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NDAR provides a single access to de-identified autism research data. For permission to download data, you will need an NDAR account with approved access to NDAR or a connected repository (AGRE, IAN, or the ATP). For NDAR access, you need to be a research investigator sponsored by an NIH recognized institution with federal wide assurance. See Request Access for more information.

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Format should be in the following format: Activity Code, Institute Abbreviation, and Serial Number. Grant Type, Support Year, and Suffix should be excluded. For example, grant 1R01MH123456-01A1 should be entered R01MH123456

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General

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Collection Summary Collection Charts
Collection Title Collection Investigators Collection Description
Restricted Interests and Repetitive Behaviors in Autism
Gabriel Dichter 
Collection of a broad array of phenotyping measures in adolescents with high and low functioning autism spectrum disorders that exhibit repetitive behaviors and restricted interest sets
NDAR
Closed
Shared
$849,529.00
196
240
224
Loading Chart...
NIH - Extramural None


R01MH073402-01 RESTRICTED REPETITIVE BEHAVIOR IN AUTISM 07/13/2004 04/30/2008 240 224 NC STATE DEPT/HLTH & HUMAN SERVICES $849,529.00

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Experiments

To create a new Omics, eye tracking, fMRI, or EEG experiment, press the "+ New Experiment" button. Once an experiment is created, then raw files for these types of experiments should be provided, associating the experiment – through Experiment_ID – with the metadata defined in the experiments interface.

IDNameCreated DateStatusType
182Monetary and social incentive delay task with win and loss conditions11/25/2014ApprovedfMRI

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Shared Data

Data structures with the number of subjects submitted and shared are provided.

Autism Diagnostic Observation Schedule (ADOS) - Module 4 Clinical Assessments 50
Autism Diagnostic Observation Schedule (ADOS)- Module 1 Clinical Assessments 15
Autism Diagnostic Observation Schedule (ADOS)- Module 2 Clinical Assessments 8
Autism Diagnostic Observation Schedule (ADOS)- Module 3 Clinical Assessments 56
Image Imaging 54
Kaufman Brief Intelligence Test, 2nd Edition (KBIT-2) Clinical Assessments 194
Processed MRI Data Imaging 54
Repetitive Behavior Scale - Revised (RBS-R) Clinical Assessments 194
Research Subject Clinical Assessments 194
Social Communication Questionnaire (SCQ) - Current Form Clinical Assessments 194
Social Responsiveness Scale (SRS) Clinical Assessments 194

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Publications

Publications relevant to NDAR data are listed below. Most displayed publications have been associated with the grant within Pubmed. Use the "+ New Publication" button to add new publications. Publications relevant/not relevant to data expected are categorized. Relevant publications are then linked to the underlying data by selecting the Create Study link. Study provides the ability to define cohorts, assign subjects, define outcome measures and lists the study type, data analysis and results. Analyzed data and results are expected in this way.

