |
Number of miscarriages by biological mother |
|
|
SexSpecificGenAut_preg_numberofmiscarr |
Query
|
preg_numberofabortions |
Integer |
|
Recommended |
Number of abortions by biological mother |
|
|
SexSpecificGenAut_preg_numberofabortions |
Query
|
preg_diffconcv |
String |
50
|
Required |
Was there difficulty conceiving? |
Yes; No;999
|
|
SexSpecificGenAut_preg_diffconcv |
Query
|
preg_diffconcv_note |
String |
255
|
Recommended |
Note regarding difficulty conceiving |
|
|
SexSpecificGenAut_preg_diffconcv_note |
Query
|
fertilitydrugs_at_contracep |
String |
200
|
Recommended |
were fertility drugs used to help conceive subject |
|
Yes; No
|
SexSpecificGenAut_preg_fertmed |
Query
|
preg_asstrep |
String |
255
|
Recommended |
Was any other assisted reproduction used? If so, specify |
|
|
SexSpecificGenAut_preg_asstrep |
Query
|
preg_asstrep_note |
String |
255
|
Recommended |
Note regarding assisted reproduction used |
|
|
SexSpecificGenAut_preg_asstrep_note |
Query
|
preg_ivf |
String |
50
|
Required |
Was in vitro fertilization attempted to conceive? |
Yes; No;999
|
|
SexSpecificGenAut_preg_IVF |
Query
|
preg_surrogate |
String |
50
|
Required |
Was surrogacy attempted to conceive? |
Yes; No;999
|
|
SexSpecificGenAut_preg_surrogate |
Query
|
preg_comp |
String |
50
|
Required |
Were there complications during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_comp |
Query
|
preg_comp_note |
String |
300
|
Recommended |
Note regarding complications during pregnancy |
|
|
SexSpecificGenAut_preg_comp_note |
Query
|
preg_nausea |
String |
50
|
Required |
Did mother experience nausea during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_nausea |
Query
|
preg_anemia |
String |
50
|
Required |
Did mother experience anemia during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_anemia |
Query
|
quesmoth_probclamp |
String |
50
|
Recommended |
Preeclampsia |
|
|
SexSpecificGenAut_preg_preeclampsia |
Query
|
preg_eclampsia |
String |
50
|
Required |
Did mother experience eclampsia during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_eclampsia |
Query
|
quesmoth_probhighbp |
String |
50
|
Recommended |
Hypertension (High blood pressure) |
|
|
SexSpecificGenAut_preg_hypertension |
Query
|
preg_hyperglycemia |
String |
50
|
Required |
Did mother have hyperglycemia during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_hyperglycemia |
Query
|
preg_bleeding |
String |
50
|
Required |
Did mother experience excessive bleeding during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_bleeding |
Query
|
preg_infection |
String |
50
|
Required |
Did infection occur during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_infection |
Query
|
preg_infection_note |
String |
255
|
Recommended |
Note regarding infection during pregnancy |
|
|
SexSpecificGenAut_preg_infection_note |
Query
|
preg_fever |
String |
50
|
Required |
Did fever occur during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_fever |
Query
|
preg_bleeding_ft |
String |
50
|
Recommended |
Did bleeding after the first trimester occur during pregnancy? |
Yes; No
|
|
SexSpecificGenAut_preg_bleeding_ft |
Query
|
illness_pregnancy |
String |
200
|
Recommended |
did the mother experience any illnesses during pregnancy |
|
Yes; No
|
SexSpecificGenAut_preg_illness |
Query
|
preg_sti |
String |
50
|
Required |
Did a sexually transmitted infection occur during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_STI |
Query
|
preg_abntsh |
String |
50
|
Required |
Was there abnormal TSH level during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_abnTSH |
Query
|
preg_trauma |
