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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

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Data Expected Item Original Sharing Date New Sharing Date

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Studies to Advance Autism Research and Treatment (STAART).
Aylward, Elizabeth; Buxbaum, Joseph; Dawson, Geraldine; Hollander, Eric; Landa, Rebecca; Rodier, Patricia; Sigman, Marian; Tager-Flusberg, Helen  
The STAART Network is comprised of eight centers across the country. Most of these centers are evaluating and treating patients, as well as enrolling them into clinical trials.
NDAR
Closed
Shared
$38,413,000.00
2,088
4437
1941
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NIH - Extramural None

CPEA_STAART_data_release_10182010.pdf Methods Overview of the CPEA/STAART Data Organization Qualified Researchers
CPEA_STAART_DATA_DICTIONARY.xlsx Other Data Definition of CPEA STAART Data Warehouse Qualified Researchers
assessment_to_Version_variable_mapping.xlsx Other Assessment to Version Variable Mapping Qualified Researchers

U54MH066399-01 UW Autism Research Center of Excellence 05/13/2003 04/30/2008 240 223 UNIVERSITY OF WASHINGTON $8,341,865.00
U54MH066673-01 Greater New York Autism Research Center of Excellence 05/13/2003 04/30/2008 806 496 ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI $7,729,134.00
U54MH068172-01 Social & Language Deficits in Autism-Biology & Treament 05/13/2003 04/30/2008 2766 475 UNIVERSITY OF CALIFORNIA LOS ANGELES $8,153,526.00
U54MH066397-01 Genotype and Phenotype of Response to Treatments of Autism 05/13/2003 04/30/2008 379 389 UNIVERSITY OF ROCHESTER $7,102,005.00
U54MH066417-01 NEUROBIOLOGIC ORIGINS AND INNOVATIVE TREATMENT OF AUTISM 05/13/2003 04/30/2008 246 358 HUGO W. MOSER RES INST KENNEDY KRIEGER $7,086,470.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 30
Autism Diagnostic Observation Schedule (ADOS)- Module 1 Clinical Assessments 35
Autism Diagnostic Observation Schedule (ADOS)- Module 2 Clinical Assessments 16
Autism Diagnostic Observation Schedule (ADOS)- Module 3 Clinical Assessments 13
CPEA STAART ABC 1994 Clinical Assessments 180
CPEA STAART ADI 1991 Toddler Clinical Assessments 62
CPEA STAART ADI 2003 Clinical Assessments 816
CPEA STAART ADI-R 1995 Short Clinical Assessments 2
CPEA STAART ADI-R 1998 Long Clinical Assessments 155
CPEA STAART ADI-R 1999 Short Clinical Assessments 71
CPEA STAART ADOS G Module 1 Clinical Assessments 60
CPEA STAART ADOS G Module 2 Clinical Assessments 36
CPEA STAART ADOS G Module 3 Clinical Assessments 66
CPEA STAART ADOS G Module 4 Clinical Assessments 10
CPEA STAART ADOS WPS Module 1 Clinical Assessments 697
CPEA STAART ADOS WPS Module 2 Clinical Assessments 181
CPEA STAART ADOS WPS Module 3 Clinical Assessments 308
CPEA STAART ADOS WPS Module 4 Clinical Assessments 180
CPEA STAART CBCL 1.5 to 5 Clinical Assessments 141
CPEA STAART CBCL 6 to 18 Clinical Assessments 138
CPEA STAART CTOPP Ages 5 to 6 Clinical Assessments 13
CPEA STAART CTOPP Ages 7 to 24 Clinical Assessments 321
CPEA STAART CYBOCS 1999 Clinical Assessments 164
CPEA STAART EVT Clinical Assessments 27
CPEA STAART Expressive One Word Pic Vocab Test Clinical Assessments 272
CPEA STAART General Variables Clinical Assessments 2053
CPEA STAART Leiter Scales Clinical Assessments 139
CPEA STAART MacArthur-Bates Words and Gestures Clinical Assessments 171
CPEA STAART MacArthur-Bates Words and Sentences Clinical Assessments 101
CPEA STAART Mullen Clinical Assessments 757
CPEA STAART P-DAS Clinical Assessments 5
CPEA STAART PDDBI Clinical Assessments 19
CPEA STAART PLS_4 Clinical Assessments 90
CPEA STAART PPVT SUMMARY 2004 Clinical Assessments 55
CPEA STAART PPVT Version 3 Clinical Assessments 494
CPEA STAART Reynell Clinical Assessments 53
CPEA STAART S-DAS Clinical Assessments 5
CPEA STAART SRS Clinical Assessments 19
CPEA STAART Sensory Profile 3 to 10 Years Clinical Assessments 239
CPEA STAART Sensory Profile 7 - 36 Months Clinical Assessments 41
CPEA STAART Stanford Binet 4th Edition Clinical Assessments 1
CPEA STAART Stanford Binet 5th Edition Clinical Assessments 63
CPEA STAART Vineland I Clinical Assessments 1322
CPEA STAART WAIS 3 Clinical Assessments 55
CPEA STAART WASI Clinical Assessments 258
CPEA STAART WISC 3 Clinical Assessments 40
CPEA STAART WISC 4 Clinical Assessments 206
CPEA STAART WPPSI 2y6m to 3y11m Clinical Assessments 16
DAS-II: Differential Ability Scales 2nd Ed. School Age Clinical Assessments 16