PubMed IDStudyTitleJournalAuthorsDateStatus
27344337Create StudyLate Positive Potential ERP Responses to Social and Nonsocial Stimuli in Youth with Autism Spectrum Disorder.Journal of autism and developmental disordersBenning SD, Kovac M, Campbell A, Miller S, Hanna EK, Damiano CR, Sabatino-Dicriscio A, Turner-Brown L, Sasson NJ, Aaron RV, Kinard J, Dichter GSSeptember 2016Not Determined
26257684Create StudyIncreased reward value of non-social stimuli in children and adolescents with autism.Frontiers in psychologyWatson KK, Miller S, Hannah E, Kovac M, Damiano CR, Sabatino-Dicrisco A, Turner-Brown L, Sasson NJ, Platt ML, Dichter GSJanuary 2015Not Determined
25618212Create StudyNeural Mechanisms of Emotion Regulation in Autism Spectrum Disorder.Journal of autism and developmental disordersRichey, J Anthony; Damiano, Cara R; Sabatino, Antoinette; Rittenberg, Alison; Petty, Chris; Bizzell, Josh; Voyvodic, James; Heller, Aaron S; Coffman, Marika C; Smoski, Moria; Davidson, Richard J; Dichter, Gabriel SNovember 2015Not Relevant
25216048Create StudyFuture directions for research in autism spectrum disorders.Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53Damiano CR, Mazefsky CA, White SW, Dichter GS2014Not Determined
24951837Create StudySocial-cognitive, physiological, and neural mechanisms underlying emotion regulation impairments: understanding anxiety in autism spectrum disorder.International journal of developmental neuroscience : the official journal of the International Society for Developmental NeuroscienceWhite SW, Mazefsky CA, Dichter GS, Chiu PH, Richey JA, Ollendick THDecember 2014Not Determined
24563662Create StudyIntact Hedonic Responses to Sweet Tastes in Autism Spectrum Disorder.Research in autism spectrum disordersDamiano CR, Aloi J, Burrus C, Garbutt JC, Kampov-Polevoy AB, Dichter GSMarch 2014Not Determined
24485285Create StudyAssociation between the oxytocin receptor (OXTR) gene and mesolimbic responses to rewards.Molecular autismDamiano CR, Aloi J, Dunlap K, Burrus CJ, Mosner MG, Kozink RV, McLaurin RE, Mullette-Gillman OA, Carter RM, Huettel SA, McClernon FJ, Ashley-Koch A, Dichter GS2014Not Determined
24211371Create StudyRepetitive behavior profile and supersensitivity to amphetamine in the C58/J mouse model of autism.Behavioural brain researchMoy SS, Riddick NV, Nikolova VD, Teng BL, Agster KL, Nonneman RJ, Young NB, Baker LK, Nadler JJ, Bodfish JWFebruary 1, 2014Not Determined
23636715Create StudyFunctional neuroimaging of social and nonsocial cognitive control in autism.Journal of autism and developmental disordersSabatino A, Rittenberg A, Sasson NJ, Turner-Brown L, Bodfish JW, Dichter GSDecember 2013Not Determined
23226956Create StudyFunctional magnetic resonance imaging of autism spectrum disorders.Dialogues in clinical neuroscienceDichter GSSeptember 2012Not Determined
23223206Create StudyCommon and distinct neural features of social and non-social reward processing in autism and social anxiety disorder.Social cognitive and affective neuroscienceRichey JA, Rittenberg A, Hughes L, Damiano CR, Sabatino A, Miller S, Hanna E, Bodfish JW, Dichter GSMarch 2014Not Determined
22870328Create StudyAffective responses by adults with autism are reduced to social images but elevated to images related to circumscribed interests.PloS oneSasson NJ, Dichter GS, Bodfish JW2012Not Determined
22716264Create StudyEvidence for reciprocal interaction effects among adults with self-injury and their caregivers.American journal on intellectual and developmental disabilitiesWolff JJ, Clary J, Clay J, Harper VN, Bodfish JW, Symons FJMay 2012Not Determined
22639682Create StudyAge Trends in Visual Exploration of Social and Nonsocial Information in Children with Autism.Research in autism spectrum disordersElison JT, Sasson NJ, Turner-Brown LM, Dichter G, Bodfish JW2012-AprNot Determined
22187105Create StudyReward circuitry function in autism during face anticipation and outcomes.Journal of autism and developmental disordersDichter GS, Richey JA, Rittenberg AM, Sabatino A, Bodfish JWFebruary 2012Not Determined
21975037Create StudyFeasibility of exposure response prevention to treat repetitive behaviors of children with autism and an intellectual disability: a brief report.Autism : the international journal of research and practiceBoyd BA, Woodard CR, Bodfish JWMarch 2013Not Determined
21584849Create StudyEvidence-based behavioral interventions for repetitive behaviors in autism.Journal of autism and developmental disordersBoyd BA, McDonough SG, Bodfish JWJune 2012Not Determined