String |
50
|
Recommended |
Did mother experience trauma during pregnancy? |
|
-999=missing; 99=DK
|
SexSpecificGenAut_preg_trauma |
Query
|
preg_preexist_cond |
String |
50
|
Recommended |
Were there any pre-existing chronic maternal conditions during pregnancy? |
Yes; No
|
|
SexSpecificGenAut_preg_preexisting_condition |
Query
|
preg_preexist_cond_note |
String |
255
|
Recommended |
Note regarding pre-existing maternal conditions during pregnancy |
|
|
SexSpecificGenAut_preg_preexisting_condition_note |
Query
|
presmed_alcohol |
String |
50
|
Recommended |
In this pregnancy, did the birth mother do any of the following activities - Drink alcohol |
|
999 = Don't Know
|
SexSpecificGenAut_preg_alcohol, alcohol |
Query
|
preg_alcohol_note |
String |
255
|
Recommended |
Note regarding alcohol used during pregnancy |
|
|
SexSpecificGenAut_preg_alcohol_note |
Query
|
presmed_smoke |
String |
50
|
Required |
In this pregnancy, did the birth mother do any of the following activities - Smoke cigarettes or other tobacco products |
|
999=NA/missing
|
SexSpecificGenAut_preg_tobacco, smoke |
Query
|
preg_tobacco_note |
String |
255
|
Recommended |
Note regarding tobacco used during pregnancy |
|
|
SexSpecificGenAut_preg_tobacco_note |
Query
|
presmed_drugs |
String |
50
|
Recommended |
In this pregnancy, did the birth mother do any of the following activities - Use recreational drugs (e.g. marijuana, cocaine, etc) |
|
|
SexSpecificGenAut_preg_drugs |
|
preg_drugs_note |
String |
255
|
Recommended |
Note regarding street or "recreational" drugs used during pregnancy |
|
|
SexSpecificGenAut_preg_drugs_note |
Query
|
preg_chemorad |
String |
50
|
Required |
Was there exposure to chemicals or radiation during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_chemorad |
Query
|
preg_vit_supp_meds |
String |
50
|
Required |
Were there any vitamins, supplements or medications used during pregnancy? |
Yes; No;999
|
|
SexSpecificGenAut_preg_vit_supp_meds |
|
preg_vit_supp_meds_note |
String |
255
|
Recommended |
Note regarding vitamins, supplements or medications used during pregnancy |
|
|
SexSpecificGenAut_preg_vit_supp_meds_note |
Query
|
preg_age_mom |
Integer |
|
Recommended |
Age of mother at the time of birth |
|
In years; 999=Unknown
|
SexSpecificGenAut_preg_age_mom |
Query
|
preg_age_dad |
Integer |
|
Recommended |
Age of father at the time of birth |
|
In years; 999=Unknown
|
SexSpecificGenAut_preg_age_dad |
Query
|
preg_studies |
String |
255
|
Required |
Which studies were performed during pregnancy: none, prenatal screen, ultrasound, amniocentesis, CVS |
None; Prenatal screen; Ultrasound; Amniocentesis; CVS;999
|
|
SexSpecificGenAut_preg_studies |
Query
|
preg_studies_note |
String |
255
|
Recommended |
Note regarding studies performed during pregnancy |
|
|
SexSpecificGenAut_preg_studies_note |
Query
|
preg_delivery_location |
String |
50
|
Recommended |
Place of birth: Hospital, Home, or other |
Hospital; Home; Other
|
|
SexSpecificGenAut_preg_delivery_location |
|
preg_delivery_location_note |
String |
255
|
Recommended |
Note regarding place of birth |
|
|
SexSpecificGenAut_preg_delivery_location_note |
Query
|
info_gest |
String |
50
|
Recommended |
No. Weeks Gestation (G.A.) |
|
|
SexSpecificGenAut_preg_gestation_weeks |
Query
|
preg_gestation_term |
String |
50
|
Recommended |
Period of Gestation |
Pre-term; Term; Post-term
|
|
SexSpecificGenAut_preg_gestation_term |
Query
|
preg_mode_deliv |
String |
225
|
Required |
What was the mode of delivery? |
|
999=DK/NA
|
SexSpecificGenAut_preg_mode_deliv |
Query
|
birth_weight_lbs |
Float |
|
Recommended |