DAS-II:Differential Ability Scales 2nd Ed. Early Years Clinical Assessments 4
Mullen Scales of Early Learning Clinical Assessments 33
Social Communication Questionnaire (SCQ) - Current Form Clinical Assessments 1
Social Communication Questionnaire (SCQ) - Lifetime Clinical Assessments 7

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
27620949Create StudyCharacteristics of socially successful elementary school-aged children with autism.Journal of child psychology and psychiatry, and allied disciplinesLocke J, Williams J, Shih W, Kasari CSeptember 2016Not Determined
27358719Create StudyCommentary: sex difference differences? A reply to Constantino.Molecular autismMessinger DS, Young GS, Webb SJ, Ozonoff S, Bryson SE, Carter A, Carver L, Charman T, Chawarska K, Curtin S, Dobkins K, Hertz-Picciotto I, Hutman T, Iverson JM, Landa R, Nelson CA, Stone WL, Tager-Flusberg H, Zwaigenbaum L2016Not Relevant
27178863Create StudyEarly event-related potentials to emotional faces differ for adults with autism spectrum disorder and by serotonin transporter genotype.Clinical neurophysiology : official journal of the International Federation of Clinical NeurophysiologyFaja S, Dawson G, Aylward E, Wijsman EM, Webb SJJune 2016Not Determined
26966285Create StudyRace, disability, and grade: Social relationships in children with autism spectrum disorders.Autism : the international journal of research and practiceAzad GF, Locke J, Kasari C, Mandell DSJanuary 2017Not Determined
26890821Create StudyExecutive function predicts the development of play skills for verbal preschoolers with autism spectrum disorders.Autism research : official journal of the International Society for Autism ResearchFaja S, Dawson G, Sullivan K, Meltzoff AN, Estes A, Bernier RDecember 2016Not Determined
26881074Create StudyTheory of Mind Indexes the Broader Autism Phenotype in Siblings of Children with Autism at School Age.Autism research and treatmentTsang T, Gillespie-Lynch K, Hutman TJanuary 2016Not Determined
26567264Create StudySocial network analysis of children with autism spectrum disorder: Predictors of fragmentation and connectivity in elementary school classrooms.Autism : the international journal of research and practiceAnderson A, Locke J, Kretzmann M, Kasari C, August 2016Not Determined
26484047Create StudyDefault mode network segregation and social deficits in autism spectrum disorder: Evidence from non-medicated children.NeuroImage. ClinicalYerys BE, Gordon EM, Abrams DN, Satterthwaite TD, Weinblatt R, Jankowski KF, Strang J, Kenworthy L, Gaillard WD, Vaidya CJ2015Not Determined
26451968Create StudySchool-age outcomes of infants at risk for autism spectrum disorder.Autism research : official journal of the International Society for Autism ResearchMiller M, Iosif AM, Young GS, Hill M, Phelps Hanzel E, Hutman T, Johnson S, Ozonoff SOctober 9, 2015Not Determined
26343026Create StudyThe Gluten-Free/Casein-Free Diet: A Double-Blind Challenge Trial in Children with Autism.Journal of autism and developmental disordersHyman SL, Stewart PA, Foley J, Cain U, Peck R, Morris DD, Wang H, Smith TJanuary 2016Not Determined
26340957Create StudyAltered Dynamics of the fMRI Response to Faces in Individuals with Autism.Journal of autism and developmental disordersKleinhans NM, Richards T, Greenson J, Dawson G, Aylward EJanuary 2016Not Determined
26236149Create StudyAnterior-Posterior Connectivity within the Default Mode Network Increases During Maturation.International journal of medical and biological frontiersWashington, Stuart D; VanMeter, John W2015Not Relevant
26164418Create StudyInfants' behavioral styles in joint attention situations and parents' socio-economic status.Infant behavior & developmentAbels M, Hutman TAugust 2015Not Determined
26088663Create StudyLong-Term Outcomes of Early Intervention in 6-Year-Old Children With Autism Spectrum Disorder.Journal of the American Academy of Child and Adolescent PsychiatryEstes, Annette; Munson, Jeffrey; Rogers, Sally J; Greenson, Jessica; Winter, Jamie; Dawson, GeraldineJuly 2015Not Relevant
25898050Create StudyEffect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: a randomized clinical trial.JAMABearss K, Johnson C, Smith T, Lecavalier L, Swiezy N, Aman M, McAdam DB, Butter E, Stillitano C, Minshawi N, Sukhodolsky DG, Mruzek DW, Turner K, Neal T, Hallett V, Mulick JA, Green B, Handen B, Deng Y, Dziura J, Scahill LApril 21, 2015Not Determined
25778537Create StudyPredicting Outcome of Community-Based Early Intensive Behavioral Intervention for Children with Autism.Journal of abnormal child psychologySmith T, Klorman R, Mruzek DWOctober 2015Not Determined
