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subjectkey |
GUID |
|
Required |
The NDAR Global Unique Identifier (GUID) for research subject |
NDAR*
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src_subject_id |
String |
20
|
Required |
Subject ID how it's defined in lab/project |
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interview_date |
Date |
|
Required |
Date on which the interview/genetic test/sampling/imaging/biospecimen was completed. MM/DD/YYYY |
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INTERVIEW_DATE_PQI |
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interview_age |
Integer |
|
Required |
Age in months at the time of the interview/test/sampling/imaging. |
0::1440
|
Age is rounded to chronological month. If the research participant is 15-days-old at time of interview, the appropriate value would be 0 months. If the participant is 16-days-old, the value would be 1 month.
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INTERVIEW_AGE_PQI |
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sex |
String |
20
|
Required |
Sex of subject at birth |
M;F; O; NR
|
M = Male; F = Female; O=Other; NR = Not reported
|
gender |
Query
|
ei |
Integer |
|
Recommended |
1. Did your child receive developmental services and/or interventions before the age of 3? |
0;1
|
0=No; 1=Yes
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Query
|
eiintv_aba |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Applied Behavior Analysis) |
0;1
|
0=Unchecked; 1=Checked
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Query
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eiintv_floor |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Floortime therapy) |
0;1
|
0=Unchecked; 1=Checked
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Query
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eiintv_homevis |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Early Intervention home visits) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
eiintv_centervis |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Early Intervention center-based visits) |
0;1
|
0=Unchecked; 1=Checked
|
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Query
|
eiintv_groups |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Early intervention groups (child/parent)) |
0;1
|
0=Unchecked; 1=Checked
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Query
|
ihcfi_aba_avg_hour |
Float |
|
Recommended |
ABA therapy Average hours per week |
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ABAHRS |
Query
|
ihcfi_aba_comment |
String |
250
|
Recommended |
ABA therapy comments |
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ABANOTES |
Query
|
abadiff |
Integer |
|
Recommended |
Did Applied Behavior Analysis make a difference in your childs behavior or developing abilities? |
0;1
|
0=No; 1=Yes
|
|
Query
|
abadiffsp |
String |
100
|
Recommended |
ABA difference. In what way? |
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Query
|
floortime1_week_hrs |
Float |
|
Recommended |
Floortime Therapy Occurrence 1:For the following intervention, how many hours per week were provided? |
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|
FLOORTIMEHRS |
Query
|
floortimenotes |
String |
250
|
Recommended |
Floortime therapy comments |
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|
Query
|
flrtmdiff |
Integer |
|
Recommended |
Did Floortime Therapy make a difference in your childs behavior or developing abilities? |
0;1
|
0=No; 1=Yes
|
|
|
flrdiffsp |
String |
100
|
Recommended |
Foortime therapy difference. In what way? |
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Query
|
earlyint1_week_hrs |
Float |
|
Recommended |
Early Intervention Program Occurrence 1:For the following intervention, how many hours per week were provided? |
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EIHOMEHRS |
Query
|
eihomenotes |
String |
250
|
Recommended |
Early Intervention Homecomments |
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Query
|
eihmdiff |
Integer |
|
Recommended |
Did Early Intervention Home Visits make a difference in your childs behavior or developing abilities? |
0;1
|
0=No; 1=Yes
|
|
Query
|
eihmdiffsp |
String |
100
|
Recommended |
EI Home difference. In what way? |
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Query
|
eictrhrs |
Float |
|
Recommended |
Early Intervention Center-Based Visits (hours per week) |
0::168
|
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eictrnotes |
String |
250
|
Recommended |