Birth weight pounds |
|
|
SexSpecificGenAut_neo_birthwt, birth_weight |
Query
|
ldnb_lgthin |
Float |
|
Recommended |
What was the babys length at birth(inches) |
|
-1 = Not known
|
SexSpecificGenAut_neo_birthlen |
Query
|
ldnb_headcircumcm |
Float |
|
Recommended |
What was the babys head circumference at birth (cm) |
|
|
|
Query
|
info_apgar1 |
String |
50
|
Recommended |
Apgars 1 min. |
|
|
SexSpecificGenAut_neo_APGAR_1min |
Query
|
info_apgar5 |
String |
50
|
Recommended |
Apgars 5 min. |
|
|
SexSpecificGenAut_neo_APGAR_5min |
Query
|
neo_cyanosis |
String |
50
|
Required |
Did cyanosis occur after delivery? |
Yes; No;999
|
|
SexSpecificGenAut_neo_cyanosis |
Query
|
neo_apnea |
String |
50
|
Required |
Did apnea occur after delivery? |
Yes; No;999
|
|
SexSpecificGenAut_neo_apnea |
Query
|
neo_resp |
String |
50
|
Required |
Did a respiratory complication occur after delivery? |
Yes; No;999
|
|
SexSpecificGenAut_neo_resp |
Query
|
neo_cardiac |
String |
50
|
Required |
Did a cardiac complication occur after delivery? |
Yes; No;999
|
|
SexSpecificGenAut_neo_cardiac |
Query
|
neo_jaundice |
String |
50
|
Required |
Did jaundice occur after delivery? |
Yes; No;999
|
|
SexSpecificGenAut_neo_jaundice |
Query
|
neo_seizure |
String |
50
|
Required |
Did seizures occur after delivery? |
Yes; No;999
|
|
SexSpecificGenAut_neo_seizure |
Query
|
neo_infection |
String |
50
|
Required |
Did infections occur after delivery? |
Yes; No;999
|
|
SexSpecificGenAut_neo_infection |
Query
|
neo_stroke |
String |
50
|
Required |
Did a stroke occur after delivery? |
Yes; No;999
|
|
SexSpecificGenAut_neo_stroke |
Query
|
neo_neuro |
String |
50
|
Required |
Did neurologic complications occur after delivery? |
Yes; No;999
|
|
SexSpecificGenAut_neo_neuro |
Query
|
nb_feeddifficult |
String |
50
|
Recommended |
Did the baby have any difficulty with feeding (breast or bottle |
|
|
SexSpecificGenAut_neo_feed |
Query
|
child_congenitaldef |
String |
50
|
Recommended |
Does the Child have a Congenital Defect (Cleft palate, cleft lip, other)? |
|
NK= Not known; NS = Not sure
|
SexSpecificGenAut_neo_congendef |
Query
|
child_congenitaldef_cmt |
String |
255
|
Recommended |
Specify Child's Congenital Defect type |
|
|
SexSpecificGenAut_neo_congendef_note |
Query
|
neo_sp_assistance_meds |
String |
50
|
Required |
Following delivery, was special assistance or medication used? |
Yes; No;999
|
|
|
Query
|
neo_sp_assistance_meds_note |
String |
255
|
Recommended |
Note regarding special assistance of medication used following delivery? |
|
|
|
Query
|
dev_rollover |
String |
255
|
Recommended |
Achievement status of developmental milestone of rolling over |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_rollover |
Query
|
dev_sit |
String |
255
|
Recommended |
Achievement status of developmental milestone of sitting |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_sit |
Query
|
dev_crawl |
String |
255
|
Recommended |
Achievement status of developmental milestone of crawling |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_crawl |
Query
|
dev_walk |
String |
255
|
Recommended |
Achievement status of developmental milestone of walking |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_walk |
Query
|
dev_run |
String |
255
|
Recommended |
Achievement status of developmental milestone of running |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_run |
Query
|
dev_ridetrike |
String |
255
|
Recommended |
Achievement status of developmental milestone of riding tricycle |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_ridetrike |
Query
|
dev_reachtoy |
String |
