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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Shared

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General

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For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Autism in the second half of the lifespan
Ruth Carper 
Behavior, daily living, service needs. As a first step toward identifying and understanding the effects of aging in ASD, we propose to examine individuals in middle and later-age (30-70 years) in order to: (1) Characterize current living situations, support needs and available support systems for adults with ASD and the influence of demographic factors on these variables; (2) Determine the effect of age on cognitive and motor abilities in adults with ASD in comparison to normal control adults; (3) Identify possible protective factors or activities that may promote successful aging in ASD. We will achieve these goals by surveying subjects and their caregivers to determine individual level of independence, daily living skills, social skills, frequency of problem behaviors, and overall quality of life. Extensive information will be collected with regard to service usage and support needs, and direct testing will be used to determine cognitive and motor functions and current autism symptomology. Examination of middle and late life in ASD is not only important for people with autism but is urgent for their parents and families. At an age when many parents move in with their adult children to receive increased care, parents of people with ASDs are often still playing the role of care-giver. They must make new care plans for when they are gone or are no longer able to care for their adult children. The proposed project will help to determine the effects of aging on the individual with autism and, in turn, may help to predict future support needs for this population as they age, and as they transition from family support to public support.
NDAR
Closed
Shared
$534,149.00
59
180
7
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NIH - Extramural None


R21MH089645-01 Autism in the second half of the lifespan: Behavior, daily living, service needs 09/30/2009 08/31/2011 180 7 UNIVERSITY OF CALIFORNIA SAN DIEGO $534,149.00

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Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Adult Behavior Check List Clinical Assessments 20
Autism Diagnostic Observation Schedule (ADOS) - Module 4 Clinical Assessments 18
Finger Tapping Test Clinical Assessments 44
Grooved Pegboard Test Clinical Assessments 44
Halstead-Reitan Grip Strength Clinical Assessments 46
Peabody Picture Vocabulary Test, Fourth Edition-Form A Clinical Assessments 49
Scales of Independent Behavior Revised Clinical Assessments 17
Wechsler Abbreviated Scale of Intelligence (WASI) Clinical Assessments 44
Wechsler Memory Scale, Third Edition (WMS-III) Clinical Assessments 46

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Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
No records found.
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Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
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Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
ADOS info iconApproved
DAS-II: Differential Ability Scales info iconApproved
Peabody Picture Vocabulary Test, Fourth Edition info iconApproved
Wechsler Abbreviated Scale of Intelligence (WASI) info iconApproved
Medical History info iconApproved
Auditory Verbal Learning Task info iconApproved
Adult Behavior Checklist (ABCL) info iconApproved
Scales of Independent Behavior Revised (SIB-R) info iconApproved
Behavior Rating Inventory of Executive Function (BRIEF) info iconApproved
Finger Tapping Test info iconApproved
Service Utilization Questionnaire info iconApproved
Grooved Pegboard Test info iconApproved
Demographics info iconApproved
Research Subject and Pedigree info iconApproved
Delis-Kaplan Executive Function System (D-KEFS) info iconApproved
Wechsler Memory Scale, Third Edition (WMS-III) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Halstead Reitan Grip Strength info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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