EI center based comments |
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Query
|
eictrdiff |
Integer |
|
Recommended |
Did Early Intervention Center-Based Visits make a difference in your childs behavior or developing abilities? |
0;1
|
0=No; 1=Yes
|
|
Query
|
eictrdiffsp |
String |
100
|
Recommended |
EI center based difference. In what way? |
|
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Query
|
eigrpshrs |
Float |
|
Recommended |
Early Intervention Groups (hours per week) |
0::168
|
|
|
Query
|
eigrpnotes |
String |
100
|
Recommended |
EI Groups comments |
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|
|
Query
|
eigrpdiff |
Integer |
|
Recommended |
Did Early Intervention Groups make a difference in your childs behavior or developing abilities? |
0;1
|
0=No; 1=Yes
|
|
|
eigrpdiffsp |
String |
100
|
Recommended |
EI Groups difference. In what way? |
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Query
|
eiparenttng |
Integer |
|
Recommended |
Did you participate in any parent training or behavior management training before your childs 3rd birthday? |
0;1
|
0=No; 1=Yes
|
|
Query
|
eitng_sp |
String |
100
|
Recommended |
Parent training. Please describe: |
|
|
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Query
|
ps |
Integer |
|
Recommended |
Was your child in a preschool program between the ages of 3 and 5? |
0;1
|
0=No; 1=Yes
|
|
Query
|
pshrs |
Float |
|
Recommended |
Hrs/week of preschool program between the ages of 3 and 5 |
0::168
|
|
|
Query
|
psserv |
Integer |
|
Recommended |
Did your child receive services between the ages of 3 and 5? |
0;1
|
0=No; 1=Yes
|
|
Query
|
psintv_aba |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Applied Behavior Analysis) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
psintv_speech |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Speech and Language Therapy) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
psintv_occ |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Occupational Therapy) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
psintv_pt |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Physical Therapy) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
psintv_oth |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Other) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
psabahrs |
Float |
|
Recommended |
Preschool Applied behavior analysis (hrs/week) |
0::168
|
|
|
Query
|
psabanotes |
String |
250
|
Recommended |
Preschool ABA setting (i.e. school, clinic, home)/Notes: |
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Query
|
psabadiff |
Integer |
|
Recommended |
Did preschool ABA make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
Query
|
psabadiffsp |
String |
100
|
Recommended |
Preschool ABA difference. In what way? |
|
|
|
Query
|
splanghrs |
Float |
|
Recommended |
Speech and language therapy (hrs/week) |
0::168
|
|
|
Query
|
splangnotes |
String |
100
|
Recommended |
Speech therapy setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
splangdiff |
Integer |
|
Recommended |
Did Speech and language therapy make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
Query
|
splangdiffsp |
String |
100
|
Recommended |
Speech and language therapy difference. In what way? |
|
|
|
Query
|
ot1_week_hrs |
Float |
|
Recommended |
Occupational Therapy Occurrence 1:For the following intervention, how many hours per week were provided? |
|
|
OTHRS |
Query
|
otnotes |
String |
100
|
Recommended |
Occupational therapy setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
otdiff |
Integer |
|
Recommended |
Did Occupational therapy make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
Query
|
otdiffsp |
String |
100
|
Recommended |
Occupational therapy difference. In what way? |
|
|
|
Query
|
pthrs |
Float |
|
Recommended |
Physical therapy (hrs/week) |
0::168
|
|
|
Query
|
ptnotes |
String |
100
|
Recommended |
Physical therapy setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
ptdiff |
Integer |
|
Recommended |
Did physical therapy make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
Query
|
ptdiffsp |
String |
100
|
Recommended |
PT difference. In what way? |
|
|
|
Query
|
ihcfi_pt_comment |
String |
250
|
Recommended |
Physical Therapy (PT) therapy comments |
|
|
PSOTHSP |
Query
|
othertherapy1_week_hrs |
Float |
|
Recommended |
Other Therapy Occurrence 1:For the following intervention, how many hours per week were provided? |
|
|
PSOTHHRS |
Query
|
psothnotes |
String |
100
|
Recommended |
Setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
