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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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The filters you have selected from various query interfaces will be stored here, in the 'Filter Cart'. The database will be queried using filters added to your 'Filter Cart', when multiple filters are defined, each will be executed using 'AND' logic, so with each filter that is applied the result set gets smaller.

From the 'Filter Cart' you can inspect each of the filters that have been defined, and you also have the option to remove filters. The 'Filter Cart' itself will display the number of filters applied along with the number of subjects that are identified by the combination of those filters. For example a GUID filter with two subjects, followed by a GUID filter for just one of those subjects would return only data for the subject that is in both GUID filters.

If you have a question about the filter cart, or underlying filters please contact the help desk at The NDA Help Desk

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1 Numbers reported are subjects by age
New Trial
New Project

Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

Please select an experiment type below

New Documentation

Please enter the name of the data structure to search or if your definition does not exist, please upload that definition so that it can be appropriately defined for submission. Multiple data structures may be associated with a single Data Expected entry. Please add only one data structure per assessment.

Please provide a reason for the requested submission exemption and the
time-frame during which the exemption will be active.
Shared

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

General

Title, investigators, and Collection Description may be edited along with the Collection Phase. For Collection Phase, the options Pre-enrollment, Enrollment, and Completed can be chosen allowing the Collection Owner to indicate the stage of data collection.

Funding Source

The ability to associate the funding source for the project is provided. For NIH funded grants, linkage to Project Reporter information (e.g. R01MH123456) is supported. Projects funded by others, including the URL of the project, are listed. Non NIH funded projects will become available here to link that data with the appropriate funding agency.

Supporting Documentation

Any documents related to the project may be uploaded clarifying the data or acquisition methods used may be uploaded and made available here. The default is to share these documents to the general public. An option to share only to qualified Researchers is also an option.

Clinical Trials

For clinical trials, the option to link to the clinical trial in clinicaltrials.gov is optionally provided.

Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
1/2 Development of a Screening Interview for Research Studies of ASD
Christoper Monk, Somer Bishop and Cathy Lord 
This collection contains phenotypic data on subjects diagnosed with ASD and subjects with non-ASD diagnoses.
NDAR
Closed
Shared
$2,018,679.00
457
420
20

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No Data Shared

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Chart Expander
NIH - Extramural None


R01HD065277-01 2/2 Development of a Screening Interview for Research Studies of ASD 09/29/2009 08/31/2011 180 Not Reported CINCINNATI CHILDRENS HOSP MED CTR $736,530.00
R01MH089390-01 1/2 Development of a Screening Interview for Research Studies of ASD 09/30/2009 08/31/2011 240 20 UNIVERSITY OF MICHIGAN $1,282,149.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
No records found.

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Interview, Revised (ADI-R) Clinical Assessments 402
Autism Diagnostic Interview-Screener Clinical Assessments 407
Autism Diagnostic Observation Schedule (ADOS) - Module 1 (2007) Clinical Assessments 82
Autism Diagnostic Observation Schedule (ADOS) - Module 2 (2007) Clinical Assessments 74
Autism Diagnostic Observation Schedule (ADOS)- Module 3 (2007) Clinical Assessments 242
Child Behavior Checklist (CBCL) 6-18 Clinical Assessments 401
Conners Parent Rating Scales Revised (CPRS) 2002 Clinical Assessments 377
DAS-II: Differential Ability Scales 2nd Ed. School Age Clinical Assessments 191
DAS-II:Differential Ability Scales 2nd Ed. Early Years Clinical Assessments 165
Demographics Clinical Assessments 410
Mullen Scales of Early Learning Clinical Assessments 61
Multidimensional Anxiety Scale for Children Parent and Self Clinical Assessments 59
Preschool Children Anxiety Scale Clinical Assessments 159
Repetitive Behavior Scale - Revised (RBS-R) Clinical Assessments 302
Social Responsiveness Scale (SRS) Clinical Assessments 367
Spence Children's Anxiety Scale Clinical Assessments 99
Vineland-II - Survey Form (2005) Clinical Assessments 402