25599972Create StudyNeural Correlates of Set-Shifting in Children With Autism.Autism research : official journal of the International Society for Autism ResearchYerys, Benjamin E; Antezana, Ligia; Weinblatt, Rachel; Jankowski, Kathryn F; Strang, John; Vaidya, Chandan J; Schultz, Robert T; Gaillard, William D; Kenworthy, LaurenAugust 2015Not Relevant
25457930Create Study18-month predictors of later outcomes in younger siblings of children with autism spectrum disorder: a baby siblings research consortium study.Journal of the American Academy of Child and Adolescent PsychiatryChawarska K, Shic F, Macari S, Campbell DJ, Brian J, Landa R, Hutman T, Nelson CA, Ozonoff S, Tager-Flusberg H, Young GS, Zwaigenbaum L, Cohen IL, Charman T, Messinger DS, Klin A, Johnson S, Bryson SDecember 2014Not Determined
25409314Create StudyProtein interaction networks reveal novel autism risk genes within GWAS statistical noise.PloS oneCorreia C, Oliveira G, Vicente AM2014Not Determined
25315782Create StudyEarly pragmatic language difficulties in siblings of children with autism: implications for DSM-5 social communication disorder?Journal of child psychology and psychiatry, and allied disciplinesMiller M, Young GS, Hutman T, Johnson S, Schwichtenberg AJ, Ozonoff SJuly 2015Not Determined
25313971Create StudyPediatric status epilepticus: identification and evaluation.Current opinion in pediatricsFreilich ER, Schreiber JM, Zelleke T, Gaillard WDDecember 2014Not Determined
25108609Create StudyPotential neural mechanisms underlying the effectiveness of early intervention for children with autism spectrum disorder.Research in developmental disabilitiesSullivan K, Stone WL, Dawson GNovember 2014Not Determined
25039696Create StudyThe peer relationships of girls with ASD at school: comparison to boys and girls with and without ASD.Journal of child psychology and psychiatry, and allied disciplinesDean M, Kasari C, Shih W, Frankel F, Whitney R, Landa R, Lord C, Orlich F, King B, Harwood RNovember 2014Not Determined
25038753Create StudyMost genetic risk for autism resides with common variation.Nature geneticsGaugler T, Klei L, Sanders SJ, Bodea CA, Goldberg AP, Lee AB, Mahajan M, Manaa D, Pawitan Y, Reichert J, Ripke S, Sandin S, Sklar P, Svantesson O, Reichenberg A, Hultman CM, Devlin B, Roeder K, Buxbaum JDAugust 2014Not Determined
24655649Create StudyThe broader autism phenotype in infancy: when does it emerge?Journal of the American Academy of Child and Adolescent PsychiatryOzonoff S, Young GS, Belding A, Hill M, Hill A, Hutman T, Johnson S, Miller M, Rogers SJ, Schwichtenberg AJ, Steinfeld M, Iosif AMApril 2014Not Determined
24108192Create StudyPredicting treatment success in social skills training for adolescents with autism spectrum disorders: the UCLA Program for the Education and Enrichment of Relational Skills.Autism : the international journal of research and practiceChang YC, Laugeson EA, Gantman A, Ellingsen R, Frankel F, Dillon ARMay 2014Not Determined
24061784Create StudyBaseline factors predicting placebo response to treatment in children and adolescents with autism spectrum disorders: a multisite randomized clinical trial.JAMA pediatricsKing BH, Dukes K, Donnelly CL, Sikich L, McCracken JT, Scahill L, Hollander E, Bregman JD, Anagnostou E, Robinson F, Sullivan L, Hirtz DNovember 2013Not Determined
23996903Create StudyLong-term outcomes of parent-assisted social skills intervention for high-functioning children with autism spectrum disorders.Autism : the international journal of research and practiceMandelberg J, Frankel F, Cunningham T, Gorospe C, Laugeson EAApril 2014Not Determined
23894004Create StudyReduced serotonin receptor subtypes in a limbic and a neocortical region in autism.Autism research : official journal of the International Society for Autism ResearchOblak A, Gibbs TT, Blatt GJDecember 2013Not Determined
23880382Create StudyInterests in high-functioning autism are more intense, interfering, and idiosyncratic than those in neurotypical development.Development and psychopathologyAnthony LG, Kenworthy L, Yerys BE, Jankowski KF, James JD, Harms MB, Martin A, Wallace GLAugust 2013Not Determined
23820765Create StudyParent-reported temperament trajectories among infant siblings of children with autism.Journal of autism and developmental disordersDel Rosario M, Gillespie-Lynch K, Johnson S, Sigman M, Hutman TFebruary 2014Not Determined