psothdiff |
Integer |
|
Recommended |
Did other interventions make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
Query
|
psothdiffsp |
String |
100
|
Recommended |
Other intervention difference. In what way? |
|
|
|
Query
|
psparenttng |
Integer |
|
Recommended |
Did you participate in any parent training or behavior management training when your child was between 3 and 5 years old? |
0;1
|
0=No; 1=Yes
|
|
Query
|
pstng_sp |
String |
100
|
Recommended |
Parent training. Please describe: |
|
|
|
Query
|
currintv |
Integer |
|
Recommended |
Is your child is currently receiving services? |
0;1
|
0=No; 1=Yes
|
|
Query
|
cintv_aba |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Applied Behavior Analysis) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
cintv_verb |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Verbal Behavior Therapy) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
cintv_speech |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Speech Therapy) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
cintv_social |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Social Skills Group) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
cintv_teacch |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Training and Education of Autistic and Related Communication Handicapped Children (TEACCH)) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
cintv_oth |
Integer |
|
Recommended |
Which of the following interventions did your child receive? (choice=Other) |
0;1
|
0=Unchecked; 1=Checked
|
|
Query
|
cabahrs |
Float |
|
Recommended |
Applied behavior analysis (hrs/week) |
0::168
|
|
|
Query
|
cabanotes |
String |
100
|
Recommended |
Setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
cabadiff |
Integer |
|
Recommended |
Did Applied behavior analysis make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
Query
|
cabadiffsp |
String |
100
|
Recommended |
In what way? |
|
|
|
Query
|
cverbhrs |
Float |
|
Recommended |
Verbal behavior analysis (hrs/week) |
0::168
|
|
|
|
cverbnotes |
String |
100
|
Recommended |
Setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
cverbdiff |
Integer |
|
Recommended |
Did Verbal behavior analysis make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
|
cverbdiffsp |
String |
100
|
Recommended |
In what way? |
|
|
|
Query
|
cspeechhrs |
Float |
|
Recommended |
Speech therapy (hrs/week) |
0::168
|
|
|
Query
|
cspeechnotes |
String |
100
|
Recommended |
Setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
cspeechdiff |
Integer |
|
Recommended |
Did Speech therapy make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
Query
|
cspeechdiffsp |
String |
100
|
Recommended |
In what way? |
|
|
|
Query
|
cssghrs |
Float |
|
Recommended |
Social skills group (hrs/week) |
0::168
|
|
|
Query
|
cssgnotes |
String |
100
|
Recommended |
Setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
cssgdiff |
Integer |
|
Recommended |
Did Social skills group make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
Query
|
cssgdiffsp |
String |
100
|
Recommended |
In what way? |
|
|
|
Query
|
teacchhrs |
Float |
|
Recommended |
TEACCH (hrs/week) |
0::168
|
|
|
|
teacchnotes |
String |
100
|
Recommended |
Setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
teacchdiff |
Integer |
|
Recommended |
Did TEACCH make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
|
teacchdiffsp |
String |
100
|
Recommended |
In what way? |
|
|
|
Query
|
cothsp |
String |
500
|
Recommended |
Please describe: |
|
|
|
Query
|
cothhrs |
Float |
|
Recommended |
Other interventions (hrs/week) |
0::168
|
|
|
Query
|
cothnotes |
String |
100
|
Recommended |
Setting (i.e. school, clinic, home)/Notes: |
|
|
|
Query
|
cothdiff |
Integer |
|
Recommended |
Did other interventions make a significant difference in your childs behavior or developing abilites? |
0;1
|
0=No; 1=Yes
|
|
Query
|
cothdiffsp |
String |
100
|
Recommended |
In what way? |
|
|
|
Query
|
cparenttng |
Integer |
|
Recommended |
7. Did you participate in any parent training or behavior management training after your childs 6th birthday? |
0;1
|
0=No; 1=Yes
|
|
Query
|
ctng_sp |
String |
100
|
Recommended |
Please describe: |
|
|
|
Query
|
ctngdodiff |
String |
100
|
Recommended |
What are you doing differently as a result of these trainings? |
|
|
|
Query
|
commothintv |
String |
100
|
Recommended |
Please feel free to add any other comments about the treatments and/or educational intervientions received by your child. |
|
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|