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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Selected Filters
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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

Please provide a reason for the requested submission exemption and the
time-frame during which the exemption will be active.
Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Biological Signatures of Autism
David G. Amaral 
Collection of data associated with the Autism Phenome Project and ARRA grant
NDAR
Closed
Shared
$2,828,090.00
141
150
48

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No Data Shared

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Chart Expander
NIH - Extramural None


R01MH089626-01 Interdisciplinary Investigation of Biological Signatures of Autism Subtypes 09/30/2009 08/31/2011 150 48 UNIVERSITY OF CALIFORNIA AT DAVIS $2,828,090.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 86
Autism Diagnostic Observation Schedule (ADOS)- Module 1 Clinical Assessments 78
Child Behavior Checklist (CBCL) 1-5 Clinical Assessments 88
Children Sleep Habit Clinical Assessments 64
Children's Behavior Questionnaire Short Form Clinical Assessments 94
Early Development Questionnaire Clinical Assessments 84
MIND Demographics Clinical Assessments 131
Mullen Scales of Early Learning Clinical Assessments 140
Repetitive Behavior Scale - Revised (RBS-R) Clinical Assessments 58
Sensory Profile Short Clinical Assessments 58
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 36
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 90

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
27566123Create StudyFunctional Connectivity of the Amygdala Is Disrupted in Preschool-Aged Children With Autism Spectrum Disorder.Journal of the American Academy of Child and Adolescent PsychiatryShen MD, Li DD, Keown CL, Lee A, Johnson RT, Angkustsiri K, Rogers SJ, Müller RA, Amaral DG, Nordahl CWSeptember 2016Not Determined
27273931Create StudyPersistence of megalencephaly in a subgroup of young boys with autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchLibero LE, Nordahl CW, Li DD, Ferrer E, Rogers SJ, Amaral DGNovember 2016Not Determined
26493496Create StudyImmune Endophenotypes in Children with Autism Spectrum Disorder.Biological psychiatryCareaga M, Rogers S, Hansen RL, Amaral DG, Van de Water J, Ashwood PSeptember 11, 2015Not Determined
26279309Create StudyAssessing hippocampal development and language in early childhood: Evidence from a new application of the Automatic Segmentation Adapter Tool.Human brain mappingLee JK, Nordahl CW, Amaral DG, Lee A, Solomon M, Ghetti SNovember 2015Not Determined
26184828Create StudyIncreased Surface Area, but not Cortical Thickness, in a Subset of Young Boys With Autism Spectrum Disorder.Autism research : official journal of the International Society for Autism ResearchOhta H, Nordahl CW, Iosif AM, Lee A, Rogers S, Amaral DGFebruary 2016Not Determined
25973163Create StudySex differences in the corpus callosum in preschool-aged children with autism spectrum disorder.Molecular autismNordahl CW, Iosif AM, Young GS, Perry LM, Dougherty R, Lee A, Li D, Buonocore MH, Simon T, Rogers S, Wandell B, Amaral DG2015Not Determined
24389156Create StudyAnti-brain antibodies are associated with more severe cognitive and behavioral profiles in Italian children with Autism Spectrum Disorder.Brain, behavior, and immunityPiras IS, Haapanen L, Napolioni V, Sacco R, Van de Water J, Persico AMMay 2014Not Determined
24022729Create StudyBrief Report: Antibodies Reacting to Brain Tissue in Basque Spanish Children with Autism Spectrum Disorder and Their Mothers.Journal of autism and developmental disordersRossi CC, Fuentes J, Van de Water J, Amaral DGSeptember 11, 2013Not Determined
24007566Create StudyEvidence for differential alternative splicing in blood of young boys with autism spectrum disorders.Molecular autismStamova BS, Tian Y, Nordahl CW, Shen MD, Rogers S, Amaral DG, Sharp FR2013Not Determined
23838695Create StudyEarly brain enlargement and elevated extra-axial fluid in infants who develop autism spectrum disorder.Brain : a journal of neurologyShen MD, Nordahl CW, Young GS, Wootton-Gorges SL, Lee A, Liston SE, Harrington KR, Ozonoff S, Amaral DGSeptember 2013Not Determined
23395715Create StudyMaternal autoantibodies are associated with abnormal brain enlargement in a subgroup of children with autism spectrum disorder.Brain, behavior, and immunityNordahl CW, Braunschweig D, Iosif AM, Lee A, Rogers S, Ashwood P, Amaral DG, Van de Water JMay 2013Not Determined
23063420Create StudyMyeloid dendritic cells frequencies are increased in children with autism spectrum disorder and associated with amygdala volume and repetitive behaviors.Brain, behavior, and immunityBreece E, Paciotti B, Nordahl CW, Ozonoff S, Van de Water JA, Rogers SJ, Amaral D, Ashwood PJuly 2013Not Determined
22717029Create StudyLevels of soluble platelet endothelial cell adhesion molecule-1 and P-selectin are decreased in children with autism spectrum disorder.Biological psychiatryOnore CE, Nordahl CW, Young GS, Van de Water JA, Rogers SJ, Ashwood PDecember 15, 2012Not Determined
22213789Create StudyIncreased rate of amygdala growth in children aged 2 to 4 years with autism spectrum disorders: a longitudinal study.Archives of general psychiatryNordahl CW, Scholz R, Yang X, Buonocore MH, Simon T, Rogers S, Amaral DGJanuary 2012Not Determined
22123952Create StudyBrain enlargement is associated with regression in preschool-age boys with autism spectrum disorders.Proceedings of the National Academy of Sciences of the United States of AmericaNordahl CW, Lange N, Li DD, Barnett LA, Lee A, Buonocore MH, Simon TJ, Rogers S, Ozonoff S, Amaral DGDecember 13, 2011Not Determined
21906670Create StudyThe role of immune dysfunction in the pathophysiology of autism.Brain, behavior, and immunityOnore C, Careaga M, Ashwood PMarch 2012Not Determined
21420487Create StudyDetection of plasma autoantibodies to brain tissue in young children with and without autism spectrum disorders.Brain, behavior, and immunityRossi CC, Van de Water J, Rogers SJ, Amaral DGAugust 2011Not Determined
21129367Create StudyThe promise and the pitfalls of autism research: an introductory note for new autism researchers.Brain researchAmaral DGMarch 22, 2011Not Determined