23734230Create StudyBrain responses to words in 2-year-olds with autism predict developmental outcomes at age 6.PloS oneKuhl PK, Coffey-Corina S, Padden D, Munson J, Estes A, Dawson G2013Not Determined
23452686Create StudyBeyond autism: a baby siblings research consortium study of high-risk children at three years of age.Journal of the American Academy of Child and Adolescent PsychiatryMessinger D, Young GS, Ozonoff S, Dobkins K, Carter A, Zwaigenbaum L, Landa RJ, Charman T, Stone WL, Constantino JN, Hutman T, Carver LJ, Bryson S, Iverson JM, Strauss MS, Rogers SJ, Sigman MMarch 2013Not Determined
23436793Create StudyBehavior and sleep problems in children with a family history of autism.Autism research : official journal of the International Society for Autism ResearchSchwichtenberg AJ, Young GS, Hutman T, Iosif AM, Sigman M, Rogers SJ, Ozonoff SJune 2013Not Determined
23400347Create StudyExploring the manifestations of anxiety in children with autism spectrum disorders.Journal of autism and developmental disordersHallett V, Lecavalier L, Sukhodolsky DG, Cipriano N, Aman MG, McCracken JT, McDougle CJ, Tierney E, King BH, Hollander E, Sikich L, Bregman J, Anagnostou E, Donnelly C, Katsovich L, Dukes K, Vitiello B, Gadow K, Scahill LOctober 2013Not Determined
23336424Create StudyEarly sensory over-responsivity in toddlers with autism spectrum disorders as a predictor of family impairment and parenting stress.Journal of child psychology and psychiatry, and allied disciplinesBen-Sasson A, Soto TW, Martínez-Pedraza F, Carter ASAugust 2013Not Determined
23334984Create StudyDysmaturation of the default mode network in autism.Human brain mappingWashington SD, Gordon EM, Brar J, Warburton S, Sawyer AT, Wolfe A, Mease-Ference ER, Girton L, Hailu A, Mbwana J, Gaillard WD, Kalbfleisch ML, VanMeter JWApril 2014Not Determined
23146332Create StudyParenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders.Brain & developmentEstes A, Olson E, Sullivan K, Greenson J, Winter J, Dawson G, Munson JFebruary 2013Not Determined
23130085Create StudyDo Social Attribution Skills Improve with Age in Children with High Functioning Autism Spectrum Disorders?Research in autism spectrum disordersBal E, Yerys BE, Sokoloff JL, Celano MJ, Kenworthy L, Giedd JN, Wallace GLJanuary 2013Not Determined
23110514Create StudyDevelopmental trajectories in children with and without autism spectrum disorders: the first 3 years.Child developmentLanda RJ, Gross AL, Stuart EA, Faherty A2013 Mar-AprNot Determined
23101741Create StudyEarly behavioral intervention is associated with normalized brain activity in young children with autism.Journal of the American Academy of Child and Adolescent PsychiatryDawson G, Jones EJ, Merkle K, Venema K, Lowy R, Faja S, Kamara D, Murias M, Greenson J, Winter J, Smith M, Rogers SJ, Webb SJNovember 2012Not Determined
23055002Create StudyInterventions addressing social impairment in autism.Current psychiatry reportsKasari C, Patterson SDecember 2012Not Determined
23044707Create StudyUsing large clinical data sets to infer pathogenicity for rare copy number variants in autism cohorts.Molecular psychiatryMoreno-De-Luca D, Sanders SJ, Willsey AJ, Mulle JG, Lowe JK, Geschwind DH, State MW, Martin CL, Ledbetter DHOctober 2013Not Determined
22982285Create StudyRelation between early motor delay and later communication delay in infants at risk for autism.Infant behavior & developmentBhat AN, Galloway JC, Landa RJDecember 2012Not Determined
22843504Create StudyIndividual common variants exert weak effects on the risk for autism spectrum disorderspi.Human molecular geneticsAnney R, Klei L, Pinto D, Almeida J, Bacchelli E, Baird G, Bolshakova N, Bölte S, Bolton PF, Bourgeron T, Brennan S, Brian J, Casey J, Conroy J, Correia C, Corsello C, Crawford EL, de Jonge M, Delorme R, Duketis E, Duque F, Estes A, Farrar P, Fernandez BA, Folstein SE, et al.November 1, 2012Not Determined
22728336Create StudyInfants' pre-empathic behaviors are associated with language skills.Infant behavior & developmentHutman T, Rozga A, DeLaurentis A, Sigman M, Dapretto MJune 2012Not Determined
22574686Create StudyLatent class analysis of early developmental trajectory in baby siblings of children with autism.Journal of child psychology and psychiatry, and allied disciplinesLanda RJ, Gross AL, Stuart EA, Bauman MSeptember 2012Not Determined
22499558Create StudyNetwork- and attribute-based classifiers can prioritize genes and pathways for autism spectrum disorders and intellectual disability.American journal of medical genetics. Part C, Seminars in medical geneticsKou Y, Betancur C, Xu H, Buxbaum JD, Ma'ayan AMay 15, 2012Not Determined
