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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Early Language Development within the Autism Spectrum
Susan Ellis-Weismer 
This project obtained behavioral data focused on early language and communication development in autism spectrum disorders (ASD). These data were obtained from a sample of young children residing in the state of Wisconsin. All children were between 2-3 years when enrolled in the research project and were continued to be seen annually for re-assessment.A multidisciplinary team of psychologists and speech-language pathologists conducted the evaluations at the Waisman Center on the University of Wisconsin-Madison campus. Data were collected from all children at 3 time points (2-3 years, 3-4 years, and 5-6 years)and from a subset of children at 4 time points (also 4-5 years).
NDAR
Closed
Shared
$2,631,949.00
97
170
129
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NIH - Extramural None


R01DC007223-01 Early Language Development Within the Autism Spectrum 07/01/2006 06/30/2011 170 129 UNIVERSITY OF WISCONSIN-MADISON $2,631,949.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Rev (ADI-R) Toddler 2006 Clinical Assessments 92
Autism Diagnostic Observation Schedule (ADOS) Toddler Clinical Assessments 43
Autism Diagnostic Observation Schedule (ADOS)- Module 1 Clinical Assessments 68
Autism Diagnostic Observation Schedule (ADOS)- Module 2 Clinical Assessments 47
Autism Diagnostic Observation Schedule (ADOS)- Module 3 Clinical Assessments 13
CPEA STAART MacArthur-Bates Words and Gestures Clinical Assessments 92
M-CHAT Clinical Assessments 97
MacArthur-Bates CDI - Words and Sentences Form Clinical Assessments 90
Mullen Scales of Early Learning Clinical Assessments 95
Peabody Picture Vocabulary Test, Fourth Edition-Form A Clinical Assessments 56
Preschool Language Scale, Fourth Edition (PLS-4) Clinical Assessments 97
Vineland-II - Survey Form (2005) Clinical Assessments 97

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
28004222Create StudyAuditory preference of children with autism spectrum disorders.Cognitive processingGilbertson LR, Lutfi RA, Ellis Weismer SMay 2017Not Determined
26936159Create StudyBrief Report: Ages of Language Milestones as Predictors of Developmental Trajectories in Young Children with Autism Spectrum Disorder.Journal of autism and developmental disordersKover ST, Edmunds SR, Ellis Weismer SMarch 2, 2016Not Determined
26381592Create StudyParent Telegraphic Speech Use and Spoken Language in Preschoolers With ASD.Journal of speech, language, and hearing research : JSLHRVenker CE, Bolt DM, Meyer A, Sindberg H, Ellis Weismer S, Tager-Flusberg HDecember 1, 2015Not Determined
26254475Create StudyUsing Spoken Language Benchmarks to Characterize the Expressive Language Skills of Young Children With Autism Spectrum Disorders.American journal of speech-language pathology / American Speech-Language-Hearing AssociationEllawadi AB, Ellis Weismer SNovember 1, 2015Not Determined
25832801Create StudyThe Autism Diagnostic Observation Schedule, Toddler Module: Standardized Severity Scores.Journal of autism and developmental disordersEsler AN, Bal VH, Guthrie W, Wetherby A, Ellis Weismer S, Lord CSeptember 2015Not Determined
25753577Create StudyPreschool language variation, growth, and predictors in children on the autism spectrum.Journal of child psychology and psychiatry, and allied disciplinesEllis Weismer, Susan; Kover, Sara TDecember 2015Not Determined
25093577Create StudyUse of the ADOS for assessing spontaneous expressive language in young children with ASD: a comparison of sampling contexts.Journal of speech, language, and hearing research : JSLHRKover ST, Davidson MM, Sindberg HA, Ellis Weismer SDecember 2014Not Determined
24687027Create StudyLexical characteristics of expressive vocabulary in toddlers with autism spectrum disorder.Journal of speech, language, and hearing research : JSLHRKover ST, Ellis Weismer SAugust 2014Not Determined
24129012Create StudyAssessing gestures in young children with autism spectrum disorder.Journal of speech, language, and hearing research : JSLHREllawadi AB, Ellis Weismer SApril 1, 2014Not Determined
24022730Create StudyCharacterization and prediction of early reading abilities in children on the autism spectrum.Journal of autism and developmental disordersDavidson MM, Ellis Weismer SApril 2014Not Determined
23942044Create StudyDevelopmental language disorders: challenges and implications of cross-group comparisons.Folia phoniatrica et logopaedica : official organ of the International Association of Logopedics and Phoniatrics (IALP)Ellis Weismer S2013Not Determined
23907710Create StudyTrajectories of autism severity in early childhood.Journal of autism and developmental disordersVenker CE, Ray-Subramanian CE, Bolt DM, Ellis Weismer SMarch 2014Not Determined
23696214Create StudyIndividual differences in the real-time comprehension of children with ASD.Autism research : official journal of the International Society for Autism ResearchVenker CE, Eernisse ER, Saffran JR, Ellis Weismer SOctober 2013Not Determined
23361917Create StudyBrief report: parent verbal responsiveness and language development in toddlers on the autism spectrum.Journal of autism and developmental disordersHaebig E, McDuffie A, Ellis Weismer SSeptember 2013Not Determined
22878512Create StudyThe contribution of two categories of parent verbal responsiveness to later language for toddlers and preschoolers on the autism spectrum.American journal of speech-language pathology / American Speech-Language-Hearing AssociationHaebig E, McDuffie A, Ellis Weismer SFebruary 2013Not Determined
22350337Create StudyReceptive and expressive language as predictors of restricted and repetitive behaviors in young children with autism spectrum disorders.Journal of autism and developmental disordersRay-Subramanian CE, Ellis Weismer SOctober 2012Not Determined
21061053Create StudyLexical and grammatical skills in toddlers on the autism spectrum compared to late talking toddlers.Journal of autism and developmental disordersEllis Weismer S, Gernsbacher MA, Stronach S, Karasinski C, Eernisse ER, Venker CE, Sindberg HAugust 2011Not Determined
20697794Create StudyBrief report: adaptive behavior and cognitive skills for toddlers on the autism spectrum.Journal of autism and developmental disordersRay-Subramanian CE, Huai N, Ellis Weismer SMay 2011Not Determined
20195735Create StudyEarly language patterns of toddlers on the autism spectrum compared to toddlers with developmental delay.Journal of autism and developmental disordersEllis Weismer S, Lord C, Esler AOctober 2010Not Determined
20189018Create StudyEffectiveness of intensive autism programmes.Lancet (London, England)Dawson M, Gernsbacher MAFebruary 2010Not Determined
18445736Create StudyA comparison of contexts for assessing joint attention in toddlers on the autism spectrum.Autism : the international journal of research and practiceRoos EM, McDuffie AS, Ellis Weismer S, Gernsbacher MAMay 2008Not Determined
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Child Development Inventory (CDI) info iconApproved
Research Subject and Pedigree info iconApproved
ADI-R info iconApproved
Preschool Language Scale (PLS) info iconApproved
ADOS info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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