21475640Create StudyRelationships among Repetitive Behaviors, Sensory Features, and Executive Functions in High Functioning Autism.Research in autism spectrum disordersBoyd BA, McBee M, Holtzclaw T, Baranek GT, Bodfish JW2009-OctNot Determined
21454386Create StudyPhenomenology and measurement of circumscribed interests in autism spectrum disorders.Autism : the international journal of research and practiceTurner-Brown LM, Lam KS, Holtzclaw TN, Dichter GS, Bodfish JWJuly 2011Not Determined
21161576Create StudyEffects of a family-implemented treatment on the repetitive behaviors of children with autism.Journal of autism and developmental disordersBoyd BA, McDonough SG, Rupp B, Khan F, Bodfish JWOctober 2011Not Determined
21148176Create StudyReward circuitry function in autism spectrum disorders.Social cognitive and affective neuroscienceDichter GS, Felder JN, Green SR, Rittenberg AM, Sasson NJ, Bodfish JWFebruary 2012Not Determined
20499147Create StudyBrief report: Circumscribed attention in young children with autism.Journal of autism and developmental disordersSasson NJ, Elison JT, Turner-Brown LM, Dichter GS, Bodfish JWFebruary 2011Not Determined
20400311Create StudyDecreased static and dynamic postural control in children with autism spectrum disorders.Gait & postureFournier KA, Kimberg CI, Radonovich KJ, Tillman MD, Chow JW, Lewis MH, Bodfish JW, Hass CJMay 2010Not Determined
20178033Create StudyfMRI tracks reductions in repetitive behaviors in autism: two case studies.NeurocaseDichter GS, Sikich L, Mahorney S, Felder JN, Lam KS, Turner-Brown L, Bodfish JAugust 2010Not Determined
20049632Create StudyAffective modulation of the startle eyeblink and postauricular reflexes in autism spectrum disorder.Journal of autism and developmental disordersDichter GS, Benning SD, Holtzclaw TN, Bodfish JWJuly 2010Not Determined
19941908Create StudySocial deficits, stereotypy and early emergence of repetitive behavior in the C58/J inbred mouse strain.Behavioural brain researchRyan BC, Young NB, Crawley JN, Bodfish JW, Moy SSMarch 17, 2010Not Determined
19890707Create StudyPerformance of children with autism spectrum disorders on the dimension-change card sort task.Journal of autism and developmental disordersDichter GS, Radonovich KJ, Turner-Brown LM, Lam KS, Holtzclaw TN, Bodfish JWApril 2010Not Determined
19396536Create StudyGenerativity abilities predict communication deficits but not repetitive behaviors in Autism Spectrum Disorders.Journal of autism and developmental disordersDichter GS, Lam KS, Turner-Brown LM, Holtzclaw TN, Bodfish JWSeptember 2009Not Determined
19360648Create StudyChildren with autism demonstrate circumscribed attention during passive viewing of complex social and nonsocial picture arrays.Autism research : official journal of the International Society for Autism ResearchSasson NJ, Turner-Brown LM, Holtzclaw TN, Lam KS, Bodfish JWFebruary 2008Not Determined
19017031Create StudyEvidence for three subtypes of repetitive behavior in autism that differ in familiality and association with other symptoms.Journal of child psychology and psychiatry, and allied disciplinesLam KS, Bodfish JW, Piven JNovember 2008Not Determined
18566881Create StudyAge-related differences in restricted repetitive behaviors in autism spectrum disorders.Journal of autism and developmental disordersEsbensen AJ, Seltzer MM, Lam KS, Bodfish JWJanuary 2009Not Determined
18246419Create StudyBrief report: feasibility of social cognition and interaction training for adults with high functioning autism.Journal of autism and developmental disordersTurner-Brown LM, Perry TD, Dichter GS, Bodfish JW, Penn DLOctober 2008Not Determined
18068825Create StudyDevelopment of a mouse test for repetitive, restricted behaviors: relevance to autism.Behavioural brain researchMoy SS, Nadler JJ, Poe MD, Nonneman RJ, Young NB, Koller BH, Crawley JN, Duncan GE, Bodfish JWMarch 17, 2008Not Determined
17885801Create StudyBrief report: exposure and response prevention for obsessive compulsive disorder in a 12-year-old with autism.Journal of autism and developmental disordersLehmkuhl HD, Storch EA, Bodfish JW, Geffken GRMay 2008Not Determined
16997392Create StudyAnimal models of restricted repetitive behavior in autism.Behavioural brain researchLewis MH, Tanimura Y, Lee LW, Bodfish JWJanuary 10, 2007Not Determined
help.tab.dataexpected