255
|
Recommended |
Achievement status of developmental milestone of reaching for toy |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_reachtoy |
Query
|
dev_scribble |
String |
255
|
Recommended |
Achievement status of developmental milestone of scribbling |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_scribble |
Query
|
dev_feedself |
String |
255
|
Recommended |
Achievement status of developmental milestone of feeding self with hands |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_feedself |
Query
|
dev_drawshape |
String |
255
|
Recommended |
Achievement status of developmental milestone of drawing a shape |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_drawshape |
Query
|
dev_simpleinstruction |
String |
255
|
Recommended |
Achievement status of developmental milestone of responding to simple instruction |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_simpleinstruction |
Query
|
dev_putonshoe |
String |
255
|
Recommended |
Achievement status of developmental milestone of putting on a shoe |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_putonshoe |
Query
|
dev_stand |
String |
255
|
Recommended |
Achievement status of developmental milestone of pulling to stand |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_stand |
Query
|
dev_hopskip |
String |
255
|
Recommended |
Achievement status of developmental milestone of hopping or skipping |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_hopskip |
Query
|
dev_firstword |
String |
255
|
Recommended |
Achievement status of developmental milestone of saying first word |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_firstword |
Query
|
dev_twowords |
String |
255
|
Recommended |
Achievement status of developmental milestone of saying two words together |
Reached on time; Delayed; Not reached; Reached and then lost
|
|
SexSpecificGenAut_dev_twowords |
Query
|
dev_fsiq |
Integer |
|
Recommended |
Full Scale IQ |
|
|
SexSpecificGenAut_dev_fsiq |
Query
|
therapy_physical |
String |
50
|
Recommended |
Has the subject received physical therapy? |
|
CPEA STAART: -7 = Don't know; -8 = Refused to answer; -9 = Does not apply
|
SexSpecificGenAut_therapy_physical |
Query
|
therapy_occupational |
String |
50
|
Recommended |
Has the subject received occupational therapy? |
|
CPEA STAART: -7 = Don't know; -8 = Refused to answer; -9 = Does not apply
|
SexSpecificGenAut_therapy_occupational |
Query
|
therapy_speechandlanguage |
String |
50
|
Recommended |
Has the subject received speech and language therapy? |
|
CPEA STAART: -7 = Don't know; -8 = Refused to answer; -9 = Does not apply
|
SexSpecificGenAut_therapy_speechandlanguage |
Query
|
therapy_vision |
String |
50
|
Recommended |
Has the subject received vision therapy? |
Yes; No
|
|
SexSpecificGenAut_therapy_vision |
Query
|
therapy_psych |
String |
50
|
Recommended |
Has the subject received psychological therapy? |
Yes; No
|
|
SexSpecificGenAut_therapy_psych |
Query
|
therapy_spec_ed |
String |
50
|
Recommended |
Is the subject enrolled in any special educational classes or learning environments? |
Yes; No
|
|
SexSpecificGenAut_therapy_spec_ed |
Query
|
neuro_scoliosis |
String |
50
|
Recommended |
Does subject have scoliosis? |
Yes; No
|
|
SexSpecificGenAut_neuro_scoliosis |
Query
|
neuro_spasticity_hyper |
String |
50
|
Recommended |
Does subject have spasticity/hypertonia? |
Yes; No
|
|
SexSpecificGenAut_neuro_spasticity_hyper |
Query
|
neuro_hypotonia |
String |
50
|
Recommended |
Does subject have hypotonia? |
Yes; No
|
|
SexSpecificGenAut_neuro_hypotonia |
Query
|
neuro_insensitivepain |
String |
50
