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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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1 Numbers reported are subjects by age
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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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Shared

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General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

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The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

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For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Development of a Brief Screener for Research in Autism Spectrum Disorders
Cathy Lord, Ph. D. and Christopher Monk 
This collection contains phenotypic data from subjects diagnosed with ASD as well as subjects with non-ASD diagnoses.
NDAR
Closed
Shared
$996,692.00
768
5176
20
Loading Chart...
NIH - Extramural None


RC1MH089721-01 Development of a Brief Screener for Research in Autism Spectrum Disorders 09/30/2009 08/31/2011 5176 20 UNIVERSITY OF MICHIGAN $996,692.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview-Questionnaire Clinical Assessments 759
Child Behavior Checklist (CBCL) 6-18 Clinical Assessments 540
Conners Parent Rating Scales Revised (CPRS) 2002 Clinical Assessments 379
Demographics Clinical Assessments 767
Preschool Children Anxiety Scale Clinical Assessments 164
Repetitive Behavior Scale - Revised (RBS-R) Clinical Assessments 323
Social Responsiveness Scale (SRS) Clinical Assessments 410
Spence Children's Anxiety Scale Clinical Assessments 117
Vineland-II - Parent and Caregiver Rating Form (2005) Clinical Assessments 133
Vineland-II - Survey Form (2005) Clinical Assessments 405

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
27871640Create StudyMultidimensional Influences on Autism Symptom Measures: Implications for Use in Etiological Research.Journal of the American Academy of Child and Adolescent PsychiatryHavdahl KA, Hus Bal V, Huerta M, Pickles A, Øyen AS, Stoltenberg C, Lord C, Bishop SLDecember 2016Not Determined
27282463Create StudyThe autism symptom interview, school-age: A brief telephone interview to identify autism spectrum disorders in 5-to-12-year-old children.Autism research : official journal of the International Society for Autism ResearchBishop SL, Huerta M, Gotham K, Alexandra Havdahl K, Pickles A, Duncan A, Hus Bal V, Croen L, Lord CJune 2016Not Determined
27090613Create StudyUse of machine learning to improve autism screening and diagnostic instruments: effectiveness, efficiency, and multi-instrument fusion.Journal of child psychology and psychiatry, and allied disciplinesBone D, Bishop SL, Black MP, Goodwin MS, Lord C, Narayanan SSApril 19, 2016Not Determined
26788284Create StudyParent-reported and clinician-observed autism spectrum disorder (ASD) symptoms in children with attention deficit/hyperactivity disorder (ADHD): implications for practice under DSM-5.Molecular autismGrzadzinski R, Dick C, Lord C, Bishop S2016Not Determined
26748412Create StudySubdimensions of social-communication impairment in autism spectrum disorder.Journal of child psychology and psychiatry, and allied disciplinesBishop SL, Havdahl KA, Huerta M, Lord CJanuary 8, 2016Not Determined
26140652Create StudyUtility of the Child Behavior Checklist as a Screener for Autism Spectrum Disorder.Autism research : official journal of the International Society for Autism ResearchHavdahl KA, Von Tetzchner S, Huerta M, Lord C, Bishop SLJanuary 2016Not Determined
25832801Create StudyThe Autism Diagnostic Observation Schedule, Toddler Module: Standardized Severity Scores.Journal of autism and developmental disordersEsler AN, Bal VH, Guthrie W, Wetherby A, Ellis Weismer S, Lord CSeptember 2015Not Determined
25398894Create StudyA comparison of WISC-IV and SB-5 intelligence scores in adolescents with autism spectrum disorder.Autism : the international journal of research and practiceBaum KT, Shear PK, Howe SR, Bishop SLAugust 2015Not Determined
24275020Create StudyUnderstanding the gap between cognitive abilities and daily living skills in adolescents with autism spectrum disorders with average intelligence.Autism : the international journal of research and practiceDuncan AW, Bishop SLJanuary 2015Not Determined
23934941Create StudyA comparative study of variable selection methods in the context of developing psychiatric screening instruments.Statistics in medicineLu F, Petkova EFebruary 10, 2014Not Determined
23258569Create StudyExploring the relationship between anxiety and insistence on sameness in autism spectrum disorders.Autism research : official journal of the International Society for Autism ResearchGotham K, Bishop SL, Hus V, Huerta M, Lund S, Buja A, Krieger A, Lord CFebruary 2013Not Determined
23143131Create StudyStandardizing ADOS domain scores: separating severity of social affect and restricted and repetitive behaviors.Journal of autism and developmental disordersHus V, Gotham K, Lord COctober 2014Not Determined
23065116Create StudySubcategories of restricted and repetitive behaviors in children with autism spectrum disorders.Journal of autism and developmental disordersBishop SL, Hus V, Duncan A, Huerta M, Gotham K, Pickles A, Kreiger A, Buja A, Lund S, Lord CJune 2013Not Determined
23032385Create StudyApplication of DSM-5 criteria for autism spectrum disorder to three samples of children with DSM-IV diagnoses of pervasive developmental disorders.The American journal of psychiatryHuerta M, Bishop SL, Duncan A, Hus V, Lord COctober 2012Not Determined
22823182Create StudyFactors influencing scores on the social responsiveness scale.Journal of child psychology and psychiatry, and allied disciplinesHus V, Bishop S, Gotham K, Huerta M, Lord CFebruary 2013Not Determined
22729382Create StudyEffects of child characteristics on the Autism Diagnostic Interview-Revised: implications for use of scores as a measure of ASD severity.Journal of autism and developmental disordersHus V, Lord CFebruary 2013Not Determined
22486486Create StudyAnnual research review: re-thinking the classification of autism spectrum disorders.Journal of child psychology and psychiatry, and allied disciplinesLord C, Jones RMMay 2012Not Determined
22284796Create StudyDiagnostic evaluation of autism spectrum disorders.Pediatric clinics of North AmericaHuerta M, Lord CFebruary 2012Not Determined
20559336Create StudyBehavioural phenotyping assays for mouse models of autism.Nature reviews. NeuroscienceSilverman JL, Yang M, Lord C, Crawley JNJuly 2010Not Determined
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Social Responsiveness Scale (SRS) info iconApproved
Demographics info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
Autism Behavior Checklist (ABC) info iconApproved
Childhood Autism Rating Scale (CARS) info iconApproved
Research Subject and Pedigree info iconApproved
ADI-R info iconApproved
Conners info iconApproved
Preschool Children Anxiety Scale info iconApproved
Spence Childrens Anxiety Scale info iconApproved
Vineland (Parent and Caregiver) info iconApproved
ADOS info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

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