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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

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Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Child-Initiated Interactions and Autism Intervention
Robert Koegel 
Data for a project to examine specific intervention components during language intervention and social communication.
NDAR
Closed
Shared
$739,435.00
3
60
29
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NIH - Extramural None


R34DC010924-01 Child-Initiated Communicative Interactions and Autism Intervention 09/11/2009 08/31/2011 60 29 UNIVERSITY OF CALIFORNIA SANTA BARBARA $739,435.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Observation Schedule (ADOS)- Module 1 Clinical Assessments 1
Autism Diagnostic Observation Schedule (ADOS)- Module 2 Clinical Assessments 3
CELF Preschool-2 Clinical Assessments 3
Demographics Clinical Assessments 3
Expressive One-Word Picture Vocabulary Test (2000) Clinical Assessments 3
Vineland-II - Survey Form (2005) Clinical Assessments 3

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
26520148Create StudyImproving Empathic Communication Skills in Adults with Autism Spectrum Disorder.Journal of autism and developmental disordersKern Koegel L, Ashbaugh K, Navab A, Koegel RLMarch 2016Not Determined
25953148Create StudyA Randomized Clinical Trial Comparison Between Pivotal Response Treatment (PRT) and Adult-Driven Applied Behavior Analysis (ABA) Intervention on Disruptive Behaviors in Public School Children with Autism.Journal of autism and developmental disordersMohammadzaheri, Fereshteh; Koegel, Lynn Kern; Rezaei, Mohammad; Bakhshi, EnayatolahSeptember 2015Not Relevant
25328380Create StudyImproving Social Engagement and Initiations between Children with Autism Spectrum Disorder and Their Peers in Inclusive Settings.Journal of positive behavior interventionsKoegel LK, Vernon T, Koegel RL, Koegel BL, Paullin AWOctober 2012Not Determined
25313271Create StudyAssessing and Improving Early Social Engagement in Infants.Journal of positive behavior interventionsKoegel L, Singh A, Koegel R, Hollingsworth J, Bradshaw JApril 2014Not Determined
24840596Create StudyA randomized clinical trial comparison between pivotal response treatment (PRT) and structured applied behavior analysis (ABA) intervention for children with autism.Journal of autism and developmental disordersMohammadzaheri F, Koegel LK, Rezaee M, Rafiee SMNovember 2014Not Determined
24671749Create StudyTraining paraprofessionals to improve socialization in students with ASD.Journal of autism and developmental disordersKoegel RL, Kim S, Koegel LKSeptember 2014Not Determined
24163577Create StudyUsing Perseverative Interests to Improve Interactions Between Adolescents with Autism and their Typical Peers in School Settings.Journal of positive behavior interventionsKoegel R, Fredeen R, Kim S, Danial J, Rubinstein D, Koegel LJuly 1, 2012Not Determined
24127164Create StudyUsing self-management to improve the reciprocal social conversation of children with autism spectrum disorder.Journal of autism and developmental disordersKoegel LK, Park MN, Koegel RLMay 2014Not Determined
24014174Create StudyImproving question-asking initiations in young children with autism using pivotal response treatment.Journal of autism and developmental disordersKoegel RL, Bradshaw JL, Ashbaugh K, Koegel LKApril 2014Not Determined
23526921Create StudyIs Medication Information for Children with Autism Spectrum Disorder Monitored and Coordinated Across Professionals? Findings from a Teacher Survey.School mental healthKoegel LK, Krasno AM, Taras H, Koegel RL, Frea WMarch 1, 2013Not Determined
23361918Create StudyImproving socialization for high school students with ASD by using their preferred interests.Journal of autism and developmental disordersKoegel R, Kim S, Koegel L, Schwartzman BSeptember 2013Not Determined
23292139Create StudyAcquisition of multiple questions in the context of social conversation in children with autism.Journal of autism and developmental disordersDoggett RA, Krasno AM, Koegel LK, Koegel RLSeptember 2013Not Determined
22645399Create StudyImproving generalization of peer socialization gains in inclusive school settings using initiations training.Behavior modificationKoegel LK, Kuriakose S, Singh AK, Koegel RLMay 2012Not Determined
22527708Create StudyAn early social engagement intervention for young children with autism and their parents.Journal of autism and developmental disordersVernon TW, Koegel RL, Dauterman H, Stolen KDecember 2012Not Determined
22478527Create StudyAntecedent stimulus control: using orienting cues to facilitate first-word acquisition for nonresponders with autism.The Behavior analystKoegel RL, Shirotova L, Koegel LKJanuary 2009Not Determined
22042309Create StudyUsing individualized reinforcers and hierarchical exposure to increase food flexibility in children with autism spectrum disorders.Journal of autism and developmental disordersKoegel RL, Bharoocha AA, Ribnick CB, Ribnick RC, Bucio MO, Fredeen RM, Koegel LKAugust 2012Not Determined
21336525Create StudyIssues and theoretical constructs regarding parent education for autism spectrum disorders.Journal of autism and developmental disordersSteiner AM, Koegel LK, Koegel RL, Ence WAJune 2012Not Determined
20946003Create StudyEffectiveness of a novel community-based early intervention model for children with autistic spectrum disorder.American journal on intellectual and developmental disabilitiesSmith IM, Koegel RL, Koegel LK, Openden DA, Fossum KL, Bryson SENovember 2010Not Determined
20221791Create StudyImproving motivation for academics in children with autism.Journal of autism and developmental disordersKoegel LK, Singh AK, Koegel RLSeptember 2010Not Determined
20148298Create StudyDefinitions of empirically supported treatment.Journal of autism and developmental disordersKoegel RL, Koegel LK, Camarata SMApril 2010Not Determined
19936908Create StudyBrief Report: Question-Asking and Collateral Language Acquisition in Children with Autism.Journal of autism and developmental disordersKoegel LK, Koegel RL, Green-Hopkins I, Barnes CCApril 2010Not Determined
19488847Create StudyBrief report: using individualized orienting cues to facilitate first-word acquisition in non-responders with autism.Journal of autism and developmental disordersKoegel RL, Shirotova L, Koegel LKNovember 2009Not Determined
19357942Create StudyImproving social initiations in young children with autism using reinforcers with embedded social interactions.Journal of autism and developmental disordersKoegel RL, Vernon TW, Koegel LKSeptember 2009Not Determined
15120538Create StudyMeasurements of auditory-verbal STM span in aphasia: effects of item, task, and lexical impairment.Brain and languageMartin N, Ayala JJune 2004Not Determined
8798330Create StudyLexical retrieval deficit in picture naming: implications for word production models.Brain and languageLaine M, Martin NJune 1996Not Determined
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Expressive One-Word Picture Vocabulary Test (2000) info iconApproved
Demographics info iconApproved
Clinical Evaluation of Language Fundamentals (CELF) info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Research Subject and Pedigree info iconApproved
ADOS info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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