|
Recommended |
Does subject have insensitivity to pain? |
Yes; No
|
|
SexSpecificGenAut_neuro_insensitivepain |
Query
|
neuro_tempdysreg |
String |
50
|
Recommended |
Does subject have temperature dysregulation? |
Yes; No
|
|
SexSpecificGenAut_neuro_tempdysreg |
Query
|
neuro_headaches |
String |
50
|
Recommended |
Does subject have headaches? |
Yes; No
|
|
SexSpecificGenAut_neuro_headaches |
Query
|
neuro_tics |
String |
50
|
Recommended |
Does subject have tics? |
Yes; No
|
|
SexSpecificGenAut_neuro_tics |
Query
|
neuro_tremor |
String |
50
|
Recommended |
Does subject have tremors? |
Yes; No
|
|
SexSpecificGenAut_neuro_tremor |
Query
|
neuro_dizzy |
String |
50
|
Recommended |
Does subject have dizziness? |
Yes; No
|
|
SexSpecificGenAut_neuro_dizzy |
Query
|
neuro_numb |
String |
50
|
Recommended |
Does subject have numbness? |
Yes; No
|
|
SexSpecificGenAut_neuro_numb |
Query
|
neuro_involmov |
String |
50
|
Recommended |
Does subject have involuntary movements? |
Yes; No
|
|
SexSpecificGenAut_neuro_involmov |
|
neuro_note |
String |
255
|
Recommended |
Notes regarding neurologic issues |
|
|
SexSpecificGenAut_neuro_note |
Query
|
gastro_reflux |
String |
50
|
Required |
Does subject have gastroesophageal reflux? |
Yes; No;999
|
|
SexSpecificGenAut_gastro_reflux |
Query
|
gastro_diarrhea |
String |
50
|
Recommended |
Does subject have diarrhea problems? |
|
NK= Not known; NS = Not sure
|
SexSpecificGenAut_gastro_diarrhea |
Query
|
gastro_constipation |
String |
50
|
Recommended |
Does subject have issue of constipation? |
|
NK= Not known; NS = Not sure
|
SexSpecificGenAut_gastro_constipation |
Query
|
gastro_spec_diet |
String |
50
|
Required |
Does subject have a special diet? |
Yes; No; NK
|
NK = Not known
|
SexSpecificGenAut_gastro_spec_diet |
Query
|
gastro_other |
String |
50
|
Recommended |
Does subject have any other gastrointestinal issues? |
|
|
SexSpecificGenAut_gastro_other |
|
gastro_note |
String |
255
|
Recommended |
Note regarding gastrointestinal issues? |
|
|
SexSpecificGenAut_gastro_note |
Query
|
medhx_sleep_prob |
String |
50
|
Recommended |
Does subject have sleep problems? |
|
|
SexSpecificGenAut_medhx_sleep_prob |
|
medhx_sleep_prob_note |
String |
255
|
Recommended |
Note regarding sleep problems |
|
|
SexSpecificGenAut_medhx_sleep_prob_note |
Query
|
medhx_behavior_prob |
String |
50
|
Recommended |
Does subject have behavioral problem other then ASD? |
Yes; No
|
|
SexSpecificGenAut_medhx_behavior_prob |
Query
|
medhx_behavior_prob_note |
String |
255
|
Recommended |
Note regarding behavioral issue |
|
|
SexSpecificGenAut_medhx_behavior_prob_note |
Query
|
child_seizure |
String |
50
|
Required |
Has she/he ever been to a doctor for any of these things…Epilepsy or Seizures /Epilepsia o convulsiones |
|
Now I'd like to ask you about your child's use of health services during the past year and throughout his/her whole life.
|
SexSpecificGenAut_seizure_history |
Query
|
seizure_age |
Integer |
|
Recommended |
Age of first seizure in years |
|
In years
|
SexSpecificGenAut_seizure_age |
Query
|
seizure_frequency |
String |
255
|
Recommended |
How often do the seizures happen (per day or per month)? |
|
|
SexSpecificGenAut_seizure_frequency |
Query
|
seizure_time_of_day |
String |
50
|
Recommended |
What time of day do the seizures usually occur? |
AM; PM; During sleep
|
|
SexSpecificGenAut_seizure_time_of_day |
Query
|
seizure_med |
String |
500
|
Recommended |
List of current medications for seizures including dosage and side effects |
|
|
SexSpecificGenAut_seizure_med |
Query
|
rev_headeegresult |
String |
255
|
Recommended |