Relevant Publications
PubMed IDStudyTitleJournalAuthorsDate
No records found.
help.tab.dataexpected.addnew
Data Expected
Data ExpectedTargeted EnrollmentInitial SubmissionSubjects SharedStatus
Repetitive Behavior Scale - Revised (RBS-R) info iconApproved
Kaufman Brief Intelligence Test info iconApproved
ADOS info iconApproved
Social Responsiveness Scale (SRS) info iconApproved
Social Communication Questionnaire (SCQ) info iconApproved
Research Subject and Pedigree info iconApproved
Processed MRI Data info iconApproved
Imaging (Structural, fMRI, DTI, PET, microscopy) info iconApproved
Structure not yet defined

Collection Owners and those with Collection Administrator permission, may edit a collection. The following is currently available for Edit on this page:

Associated Studies

Studies that have been defined using data from a Collection are important criteria to determine the value of data shared. The number of subjects column displays the counts from this Collection that are included in a Study, out of the total number of subjects in that study. The Data Use column represents whether or not the study is a primary analysis of the data or a secondary analysis. State indicates whether the study is private or shared with the research community.

Study Name Description Number of Subjects
Collection / Total
Data Use State
Revising the Social Communication Questionnaire scoring procedures for Autism Spectrum Disorder and potential Social Communication Disorder In analyzing data from the National Database for Autism Research, we examine revising the Social Communication Questionnaire (SCQ), a commonly used screening instrument for Autism Spectrum Disorder. A combination of Item Response Theory and Mokken scaling techniques were utilized to achieve this and abbreviated scoring of the SCQ is suggested. The psychometric sensitivity of this abbreviated SCQ was examined via bootstrapped Receiver Operator Characteristic (ROC) curve analyses. Additionally, we examined the sensitivity of the abbreviated and total scaled SCQ as it relates to a potential diagnosis of Social (Pragmatic) Communication Disorder (SCD). As SCD is a new disorder introduced with the fifth edition of the Diagnostic and Statistical Manual (DSM-5), we identified individuals with potential diagnosis of SCD among individuals with ASD via mixture modeling techniques using the same NDAR data. These analyses revealed two classes or clusters of individuals when considering the two core areas of impairment among individuals with ASD: social communication and restricted, repetitive patterns of behavior. 90 / 1021 Secondary Analysis Shared
Psychometric Analysis of the Social Communication Questionnaire Using an Item-Response Theory Framework: Implications for the Use of the Lifetime and Current Forms The Social Communication Questionnaire (SCQ) was developed as a screener of Autism Spectrum Disorder (ASD). To date, the majority of the SCQ utility studies focused on its external validity (e.g., ROC curve analyses), but very few have addressed the internal validity issues. With samples consisting of 2,134 individuals available from the National Database for Autism Research (NDAR), the current study examined the factor structure, item-level characteristics, and measurement equivalence of the SCQ forms (i.e., Lifetime form and Current form) using both the classical true score theory and the item response theory (IRT). While our findings indicate sufficient psychometric properties of the SCQ Lifetime form, measurement issues emerged with respect to the SCQ Current form. These issues include lower internal consistencies, a weaker factor structure, lower item discriminations, significant pseudo-guessing effects, and subscale-level measurement bias. Thus, we caution researchers and clinicians about the use of the SCQ Current form. In particular, it seems inappropriate to use the Current form as an alternative to the Lifetime form among children younger than 5 years old or under other special situations (e.g., teacher-report data), although such practices were advised by the publisher of the SCQ. Instead, we recommend modifying the wording of the Lifetime form items rather than switching to the Current form where a 3-month timeframe is specified for responding to SCQ items. Future studies may consider investigating the association between the temporality of certain behaviors and the individual’s potential for being diagnosed with ASD, as well as the age neutrality of the SCQ. 59 / 2134 Secondary Analysis Shared
The Sensitivity and Specificity of the Social Communication Questionnaire for Autism Spectrum Disorder with Respect to Age Scientific Abstract The Social Communication Questionnaire (SCQ) assesses communication skills and social functioning in screening for symptoms of autism-spectrum disorder (ASD). The SCQ is recommended for individuals between 4 to 40 years with a cutoff score of 15 for referral. Mixed findings have been reported regarding the recommended cutoff score’s ability to accurately classify an individual as at-risk for ASD (sensitivity) versus an individual as not at-risk for ASD (specificity). Based on a sample from the National Database for Autism Research (n=344; age: 1.58 to 25.92 years old), the present study examined the SCQ’s sensitivity versus specificity across a range of ages. We recommend that the cutoff scores for the SCQ be re-evaluated with age as a consideration. Lay Abstract The age neutrality of the Social Communication Questionnaire (SCQ) was examined as a common screener for ASD. Mixed findings have been reported regarding the recommended cutoff score’s ability to accurately classify an individual as at-risk for ASD (sensitivity) versus accurately classifying an individual as not at-risk for ASD (specificity). With a sample from the National Database for Autism Research, the present study examined the SCQ’s sensitivity versus specificity. Analyses indicated that the actual sensitivity and specificity scores were lower than initially reported by the creators of the SCQ. 3 / 339 Secondary Analysis Shared
* Data not on individual level
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