22271196Create StudyDifferences in autism symptoms between minority and non-minority toddlers.Journal of autism and developmental disordersTek S, Landa RJSeptember 2012Not Determined
22215436Create StudyExploring the social impact of being a typical peer model for included children with autism spectrum disorder.Journal of autism and developmental disordersLocke J, Rotheram-Fuller E, Kasari CSeptember 2012Not Determined
22193531Create StudyA double-blind placebo-controlled trial of fluoxetine for repetitive behaviors and global severity in adult autism spectrum disorders.The American journal of psychiatryHollander E, Soorya L, Chaplin W, Anagnostou E, Taylor BP, Ferretti CJ, Wasserman S, Swanson E, Settipani CMarch 2012Not Determined
22118062Create StudyMaking the connection: randomized controlled trial of social skills at school for children with autism spectrum disorders.Journal of child psychology and psychiatry, and allied disciplinesKasari C, Rotheram-Fuller E, Locke J, Gulsrud AApril 2012Not Determined
22079057Create StudyThe 5-HT(2A) receptor and serotonin transporter in Asperger's disorder: A PET study with [¹¹C]MDL 100907 and [¹¹C]DASB.Psychiatry researchGirgis RR, Slifstein M, Xu X, Frankle WG, Anagnostou E, Wasserman S, Pepa L, Kolevzon A, Abi-Dargham A, Laruelle M, Hollander EDecember 30, 2011Not Determined
22059091Create StudyAn Initial Psychometric Evaluation of the CBCL 6-18 in a Sample of Youth with Autism Spectrum Disorders.Research in autism spectrum disordersPandolfi V, Magyar CI, Dill CA2012-JanNot Determined
22010812Create StudyA simple assay to study social behavior in Drosophila: measurement of social space within a group.Genes, brain, and behaviorSimon AF, Chou MT, Salazar ED, Nicholson T, Saini N, Metchev S, Krantz DEMarch 2012Not Determined
22004249Create StudyDevelopmental change in the ERP responses to familiar faces in toddlers with autism spectrum disorders versus typical development.Child developmentWebb SJ, Jones EJ, Merkle K, Venema K, Greenson J, Murias M, Dawson G2011 Nov-DecNot Determined
21996756Create StudyA novel approach of homozygous haplotype sharing identifies candidate genes in autism spectrum disorder.Human geneticsCasey JP, Magalhaes T, Conroy JM, Regan R, Shah N, Anney R, Shields DC, Abrahams BS, Almeida J, Bacchelli E, Bailey AJ, Baird G, Battaglia A, Berney T, Bolshakova N, Bolton PF, Bourgeron T, Brennan S, Cali P, Correia C, Corsello C, Coutanche M, Dawson G, de Jonge M, Delorme R, et al.April 2012Not Determined
21948895Create StudyFactor analysis of repetitive behaviors in Autism as measured by the Y-BOCS.The Journal of neuropsychiatry and clinical neurosciencesAnagnostou E, Chaplin W, Watner D, Silverman JM, Smith CJ, Zagursky K, Kryzak LA, Corwin TE, Feirsen N, Tanel N, Hollander E2011Not Determined
21935727Create StudyAnxiety and sensory over-responsivity in toddlers with autism spectrum disorders: bidirectional effects across time.Journal of autism and developmental disordersGreen SA, Ben-Sasson A, Soto TW, Carter ASJune 2012Not Determined
21910524Create StudyImitation from 12 to 24 months in autism and typical development: a longitudinal Rasch analysis.Developmental psychologyYoung GS, Rogers SJ, Hutman T, Rozga A, Sigman M, Ozonoff SNovember 2011Not Determined
21901839Create StudyAlterations in GABAergic biomarkers in the autism brain: research findings and clinical implications.Anatomical record (Hoboken, N.J. : 2007)Blatt GJ, Fatemi SHOctober 2011Not Relevant
21858588Create StudyEvidence-based social skills training for adolescents with autism spectrum disorders: the UCLA PEERS program.Journal of autism and developmental disordersLaugeson EA, Frankel F, Gantman A, Dillon AR, Mogil CJune 2012Not Determined
21844053Create StudyRecurrence risk for autism spectrum disorders: a Baby Siblings Research Consortium study.PediatricsOzonoff S, Young GS, Carter A, Messinger D, Yirmiya N, Zwaigenbaum L, Bryson S, Carver LJ, Constantino JN, Dobkins K, Hutman T, Iverson JM, Landa R, Rogers SJ, Sigman M, Stone WLSeptember 2011Not Determined
21667200Create StudyDesign and subject characteristics in the federally-funded citalopram trial in children with pervasive developmental disorders.Journal of autism and developmental disordersScahill L, McCracken JT, Bearss K, Robinson F, Hollander E, King B, Bregman J, Sikich L, Dukes K, Sullivan L, Anagnostou E, Donnelly C, Kim YS, Ritz L, Hirtz D, Wagner AMarch 2012Not Determined