EEG: Results |
|
|
SexSpecificGenAut_seizure_EEG_results |
Query
|
famhx_parents_related |
String |
50
|
Recommended |
Are the biologic mother and father related? |
Yes; No
|
|
SexSpecificGenAut_famhx_parents_related |
|
famhx_autism |
String |
500
|
Recommended |
Indicate which relatives have autism or autism spectrum disorder. |
|
|
SexSpecificGenAut_famhx_Autism |
Query
|
famhx_aspergers |
String |
500
|
Recommended |
Indicate which relatives have Asperger's syndrome. |
|
|
SexSpecificGenAut_famhx_Aspergers |
Query
|
famhx_pdd |
String |
500
|
Recommended |
Indicate which relatives have pervasive developmental disorder. |
|
|
SexSpecificGenAut_famhx_PDD |
Query
|
famhx_ocd |
String |
500
|
Recommended |
Indicate which relatives have obsessive compulsive disorder. |
|
|
SexSpecificGenAut_famhx_OCD |
Query
|
famhx_adhd |
String |
500
|
Recommended |
Indicate which relatives have attention deficit/hyperactivity disorder. |
|
|
SexSpecificGenAut_famhx_ADHD |
Query
|
famhx_anxiety |
String |
500
|
Recommended |
Indicate which relatives have anxiety disorder |
|
|
SexSpecificGenAut_famhx_anxiety |
Query
|
famhx_bipolar |
String |
500
|
Recommended |
Indicate which relatives have bipolar disorder. |
|
|
SexSpecificGenAut_famhx_bipolar |
Query
|
famhx_depression |
String |
500
|
Recommended |
Indicate which relatives have depression and/or have made suicide attempts. |
|
|
SexSpecificGenAut_famhx_depression |
Query
|
famhx_personality |
String |
500
|
Recommended |
Indicate which relatives have a personality disorder. |
|
|
SexSpecificGenAut_famhx_personality |
Query
|
famhx_schizophrenia |
String |
500
|
Recommended |
Indicate which relatives have schizophrenia. |
|
|
SexSpecificGenAut_famhx_schizophrenia |
Query
|
famhx_ld |
String |
500
|
Recommended |
Indicate which relatives have a learning disability. |
|
|
SexSpecificGenAut_famhx_LD |
Query
|
famhx_reading |
String |
500
|
Recommended |
Indicate which relatives have a reading difficulty. |
|
|
SexSpecificGenAut_famhx_reading |
|
famhx_speech |
String |
500
|
Recommended |
Indicate which relatives have a speech problem or speech delay. |
|
|
SexSpecificGenAut_famhx_speech |
Query
|
famhx_selfinjure |
String |
500
|
Recommended |
Indicate which relatives have self injuring behavior. |
|
|
SexSpecificGenAut_famhx_tuberous_seizureselfinjure |
Query
|
famhx_seizure_epilepsy |
String |
500
|
Recommended |
Indicate which relatives have a seizure disorder or epilepsy. |
|
|
SexSpecificGenAut_famhx_tuberous_seizure_epilepsy |
Query
|
famhx_mr |
String |
500
|
Recommended |
Indicate which relatives have mental retardation. |
|
|
SexSpecificGenAut_famhx_MR |
Query
|
famhx_obesity |
String |
500
|
Recommended |
Indicate which relatives have obesity. |
|
|
SexSpecificGenAut_famhx_obesity |
Query
|
famhx_gi |
String |
500
|
Recommended |
Indicate which relatives hava a gastrointestinal disorder. |
|
|
SexSpecificGenAut_famhx_GI |
|
famhx_allergy_asthma |
String |
500
|
Recommended |
Indicate which relatives have allergy and/or asthma. |
|
|
SexSpecificGenAut_famhx_allergy_asthma |
Query
|
famhx_autoimmune |
String |
500
|
Recommended |
Indicate which relatives have an autoimmune disease. |
|
|
SexSpecificGenAut_famhx_autoimmune |
Query
|
famhx_endocrine |
String |
500
|
Recommended |
Indicate which relatives have an endocrine or hormonal disorder. |
|
|
SexSpecificGenAut_famhx_endocrine |
|
famhx_retts |
String |
500
|
Recommended |
Indicate which relatives have Rett's syndrome. |
|
|
SexSpecificGenAut_famhx_Retts |
|
famhx_fragilex |
String |
500
|
Recommended |
Indicate which relatives have Fragile X syndrome. |
