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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

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Data Expected Item Original Sharing Date New Sharing Date

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Intensive Intervention for Toddlers With Autism (EARLY STEPS)
Sally J. Rogers 
A Multi-Site Randomized Study of Intensive Treatment for Toddlers with Autism
NDAR, Clinical Trials
Closed
Shared
$14,775,720.00
99
108
97
Loading Chart...
NIH - Extramural None


R01MH081757-01 A Multi-Site Randomized Study of Intensive Treatment for Toddlers with Autism 09/20/2007 07/31/2012 108 97 UNIVERSITY OF CALIFORNIA AT DAVIS $14,775,720.00

Goals of the current project: (1) Does the Early Start Denver Model experimental intervention for toddlers with autism reduce disability associated with autism significantly more than standard community interventions?; and (2) What environmental, child, and biological characteristics mediate and moderate intervention response and outcomes at age 4? Active, not recruiting NCT00698997 200816233 Sally J Rogers, Ph.D. April 2008 December 2018

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Rev (ADI-R) Toddler 2004 Clinical Assessments 57
Autism Diagnostic Interview, Rev (ADI-R) Toddler 2006 Clinical Assessments 57
Autism Diagnostic Observation Schedule (ADOS) Toddler Clinical Assessments 99
Battelle Developmental Inventory Clinical Assessments 71
CHARGE Family Characteristics Questionnaire Clinical Assessments 93
CHARGE Medical History Clinical Assessments 95
CHARGE Physical Exam Clinical Assessments 94
CSBS DP Infant-Toddler Checklist Clinical Assessments 91
Child Behavior Rating Scale (CBRS) Clinical Assessments 94
Child Information Sheet Clinical Assessments 96
DSM-IV Checklist (Early Steps; SOFAS) Clinical Assessments 87
Dyadic Adjustment Scale Clinical Assessments 86
Early Screening for Autistic Traits-ESAT Clinical Assessments 31
Height and Weight Clinical Assessments 89
Imitative Sequences Clinical Assessments 97
Intervention History Clinical Assessments 95
Joint Attention / Social and Nonsocial Orienting Task Clinical Assessments 96
Life Events Survey Clinical Assessments 88
M-CHAT Clinical Assessments 69
MacArthur-Bates CDI - Words and Gestures Form Clinical Assessments 88
Maternal Behavior Rating Scale (MBRS) Clinical Assessments 94
Modified CHARGE Family Medical History (2007) Clinical Assessments 94
Mullen Scales of Early Learning Clinical Assessments 98
NCAST Teaching Scale Clinical Assessments 49
Parent Satisfaction Rating Clinical Assessments 26
Parent Sense of Competence Clinical Assessments 89
Questionnaire on Resources and Stress Clinical Assessments 89
Social Support Questionnaire Clinical Assessments 89
Symptom Checklist-90-Revised Clinical Assessments 75
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 95
Working Alliance Scale Clinical Assessments 80

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
26088663Create StudyLong-Term Outcomes of Early Intervention in 6-Year-Old Children With Autism Spectrum Disorder.Journal of the American Academy of Child and Adolescent PsychiatryEstes A, Munson J, Rogers SJ, Greenson J, Winter J, Dawson GJuly 2015Not Relevant
23911756Create StudyAntihypertensive drugs decrease risk of Alzheimer disease: Ginkgo Evaluation of Memory Study.NeurologyYasar S, Xia J, Yao W, Furberg CD, Xue QL, Mercado CI, Fitzpatrick AL, Fried LP, Kawas CH, Sink KM, Williamson JD, DeKosky ST, Carlson MCSeptember 3, 2013Not Relevant
23838727Create StudyThe impact of parent-delivered intervention on parents of very young children with autism.Journal of autism and developmental disordersEstes A, Vismara L, Mercado C, Fitzpatrick A, Elder L, Greenson J, Lord C, Munson J, Winter J, Young G, Dawson G, Rogers SFebruary 2014Not Determined
23153932Create StudyDiagnosing autism in neurobiological research studies.Behavioural brain researchJones RM, Lord CAugust 15, 2013Not Relevant
23021480Create StudyEffects of a brief Early Start Denver model (ESDM)-based parent intervention on toddlers at risk for autism spectrum disorders: a randomized controlled trial.Journal of the American Academy of Child and Adolescent PsychiatryRogers SJ, Estes A, Lord C, Vismara L, Winter J, Fitzpatrick A, Guo M, Dawson GOctober 2012Not Determined
22486486Create StudyAnnual research review: re-thinking the classification of autism spectrum disorders.Journal of child psychology and psychiatry, and allied disciplinesLord C, Jones RMMay 2012Not Relevant
21058793Create StudyAutism: from research to practice.The American psychologistLord, Catherine ENovember 2010Not Relevant
20890377Create Study[What are infant siblings teaching us about autism in infancy?]Enfance; psychologie, pedagogie, neuropsychiatrie, sociologieRogers, Sally J2009-JanNot Relevant
20868374Create StudyIntervening in infancy: implications for autism spectrum disorders.Journal of child psychology and psychiatry, and allied disciplinesWallace KS, Rogers SJDecember 2010Not Relevant
19582867Create StudyWhat are infant siblings teaching us about autism in infancy?Autism research : official journal of the International Society for Autism ResearchRogers, Sally JJune 2009Not Relevant
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Dyadic Adjustment Scale info iconApproved
ADOS info iconApproved
Research Subject and Pedigree info iconApproved
ADI-R info iconApproved
Child Behavior Rating Scale (CBRS) info iconApproved
Battelle Developmental Inventory, Second Edition (BDI-2) info iconApproved
Physical Exam info iconApproved
Demographics info iconApproved
Life Events Checklist info iconApproved
MacArthur Bates Communicative Development Inventory info iconApproved
Maternal Behavior Rating Scale (MBRS) info iconApproved
M-CHAT info iconApproved
Mullen Scales of Early Learning info iconApproved
NCAST info iconApproved
Parent Satisfaction Rating info iconApproved
Parenting Sense of Competence Scale (PSOCS) info iconApproved
Questionnaire on Resources and Stress (QRS-F) info iconApproved
Social Support Questionnaire info iconApproved
Hopkins Symptom Checklist info iconApproved
Working Alliance Scale info iconApproved
Early Screening of Autistic Traits Questionnaire (ESAT) info iconApproved
Imitative Sequences info iconApproved
Intervention History info iconApproved
DSM IV Criteria info iconApproved
Joint Attention / Social and Nonsocial Orienting Task info iconApproved
Communication and Symbolic Behavior Scales (CSBS) info iconApproved
Medical History info iconApproved
Vineland (Parent and Caregiver) info iconApproved
DAS-II: Differential Ability Scales info iconApproved
PDD Behavior Inventory (PDDBI) info iconApproved
Language Use Inventory (LUI) info iconApproved
Preschool Language Scale (PLS) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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