21598046Create StudyPredictors and course of daily living skills development in toddlers with autism spectrum disorders.Journal of autism and developmental disordersGreen SA, Carter ASFebruary 2014Not Determined
21584850Create StudyPredictive and concurrent validity of parent concern about young children at risk for autism.Journal of autism and developmental disordersHess CR, Landa RJApril 2012Not Determined
21522181Create StudyGene-ontology enrichment analysis in two independent family-based samples highlights biologically plausible processes for autism spectrum disorders.European journal of human genetics : EJHGAnney RJ, Kenny EM, O'Dushlaine C, Yaspan BL, Parkhomenka E, Buxbaum JD, Sutcliffe J, Gill M, Gallagher L, Autism Genome Project, Buxbaum JD, Sutcliffe J, Gill M, Gallagher LOctober 2011Not Determined
21519953Create StudySelective visual attention at twelve months: signs of autism in early social interactions.Journal of autism and developmental disordersHutman T, Chela MK, Gillespie-Lynch K, Sigman MApril 2012Not Determined
21484517Create StudyThe effects of face expertise training on the behavioral performance and brain activity of adults with high functioning autism spectrum disorders.Journal of autism and developmental disordersFaja S, Webb SJ, Jones E, Merkle K, Kamara D, Bavaro J, Aylward E, Dawson GFebruary 2012Not Determined
21484201Create StudyNovel method for combined linkage and genome-wide association analysis finds evidence of distinct genetic architecture for two subtypes of autism.Journal of neurodevelopmental disordersVieland VJ, Hallmayer J, Huang Y, Pagnamenta AT, Pinto D, Khan H, Monaco AP, Paterson AD, Scherer SW, Sutcliffe JS, Szatmari P, June 2011Not Determined
21448237Create StudyReduced transcript expression of genes affected by inherited and de novo CNVs in autism.European journal of human genetics : EJHGNord AS, Roeb W, Dickel DE, Walsh T, Kusenda M, O'Connor KL, Malhotra D, McCarthy SE, Stray SM, Taylor SM, Sebat J, STAART Psychopharmacology Network, King B, King MC, McClellan JMJune 2011Not Determined
21442361Create StudyThe effect of an autism-associated polymorphism in the STK39 gene on the autism symptom domains.Journal of autism and developmental disordersVavolizza RD, Schmeidler J, Ramoz N, Buxbaum JD, Smith CJ, Silverman JMFebruary 2012Not Determined
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16904652Create StudyOxytocin increases retention of social cognition in autism.Biological psychiatryHollander E, Bartz J, Chaplin W, Phillips A, Sumner J, Soorya L, Anagnostou E, Wasserman SFebruary 15, 2007Not Determined
16897400Create StudyERP evidence of atypical face processing in young children with autism.Journal of autism and developmental disordersWebb SJ, Dawson G, Bernier R, Panagiotides HOctober 2006Not Determined
16884725Create StudyThe neuroscience of affiliation: forging links between basic and clinical research on neuropeptides and social behavior.Hormones and behaviorBartz JA, Hollander ENovember 2006Not Determined
16874769Create StudyAbnormalities of cholesterol metabolism in autism spectrum disorders.American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric GeneticsTierney E, Bukelis I, Thompson RE, Ahmed K, Aneja A, Kratz L, Kelley RISeptember 5, 2006Not Determined
16855874Create StudyInvolvement or isolation? The social networks of children with autism in regular classrooms.Journal of autism and developmental disordersChamberlain B, Kasari C, Rotheram-Fuller EFebruary 2007Not Determined
16845578Create StudyEarly predictors of communication development in young children with autism spectrum disorder: joint attention, imitation, and toy play.Journal of autism and developmental disordersToth K, Munson J, Meltzoff AN, Dawson GNovember 2006Not Determined
16816239Create StudyEffects of season of birth on autism spectrum disorders: fact or fiction?The American journal of psychiatryKolevzon A, Weiser M, Gross R, Lubin G, Knobler HY, Schmeidler J, Silverman JM, Reichenberg AJuly 2006Not Determined
16810564Create StudyThe collateral effects of joint attention training on social initiations, positive affect, imitation, and spontaneous speech for young children with autism.Journal of autism and developmental disordersWhalen C, Schreibman L, Ingersoll BJuly 2006Not Determined
16752361Create StudyStratification based on language-related endophenotypes in autism: attempt to replicate reported linkage.American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric GeneticsSpence SJ, Cantor RM, Chung L, Kim S, Geschwind DH, Alarcón MSeptember 5, 2006Not Determined