|
|
SexSpecificGenAut_famhx_fragileX |
Query
|
famhx_nf |
String |
500
|
Recommended |
Indicate which relatives have neurofibromatosis. |
|
|
SexSpecificGenAut_famhx_tuberous_NF |
Query
|
famhx_tuberous_schleroris |
String |
500
|
Recommended |
Indicate which relatives have tuberous schlerosis. |
|
|
SexSpecificGenAut_famhx_tuberous_schlerosis |
Query
|
famhx_birthdefect |
String |
500
|
Recommended |
Indicate which relatives have a birth defect. |
|
|
SexSpecificGenAut_famhx_birthdefect |
Query
|
famhx_other |
String |
500
|
Recommended |
Indicate which relatives have another inheritable condition |
|
|
SexSpecificGenAut_famhx_other |
Query
|
dem_marital_mother |
String |
255
|
Recommended |
What is the marital status of subject's biological mother? |
Married/ Domestic partners; Single; Divorced; Widowed
|
|
SexSpecificGenAut_dem_marital_mother |
Query
|
dem_marital_father |
String |
255
|
Recommended |
What is the marital status of subject's biological father? |
Married/ Domestic partners; Single; Divorced; Widowed
|
|
SexSpecificGenAut_dem_marital_father |
|
bio_mother_occupation |
String |
100
|
Recommended |
Biological Mother Occupation |
|
|
SexSpecificGenAut_dem_occupation_mother |
|
bio_father_occupation |
String |
100
|
Recommended |
Biological Father Occupation |
|
|
SexSpecificGenAut_dem_occupation_father |
Query
|
bio_mother_ethnicity |
String |
50
|
Recommended |
Biological Mother Ethnicity |
|
|
SexSpecificGenAut_dem_ethnicity_mother |
Query
|
bio_father_ethnicity |
String |
50
|
Recommended |
Biological Father ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer) |
|
|
SexSpecificGenAut_dem_ethnicity_father |
Query
|
bio_mother_education |
String |
75
|
Recommended |
Biological Mother Highest level of education |
|
Less than High School;High School Degree;GED; Less than 7th Grade; Jr. High School; Some High School; Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify;99= D/K ; 77= N/A; 999= Missing
|
SexSpecificGenAut_dem_education_mother |
Query
|
bio_father_education |
String |
75
|
Recommended |
Biological Father Highest level of education |
|
Less than High School;High School Degree;GED; Less than 7th Grade; Jr. High School; Some High School; Some College;Associates Degree;Bachelors Degree;Some Graduate Work;Graduate Degree; Never attended school ; Primary/all age/ Jnr. Secondary ; Secondary/High/Technical ; H.E.A.R.T/ Vocational ; Tertiary College/University ; Other tertiary- specify ; Other education-specify;99= D/K ; 77= N/A; 999= Missing
|
SexSpecificGenAut_dem_education_father |
Query
|
respondent |
String |
20
|
Recommended |
Respondent |
|
|
relationship, resp_rel |
Query
|
childgen |
String |
2
|
Recommended |
Child gender |
M;F
|
M=Male; F= Female
|
resp_gender |
Query
|
child_race |
String |
55
|
Recommended |
Child's Race |
|
|
|
Query
|
family_bio_parent_rep_coi_ethn |
String |
30
|
Recommended |
Family Biographical History Form (0:0 to 4:5 y:m) Question IC2 Parent Report of Child of Interest (COI) ethnicity (Hispanic or Latino, Not Hispanic or Latino, No Answer) |
|
|
|
|
stay_with |
String |
100
|
Recommended |
Who does child stay with at home? |
|
777=Not applicable
|
|
Query
|
father_race |
String |
55
|
Recommended |
Father's race |
|
|
|
Query
|
father_ethnicity |
String |
30
|
Recommended |
Father ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino) |
|
|
|
Query
|
mother_race |
String |
55
|
Recommended |
Mother's race |
|
|
|
Query
|
mother_ethnicity |
String |
30
|
Recommended |
Mother ethnicity (choices are Hispanic/Latino or Not Hispanic/Latino) |
|
|
|
Query
|
dem_47_compl |
Integer |
|
Recommended |
