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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

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Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
CBT for anxiety in adolescents with autism
Jeffrey Wood 
Collection consists of youth with autism and coexisting anxiety undergoing cognitive-behavioral treatment
Loading Chart...
NIH - Extramural None

R34HD065270-01 1/3 CBT for Anxiety Disorders in Autism: Adapting Treatment for Adolescents 09/30/2009 08/31/2011 26 7 UNIVERSITY OF CALIFORNIA LOS ANGELES $506,742.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Anxiety Disorders Interview Schedule Parent (ADIS IV P) Clinical Assessments 27
Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 27
Autism Diagnostic Observation Schedule (ADOS)- Module 3 Clinical Assessments 25
Child Behavior Checklist (CBCL) 6-18 Clinical Assessments 27
Clinical Global Impression (CGI) Clinical Assessments 27
Columbia Impairment Scale (CIS) Parent Reported Clinical Assessments 27
Columbia Impairment Scale (CIS) Youth Reported Clinical Assessments 27
Expectancy Rating Questionnaire (ERQ) Clinical Assessments 26
Loneliness Rating Scale (LRS) Clinical Assessments 27
Multidimensional Adolescent Satisfaction Scale (MASS) Clinical Assessments 20
Multidimensional Anxiety Scale for Children Parent and Self Clinical Assessments 27
Pediatric Anxiety Rating Scale (PARS) Clinical Assessments 27
Peer Experiences Questionnaire Revised (PEQ-R) Clinical Assessments 27
Revised Child Anxiety and Depression Scale (RCADS) Clinical Assessments 27
Service Assess for Child Adolescents Service Use Scale (SACA) Clinical Assessments 27
Social Responsiveness Scale (SRS) Clinical Assessments 27
The End of Session/End of Treatment Feedback Questionnaire Clinical Assessments 20
Therapist Alliance Scale Child and Parent Reports (TAS C P T) Clinical Assessments 22

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:


Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
25526831Create StudyCognitive behavioral therapy for early adolescents with autism spectrum disorders and clinical anxiety: a randomized, controlled trial.Behavior therapyWood, Jeffrey J; Ehrenreich-May, Jill; Alessandri, Michael; Fujii, Cori; Renno, Patricia; Laugeson, Elizabeth; Piacentini, John C; De Nadai, Alessandro S; Arnold, Elysse; Lewin, Adam B; Murphy, Tanya K; Storch, Eric AJanuary 2015Not Determined
24419073Create StudyValidity of the Revised Children's Anxiety and Depression Scale for youth with autism spectrum disorders.Autism : the international journal of research and practiceSterling L, Renno P, Storch EA, Ehrenreich-May J, Lewin AB, Arnold E, Lin E, Wood JJanuary 2015Not Determined
22856332Create StudyMultiple informant agreement on the anxiety disorders interview schedule in youth with autism spectrum disorders.Journal of child and adolescent psychopharmacologyStorch EA, Ehrenreich May J, Wood JJ, Jones AM, De Nadai AS, Lewin AB, Arnold EB, Murphy TKAugust 2012Not Determined

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Services Assessment for Children and Adolescents (SACA) info iconApproved
Anxiety Disorders Interview Schedule info iconApproved
Therapist Alliance Scale Child and Parent Reports (TAS C P) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Loneliness Rating Scale (LRS) info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Clinical Global Impression (CGI) info iconApproved
Expectancy Rating Questionnaire (ERQ) info iconApproved
Pediatric Anxiety Rating Scale (PARS) info iconApproved
Peer Experiences Questionnaire Revised (PEQ-R) info iconApproved
Multidimensional Anxiety Scale for Children (MASC) info iconApproved
ADOS info iconApproved
End of Session/End of Treatment Feedback Questionnaire info iconApproved
ADI-R info iconApproved
Columbia impairment scale (CIS) info iconApproved
Multidimensional Adolescent Satisfaction Scale (MASS) info iconApproved
Child Anxiety and Depression Scale - Revised (RCADS) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study Name Description Number of Subjects
Collection / Total
Data Use State
Convergent and Discriminant Validity and Reliability of the Pediatric Anxiety Rating Scale in Youth with Autism Spectrum Disorders The psychometric properties of the Pediatric Anxiety Rating Scale (PARS), a clinician-administered measure for assessing severity of anxiety symptoms, were examined in 72 children and adolescents diagnosed with an autism spectrum disorder (ASD). The internal consistency of the PARS was 0.59, suggesting that the items were related but not repetitive.The PARS was strongly correlated with clinician-ratings of overall anxiety severity and parent- report anxiety measures, supporting convergent validity. Results for divergent validity were mixed. Although the PARS was not associated with the sum of the Social and Communication items on the Autism Diagnostic Observation System, it was moderately correlated with parent-reported inattention, aggression and externalizing behavior. Overall, these results suggest that the psychometric properties of the PARS are adequate for assessing anxiety symptoms in youth with ASD, although additional clarification of divergent validity is needed. 27 / 54 Primary Analysis Shared
* Data not on individual level