16685181Create StudyEarly intensive behavioral treatment: replication of the UCLA model in a community setting.Journal of developmental and behavioral pediatrics : JDBPCohen H, Amerine-Dickens M, Smith TApril 2006Not Determined
16649827Create StudySelective serotonin reuptake inhibitors in autism: a review of efficacy and tolerability.The Journal of clinical psychiatryKolevzon A, Mathewson KA, Hollander EMarch 2006Not Determined
16616719Create StudyLack of evidence for association of the serotonin transporter gene SLC6A4 with autism.Biological psychiatryRamoz N, Reichert JG, Corwin TE, Smith CJ, Silverman JM, Hollander E, Buxbaum JDJuly 15, 2006Not Determined
16445396Create StudyEvent-related potential (ERP) indices of infants' recognition of familiar and unfamiliar objects in two and three dimensions.Developmental scienceCarver LJ, Meltzoff AN, Dawson GJanuary 2006Not Determined
16395125Create StudyAutism and ultraconserved non-coding sequence on chromosome 7q.Psychiatric geneticsRichler E, Reichert JG, Buxbaum JD, McInnes LAFebruary 2006Not Determined
16262987Create StudyNeurocognitive and electrophysiological evidence of altered face processing in parents of children with autism: implications for a model of abnormal development of social brain circuitry in autism.Development and psychopathologyDawson G, Webb SJ, Wijsman E, Schellenberg G, Estes A, Munson J, Faja S2005Not Determined
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15850743Create StudyCortical thickness analysis in autism with heat kernel smoothing.NeuroImageChung MK, Robbins SM, Dalton KM, Davidson RJ, Alexander AL, Evans ACMay 1, 2005Not Determined
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15749245Create StudyThe teratology of autism.International journal of developmental neuroscience : the official journal of the International Society for Developmental NeuroscienceArndt TL, Stodgell CJ, Rodier PM2005 Apr-MayNot Determined
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15575414Create StudyThe genetics of autism.Seminars in pediatric neurologySpence SJSeptember 2004Not Determined
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15325371Create StudyLess white matter concentration in autism: 2D voxel-based morphometry.NeuroImageChung MK, Dalton KM, Alexander AL, Davidson RJSeptember 2004Not Determined
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15246704Create StudySex-specific development of cortical monoamine levels in mouse.Brain research. Developmental brain researchConnell S, Karikari C, Hohmann CFJuly 19, 2004Not Determined
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14999178Create StudyComorbidity in compulsive hoarding: a case report.CNS spectrumsKaplan A, Hollander EJanuary 2004Not Determined
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14979766Create StudyEarly social attention impairments in autism: social orienting, joint attention, and attention to distress.Developmental psychologyDawson G, Toth K, Abbott R, Osterling J, Munson J, Estes A, Liaw JMarch 2004Not Determined
14699429Create StudyLinkage analysis for autism in a subset families with obsessive-compulsive behaviors: evidence for an autism susceptibility gene on chromosome 1 and further support for susceptibility genes on chromosome 6 and 19.Molecular psychiatryBuxbaum JD, Silverman J, Keddache M, Smith CJ, Hollander E, Ramoz N, Reichert JGFebruary 2004Not Determined
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Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study Name Description Number of Subjects
Collection / Total
Data Use State
Psychometric Analysis of the Social Communication Questionnaire Using an Item-Response Theory Framework: Implications for the Use of the Lifetime and Current Forms The Social Communication Questionnaire (SCQ) was developed as a screener of Autism Spectrum Disorder (ASD). To date, the majority of the SCQ utility studies focused on its external validity (e.g., ROC curve analyses), but very few have addressed the internal validity issues. With samples consisting of 2,134 individuals available from the National Database for Autism Research (NDAR), the current study examined the factor structure, item-level characteristics, and measurement equivalence of the SCQ forms (i.e., Lifetime form and Current form) using both the classical true score theory and the item response theory (IRT). While our findings indicate sufficient psychometric properties of the SCQ Lifetime form, measurement issues emerged with respect to the SCQ Current