Were there any birth complications with this child? |
0;1;-999
|
0=No; 1=Yes; -999=Prefer not to answer
|
birth_complications |
Query
|
demo_preg_meds |
Integer |
|
Recommended |
Did the biological mother use prescription medications during pregnancy? |
0;1;3
|
1=Yes; 0=No; 3=Don't Know
|
medications |
|
fatherocup |
String |
100
|
Recommended |
Father' occupation |
|
|
|
|
momoccuc |
String |
100
|
Recommended |
mother's current occupation |
|
|
|
|
com_childcare |
String |
10
|
Recommended |
What type of childcare does your child attend? Check all that apply |
|
1= In home with other family member ;2= In home with babysitter ;3= At a home-based daycare ;4= At Headstart ;5= At a private nursery school / preschool ;6= At a school district preschool; 7 = Day Care Center; 8 = Home Day Care; 9 = Nanny or Au-Pair
|
daycare_type |
Query
|
fsprels |
Integer |
|
Recommended |
Which category best describes your current relationship status? |
1::9;777
|
1= Single/never married; 2= Married; 3= Living together; 4= Domestic partnership; 5= Separated; 6= Divorced; 7= Widowed; 8= Engaged; 9=Other; 777=Not applicable
|
resp_relstatus |
Query
|
annincome |
Integer |
|
Recommended |
What is the gross (before taxes) annual income including child support and any other financial aid household? |
|
0= $4999 or less ; 1= $5000-$9999 ; 2= $1000-$14999 ; 3= $15000-$19000 ; 4= $20000-$24999 ; 5= $25000-29999 ; 6= $30000-$39999 ; 7= $40000-$49999 ; 8= $50000-$59999 ; 9= $60000-$69999 ; 10=0 $70000-$79999; 11=1 $80000-$89000 ; 12=2 $90000 or more ; -99= N/A; 77= Refused ; 88= Missing
|
resp_income_other |
Query
|
resp_rel_biological |
Integer |
|
Recommended |
Is your child Biological |
1::4
|
1 = biologcal, 2 = adopted, 3 = foster, 4 = other
|
|
|
lstc |
String |
10
|
Recommended |
Language(s) spoken to child (select all that apply) |
|
1 = English; 2 = Spanish; 3 = Other
|
language |
Query
|
born_within_3weeks |
Integer |
|
Recommended |
Was your child born within 3 weeks of his or her due date? |
0::1
|
0 = No; 1 = Yes
|
|
|
resp_duedate |
Date |
|
Recommended |
What is/was your child's due date |
|
MM/DD/YYYY In the format of Month/Day/Year. The childs due date is defined as the predicted date of birth given to the parents by a doctor.
|
|
|
major_miles_stones |
String |
200
|
Recommended |
Please specify at what age your child was first able to do the following: Sit Unsupported; Crawl; Pull up to standing; stand momentarily; show stepping movements; walk independently |
|
Ages in months
|
|
Query
|
schooling_mother |
Integer |
|
Recommended |
Number of years of formal schooling/education Mother |
8::18; 20
|
8 = Grade School; 9-11= some high school; 12= High School Graduate; 12-15 = Trade, technical or some college; 16 = College graduate; 17-18 = Graduate Training; 20 = Graduate degree (M.D., J.D., D.D.S., Ph.D.)
|
|
Query
|
schooling_father |
Integer |
|
Recommended |
Number of years of formal schooling/education Father |
8::18; 20
|
8 = Grade School; 9-11= some high school; 12= High School Graduate; 12-15 = Trade, technical or some college; 16 = College graduate; 17-18 = Graduate Training; 20 = Graduate degree (M.D., J.D., D.D.S., Ph.D.)
|
|
Query
|
visitation |
Integer |
|
Recommended |
Does your child have visitation with both parents? |
|
1 = yes; 0 = no; 3 = N/A
|
|
Query
|
marital_status_change |
Integer |
|
Recommended |
Has your marital status changed since your last visit? |
|
1 = yes; 0 = no; 3 = N/A
|
marital_status |
Query
|
daycare_yn |
Integer |
|
Recommended |
Does your child attend daycare or some type of child care? |
0::1
|
0 = No; 1 = Yes
|
daycare |