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
27871640Create StudyMultidimensional Influences on Autism Symptom Measures: Implications for Use in Etiological Research.Journal of the American Academy of Child and Adolescent PsychiatryHavdahl KA, Hus Bal V, Huerta M, Pickles A, Øyen AS, Stoltenberg C, Lord C, Bishop SLDecember 2016Not Determined
27282463Create StudyThe autism symptom interview, school-age: A brief telephone interview to identify autism spectrum disorders in 5-to-12-year-old children.Autism research : official journal of the International Society for Autism ResearchBishop SL, Huerta M, Gotham K, Alexandra Havdahl K, Pickles A, Duncan A, Hus Bal V, Croen L, Lord CJune 2016Not Determined
27090613Create StudyUse of machine learning to improve autism screening and diagnostic instruments: effectiveness, efficiency, and multi-instrument fusion.Journal of child psychology and psychiatry, and allied disciplinesBone D, Bishop SL, Black MP, Goodwin MS, Lord C, Narayanan SSAugust 2016Not Determined
26908679Create StudyAutism Spectrum Disorder, Intellectual Disability, and Delayed Walking.PediatricsBishop SL, Thurm A, Farmer C, Lord CMarch 2016Not Determined
26788284Create StudyParent-reported and clinician-observed autism spectrum disorder (ASD) symptoms in children with attention deficit/hyperactivity disorder (ADHD): implications for practice under DSM-5.Molecular autismGrzadzinski R, Dick C, Lord C, Bishop S2016Not Determined
26748412Create StudySubdimensions of social-communication impairment in autism spectrum disorder.Journal of child psychology and psychiatry, and allied disciplinesBishop SL, Havdahl KA, Huerta M, Lord CAugust 2016Not Determined
26140652Create StudyUtility of the Child Behavior Checklist as a Screener for Autism Spectrum Disorder.Autism research : official journal of the International Society for Autism ResearchHavdahl KA, Von Tetzchner S, Huerta M, Lord C, Bishop SLJanuary 2016Not Determined
25534755Create StudyA genome-wide association study of autism using the Simons Simplex Collection: Does reducing phenotypic heterogeneity in autism increase genetic homogeneity?Biological psychiatryChaste, Pauline; Klei, Lambertus; Sanders, Stephan J; Hus, Vanessa; Murtha, Michael T; Lowe, Jennifer K; Willsey, A Jeremy; Moreno-De-Luca, Daniel; Yu, Timothy W; Fombonne, Eric; Geschwind, Daniel; Grice, Dorothy E; Ledbetter, David H; Mane, Shrikant M; Martin, Donna M; Morrow, Eric M; Walsh, Christopher A; Sutcliffe, James S; Lese Martin, Christa; Beaudet, Arthur L; Lord, Catherine; State, Matthew W; Cook Jr, Edwin H; Devlin, BernieMay 1, 2015Not Determined
24821083Create StudyModest impact on risk for autism spectrum disorder of rare copy number variants at 15q11.2, specifically breakpoints 1 to 2.Autism research : official journal of the International Society for Autism ResearchChaste P, Sanders SJ, Mohan KN, Klei L, Song Y, Murtha MT, Hus V, Lowe JK, Willsey AJ, Moreno-De-Luca D, Yu TW, Fombonne E, Geschwind D, Grice DE, Ledbetter DH, Lord C, Mane SM, Martin DM, Morrow EM, Walsh CA, Sutcliffe JS, State MW, Martin CL, Devlin B, Beaudet AL, et al.June 2014Not Determined
24802136Create StudyRumination and perceived impairment associated with depressive symptoms in a verbal adolescent-adult ASD sample.Autism research : official journal of the International Society for Autism ResearchGotham K, Bishop SL, Brunwasser S, Lord CJune 2014Not Determined
24639147Create StudyClassification of children with autism spectrum disorder by sensory subtype: a case for sensory-based phenotypes.Autism research : official journal of the International Society for Autism ResearchLane AE, Molloy CA, Bishop SLJune 2014Not Determined
24275020Create StudyUnderstanding the gap between cognitive abilities and daily living skills in adolescents with autism spectrum disorders with average intelligence.Autism : the international journal of research and practiceDuncan AW, Bishop SLJanuary 2015Not Determined
23934941Create StudyA comparative study of variable selection methods in the context of developing psychiatric screening instruments.Statistics in medicineLu F, Petkova EFebruary 10, 2014Not Determined
23746936Create StudyAdjusting head circumference for covariates in autism: clinical correlates of a highly heritable continuous trait.Biological psychiatryChaste P, Klei L, Sanders SJ, Murtha MT, Hus V, Lowe JK, Willsey AJ, Moreno-De-Luca D, Yu TW, Fombonne E, Geschwind D, Grice DE, Ledbetter DH, Lord C, Mane SM, Lese Martin C, Martin DM, Morrow EM, Walsh CA, Sutcliffe JS, State MW, Devlin B, Cook EH, Kim SJOctober 15, 2013Not Determined
23258569Create StudyExploring the relationship between anxiety and insistence on sameness in autism spectrum disorders.Autism research : official journal of the International Society for Autism ResearchGotham K, Bishop SL, Hus V, Huerta M, Lund S, Buja A, Krieger A, Lord CFebruary 2013Not Determined
23065116Create StudySubcategories of restricted and repetitive behaviors in children with autism spectrum disorders.Journal of autism and developmental disordersBishop SL, Hus V, Duncan A, Huerta M, Gotham K, Pickles A, Kreiger A, Buja A, Lund S, Lord CJune 2013Not Determined
23032385Create StudyApplication of DSM-5 criteria for autism spectrum disorder to three samples of children with DSM-IV diagnoses of pervasive developmental disorders.The American journal of psychiatryHuerta M, Bishop SL, Duncan A, Hus V, Lord COctober 2012Not Determined
22823182Create StudyFactors influencing scores on the social responsiveness scale.Journal of child psychology and psychiatry, and allied disciplinesHus V, Bishop S, Gotham K, Huerta M, Lord CFebruary 2013Not Determined
22361924Create StudySelf-reported autism symptoms in adults with autism spectrum disorders.Journal of autism and developmental disordersBishop SL, Seltzer MMNovember 2012Not Determined
22284796Create StudyDiagnostic evaluation of autism spectrum disorders.Pediatric clinics of North AmericaHuerta M, Lord CFebruary 2012Not Determined
21905802Create StudyConvergent validity of the Mullen Scales of Early Learning and the differential ability scales in children with autism spectrum disorders.American journal on intellectual and developmental disabilitiesBishop SL, Guthrie W, Coffing M, Lord CSeptember 2011Not Determined
21882361Create StudyThe autism diagnosis in translation: shared affect in children and mouse models of ASD.Autism research : official journal of the International Society for Autism ResearchBishop SL, Lahvis GPOctober 2011Not Determined
20559336Create StudyBehavioural phenotyping assays for mouse models of autism.Nature reviews. NeuroscienceSilverman JL, Yang M, Lord C, Crawley JNJuly 2010Not Determined