This tab provides a general status on the data expected to be shared. There are two types of data expected.

  1. By Relevant publications — Those publications that reported for the collection's grant and have a status of "relevant" for sharing are listed first. The grantee is expected to share the data specific to those publications using the NDA Study feature. If a publication is erroneously marked relevant, the PI should simply change the status. When sharing a study, only the outcome measures for the subjects/time-points are shared. Other data that have not met the share date, defined below, will remain embargoed. To initiate study creation, simply login, mark your publication as relevant and click on the link listed to begin.

  2. By Data Structure — The number of subjects expected, received and shared is provided. Investigators are expected to update the data that they are collecting, the initial submission date and initial share dates. The NIMH Data Archive shares data when those dates are met.

  3. Submission Exemption — Those with Administrative or Submission Access to the Collection may request an exemption for submission for a defined period by stating the reason and timeframe. Note that the program officer on the grant may review this request.


Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.

For those with privileges to edit the collection, it is possible to upload your data definitions using this interface. NDA support staff will then follow up with a harmonized data definition for you to use in providing additional data.

Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Childrens Behavior Questionnaire (CBQ) info iconApproved
Research Subject and Pedigree info iconApproved
Communication and Symbolic Behavior Scales (CSBS) info iconApproved
ADOS info iconApproved
Demographics info iconApproved
Early Development Questionnaire info iconApproved
Physical Exam info iconApproved
Mullen Scales of Early Learning info iconApproved
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
Sensory Profile info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Childs Sleep Habits Questionnaire (CSHQ) info iconApproved
ADI-R info iconApproved
Imaging (Structural, fMRI, DTI, PET, microscopy) info iconApproved
Medical History info iconApproved
Vineland (Parent and Caregiver) info iconApproved
genomics/omics info iconApproved
EEG info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.