form. These issues include lower internal consistencies, a weaker factor structure, lower item discriminations, significant pseudo-guessing effects, and subscale-level measurement bias. Thus, we caution researchers and clinicians about the use of the SCQ Current form. In particular, it seems inappropriate to use the Current form as an alternative to the Lifetime form among children younger than 5 years old or under other special situations (e.g., teacher-report data), although such practices were advised by the publisher of the SCQ. Instead, we recommend modifying the wording of the Lifetime form items rather than switching to the Current form where a 3-month timeframe is specified for responding to SCQ items. Future studies may consider investigating the association between the temporality of certain behaviors and the individual’s potential for being diagnosed with ASD, as well as the age neutrality of the SCQ. 6 / 2134 Secondary Analysis Shared
Revising the Social Communication Questionnaire scoring procedures for Autism Spectrum Disorder and potential Social Communication Disorder In analyzing data from the National Database for Autism Research, we examine revising the Social Communication Questionnaire (SCQ), a commonly used screening instrument for Autism Spectrum Disorder. A combination of Item Response Theory and Mokken scaling techniques were utilized to achieve this and abbreviated scoring of the SCQ is suggested. The psychometric sensitivity of this abbreviated SCQ was examined via bootstrapped Receiver Operator Characteristic (ROC) curve analyses. Additionally, we examined the sensitivity of the abbreviated and total scaled SCQ as it relates to a potential diagnosis of Social (Pragmatic) Communication Disorder (SCD). As SCD is a new disorder introduced with the fifth edition of the Diagnostic and Statistical Manual (DSM-5), we identified individuals with potential diagnosis of SCD among individuals with ASD via mixture modeling techniques using the same NDAR data. These analyses revealed two classes or clusters of individuals when considering the two core areas of impairment among individuals with ASD: social communication and restricted, repetitive patterns of behavior. 7 / 1021 Secondary Analysis Shared
Predictors of self-injurious behaviour exhibited by individuals with autism spectrum disorder Presence of an autism spectrum disorder is a risk factor for development of self-injurious behaviour (SIB) exhibited by individuals with developmental disorders. The most salient SIB risk factors historically studied within developmental disorders are level of intellectual disability, communication deficits and presence of specific genetic disorders. Recent SIB research has expanded the search for risk factors to include less commonly studied variables for people with developmental disorders: negative affect, hyperactivity and impulsivity. 242 / 611 Secondary Analysis Shared
The Sensitivity and Specificity of the Social Communication Questionnaire for Autism Spectrum Disorder with Respect to Age Scientific Abstract The Social Communication Questionnaire (SCQ) assesses communication skills and social functioning in screening for symptoms of autism-spectrum disorder (ASD). The SCQ is recommended for individuals between 4 to 40 years with a cutoff score of 15 for referral. Mixed findings have been reported regarding the recommended cutoff score’s ability to accurately classify an individual as at-risk for ASD (sensitivity) versus an individual as not at-risk for ASD (specificity). Based on a sample from the National Database for Autism Research (n=344; age: 1.58 to 25.92 years old), the present study examined the SCQ’s sensitivity versus specificity across a range of ages. We recommend that the cutoff scores for the SCQ be re-evaluated with age as a consideration. Lay Abstract The age neutrality of the Social Communication Questionnaire (SCQ) was examined as a common screener for ASD. Mixed findings have been reported regarding the recommended cutoff score’s ability to accurately classify an individual as at-risk for ASD (sensitivity) versus accurately classifying an individual as not at-risk for ASD (specificity). With a sample from the National Database for Autism Research, the present study examined the SCQ’s sensitivity versus specificity. Analyses indicated that the actual sensitivity and specificity scores were lower than initially reported by the creators of the SCQ. 3 / 339 Secondary Analysis Shared
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