This tab provides a general status on the data expected to be shared. There are two types of data expected.

  1. By Relevant publications — Those publications that reported for the collection's grant and have a status of "relevant" for sharing are listed first. The grantee is expected to share the data specific to those publications using the NDA Study feature. If a publication is erroneously marked relevant, the PI should simply change the status. When sharing a study, only the outcome measures for the subjects/time-points are shared. Other data that have not met the share date, defined below, will remain embargoed. To initiate study creation, simply login, mark your publication as relevant and click on the link listed to begin.

  2. By Data Structure — The number of subjects expected, received and shared is provided. Investigators are expected to update the data that they are collecting, the initial submission date and initial share dates. The NIMH Data Archive shares data when those dates are met.

  3. Submission Exemption — Those with Administrative or Submission Access to the Collection may request an exemption for submission for a defined period by stating the reason and timeframe. Note that the program officer on the grant may review this request.


Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.

For those with privileges to edit the collection, it is possible to upload your data definitions using this interface. NDA support staff will then follow up with a harmonized data definition for you to use in providing additional data.

Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Peabody Picture Vocabulary Test, Fourth Edition info iconApproved
Mullen Scales of Early Learning info iconApproved
Child Behavior Checklist (CBCL) info iconApproved
Conners info iconApproved
DAS-II: Differential Ability Scales info iconApproved
Vineland (Parent and Caregiver) info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Research Subject and Pedigree info iconApproved
ADI-R info iconApproved
ADOS info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.